Black Health Matters https://blackhealthmatters.com/ Black Health Matters, News, Articles, Stats, Events Tue, 17 Feb 2026 20:55:52 +0000 en-US hourly 1 https://wordpress.org/?v=6.9.1 https://blackhealthmatters.com/wp-content/uploads/2022/03/favicon.png Black Health Matters https://blackhealthmatters.com/ 32 32 Reverend Jesse Jackson, a Civil Rights Legend, Has Passed Away https://blackhealthmatters.com/reverend-jesse-jackson-a-civil-rights-legend-has-passed-away/ Tue, 17 Feb 2026 20:55:52 +0000 https://blackhealthmatters.com/?p=65806 The Reverend Jesse Louis Jackson, Sr., who worked with Dr. Martin Luther King, founded the Rainbow PUSH Coalition and ran twice for the Democratic nomination for the United States presidency, […]

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The Reverend Jesse Louis Jackson, Sr., who worked with Dr. Martin Luther King, founded the Rainbow PUSH Coalition and ran twice for the Democratic nomination for the United States presidency, died on February 17, 2026. The 84-year-old passed away at home surrounded by loved ones. A cause of death has not been disclosed. However, Reverend Jackson believed he had Parkinson’s disease; he had been misdiagnosed. He later learned he had progressive supranuclear palsy, a rare brain disease that affects walking, balance, eye movements, and swallowing.

His family confirmed via an announcement, which read in part:

“Our father was a servant leader—not only to our family, but to the oppressed, the voiceless, and the overlooked around the world,” said the Jackson family. We shared him with the world, and in return, the world became a part of our extended family. His unwavering belief in justice, equality, and love uplifted millions, and we ask you to honor his memory by continuing the fight for the values he lived by.”

 

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A post shared by Rainbow PUSH Coalition (@rainbowpush)

A Son of the South

He was born Jesse Louis Burns in Greenville, South Carolina, on October 8, 1941, to Helen Burns, 16, and Noah Louis Robinson, a married man who lived next door. His mother married Charles Jackson, and he was eventually adopted. He didn’t live with any of his parents and was reared by his grandmother in a shotgun shack, according to the New York Times.

Jackson earned a football scholarship to the University of Illinois Urbana-Champaign, but only stayed a year because of the racism he had to endure. He transferred to North Carolina Agricultural and Technical State University (NC A&T), a historically Black institution in Greensboro, a year after the historic Woolworth’s lunch counter protest in 1960. He was a leader in his fraternity and the student body president. While there, he met and married a fellow student, Jacqueline Lavania Brown.

Becoming a Civil Rights Leader and a Minister

While still a student at NC A&T, Jackson led a protest of hundreds of students through downtown Greensboro. He was arrested the following day, and many believe that was the beginning of his activism. After graduating, he shifted his interest from law to ministry and enrolled at the Chicago Theological Seminary.

But witnessing the beating of protesters in Selma, Alabama, on television in March 1965, spurred him into action. He enlisted students and faculty to join in on a trip to Alabama. There, he met Dr. King and offered to work with the Southern Christian Leadership Conference (SCLC).

By age 24, he was the youngest member of the SCLC and was leading the Chicago chapter of Operation Breadbasket. “The program favored negotiation with business leaders, but when employers refused or backed out of hiring agreements, hundreds of participating ministers headed for their pulpits, according to a Chicago Public Library blog on the program. This led to several “Don’t Buy” (short for “Don’t Buy Where You Can’t Work”) picketing campaigns outside of supermarkets.” Reverend Jackson withdrew from seminary six months before completing his degree to devote his efforts to Dr. King and the Civil Rights Movement (he was later ordained). Reverend Jackson was among those present at the Lorraine Hotel in Memphis when Dr. King was assassinated in April 1968.

He Ran for President Twice

In the 1970s, Reverend Jackson became more widely known as a gifted orator. With his signature call-and-response, “I am Somebody!” He formed the PUSH Coalition, focused on improving economic conditions in the Black community. In 1984, after his first unsuccessful bid for the Democratic presidential nomination, he created the National Rainbow Coalition to fight for equal rights for all. He used his mission as a rallying cry for his speech at the 1988 Democratic convention, where he came in second. His “Keep Hope Alive”  speech called for social justice and unity. The two organizations merged in 1996 to become the Rainbow PUSH Coalition.

 

 

Jackson Continued to Fight for Civil Rights into His Later Years

Reverend Jackson’s life and career weren’t without controversy, including the revelation that he fathered a child with one of his staffers. However, he continued to fight for equality and justice well into his later years, even after he announced his health diagnosis of Parkinson’s in November 2017. He was arrested four years later during protests in our nation’s capital against voting restrictions that Republicans pushed. He officially retired from his role at the Rainbow PUSH Coalition in 2023.

A Larger-Than-Life Legacy

Reverend Jackson has left an indelible mark on this nation that we will not forget. In 2000, President Bill Clinton awarded him the Presidential Medal of Freedom. He is survived by his wife, Jacqueline; their children, Santita, Jesse Jr., Jonathan, Yusef, and Jacqueline; his daughter, Ashley Jackson; and his grandchildren. Our condolences go out to his family.

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Reverend Jesse Jackson, a Civil Rights Legend, Has Passed Away - Black Health Matters The Reverend Jesse Louis Jackson, Sr., who founded the Rainbow PUSH Coalition and ran twice for presidency has died. Reverend Jesse Jackson
The Body Knows: Two Mothers Who Survived the Unthinkable https://blackhealthmatters.com/the-body-knows-two-mothers-who-survived-the-unthinkable/ Tue, 17 Feb 2026 19:16:57 +0000 https://blackhealthmatters.com/?p=65746 Motherhood is often framed as a new chapter, a deepening of identity, and the arrival of a love unlike any other. For two women, Anjellica Davis and Erin Adelekun, childbirth […]

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Motherhood is often framed as a new chapter, a deepening of identity, and the arrival of a love unlike any other. For two women, Anjellica Davis and Erin Adelekun, childbirth did not usher in a gentle transition into motherhood. It opened the door to medical crises they never imagined. Within days of delivering their babies, both found themselves fighting for their lives.

Their stories reveal how easily postpartum symptoms are dismissed and how fiercely Black women must trust their intuition to survive.

The Clue Hidden in Anjellica’s Breathing

Shortly after giving birth, Anjellica Davis began noticing changes she could not explain. Walking across a room left her breathless. Climbing stairs felt impossible. Even talking took effort. She was exhausted in a way that rest did not touch, and her chest carried a heaviness she could not shake. Her body felt unfamiliar.

She tried to fold it into the story of new motherhood. New mothers are tired. New mothers swell. New mothers push through. She kept pushing because she did not want to seem dramatic or ungrateful for motherhood. But her body kept insisting that something was wrong.

“I kept telling myself it was normal postpartum exhaustion, but deep down I knew something was off.”

Postpartum cardiomyopathy is often mistaken for the fatigue of new motherhood. It is a form of heart failure that disproportionately affects Black women and can be deadly when overlooked. Anjellica spent weeks questioning herself before someone close to her finally said what she had been afraid to admit. This is not normal, and you need help.

Motherhood in Survival Mode

When doctors told Anjellica that her heart was failing, her world shifted. Medication was not enough, and a transplant was becoming the best option.

She had just become a mother, and suddenly she fought to stay alive. Grief threaded through every part of her life, grief for the postpartum experience she imagined, the body she trusted, and fear of a future she might never reach.

“I did not have the luxury of processing it,” she says. “I was in survival mode. I was trying to be present for my baby while facing the possibility that I might not be here to raise him.”

Her son became her anchor, giving her something to hold onto on the hardest days.

A New Understanding of Maternal Health

Anjellica’s experience reshaped her understanding of maternal health and the inequities Black women face. “Black women are often not heard quickly enough,” she says.

“Symptoms are minimized. Pain is normalized. Exhaustion is dismissed. If I had not pushed and questioned, my outcome could have been very different.”

She now sees maternal health not just as a medical issue but as an equity issue, and she speaks openly about listening to your body, advocating for yourself, and trusting the intuition so many new mothers are taught to ignore. If something feels wrong, it probably is.

Erin’s Mysterious Headache

Erin Adelekun’s story begins with a headache she rated a six or seven out of ten. She blamed it on exhaustion. She had just given birth, was up every two hours feeding her daughter, and was barely sleeping. Her pregnancy had been healthy. She had no high blood pressure and no complications.

A stroke was not even a possibility in her mind.

“I didn’t know a stroke could happen to someone like me.”

When she mentioned the headache at discharge, the doctor told her to take Tylenol. COVID protocols pushed hospitals to send patients home quickly, and staff believed going home posed less risk than staying. She trusted that if something were wrong, someone would say so.

The next day, her arm dropped and her words tangled. Something inside her went still. And then she remembered a stress ball she had been given, the one printed with four letters she barely noticed at the time: F.A.S.T.

Face. Arm. Speech. Time.

She had glanced at it once and moved on. Now those letters snapped into place. They told her exactly what was happening. She was having a stroke.

That moment of recognition is what saved her life.

Relearning Life While Raising a Newborn

Erin’s stroke left her with aphasia, a condition that kept her mind sharp while her words slipped out of reach. She knew exactly what she wanted to say, yet the connection between thought and speech felt broken. So, she learned to communicate in new ways, relying on gestures, communication charts, long pauses, and a patience she never expected to need.

Conversations became slower, heavier, something she had to work her way through rather than speak.

“I was a born communicator who could not communicate,” she says. “It was frustrating and humbling.”

She needed full-time care for two years. The loss of independence cut deep, and even though she had survived something many do not, she still felt like she had failed.

“I went from giving birth to needing full-time care myself.”

Her village carried her through. Her husband, family, and friends cared for her daughter while her therapists helped her relearn how to walk and talk.

Finding Her Voice Again

Aphasia reshaped Erin’s relationship with communication. She learned to speak up in medical settings and to trust her body. She also learned that being quiet can be dangerous.

“I do not minimize my symptoms anymore,” she says.

“If something feels off, I say it clearly. I do not sugarcoat it.”

She now teaches others the signs of stroke. She teaches her children and her community because she knows firsthand that knowledge is survival.

What Survival Looks Like Now

For both women, survival is not a single moment but a daily practice that lives in their bodies, their spirits, and the choices they make to keep going.

Anjellica protects her heart with rest, boundaries, and a long view of her health. “Surviving changed everything,” she says. “Motherhood now includes boundaries, grace, and listening to my body without guilt.”

Erin stays anchored through her appointments, her medication, her movement, and her peace. “Taking care of myself is part of taking care of my daughter,” she says.

Their stories are both warnings and reminders. They show how urgently the world must listen to Black women when they speak about their health, how deeply postpartum care must reach beyond delivery, and how community and medicine together shape survival.

And they show, without question, that when Black women say something feels off, the world must not ignore them.

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Where Women Live Impacts Their Health: Here Are The 10 Best States https://blackhealthmatters.com/where-women-live-impacts-their-health-here-are-the-10-best-states/ Wed, 11 Feb 2026 16:39:05 +0000 https://blackhealthmatters.com/?p=65755 Where a woman lives plays a critical role in her health outcomes. It shapes her access to healthcare, safety, and overall quality of life. A new analysis from the nonprofit […]

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Where a woman lives plays a critical role in her health outcomes. It shapes her access to healthcare, safety, and overall quality of life. A new analysis from the nonprofit SmileHub ranked all 50 states on women’s health using a composite score out of 100 based on health and living standards, health care policies, support systems, and safety. These rankings reveal how states balance policy, access to care, and real-world conditions that affect women’s well-being.

For Black women, the Social Determinants of Health are a contributing factor that we should not ignore. Residential segregation is a fundamental cause of racial health disparities, operating through many social institutions (including labor markets and education) to affect health. These are key reasons we have a shorter life expectancy, a higher maternal mortality rate, and a higher disease burden.

1. Massachusetts (Total Score of 75.80)

Massachusetts ranks first overall, driven by its top health and living standards and a strong health care infrastructure, despite a slightly lower safety ranking.

Boston downtown city skyline over the sea, with urban skyscrapers in the morning, a cloudy sky, and a boat.

2. Connecticut (74.60)Connecticut’ss high placement is largely due to its strong safety ranking (2nd) and solid performance on health and living standards, even as its health care policy ranking trails those of other states.

3. Hawaii (74.43)

Hawaii ranks highly (2nd) for health and living standards, reflecting strong preventive care, though geographic barriers can affect access to services.

Aerial shot off the coast over Tunnels beach on the Hawaiian island of Kauai with Na Pali mountains behind

4. New York (72.02)

New York stands out for its health care policies and support systems (3rd).

A Central Park in Manhattan, New York, a huge, beautiful park surrounded by skyscrapers, with a pond

5. Vermont (70.85)

Vermont ranks 1st in health care policies and support systems, yet its lower safety ranking underscores the need to address community-level conditions alongside policy.

Lake with Autumn foliage and mountains with reflection in New England, Stowe

6. Minnesota (69.40)

Minnesota performs consistently across categories, though safety remains an area for improvement.

7. New Jersey (68.76)

New Jersey ranks first in safety, a major factor in its overall standing. Yet it ranks lower in health care policies and support systems.

8. California (68.64)California’ss ranking reflects a mix of strong health protections and ongoing challenges related to access, affordability, and regional disparities.

An aerial shot of downtown Los Angeles at night

9. New Hampshire (68.53)

New Hampshire ranks in the top 10 with consistent performance across all categories, particularly in health and living standards.

10. Maryland (68.04)

Maryland benefits from a strong health infrastructure and a high safety ranking, though its health care policy ranking remains mid-range.

11. Washington (65.73)

Washington scores well in health and living standards but falls behind in safety, which underscores the need for more violence prevention inwomen’ss health.

12. Rhode Island (63.39)

Rhode Island maintains moderate rankings across all categories with opportunities to strengthen women-centered health services.

13. Pennsylvania (63.13)Pennsylvania’ss strong health care policy ranking (10th) boosts its overall placement.

Aerial view of the downtown Philadelphia city skyline, cityscape of Pennsylvania in the USA

14. Wisconsin (62.94)

Wisconsin performs well in health care policy but struggles with safety and living standards, which ultimately reflects gaps between policy and lived experiences.

15. Colorado (62.25)

Colorado ranks in the top 15, with high health and living standards (3rd), but significantly lower safety (46th).

What the Rankings Show: SmileHub’s analysis highlights that women’s health depends on more than health care access alone. States that rank highest tend to have strong policies, high-quality care, and safe living environments. It is important to note that gaps in any area can significantly impact overall rankings and outcomes.

Notably, the analysis exposes regional gaps across the country. In particular, all five lowest-ranking states are located in the South or the greater Southern region.

These states include:

  • Tennessee (33.94)
  • Texas (33.89)
  • West Virginia (33.84)
  • Arkansas (30.80)
  • Oklahoma (30.58)

This geographic pattern reflects long-standing structural challenges commonly seen across parts of the South. This can include limited access to health care providers, historically lower investment in public health infrastructure, higher poverty rates, and more restrictive health care policies. These factors are rooted in the SDOH, which contribute to poorer outcomes for women and produce barriers to safe, affordable, and comprehensive care.

No matter where we live, we have a right to quality healthcare.

 

Resources

Best States for Women’s Health

Journal ofWomen’ss Health

New American Better Life Lab Collection

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Boston downtown with boat Boston downtown city skyline over sea with urban skyscrapers in the morning with cloudy sky and boat. Aerial drone shot of Tunnels Beach on the north shore of Kauai in Hawaii Aerial shot off the coast over Tunnels beach on Hawaiian island of Kauai with Na Pali mountains behind Central Park in Manhattan, New York, a huge beautiful park surrounded by skyscraper with a pond A Central Park in Manhattan, New York, a huge beautiful park surrounded by skyscraper with a pond Lake Autumn Foliage Lake with Autumn foliage and mountains with reflection in New England Stowe Aerial shot of downtown Los Angeles at night An aerial shot of downtown Los Angeles at night Downtown Philadelphia city skyline, cityscape of Pennsylvania Aerial view of Downtown Philadelphia city skyline, cityscape of Pennsylvania in USA
10 Things Black and Brown Women Need to Know About Heart Disease https://blackhealthmatters.com/10-things-black-and-brown-women-need-to-know-about-heart-disease/ Tue, 10 Feb 2026 21:26:54 +0000 https://blackhealthmatters.com/?p=65759 Heart disease is the leading cause of death for Black and Brown women—yet many don’t know their unique risks. These ten facts highlight what every woman of color should understand […]

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Heart disease is the leading cause of death for Black and Brown women—yet many don’t know their unique risks. These ten facts highlight what every woman of color should understand to protect her heart and health better.

Number 1: It’s The Silent Killer

Heart disease is known as the silent killer, and cardiovascular disease kills more women than all forms of cancer combined. Yet only 44% of women recognize that cardiovascular disease is their greatest health threat.

Number 2: All Ages Are Impacted by Heart Disease

Heart disease is not something that only impacts older adults; it can impact us at any age. In fact,  59% percent of Black women ages 20 and over are living with some form of cardiovascular disease.

Number 3: Your Weight Can Be a Factor

Almost 57% of Black women have obesity, making them the highest percentage among all racial, ethnic, and sex groups. Excess weight can strain the heart, raise cholesterol, and increase inflammation, ultimately making it a major driver of heart disease.

Number 4: Undiagnosed Diabetes Increases Your Chances of Heart Disease

Black women are more likely to have undiagnosed diabetes. High blood sugar damages blood vessels over time, which accelerates plaque buildup and sharply increases the risk of heart disease.

Number 5: We Are at a Higher Risk of Strokes

Stroke prevalence is highest among Black women (5.4%) compared with all women (2.9%). Stroke and heart disease share the same underlying issues of having blocked or damaged blood vessels. This means high stroke rates signal elevated cardiovascular risk overall.

Number 6: Hypertension is a Contributing Factor

When was the last time you checked your blood pressure? 4% of Black women have high blood pressure, one of the highest rates worldwide. Hypertension forces the heart to work harder, weakens arteries, and is the leading cause of heart attacks and heart failure.

Number 7: Giving Birth Puts You at an Increased Risk

Cardiovascular disease is the 1 killer of new moms and accounts for over one-third of maternal deaths. Black women have some of the highest maternal mortality rates.

Number 8: Preeclampsia & Gestational Diabetes Are Also Factors

If you have high blood pressure, preeclampsia, or gestational diabetes during pregnancy, it greatly increases a woman’s risk for developing cardiovascular disease later in life.

Number 9: Lower Estrogen Levels in Menopause

Low estrogen, particularly during menopause, increases heart disease risk in Black women by reducing cardiovascular protection, leading to higher LDL (“bad”) cholesterol, increased blood pressure, artery stiffening, and greater inflammation.

Number 10: Women May Not Receive CPR

Women are often less likely to receive bystander CPR because rescuers often fear accusations of inappropriate touching, sexual assault, or injuring the victim.

Knowing your risk is the first step to prevention. Use these facts to start conversations, make informed choices, and take control of your heart’s health. By making small changes today, you can protect your future and live a heart-healthy lifestyle. Click here to learn more.

Sources:

Heart Disease and Black Women: Risk, Factors, Prevention Strategies

Heart Disease and Stroke in Black Women

Unsettling Risk of Heart Disease in Black Women

Working Together to Reduce Black Maternal Mortality

Facts | Go Red For Women

A Heart to Heart About Cardiovascular Disease

The TRUTH about  African American Women and Heart Disease

Diabetes and Heart Disease

Risk Factors in Women

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Kid ‘n Play‘s Christopher Reid Reveals He Had a Heart Transplant https://blackhealthmatters.com/kid-n-plays-christopher-reid-reveals-he-had-a-heart-transplant/ Fri, 06 Feb 2026 18:50:52 +0000 https://blackhealthmatters.com/?p=65719 In an interview with Michael Strahan on “GMA” on February 5th, Christopher “Kid” Reid, of the rap duo Kid ‘n Play and co-star of the House Party movies, disclosed that […]

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In an interview with Michael Strahan on “GMA” on February 5th, Christopher “Kid” Reid, of the rap duo Kid ‘n Play and co-star of the House Party movies, disclosed that he had a heart transplant last summer. The 61-year-old, once known for his high-top fade, learned that he was suffering from congestive heart failure last summer, and the condition was impacting his other organs.

What is Congestive Heart Failure?

According to the Mayo Clinic, heart failure, also known as congestive heart failure, occurs when the heart muscle doesn’t pump blood as well as it should. When this happens, blood often backs up and fluid can build up in the lungs, causing shortness of breath. If you have CHF, your heart can’t supply enough blood to meet your body’s needs.

When asked about his initial symptoms, Reid said, “Maybe over the last year or so, I started to feel more fatigued than before. And then when you feel that shortness of breath, sleeping a lot, more than normal…I think you just chalk it up to getting older, the road is harsh, doing the old kick step.”

In July 2025, the Class Act actor’s symptoms worsened, which led him to the emergency room at Cedars-Sinai Hospital in Los Angeles. where he received the shocking diagnosis. Other symptoms can include:

  • Shortness of breath with activity or when lying down.
  • Fatigue and weakness.
  • Swelling in the legs, ankles, and feet.
  • Rapid or irregular heartbeat.
  • Reduced ability to exercise.
  • Wheezing.
  • A cough that doesn’t go away or a cough that brings up white or pink mucus with spots of blood.
  • Swelling of the belly area.
  • Very rapid weight gain from fluid buildup.
  • Nausea and lack of appetite.
  • Difficulty concentrating or decreased alertness.
  • Chest pain if heart failure is caused by a heart attack.

The American Heart Association reports that having at least one of the following risk factors may increase the risk of developing the condition. They include coronary artery disease, high blood pressure, type 2 diabetes, thyroid problems, metabolic syndrome, and getting older.

The Initial Treatment Prescribed for Reid Didn’t Work

Treatment for congestive heart failure often involves lifestyle changes and medications. Initially, Reid was given medication to treat his condition. When he returned for a three-week follow-up with his cardiologist, Dr. Erika Jones, she was immediately concerned. “He came in very swollen again, and that is a little unusual in somebody who’s been started on treatment, for the swelling to come back that quickly,” she told “GMA.”

Although he was scheduled to go out of town for a gig, Reid cancelled to undergo further testing. The results confirmed that his heart was failing and his condition was also impacting other organs. Dr. Jones urged him to return to Cedars-Sinai’s emergency room, where he was placed in the ICU.

A Heart Transplant Was His Only Option

The rapper learned his condition was quite serious, and he was placed on a transplant waiting list. Cardiothoracic surgeon, Dr. Laura Dichiacchio, told GMA the waiting list was crucial because Reid was in a life-or-death situation. He received a transplant nine days later.

Reid said he plans to cherish his second chance at life, saying, “This thing is … a beautiful life. It’s great. And, you know, I wanna be around for it.”

He also wants to encourage people of color to put their health first, a message that applies to his brothers in hip-hop, who often leave us too early. The American Heart Association says Black adults account for 50% of heart failure hospitalizations among US adults under 50.

Resources

Mayo Clinic: Heart Failure

American Heart Association: Causes  and Risks For Heart Failure

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Could Exercise Squash Menopause’s Side Effects? Halle Berry’s Company Thinks So https://blackhealthmatters.com/could-exercise-squash-menopauses-side-effects-halle-berrys-company-thinks-so/ Fri, 06 Feb 2026 16:36:16 +0000 https://blackhealthmatters.com/?p=65681 Menopause brings mountains of challenges. Brain fog, extreme fatigue, and memory loss are just a few of the symptoms facing those experiencing this process. Hormone therapy is the most effective […]

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Menopause brings mountains of challenges. Brain fog, extreme fatigue, and memory loss are just a few of the symptoms facing those experiencing this process. Hormone therapy is the most effective way to face menopause struggles, but it is not the only option. Exercise has been proven to help reduce severe menopause symptoms.

It can be used in conjunction with other therapies or make a significant impact on its own when used consistently, so it might be smart to pull out the kicks in addition to the patches.

Here’s Why Repin and Peloton Have Partnered

The innovative fitness platform Peloton and Respin Health, a menopause-centered wellness platform founded by Academy Award-winning actress Halle Berry, partnered on a recent study to assess whether sweating could relieve menopause symptoms. The ‘P.R.E.S.S.’ study ran for eight weeks and used a holistic approach to evaluating participants.

It included results from 267 Peloton members aged 40 to 65 who received personalized plans to manage their health during this period. These plans accounted for their schedules rather than overwhelming them. Customization is central to both companies’ offerings.

The workouts ranged from using the iconic Peloton stationary bike to hiking, boxing, and other forms of movement. Flexibility put participants in control of how they presented.

There is No Such Thing as a Menopause Workout

“There’s not a single magic menopause workout, and you don’t have to do it ‘perfectly’— we saw improvements across the board, without perfect adherence or strict protocols,” Elizabeth Knight, Head of Science & Research at Respin Health, told Black Health Matters in a statement.

Those who reported being tired and worn out showed a 26% improvement in their symptoms. Brain fog decreased by 34% among participants. Weight gain was reduced by 41%.  

How Menopause Impacts Black Women Differently

Black women are particularly vulnerable to severe menopause symptoms, according to a 2025 survey in Preventive Medicine Reports. “African American women have an earlier onset and increased burden of menopause symptoms, including vasomotor symptoms,” according to the American Journal of Public Health.

Halle Berry Has Become a Strong Advocate for Menopause Research

Berry has been a strong advocate in the fight against menopause related suffering. She supported a bill to increase the limited research funding for menopause and to educate healthcare professionals on the topic. She works to decrease the stigma surrounding the subject. “Women talk about puberty, periods, pregnancy, and postpartum, but not menopause. We don’t talk about heart palpitations, anxiety, or depression,” Berry told ESSENCE. “That has to change. We need to talk about menopause as easily as we talk about puberty.”

Using her voice to advocate for health initiatives is nothing new to the Never Let Go star. Berry has also lent her voice to raising awareness about the nuances of diabetes, a condition that disproportionately impacts Black people.

She is one of several public figures who have spoken openly about menopause in recent years, reflecting evolving attitudes toward the topic.

Screen and Broadway star Vanessa Williams recently spoke about how it affected her. Former First Lady Michelle Obama shared her thoughts on the topic in 2022.

Some Key Findings From the Study 

35 symptoms were measured as part of the P.R.E.S.S. study. Other significant areas of improvement included anxiety and mood, hot flashes and sweating, and body aches. The study reported that “Symptom improvement may function as the gateway to improve cardiovascular health, bone health, and brain health.”

“The key components we identified from existing research are consistent, progressive strength training, high-intensity interval training, and dedicated recovery,” Knight continued. “Rather than reinvent the wheel, we looked at these proven strategies in combination, in a real-world setting. And we saw a remarkable improvement across all symptoms by the end of the study.”

The P.R.E.S.S. study used a widely accepted  measurement tool to verify and present its findings.

“We measured symptoms using a validated tool called the Menopause-Specific Quality of Life scale, along with six additional symptoms frequently reported by our members. MENQOL is trusted by doctors and used in research, so we can show how our results stack up against other approaches,” Knight explained. “Using this tool, we were able to show that women were significantly less bothered by their menopause symptoms at the end of the 8-week study than they were at the beginning.”

Movement Can Be Medicine for Menopause

“The improvements reported by this group reinforce what we have always known: movement is medicine and a catalyst for transformation,” said Jen Cotter, Chief Content Officer at Peloton.

The Journal of Clinical Medicine and the Journal of Experimental Physiology have documented the value of exercise during menopause in prior studies.

“The existing science is clear that consistent, progressive exercise is one of the most powerful ways to feel better and promote long-term health,” adds Knight. “Everyone can benefit.”

Resources

American Journal of Public Health

BMC Women’s Health

MENQOL

Journal of Clinical Studies

Journal of Experimental Psychology

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“Relax, It’s a Blood Test” Delanie Walker and Tony Gonzalez Talk Prostate Cancer https://blackhealthmatters.com/relax-its-a-blood-test-delanie-walker-and-tony-gonzalez-talk-prostate-cancer/ Tue, 03 Feb 2026 18:41:20 +0000 https://blackhealthmatters.com/?p=65625 The Super Bowl is known for big moments, but this year one ad is set to take a different approach. Novartis’ “Relax, It’s a Blood Test” campaign uses familiar tight […]

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The Super Bowl is known for big moments, but this year one ad is set to take a different approach. Novartis’ “Relax, It’s a Blood Test” campaign uses familiar tight ends to talk about prostate cancer screening in a way that feels approachable instead of intimidating.

It’s a shift from the usual tone of health messaging, and it lands at a time when many men still avoid the topic entirely. For former Titans tight end Delanie Walker and longtime Chiefs star Tony Gonzalez, the message feels personal. Both joined the campaign with a sense of responsibility shaped by their own experiences and the people they care about.

Delanie Walker Understands What’s at Stake

Delanie Walker joined the campaign shortly after losing a family member to prostate cancer. The timing made the invitation feel heavier than a typical partnership.

“It was a no-brainer,” he said. “Something had just happened in my family, and now I can spread a message that might help someone catch it earlier.”

Before filming, Walker didn’t know a blood test could be used for screening. He assumed the exam always involved a more invasive examination that many men avoid. Learning about the blood test changed how he talks about screening with the people around him.

“I had no idea you could take a blood test to get screened,” he said. “We can relax, because it’s a blood test.”

Walker believes athletes can help open the door to conversations men usually sidestep.

“We want people to understand we’re just like them,” he said. He also knows how prostate cancer affects Black men at higher rates. “You’re not counted out,” he said. “If you are forty and up, getting screened can help with early detection.”

Walker explained why humor feels right for this message. The pun on “tight end” gives men permission to laugh before they listen, and it takes the edge off. It turns a tense topic into something people can discuss. “You kind of walk into that doctor’s room tight,” he said. “We’re telling you that you don’t have to do that. You can relax. It’s just a blood test.”

What stayed with him most was what he learned about his own health. “I really had no idea about prostate cancer,” he said. “Being part of this campaign, I learned even more about it and what I need to do to take care of myself.”

Tony Gonzalez on Taking the First Step

Tony Gonzalez joined the campaign for a deeply personal reason. Prostate cancer has affected several members of his family, including his grandfather and his uncle, both of whom passed away from the disease. “It is something that is personal to me,” he said. “It has affected members of my family, so it is personal from that standpoint.”

He recalls the anxiety surrounding the traditional exam. He has been through it himself and knows how many men avoid screening because of it. The campaign’s focus on a blood test felt like a chance to shift that fear into something more manageable.

“This is an alternative way to doing it,” he said. “It’s a blood test.”

Gonzalez wants men to understand how accessible that first step can be. Prostate cancer is common, and early detection gives people the best chance at a strong outcome. “You can go out there and just get the blood test,” he said.

The Super Bowl gives the message a reach that few platforms can match. Gonzalez knows how many men will be watching and how many partners, friends, and family members will be watching with them.

“When they can see guys they love watching play, it spreads that awareness,” he said. He hopes it encourages people to start conversations that often feel uncomfortable. “This is an important thing to do. It’s for your health.”

Why Tight Ends Work

The campaign features eight men, a deliberate nod to the statistic that one in eight men will be diagnosed with prostate cancer. Seven are current or former tight ends, and each wore a jersey in the eighties at some point in his career. The number is symbolic, but it also helps connect the message to the people most likely to see it.

That connection matters because prostate cancer is often silent in the early stages. The prostate-specific antigen (PSA) blood test measures a protein in the blood that may indicate changes in the prostate. It’s a simple blood draw that saves lives.

What They Want You to Know

Both Gonzalez and Walker want men to understand that the hardest part is starting the conversation. The campaign offers a way in. A simple blood test.

“It’s a conversation that needs to be had,” Gonzalez said. Walker agrees. “If cancer is at its lowest, we can treat it,” he said. “If it’s too late, it’s hard to treat.”

The next move is simple. Take the test. Tell your loved ones. Stay ahead by catching early.

It doesn’t have to be an ordeal. Breathe in, breathe out, and relax. All it takes is a blood test.

Resources:

Find a Prostate Cancer Screening | Relax it’s a Blood Test

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“Relax, It’s a Blood Test” Delanie Walker and Tony Gonzalez Talk Prostate Cancer - Black Health Matters Novartis' prostate cancer campaign features Delanie Walker and Tony Gonzalez as they urge men to get screened early with a simple blood test. black men's health,cancer screening,Delanie Walker,early detection,football,health awareness,men's health,Novartis,prevention,prostate,prostate cancer,prostate specific antigen,PSA levels,PSA Screening,psa test,sports,Super Bowl,Tight ends,Tony Gonzalez,Relax It’s a Blood Test
Octavia Spencer Wants Us To “Detect The SOS” From Our Kidneys https://blackhealthmatters.com/octavia-spencer-wants-us-to-detect-the-sos-from-our-kidneys/ Mon, 02 Feb 2026 21:35:41 +0000 https://blackhealthmatters.com/?p=65635 Looking into your kidneys could save your life, ask Octavia Spencer. The Academy Award-winning actress is using her star power to shed light on the silent signals your organs can […]

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Looking into your kidneys could save your life, ask Octavia Spencer. The Academy Award-winning actress is using her star power to shed light on the silent signals your organs can send you that your body is in trouble. She has partnered with Boehringer Ingelheim, along with key organizations including the American Diabetes Association, National Kidney Foundation, Mended Hearts, and WomenHeart, to promote “Detect The SOS,” a health initiative urging the public to access uACR urine testing. This screening can identify several health problems before they progress into more serious territory.  

Why This Initiative is Important to Spencer 

“Chronic kidney disease (CKD) affects one-quarter to one-third of adults with diabetes in the USA. Patients with CKD and type 2 diabetes have an elevated risk of cardiovascular (CV) disease and can eventually progress to end-stage kidney disease,” according to a 2025 article in BMJ Open Diabetes Research & Care. Studies show that risk is higher for the Black community, which has a higher rate of diabetes and high blood pressure as well. 

This makes the initiative personal to Spencer. “I’m a part of this health mission because I suffer from type 2 diabetes and high blood pressure that I control,” she says. “And because type 2 diabetes and high blood pressure and heart disease are quite prevalent in the Black community, as a Black woman, I felt compelled to become a part of this collective, to educate people.” 

Why We Should Consider uACR Testing 

This testing can help you identify serious health issues long before they begin to slow down your lifestyle. Spencer will appear alongside Modern Family star Sofia Vergara, whose mother has high blood pressure, in their upcoming commercial that will play during Sunday’s big game (aka The Super Bowl). With a play on action movies, its engaging tone will encourage viewers to get serious about their health by accessing the information uACR can offer.  

She described the ways that your kidneys can send out invisible distress signals.  “If you suffer from diabetes, type 2 diabetes, and high blood pressure. Your body could be sending out a silent SOS through your kidneys, and there is an easy way to detect that,” Spencer continued. “It’s important for all of us to know our numbers.”  

The Journal of the American Society of Nephrology recommends the critical need to increase uACR screening rates in at-risk patients. 

The Busyness of Life Can Distract Us from Our Health 

Whether you’re focused on status reports at work, sports games or family activities, it can be easy to sideline doctor’s visits when there are no visible issues.  

Spencer admitted to putting her health on the back burner, something many people do until they are unable to ignore it. “I’m a regular woman, and like regular people, a lot of the times, we don’t go to the doctor until we feel ill,” she says. “Being a part of this mission has made me realize that I don’t want to wait until I feel sick, because then sometimes it can be too late to turn things around. So now, I’m being more proactive.”  

How Her Work and Greater Mission Align 

Spencer offers her support to marginalized communities at her day job as well. She is preparing for the February 25 return of Lost Women of Alaska, the fourth installment of the Lost Women franchise, highlighting true crime stories. The series highlights who can be at a higher risk of facing harm at the hands of another.  

She shared why the premise of the show connects to her heart, as someone who could have easily been in a different place in life. Spencer was headed for law school before choosing the creative path after the loss of her mother. She might have been banging a gavel instead of walking red carpets.  

“Women, the elderly, children are our most vulnerable, and this season of Lost Women takes place in Alaska, where Indigenous women are preyed upon,” she says. Black women, like indigenous women, are at a higher risk of being murdered.  

“It’s important for me because my trajectory in life changed,” she says. “So this is a way for me to satiate the need for justice.” The series aims to highlight “people whose voices have been stolen” and “to raise awareness for women who might find themselves in compromising positions to always be aware of their surroundings and who they associate with.”  

Spencer is Prioritizing Her Health & A Balanced Life 

When she is not reminding people to learn about their bodies and be mindful of predators, she’s connecting with her loved ones. I have learned that spending time with family and friends is just as important as getting up and exercising and eating healthy. These days, we are all on our devices and not necessarily interacting with our loved ones,” she continues. “They say, laughter is the best medicine. I don’t know that it’s the best medicine, but I know that it is good medicine.”  

That doesn’t mean she’s not focused on the medicine of movement. After twenty years of living with diabetes, she knows the importance of keeping up with her pilates.  “I’m 55, and I want to enter that phase of my life stronger,” she says. “The best way to do that, I think, is to be as preventative as possible.”  

Part of that prevention is knowing her numbers and continuing to focus on what she wants from the next phase of her life.   

People say age gracefully; I just want to be strong.” 

 

Resources 

Detect the SOS 

BJM Open Diabetes & Care 

Journal of the American Society of Nephrology 

Trauma Violence & Abuse 

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Ray J Reveals His Heart Is Functioning at “25%” https://blackhealthmatters.com/ray-j-reveals-his-heart-is-functioning-at-25/ Fri, 30 Jan 2026 21:49:22 +0000 https://blackhealthmatters.com/?p=65587 Ray J shared distressing health news about his heart on social media. The singer, songwriter, and reality star, whose real name is William Ray Norwood Jr., went live on January […]

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Ray J shared distressing health news about his heart on social media. The singer, songwriter, and reality star, whose real name is William Ray Norwood Jr., went live on January 25 to update his supporters on his well-being. In the caption for the video, the “Wait A Minute” singer wrote that he “Just almost died,” adding that “I’m alive because of your prayers and support.”

TMZ reported that Norwood had been admitted to a Las Vegas hospital earlier this month. They attributed his admission to heart pains and a case of pneumonia.

 

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Details About His Heart Issues

The reality star shed light on the details behind the incident in the Instagram post. “I want to thank everybody for praying for me,” he stated, looking directly into the camera lens. “I was in a hospital. My heart’s only beating like 25 percent, but as long as I stay focused and stay on the right path, then everything will be all right, so thank you for all your prayers.”

Heart disease is a leading cause of death in the United States of America. “One person dies every 34 seconds from cardiovascular disease,” according to the Centers for Disease Control.

The American Heart Association reports that the amount of heart function that is considered “normal” is “between 55% and 70%.” Anything lower than that could potentially indicate severe damage to the heart, which could come with serious side effects. The tests used to measure heart function include echocardiograms (commonly referred to as echos), nuclear imaging, cardiac catheterizations, and cardiac MRIs.

Black Men Are at a Higher Risk for Heart Issues

The Journal of the American Medical Association considers heart failure with reduced ejection fraction “a major public health concern with substantial morbidity and mortality.” According to the Office of Minority Health, “Black/African Americans were 35% more likely than the U.S. population overall to die from major heart and blood vessel disease.” Trends in cardiovascular disease risk in the U.S. have cited Black men as a particularly vulnerable population for adverse cardiovascular events. Research from the American Journal of Preventive Medicine places them as 65% more likely to have a heart attack or stroke.

Excessive Alcohol and Drug Use Can Increase Risks

In another since-expired video, which was ripped and migrated across social platforms, Norwood again referenced his health. He expressed regret for what he appeared to deem as excessive partying. “I shouldn’t have gone this hard,” he told viewers and another man who repeatedly entered and exited the frame before revealing that he had an upcoming appointment for further testing. Alcohol has been identified by the American Heart Association as a risk for cardiovascular disease, noting that “Drinking patterns, in particular binge and heavy episodic drinking, may modify the relationship between alcohol consumption and CAD risk.” Substance abuse of any kind can present physical health hurdles. Certain studies have even linked cannabis use to heart health risks. Norwood referenced heavy drinking in one of the videos he posted.

“Four or five bottles a day, 10 addys, f**ked my heart up on the right side right here,” he said, gesturing to his chest. “It’s like black, it’s like done.”

“2027 is definitely a wrap for me,” he added.

“Atherosclerotic heart disease and its antecedents pose the greatest risk for cardiovascular events for people prescribed stimulants,” per the Journal of Attention Disorders. “Stimulants are associated with increased risks of hypertension, coronary artery disease, arrhythmias, cardiomyopathy, and stroke,” according to a 2025 article from the Journal of Substance Use: Research and Treatment. Prescription stimulants are particularly risky for older adults, according to a 2021 study from the Journal of Pharmacy and Clinical Pharmacology.

Norwood made a few references to coconut water, which some perceive as a health tonic because of the potassium and electrolytes it contains, in the videos. He also shared his perspective on what he was thinking before his health challenges. He claimed he thought he was “undestructible.” “I could handle all the alcohol, I could handle all the adderall, I could handle all the drugs, but I couldn’t,” he continued. “It curved my time here. It curved it,” he added.

February is American Heart Month, an annual event that promotes heart health and raises awareness of the deadly threat of cardiovascular disease.

Resources

Centers for Disease Control

American Heart Association

Journal of the American Medical Association

American Journal of Preventive Medicine

American Heart Association

Journal of Attention Disorders

Journal of Substance Use: Research and Treatment

Journal of Pharmacy and Clinical Pharmacology

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Barbie Honors Opal Lee With a New Inspiring Women Doll https://blackhealthmatters.com/barbie-honors-opal-lee-with-a-new-inspiring-women-doll/ Wed, 28 Jan 2026 18:24:35 +0000 https://blackhealthmatters.com/?p=65560 Barbie has added a new icon to its Inspiring Women collection, and this time the honor goes to a woman whose life’s work reshaped the nation’s understanding of freedom. Dr. […]

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Barbie has added a new icon to its Inspiring Women collection, and this time the honor goes to a woman whose life’s work reshaped the nation’s understanding of freedom. Dr. Opal Lee, known as the Grandmother of Juneteenth, now has a doll in her likeness that celebrates her nearly century-long fight to make Juneteenth a federally recognized holiday.

 

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At 99, Lee’s legacy is already part of American history. Seeing her story reflected in a doll designed by Carlyle Nuera, with packaging by Vicky Gevorkyan, adds a new layer to her impact and offers representation that young people can hold in their hands.

Her Activism in Focus

The doll mirrors Lee’s signature look from Opal’s Walk for Freedom, the annual two and a half mile walk she leads to honor the long gap between emancipation and the day freedom reached enslaved people in Texas. Dressed in a custom event tee, white joggers, and sneakers, the doll reflects the spirit of a woman who showed what it means to stand up for freedom.
For Lee, Juneteenth has never been just a date. She was born in Marshall, Texas in 1926. She grew up with the memory of her family’s home being burned down by white rioters on Juneteenth in 1939. That experience fueled her lifelong mission to ensure the holiday’s meaning was recognized across the country.

Decades of Determination

Lee spent years educating communities, organizing events, and urging lawmakers to acknowledge Juneteenth as a national holiday. Her work culminated in 2021 when President Joe Biden signed the Juneteenth National Independence Day Act into law with Lee standing beside him.

Her advocacy continued long before and long after that moment. In 2016, she walked 1,400 miles from Fort Worth to Washington, D.C., stopping in cities along the way to complete symbolic walks and build support. In 2024, she received the Presidential Medal of Freedom and earned her eighth honorary doctorate. Even when health challenges kept her from participating in the 2025 walk, communities carried the tradition forward in her honor.

Representation That Matters

Barbie and Lee shared the first images of the doll in a joint Instagram post, and the response was immediate. Fans celebrated the tribute as a milestone for representation and a meaningful acknowledgment of Lee’s influence.

Many wrote about growing up with Barbie and finally seeing dolls that reflect real women who shaped history. In addition to that reaction, others thanked the brand for recognizing that representation is not a trend but a responsibility.

 

A Legacy for the Next Generation

By honoring Lee, Barbie is preserving a story of resilience and liberation that has shaped Black families for generations. For Black children who will see this doll on shelves, it is a reminder that their history carries weight. It also reinforces that their future is theirs to shape.

Lee has always said that freedom is something we must work toward every day. Her likeness now stands as a symbol of that belief and an invitation for the next generation to keep moving forward.

Resources:

Barbie Inspiring Women Dr. Opal Lee Doll

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The Rise of Celebrity-Endorsed Calories https://blackhealthmatters.com/the-rise-of-celebrity-endorsed-calories/ Wed, 28 Jan 2026 18:12:59 +0000 https://blackhealthmatters.com/?p=52299 Celebrity-endorsed calories became a real force in 2020 when Travis Scott’s Cactus Jack Meal took over McDonald’s. Stores ran out of ingredients, lines wrapped around buildings and Forbes reported that […]

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Celebrity-endorsed calories became a real force in 2020 when Travis Scott’s Cactus Jack Meal took over McDonald’s. Stores ran out of ingredients, lines wrapped around buildings and Forbes reported that the collaboration earned him an estimated twenty million dollars. It showed how quickly a fast food order could turn into a pop culture moment, and it opened the door for the next wave of stars to shape the menu in their own way.

Megan’s Turn at the Menu

Megan Thee Stallion is expanding her food footprint again, this time with a Dunkin collaboration that’s already getting attention. The limited-edition “Hot Girls Run on Dunkin,” cup comes in a sunset gradient with her signature neon heart, and it launched alongside Dunkin’s new Protein Refreshers made with Protein Milk. It’s a smart extension of the lane she’s been building for years, from her Hottie Sauce era to her Popeyes franchise ownership and the Miami Beach location she officially opened in January 2026. Megan’s steady presence in the fast food space has fans watching closely, curious about what she’ll put her stamp on next.

She recently shared a clip of herself with the cup, styled in Dunkin’s pink and orange palette, hinting that fans should get in on the drop while it lasts.

 

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How We Got Here

Megan’s moment isn’t happening in isolation. Over the past few years, celebrities have been shaping fast food from the inside out through custom meals, branded sauces, marketing takeovers, and even franchise ownership. The wave picked up in 2020 with Travis Scott’s meal, and it’s only grown from there.

McDonald’s kept the momentum going with a series of celebrity meals that followed.

In 2021, Saweetie came out with her combo, which included a Big Mac, four-piece Chicken McNuggets, medium fries, a Sprite, Tangy BBQ Sauce, and “Saweetie’ N Sour” sauce, a renamed version of the classic Sweet ‘N Sour sauce. The campaign encouraged fans to mix and match the items however they liked, turning the meal into a kind of edible playlist.

Cardi B and Offset’s 2023 Valentine’s Day meal included her go-to cheeseburger with BBQ sauce and a large Coke, while he enjoyed a Quarter Pounder with Cheese and a large Hi-C Orange Lavaburst, accompanied by fries and an apple pie to share.

Then, in 2025, Angel Reese, an NCAA champion and WNBA rookie, became the first female athlete to secure a national meal collaboration with McDonald’s. The Angel Reese Special included a BBQ Bacon Quarter Pounder with Cheese featuring a new Bold BBQ Sauce, medium fries, and a drink of choice. The campaign leveraged her basketball legacy and rising profile to showcase her emerging talent in women’s sports.

Other Chains Join the Conversation

Fast food collaborations did not stop at McDonald’s. Lil Nas X took on a creative role at Taco Bell, helping relaunch breakfast and tie it to his album rollout. Ice Spice’s 2023 Dunkin’ drink, a frozen coffee with pumpkin Munchkins and caramel drizzle, dropped during the VMAs in a campaign directed by Ben Affleck. These were cross-platform moments designed to meet fans where they already were.

From Endorsement to Ownership

Some celebrities have moved beyond the promotional cycle and into long-term investments. Rick Ross owns over a dozen Wingstop locations and has a stake in Checkers. LeBron James owns 19 franchise locations for Blaze Pizza. Then there’s Shaquille O’Neal, whose food empire includes nine Papa John’s, 17 Auntie Anne’s, one Krispy Kreme flagship in Atlanta, and his fast-growing chain, Big Chicken. These business strategies truly reflect a shift in how celebrity influence is leveraged.

The Calorie Burden Behind the Hype

According to the CDC’s National Health and Nutrition Examination Survey, about 32% of U.S. adults consumed fast food on a given day between 2021 and 2023, with fast food accounting for 11.7% of daily calories. Among younger adults aged 20 to 39, the figure rises to 15.2%.

Celebrity meals are engineered for buzz, not balance. The Angel Reese Special clocks in at over 1,250 calories, which is more than half the recommended daily sodium intake for many adults. Saweetie’s meal and Cardi B and Offset’s combo offer similar nutrition profiles. It’s fun, and it may even be shareable, but making fast food a routine has profound implications for health outcomes.

Linking the Plate to Public Health

Between 2021 and 2023, 35.8% of Black children and adolescents had obesity. According to CDC data published in the Annals of Internal Medicine, this is the highest rate among all racial groups. Experts attribute food insecurity, targeted advertising, and reduced access to safe physical activity as the primary contributors.

But the Office of Minority Health report says Black or African American students in 9-12 grade were at the most significant risk. “Non-Hispanic Black or African American female students were almost 2 times more likely to be obese than non-Hispanic white female students.”

Colorectal Cancer is Also Rising in Younger People

Meanwhile, colorectal cancer is on the rise among younger adults, and the outlook is particularly harsh for Black Americans. The American Cancer Society’s 2025 report shows that Black men are 20% more likely to be diagnosed and 40% more likely to die from colorectal cancer than white men. Early 2026 projections indicate that these disparities have not improved.

For Black women, incidence is 14% higher, and mortality is 25% higher. Processed, low-fiber diets, typical of many fast-food options, are associated with an elevated risk, alongside structural barriers to screening and treatment.

This isn’t about feeling guilty for indulging in the latest trendy meal. However, it’s worth taking a moment to consider the more profound implications of seeing so many of our favorite celebrities promoting foods that don’t support our health. Our community already faces health disparities; it doesn’t exactly help to see a beloved musician holding up a burger stacked with sodium, sugar, and branding. When entertainment and marketing merge seamlessly, it’s easy to forget what’s truly at stake.

Dinner with a Side of Influence

Celebrity meals aren’t changing the food industry outright, but they’ve shaped how we engage with it. They blur the line between marketing and entertainment, and between habit and hype.

No one is forcing the order, but these meals reflect how easily pop culture can infiltrate our routines. We’ll leave it to you to decide who holds the influence: the celebrity, the brand, or the part of you that values your health over the hype.

Resources

How Hip-Hop Superstar Travis Scott Has Become Corporate America’s Brand Whisperer

NCHS Data Brief, Number 533, June 2025

Obesity Prevalence Among Children and Adolescents in the United States, 2011 to 2023 | Annals of Internal Medicine

Obesity and Black/African Americans | Office of Minority Health

Cancer statistics for African American and Black people, 2025

 

 

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Cancer Research Isn’t Reaching Black America https://blackhealthmatters.com/cancer-research-isnt-reaching-black-america/ Mon, 26 Jan 2026 20:40:54 +0000 https://blackhealthmatters.com/?p=65412 Cancer is projected to claim more than 626,000 lives in 2026, according to new estimates from the American Cancer Society. Another 2.1 million people will be diagnosed. The science is […]

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Cancer is projected to claim more than 626,000 lives in 2026, according to new estimates from the American Cancer Society. Another 2.1 million people will be diagnosed. The science is moving fast and the stakes are massive.

But when you look closely at where cancer research is strongest, a pattern emerges that is hard to ignore. The states leading the country in research are not the states where Black Americans live in the greatest numbers. That gap shapes who benefits from the country’s most advanced cancer breakthroughs.

The States Winning the Research Race

SmileHub’s 2026 ranking of the best states for cancer research highlights the places with the deepest research ecosystems. These states have the most researchers per capita, the strongest funding from the National Institutes of Health (NIH) and the American Cancer Society (ACS), the highest clinical trial output, and the most robust cancer care infrastructure.

The top 10 states for cancer research are:

  1. Massachusetts
  2. New York
  3. California
  4. Pennsylvania
  5. Colorado
  6. Maryland
  7. Oregon
  8. Virginia
  9. Connecticut
  10. Minnesota

The ranking is built on thirteen metrics, including NIH grant funding, ACS funding, clinical trial activity, and hospital quality data from U.S. News & World Report’s Best Hospitals for Cancer.

Massachusetts leads the list with top scores in both research funding and research output. New York ranks first in health care infrastructure. California sits in the top three across funding, output, and hospital quality. These states have long histories of academic investment, major research universities, and strong philanthropic networks.

But this map tells only one story. The real story is about who lives where.

Where Black America Actually Lives

Neilsberg’s 2025 analysis of U.S. Census Bureau American Community Survey (ACS) data shows a clear picture of where Black Americans live today. The five states with the largest Black populations are Texas, Florida, Georgia, New York, and California. These states anchor the modern Black population map. Pew Research Center reports that more than half of all Black Americans, about 56 percent, live in the South, which underscores how deeply rooted the population is in this region.

According to Neilsberg’s Black population ranking, Texas has 4,146,550 Black residents, which is 11.66 percent of the state’s population. Florida has 3,900,650, or 15.24 percent. Georgia has 3,648,016, representing 31.27 percent of the state. New York has 3,519,047, and California has 2,841,399.

Together, these five states account for more than 38 percent of all Black Americans.

A Map That Leaves Too Many Behind

The states with the largest Black populations rarely appear near the top of cancer research rankings. Georgia ranks thirty-eight. Florida ranks thirty. Texas ranks twenty-two. Louisiana, Mississippi, Alabama, and South Carolina all fall in the bottom fifteen, even though they are home to some of the country’s most concentrated Black communities.

That gap has real consequences. Black Americans continue to face the highest cancer mortality rates in the United States, according to the American Cancer Society. When the strongest research ecosystems are located far from the communities carrying the highest burden, access to clinical trials, specialty care, and advanced treatment becomes uneven by design.

When Distance Becomes a Barrier to Survival

Cancer research is tied to place. Clinical trials usually require in person visits. High quality cancer hospitals cluster in specific regions. Funding from the National Institutes of Health flows to institutions with long established research capacity. Insurance coverage varies by state. These factors shape who gets early detection, who gets advanced treatment, and who gets to participate in the studies that guide national standards of care.

When research is concentrated in the Northeast and West, and the highest burden communities are concentrated in the South, the result is a structural divide.

Black Americans are less likely to live near cancer centers designated by the National Cancer Institute (NCI). They are less likely to be offered clinical trial participation. They are less likely to receive proper care. These patterns appear consistently in national cancer disparities reports and peer-reviewed research.

SmileHub did not create these disparities. But when its data is read through a different lens, the gaps reveal themselves with uncomfortable clarity.

What Real Investment Would Look Like

Imagine a South with more NCI designated cancer centers, stronger clinical trial networks, and research universities that anchor long-term investment. A South with increased NIH and ACS funding, deeper community-based research partnerships, better insurance coverage, and high-quality cancer hospitals within reach.

Imagine a research landscape that follows need instead of legacy.

The data points toward a future where investment is measured not only by scientific output, but by who can reach the front door of a research center. A future where breakthroughs are shaped by the communities that carry the highest burden. A future where geography is not destiny.

The Question We Cannot Ignore

The United States is investing billions to end cancer. But unless research infrastructure expands into the states where Black Americans actually live, the benefits of that investment will remain uneven. The communities with the highest cancer burden will continue to be left behind.

The country has the science, the momentum, and the resources to change the story of cancer. What remains uncertain is whether that progress will reach the communities that have carried the heaviest burden for the longest time.

Resources:

Cancer statistics, 2026 – Siegel – 2026 – CA: A Cancer Journal for Clinicians – Wiley Online Library

Best States for Cancer Research in 2026

Best Hospitals for Cancer in the U.S. | Rankings & Ratings

States in United States ranked by Black population – 2025 | Neilsberg

Facts About the U.S. Black Population | Pew Research Center

Cancer statistics for African American and Black people, 2025 – Saka – 2025 – CA: A Cancer Journal for Clinicians – Wiley Online Library

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What it Means for Us to Get Serious About Self-Care https://blackhealthmatters.com/what-it-means-for-us-to-get-serious-about-self-care/ Mon, 26 Jan 2026 19:45:15 +0000 https://blackhealthmatters.com/?p=65533 Our Wellness is Our Resistance  Community has always been at the core of Black wellness – from the hair salons, barbershops and churches to the Sunday dinners – and in […]

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Our Wellness is Our Resistance 

Community has always been at the core of Black wellness – from the hair salons, barbershops and churches to the Sunday dinners – and in today’s modern settings, the group chats and social media platforms.  We spoke with Tara Pringle Jefferson, author of the beautiful new book Bloom How You Must – A Black Women’s Guide to Self-Care and Generational Healing, about the heritage of wellness in our community and the distinct areas where we should be the most assertive in prioritizing self-care. Her book serves as a permission slip to Black women to shift from performance to pause, to think deeply about the origins of self-care in our communities and how the past shapes the present and future.

Let’s Keep It Real – What’s Really Wrong?

Before we dive into the concept of self-care, we must unpack the core reasons why we feel like we’re running on empty. And no, it has nothing to do with poor scheduling, laziness or there not being enough hours in the day. Tara dives into the ‘historical mandate’ to perform that has followed us for generations.  Our value is often tied to output, so much that if we are not producing or ‘holding it down’ for everyone else, we feel that we aren’t doing enough.

Tara points out in the book how our bodies were treated as labor sites. “To see a Black woman is to expect her labor,” she adds. “It is not important she is getting enough sleep at night or that she is doing well mentally, all that matters is what she produces.”

This year, we deserve to take a fresh approach to health and wellness. Not by adding or reconfiguring an existing schedule, but by realizing that you are worthy of rest. Just because.

Take Time for a Self-Audit

Instead of approaching a new year with a rigid list of resolutions, Tara suggests starting your wellness journey with a self-audit. This is the gentlest way of checking in on yourself and asking the question: “how am I really doing?”

She notes that because our lives are so hectic, we don’t realize that we’re overwhelmed and struggling until we stop. By taking a much-needed ‘pause, we can identify the areas of our lives in need of attention and healing – physical, social, professional, spiritual, mental and even creative.

This process begins with prioritizing Black Wellness – tapping into your own internal needs and investigating every facet of your life. Even taking a hard look at Professional Wellness. With rising unemployment and career instability hitting Black women incredibly hard, Tara shares that we must redefine success on our own terms, perhaps by seeking out mentorship or community bartering to navigate unpredictable employment and financial shifts.

“Usually”, Tara shares “at least one life area will come to the forefront.” If the self-audit uncovers signs of stress, anxiety and burnout, it may be a sign to seek out professional support with cultural relevancy, such as resources found through platforms like Therapy for Black Girls.

When Solo Is a No, No!

Modern wellness practices are often marketed to us an expensive (and even solo) event – ranging from a luxury spa weekend, exclusive gym membership, luxury candles or even meditation app. Tara’s research shows us that our ancestors knew better. They used community as a tool for healing. “Self-care is about doing things that feed your mind, body, and spirit but when we gather in numbers, we’re able to be ourselves and let down the heavy things we’re carrying.”, she shares.

From a collective of mothers who share daycare responsibilities to a special circle of girlfriends who offer a listening ear and a soft place to land, these are the women Tara refers to these women as ‘gardeners’ in the book. They speak to the importance (and need) of showing up for each other. Even in modern context, we see examples of Black travel groups, local or online book clubs like Black Girls Who Read, running groups or even professional organization memberships as pathways to self-care and survival via diverse support systems.  The village is not only recommended, but also essential. Wellness, at its core, is communal.

Permission to…Have Fun!

One of the most radical things we can do to preserve their overall health and wellness is to simply…do something, anything just for fun.  Black women often ‘age out’ of having fun and focusing on their creative interests at an early age, to instead focus on responsibilities while still being children themselves.

Tara’s advice? Experiment. Try something new!

In the Chapter dedicated to Creative Wellness, Tara encourages the reader to tap into our creative sides. Focus on “self-expression. It’s about taking who you are and what you feel and pulling that outward.” What does that mean exactly? Dabble in painting for the first time. Try new recipes. Experiment with new fashion style. Write. Sing. Dream. The focus should be on challenging yourself to do something fun and creative that is not connected to work. Because the point here is not perfection, it’s about self-expression, and the space to do so.

Stop Trying to Heal in Secret

As we continue to navigate and curate our own personal new year’s, let’s stop trying to heal in secret. Tara’s vision for the future—and her work with her digital platform, The Self Care Suite—is a reminder that our “village” is what makes the heavy things feel lighter. Whether we are connecting through a screen or meeting up in person, the goal is the same: to ensure no Black woman feels she has to carry the world alone. Your most important wellness practice might just be reaching out. Online AND Offline.

Bloom How You Must reminds all Black women that self-care should not be considered a reward for hard work. True wellness extends far beyond a juice cleanse or a spa weekend.  The book serves as an awakening to reset and reclaim our humanity – from the inside out. It also reminds us of the importance of reconnecting to the communal traditions of our ancestors. Whether you are proudly wearing your ‘Strong Black Woman’ cape or just coming to the realization that you’re always under to pressure to serve, protect and provide, make this year this one that is intentional about not just surviving but thriving. You owe it to yourself!

Check out: The Toll on Our Health When We Try to be Superwoman (There’s Research)

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Why Don’t We Donate Blood More Often? https://blackhealthmatters.com/why-dont-we-donate-blood-more-often/ Sat, 24 Jan 2026 18:49:29 +0000 https://blackhealthmatters.com/?p=65376 Walk into any blood donation center in the United States and you’ll see the same posters saying “Every two seconds, someone needs blood.” What those signs don’t say is that […]

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Walk into any blood donation center in the United States and you’ll see the same posters saying “Every two seconds, someone needs blood.” What those signs don’t say is that the people who need it most often come from the same communities least represented in the donor pool. Black Americans make up roughly 13% of the U.S. population yet account for less than 3% of blood donors, according to the National Heart, Lung, and Blood Institute (NHLBI). It’s a mismatch with real consequences for patients who rely on racially or ethnically matched blood.

Why Our Donations Matter So Much

For many of us, the people behind these numbers are not hypothetical. They are our children, our siblings, our neighbors living with sickle cell disease. According to the CDC, sickle cell affects more than 100,000 people in the United States and more than 90 percent of those affected are Black.

When the donor pool does not reflect our community, the people we love feel the impact first. According to Kaiser Permanente, blood transfusions can treat severe complications of sickle cell disease and help prevent additional problems, including lowering the risk of stroke in children. The safest matches often come from donors with similar genetic markers. As noted by the American Red Cross, this includes rare blood types such as U-negative and Duffy negative, which are found mostly among people of African descent.

The Hesitation Around Donation

In 2023, the NHLBI spoke with Black adults across the country to learn how they think and feel about blood donation. The conversations were honest and familiar. People named the history that still shapes their choices, including the segregation of blood supplies and the sense that donation drives rarely show up in Black neighborhoods or center Black experiences.

Researchers held twelve focus groups with adults ages 18 to 50. Some had donated once. Others had never donated but were open to it. Younger participants tended to know more about the process. Older participants often felt they did not have enough information to feel confident. Across every group, people said convenience, representation, and trust mattered.

Participants wanted to see blood drives in places they already go. They wanted clear information from trusted Black medical professionals. And they wanted to understand who their blood would help. Sickle cell disease affects more than 100,000 people in the United States, most of whom are Black, and many rely on transfusions throughout their lives. One in three Black donors is a match for someone living with sickle cell. Some rare blood types, including U-negative and Duffy negative, are found almost entirely in the African American community. A diverse blood supply is essential for patients who need those matches.

The message from the focus groups was simple. People want a donation experience that feels honest and connected to their lives.

Building a Donation Experience That Works

The NHLBI research makes one thing clear. When Black communities receive information that feels trustworthy, relevant, and grounded in their lived experience, willingness to donate rises. Change begins with meeting people where they are.

Convenience matters. Donation sites placed in familiar community spaces such as churches, malls, recreation centers, barbershops, and neighborhood hubs can remove a major barrier. Many participants said they would be more open to donating if the process felt easy to access or if they had someone to go with them. Compensation, even something modest like food or a small incentive, was also named as a meaningful motivator.

Trusted messengers matter just as much. Participants wanted clear information from Black medical professionals who could explain the process, address myths, and show the real impact of donation. They also wanted to understand exactly who their blood would help. Stories of patients living with sickle cell disease, families navigating weekly transfusions, or community members relying on rare blood types can create a sense of connection that national messaging often misses.

Helping others remains the strongest motivator. Many participants described the emotional pull of knowing their donation could save a life or support someone in crisis. When that impact is visible and personal, hesitation shifts toward action.

Building a more diverse blood supply is possible. It starts with information that feels honest, spaces that feel familiar, and outreach that reflects the communities it hopes to serve.

This Is About Health Equity

The shortage of Black blood donors reflects gaps in access and trust, shaped by a long history that has given our community real reasons to question the medical system. That history still leaves many people without the information or reassurance they need to feel confident about donating. It’s a health equity issue.

It’s also a place where meaningful progress is possible. When Black donors give blood, they strengthen a safety net that protects their own families and communities. They help a child with sickle cell get the match they need. They fill a gap that only this community can fill.
This moment can be a turning point. Not because the system has suddenly changed entirely, but because Black patients deserve the security that comes with a reliable and diverse blood supply.

Showing up for one another has always been a source of strength, and this year may be the year that strength reaches the donation room.

Resources:

How Black Americans Can Save Lives by Donating Blood

Blood Transfusions for Sickle Cell Disease | Kaiser Permanente

Rare Blood Types | Red Cross Blood Services

blood_donation_motivators_and_barriers.pdf

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Thyroid Cancer Rates are Rising, and Black Patients Face Higher Risks https://blackhealthmatters.com/thyroid-cancer-rates-are-rising-and-black-patients-face-higher-risks/ Wed, 21 Jan 2026 15:31:05 +0000 https://blackhealthmatters.com/?p=39721 Thyroid cancer is one of the fastest growing cancers in the United States. Over the past few decades, its incidence rate has more than tripled, meaning it is rising faster […]

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Thyroid cancer is one of the fastest growing cancers in the United States. Over the past few decades, its incidence rate has more than tripled, meaning it is rising faster than any other major cancer type. Behind the overall numbers lies a troubling paradox for Black Americans. It is the fact that even though Black people develop thyroid cancer at lower rates than other racial groups, they experience a more advanced disease, receive less optimal treatment, and are more likely to die from it. 

It is also important to note that African Americans are at a higher risk for anaplastic thyroid cancer compared to other racial groups. This is an aggressive and often fatal form of thyroid cancer that grows rapidly and typically has a poor prognosis.  

Black Patients Have Lower Prevalence, but Higher Risk 

Thyroid cancer is nearly three times more common in women than men and is 40%–50% less common in Black people than in any other racial or ethnic group. For 2026, the American Cancer Society estimates an estimated 45,240 new cases will be diagnosed (13,240 in men and 32,000 in women), alongside around 2,320 deaths. The Surveillance, Epidemiology, and End Results (SEER) database also shows that from 1980 to 2016, incidence rates rose sharply from 2.39 to 7.54 cases per 100,000 in men and from 6.15 to 21.28 in women. Even though rates have been stabilized in recent years, they remain far higher than before. 

Black Patients Less Likely to Receive the Recommended Surgery 

The American Thyroid Association stated that Black patients faced a significantly higher risk of dying from thyroid cancer. Additionally, while differences in tumor biology explained most of the risk for Hispanic patients, it was revealed that it was not the case for Black patients. 

To add to this disparity, the American Thyroid Association revealed that Hispanic patients were most likely to receive guideline‑recommended surgery (79%), while Black patients were least likely (68.9%). With that being said, nearly every patient with advanced cancer got the correct operation (96.6%), and only 63.7% of early‑stage patients received the same standard of care. Thyroid cancer surgery is highly specialized and outcomes depend heavily on correct technique and the surgeon’s level of experience. By not receiving the recommended operation immediately, Black patients are at higher risk for complications, recurrence, and long-term mortality.. 

The Real Driver is Social Determinants of Health 

Researchers have found that the social determinants of health that affect thyroid cancer survival rates and treatment options include: 

  • Income and insurance status 
  • Education 
  • Access to specialty care 
  • Living in medically underserved neighborhoods 
  • Delayed diagnosis 
  • Lack of referral to high‑volume surgeons 
  • Transportation or time barriers 
  • Impacts of medical mistrust 

These factors shape when people get diagnosed, what treatments are offered, whether they can see the right specialists, and how consistently they can follow up. 

This means the disparity in thyroid cancer outcomes is not about biology, but about access, resources, and systemic inequities. The fact that Black Americans develop the disease less often yet are more likely to die from it reveals a deeper and more urgent truth. As thyroid cancer rates continue to rise nationwide, these inequities will only become more dangerous if left unaddressed. 

Click here to learn more about thyroid cancer. 

Is Thyroid Cancer Increasing in Incidence and Aggressiveness? 

Key Statistics for Thyroid Cancer 

Outcomes of thyroid cancer in African Americans 

Social Determinants of Health and Disparities in Thyroid Care 

What Black Communities Should Know About Thyroid Disorders 

Why do thyroid cancer outcomes differ across racial and ethnic lines? 

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Cervical Cancer Is Deadlier Than We Realized—Especially for Black Women  https://blackhealthmatters.com/cervical-cancer-deadlier-than-thought/ https://blackhealthmatters.com/cervical-cancer-deadlier-than-thought/#respond Wed, 21 Jan 2026 07:30:32 +0000 http://www.bhm.mauldinwebhosting.com/?p=30128 Cervical cancer remains one of the most preventable types of cancer, yet thousands of women in the United States continue to die from it each year. In 2025, the American Cancer Society estimated 13,360 […]

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Cervical cancer remains one of the most preventable types of cancer, yet thousands of women in the United States continue to die from it each year. In 2025, the American Cancer Society estimated 13,360 new cases of invasive cervical cancer and 4,320 deaths. Although, these deaths are not evenly distributed. They disproportionately affect Black women, Hispanic women, and American Indian/Alaska Native women. 

Disparities in Screening and Diagnosis 

More than half of all new cervical cancer cases occur among women who have never been screened or were screened infrequently. Screening and HPV vaccination are proven preventive measures, but access is far from equal. Black women are less likely to receive routine Pap smears and HPV vaccines, and they are more likely to be diagnosed at later stages of the disease.  

Only 37% of non-Hispanic Black women are diagnosed at a localized stage, compared to 46% of White women, which significantly reduces survival chances in Black women. Overall, Black women face a 65% higher mortality rate than in Non-Hispanic White people despite having a similar screening prevalence. Additionally, the 5-year relative survival rate for cervical cancer is 67% overall and 67% in Non-Hispanic White people, but only 56%in Non-Hispanic Black people. This demonstrates how these disparities among Black women negatively impact their overall health and well-being. 

Insurance status also plays a critical role in the survival rates and diagnoses. Women with private insurance or Medicare are more likely to be diagnosed early, while those uninsured or covered by Medicaid face higher rates of a late-stage diagnosis. This is due to lower screening rates and delayed follow-ups for abnormal test results. 

Generational Trends 

HPV vaccination has driven progress among younger women. Since 2012, cervical cancer incidence has dropped 11% annually for women aged 20–24, which is the generation that had access to the vaccine. However, rates are rising by 1.7% annually among women aged 30–44, who were too old to benefit from early vaccination programs. 

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Claudette Colvin, An Unsung Catalyst of the Civil Rights Movement Has Died https://blackhealthmatters.com/claudette-colvin-an-unsung-catalyst-of-the-civil-rights-movement-has-died/ Wed, 14 Jan 2026 18:29:23 +0000 https://blackhealthmatters.com/?p=65392 Claudette Colvin, who as a 15-year-old refused to give up her seat on a Montgomery, Alabama, bus in 1955, died on Tuesday, January 13, of natural causes. The 86-year-old had […]

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Claudette Colvin, who as a 15-year-old refused to give up her seat on a Montgomery, Alabama, bus in 1955, died on Tuesday, January 13, of natural causes. The 86-year-old had been in hospice care in an area near Houston, Texas, at the time of her passing. Her death was confirmed via Facebook from the Claudette Colvin Legacy Foundation.

“To us, she was more than a historical figure. She was the heart of our family, wise, resilient, and grounded in faith,” the Claudette Colvin Foundation said in a statement announcing her death. “We will remember her laughter, her sharp wit, and her unwavering belief in justice and human dignity.”

Colvin’s Act of Resistance

On March 2, 1955, Colvin boarded a bus in Montgomery. Black passengers needed to ride in the back. However, there was a section called “No man’s land,” where bus drivers could demand that any Black passenger relinquish their seat, and the entire row, if a white rider wanted to sit there. On that day, four Black riders were asked to move; two changed sections immediately. Colvin and another passenger remained seated. When the driver called the police, the teen was the only one still refusing to move.

Colvin didn’t choose this action lightly. At the time, she was an honors student at Booker T. Washington High School. Colvin had just completed studying Black History and learning about injustices in the South. She was also active in her school’s NAACP Youth Council, and had been considering ways to protest.

“I felt as though Harriet Tubman was pushing me down on one shoulder and Sojourner Truth was pushing me down on the other,” she said. “So, therefore, history had me glued to the seat. That was the reason I could not move.”

When the police arrived, they removed her forcibly, dragging her backward off the bus as she screamed. She feared being attacked or worse by the officers. “I didn’t know if they were crazy, if they were going to take me to a Klan meeting,” she told The Guardian in 2000. “I started protecting my crotch. I was afraid they might rape me.”

The teen was charged with violating segregation laws, disturbing the peace, and assaulting an officer. She was found guilty of the assault charge, made a ward of the state, and received indefinite probation. Peers and some in the community shunned her.

Why She Didn’t Become the Face of the Montgomery Bus Boycott

Many aren’t familiar with Colvin’s actions because Rosa Parks was chosen to be the face of the Montgomery Bus Boycott. Although the NAACP and other civil rights leaders knew about her bold act of protest, they waited until Rosa Parks, nine months later, objected by giving up her seat in the same act of resistance before moving forward with any action.

Some speculate that colorism and class were involved; leaders believed getting the middle class on board with the boycott would be easier with Parks. There was also misinformation surrounding Colvin being pregnant, which occurred months after the incident.

“My mother told me to be quiet about what I did,” Ms. Colvin recalled. “She told me: ‘Let Rosa be the one. “White people aren’t going to bother Rosa, her skin is lighter than yours, and they like her,” she told the New York Times.

Colvin Was a Key Figure in a Landmark Case

While she wasn’t chosen as the face of the boycott, her attorney, Fred D. Gray, included Colvin as one of the four defendants—along with Aurelia Browder, Susie McDonald, and Mary Louise Smith—in a 1956 federal lawsuit, Browder v. Gayle. The lawsuit was against the City of Montgomery, the state of Alabama, centered on unfair treatment on the city buses. After winning the case, it was escalated to the Supreme Court, which affirmed the ruling. The case was instrumental in striking down bus segregation.

Her participation in the lawsuit and her act of defiance on the city bus led to her being labeled a troublemaker by both whites and Blacks. By the end of the decade, Colvin had relocated from Montgomery to the Bronx, New York. She worked as an aide in a Manhattan nursing home for 35 years.

In 2010, the street where she grew up was renamed Claudette Colvin Drive, and a mural depicting the teen and elder Colvin was added eight years later.

Why the Story is Not Widely Known

It would be decades before Colvin shared her story. She continued to follow her mother’s advice. She continued to heed her mother’s advice and worried that drawing attention to herself would cost her her job. “I wasn’t going to take that chance,” she said.

We will never forget Claudette Colvin for her strength, bravery, and act of defiance. Our condolences go out to her loved ones.

 

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What to Expect During a Glaucoma Screening https://blackhealthmatters.com/what-to-expect-during-a-glaucoma-screening/ Fri, 09 Jan 2026 22:26:35 +0000 https://blackhealthmatters.com/?p=65352 Glaucoma is the leading cause of blindness in African Americans after cataracts, and nearly half of the people who have it do not know it, according to the Glaucoma Research […]

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Glaucoma is the leading cause of blindness in African Americans after cataracts, and nearly half of the people who have it do not know it, according to the Glaucoma Research Foundation. It also develops earlier and progresses faster in Black adults, often appearing about 10 years earlier than in other groups.

That is precisely why regular screenings matter. A glaucoma screening is simple, painless, and one of the most powerful ways to protect your sight. If you have never taken one or are unsure what to expect during the exam, here is a guide to help you walk in with confidence.

What is Glaucoma?

Glaucoma is a group of eye diseases that damage the optic nerve, the part of the eye that sends visual information to the brain. This usually occurs when fluid inside the eye doesn’t drain properly, causing pressure to build up over time. You may not feel this pressure, but it can damage the optic nerve and lead to vision loss, especially in peripheral vision. Glaucoma is one of the leading causes of blindness worldwide, but early detection can slow or prevent further damage.

It’s a Real Risk for Us

Glaucoma often develops under the radar. Most people don’t feel pain or notice vision changes until the disease has already caused damage. That is why screenings are so important, especially for Black families who face a higher risk and earlier onset.

Research shows that glaucoma appears earlier and progresses faster in African Americans, and blindness from glaucoma is significantly more common in our communities. And this is precisely why glaucoma screenings are so important. Glaucoma can affect anyone, but it shows up earlier and hits harder in our community.

Who Should Get Screened

How often you need an eye exam depends on your age and your risk. If you’re under 40 and don’t have any risk factors, an eye exam every few years is generally fine.

For our community, the risk is higher. Because glaucoma often shows up earlier and moves faster for Black people, experts recommend a comprehensive eye exam every one to two years beginning at age 40. The National Eye Institute notes that African Americans should begin glaucoma evaluations earlier than other groups because of this increased risk.
The American Academy of Ophthalmology also offers general guidance on how often to get checked:

  •  Every 2-4 years for adults ages 40–54
  •  Every 1–3 years for adults ages 55–64
  •  Every 1–2 years for adults 65 and older

For our community, these timelines often shift earlier because of the higher risk.

You should also get screened if:

  • You have a parent or sibling with glaucoma
  •  You have diabetes or high blood pressure
  •  You have had an eye injury
  • You have been using steroid medications long-term

Family history is significant. Siblings of people with glaucoma have a much higher chance of developing it themselves.

How Glaucoma Screening Works

A glaucoma screening is typically included in a comprehensive eye exam. It is not scary, and nothing should hurt. The BrightFocus Foundation provides a clear overview of the tests involved, and here is what the appointment typically includes.

A conversation about your eye health

Your doctor will ask about your vision, family history, and any medical conditions. This helps them understand your personal risk.

A check of your eye pressure

This is called tonometry. Some clinics use the puff of air. Others use a small device that gently touches the surface of your eye after numbing drops are applied. High pressure can be a sign of glaucoma, but pressure alone does not confirm the disease.

A look at your optic nerve

Using a bright light and a magnifying lens, your doctor examines the optic nerve at the back of your eye. Glaucoma affects this nerve first, so this step is essential.

A test of your side vision

This is the visual field test. You look straight ahead and press a button whenever you see small lights appear in your peripheral vision. Glaucoma often affects side vision before central vision.

A measurement of your corneal thickness

This is called pachymetry. A small probe touches your eye after numbing drops are applied. Corneal thickness can affect how intraocular pressure is measured, and thinner corneas are associated with higher glaucoma risk.

Imaging of the optic nerve

Some clinics use OCT imaging, which provides detailed images of the optic nerve and retinal layers. It helps track changes over time and can detect early damage.

What Happens After the Screening

Your doctor will review your results and let you know if anything looks concerning. They may recommend follow-up testing or regular monitoring. If glaucoma is suspected, early treatment can slow or prevent vision loss. Most people start with prescription eye drops, and many never need surgery.

How to Prepare for Your Appointment

Bring your glasses or contacts, a list of medications, and any information about family history. Expect your eyes to be dilated, which can make you sensitive to light for a few hours. And remember, choosing to get screened is something to be proud of. It’s a meaningful step to protect your health.

What to Remember

Glaucoma screenings are quick, painless, and one of the best ways to protect your vision. If your results show anything concerning, your doctor will walk you through the following steps. There are several effective treatments for glaucoma, but the first and most crucial step is getting screened.

Resources:

African Americans And Glaucoma – Glaucoma Research Foundation

Racial Disparities in Glaucoma: From Epidemiology to Pathophysiology – PMC

Eye Health Among Black/African American People | National Eye Institute

Frequency of Ocular Examination – American Academy of Ophthalmology

The Glaucoma Eye Exam: 6 Common Tests

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Beloved Maternal Health Advocate Dr. Janell Green Smith Died in Childbirth    https://blackhealthmatters.com/beloved-maternal-health-advocate-dr-janell-green-smith-died-in-childbirth/ Fri, 09 Jan 2026 16:17:26 +0000 https://blackhealthmatters.com/?p=65366 Dr. Janell Green Smith, one of the most treasured voices in the fight against Black maternal mortality, died in childbirth on January 2nd. She was 31 years old.   Green Smith, […]

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Dr. Janell Green Smith, one of the most treasured voices in the fight against Black maternal mortality, died in childbirth on January 2nd. She was 31 years old.  

Green Smith, a certified nurse-midwife, disseminated valuable information about gaps in Black maternal health outcomes on social media. She went by the moniker the “Loc’d Midwife.”  

She is survived by her husband, newborn, and the many people whose lives she touched by practicing her life’s calling of “catching babies.”  

Dr. Green Smith’s Advocacy 

She worked with the non-profit The Hive Impact Fund to support mothers and mothers-to-be with the resources required to expand and maintain their families.  

Her death was met with an outpour of mourning on social media. The American College of Nurse-Midwives issued a statement expressing their grief, sadness, and outrage at the unexpected news. It appeared across their social channels.  

“Dr. Smith was a respected midwife, scholar, and advocate whose life and work reflected a deep commitment to respectful, evidence-based, and equitable care. That a Black midwife and maternal health expert died after giving birth in the United States is both heartbreaking and unacceptable,” they wrote.  

“Her death underscores the persistent and well-documented reality that Black women-regardless of education, income, or professional expertise-face disproportionate risks during pregnancy and childbirth due to systemic racism and failures in care,” they continued.  

Black Women Are at Increased Risk Despite Education, Income, or Professional Expertise 

Green Smith’s tragic death is a heartbreaking example of the Black maternal health crisis. In 2024, the Centers for Disease Control (CDC) reported that “Black women are three times more likely to die from a pregnancy-related cause than White women.” The International Journal for Equity in Health describes Black maternal mortality in the United States as “one of the most alarming and persistent indicators of racial injustice.” 

“Most maternal deaths are preventable, as the health-care solutions to prevent or manage complications are well known,” according to the World Health Organization. To prevent these tragic occurrences, competent and caring providers must be available.  

The Rise of Maternity Deserts 

Location plays a role in maternal health outcomes. A new report highlights a dwindling supply of obstetricians and gynecologists in non-metropolitan areas. Rural residents are particularly at risk.  

Areas such as Green Smith’s home state of South Carolina are sometimes referred to as “maternity deserts.”  

According to the Journal of Obstetrics & Gynecology, “The shortage of ob-gyns in 10 years is projected to progressively worsen by today’s standard practice patterns.” By 2035, “Only six states (Hawaii, New York, Connecticut, Maryland, Rhode Island, Louisiana) were projected to continue to have an adequate supply.” The U.S. Department of Health and Human Services projects a shortage of obstetricians and gynecologists; its forecasts indicate that there will not be enough physicians in the specialty to meet the nation’s needs by 2037.  

This is Not a Socioeconomic Issue Alone 

Some dismiss the Black maternal health crisis because of poverty and preexisting conditions alone. A 2020 article from the World Journal of Gynecological Women’s Health points out that “Racial disparity exists in maternal mortality despite correcting for commonly cited reasons” and “It is a problem for Black American women and cannot be explained by socioeconomic factors alone.” 

Black maternal health challenges traverse tax brackets and class boundaries. “These outcomes cannot be understood through individual behavior, access, or socioeconomic status alone,” reports the International Journal for Equity in Health 

Young, beautiful, educated, well-off Black women die in childbirth due to neglect.  

Angelica Lyons, as Green Smith did, works to advocate against the ways medical racism impacts birthing people. Her work took place in the classroom. In 2023, she told the Associated Press that she nearly died from sepsis after her pain was ignored by an Alabama hospital. She reported that the severe pain she was experiencing was dismissed as Braxton Hicks contractions by healthcare professionals who did not take her seriously. Her dilemma showed how racial bias in pain assessment can interfere with providing adequate maternal care.  

How We Can Combat This Issue 

Public figures, including the editor-turned-television personality Elaine Welteroth, have joined the fight to address the crisis. Welteroth’s BirthFund raised money to expand access to midwifery with support from her Founding Family Funders, including Kelly Rowland and Serena Williams. 

Williams’ harrowing birth story was so widely reported that it became a footnote in an episode of Insecure. The tennis star turned venture capitalist experienced a pulmonary embolism following the birth of her daughter, Olympia. Her story of demanding that the doctors take her concerns seriously frightened many.  

Fighting For Reproductive Justice is Critical 

“To address the disparities in Black maternal health, expanding access to midwives and doulas is essential. Midwifery care reduces preterm births and cesarean delivery rates and improves breastfeeding outcomes, particularly among Black mothers. Doulas provide invaluable emotional and physical support during pregnancy and childbirth, mitigating racial biases and fostering trust in the health care system,” according to The National Center for Chronic Disease Prevention and Health Promotion 

Black Maternal Health Week was founded in 2016 to encourage collective action and community engagement in support of reproductive justice. It amplifies the voices of Black organizations supporting people who give birth and their families.  

They connect the public with individuals who provide life-changing care, such as Green Smith.  

Our thoughts and prayers are with the family of Dr. Janell Green Smith.  

Resources 

The Hive Impact Fund 

International Journal for Equity in Health 

Journal of Obstetrics & Gynecology 

World Health Organization 

South Carolina Daily Gazette 

U.S. Department of Health and Human Services  

World Journal of Gynecological Women’s Health 

Proceedings of the National Academy of Science 

BirthFund 

The National Center for Chronic Disease Prevention and Health Promotion 

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6 Tips for a Healthy Cervix https://blackhealthmatters.com/6-tips-for-a-healthy-cervix/ https://blackhealthmatters.com/6-tips-for-a-healthy-cervix/#respond Tue, 06 Jan 2026 15:30:31 +0000 https://blackhealthmatters.com/?p=19967 6 Tips for a Healthy Cervix  Did you know January is dedicated to raising awareness about cervical health? Your cervix is the lower part of your uterus, which connects the […]

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6 Tips for a Healthy Cervix 

Did you know January is dedicated to raising awareness about cervical health? Your cervix is the lower part of your uterus, which connects the uterine cavity to the vagina. It plays a vital role in reproduction and overall health. 

Keeping your cervix healthy is essential because issues like inflammation, abnormal growths, and cervical cancer can affect this small but vital part of your body. The good news is that there are simple steps you can take to protect your cervical health starting today! 

1. Get Regular Screenings: Pap Smear and HPV Test

Screening is one of the most effective ways to prevent cervical cancer. The Pap test (or Pap smear) and the human papillomavirus (HPV) test are used to check for abnormal cells and HPV infections that can lead to cervical cancer. 

Both tests involve gently collecting cells from your cervix for lab analysis. If precancerous cervical cell changes are found, they can be treated before they turn into cancer. HPV tests detect high-risk HPV types, while Pap smears examine cervical cells for abnormalities. 

Most cervical cancers occur in women who skip regular screenings, so stay on schedule and talk to your healthcare provider about your results and next steps.

2. Protect Yourself with the HPV Vaccine

The HPV vaccine helps prevent infection from virus types most commonly linked to cervical cancer. It also protects against some types that cause genital warts. 

It works best before exposure to HPV, so vaccination is recommended for children ages 9–12. Teens and young adults aged 26 and under who have not been vaccinated should receive the shots as soon as possible. The vaccine is administered in 2 or 3 doses, with side effects typically mild, such as soreness at the injection site. 

It is important to note that no vaccine provides complete protection against all cancer-causing HPV types, so regular cervical screenings are still essential. 

3. Limit HPV Exposure and Use Condoms

HPV spreads through skin-to-skin contact, including vaginal, anal, and oral sex. It can also spread without sex, such as through hand-to-genital contact. Since HPV is common and often has no symptoms, anyone can pass it on without knowing. 

You can lower your risk by limiting the number of sexual partners and being cautious of partners who have had many others. Using condoms also helps to reduce HPV transmission and related health issues like genital warts, cervical dysplasia, and cervical cancer. While condoms do not fully protect against HPV because they do not cover all areas (like the scrotum), they are still one of the easiest ways to lower your risk when combined with regular screenings and vaccination. 

4. Exercise and Eat a Healthy Diet

Regular physical activity can help lower your risk of cervical cancer by strengthening the immune system, supporting hormonal balance, and reducing inflammation. With just 30 minutes of aerobic exercise, such as walking, swimming, or cycling, you can make a meaningful difference in your health. 

You can also pair exercise with a diet rich in fruits and vegetables. These foods provide antioxidants and minerals that support your body’s fight against HPV infections and slow the process by which healthy cells become cancerous. Together, movement and nutrition support overall health and reduce your risk. 

5. Quit Smoking

Smoking exposes you and those around you to cancer-causing chemicals that affect more than just the lungs. These harmful substances are absorbed through the lungs and carried throughout the body in the bloodstream. 

Women who smoke are about twice as likely to develop cervical cancer compared to those who do not. Tobacco products have been found in cervical mucus, and researchers believe these chemicals damage the DNA of cervical cells, ultimately increasing cancer risk. Smoking also weakens the immune system, which makes it harder to fight HPV infections. 

6. Understand the Risks of Long-Term Birth Control Use

Research shows that using oral contraceptives for many years (5+) can increase the risk of cervical cancer. The longer the use of oral contraceptives, the higher the risk of cervical cancer. Fortunately, the risk decreases after stopping the oral contraception and eventually returns to normal over time. Hormones in the oral contraceptive pills may influence cervical cells, potentially increasing cancer risk. If you plan to use birth control pills long-term, talk with your doctor about the benefits and potential risks. 

Resources

American Cancer Society: The HPV Test

American Cancer Society: Pap Tests

American Cancer Society; Can Cervical Cancer Be Prevented?

HCG Oncology

American Cancer Society: Cervical Cancer Risk Factors

Frontiers in Pharmacology

 

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COVID-19, Influenza and RSV: Respiratory Triad Prevention & Peaks https://blackhealthmatters.com/rsv-covid-19-and-influenza-respiratory-triad-prevention-peaks/ Tue, 06 Jan 2026 07:15:23 +0000 https://blackhealthmatters.com/?p=40532 Respiratory illnesses are rising in many communities, and people are trying to make sense of what they’re seeing around them. A clearer look at the viruses circulating this season can […]

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Respiratory illnesses are rising in many communities, and people are trying to make sense of what they’re seeing around them. A clearer look at the viruses circulating this season can help us move through it with a bit more confidence, so let’s take a closer look together.

COVID-19

COVID-19 continues to circulate during the 2025-2026 respiratory virus season. According to the CDC’s Respiratory Illness Data Channel, national COVID activity is low but increasing, and the virus remains one of the primary contributors to winter respiratory illness alongside influenza and RSV.

Clinicians are also noting shifts in how COVID is showing up this season. In an interview with Parade, infectious disease experts reported that recent variants are causing more upper respiratory, cold-like symptoms rather than lower-respiratory pneumonia that was more common early in the pandemic.

COVID-19 Symptoms

The CDC notes that people with COVID-19 can experience a wide range of symptoms, from mild to severe. Symptoms may appear 2 to 14 days after exposure and can include:

  • Fever or chills
  • Cough
  • Shortness of breath and difficulty breathing
  • Fatigue
  • Muscle or body aches
  • Headache
  • New loss of taste or smell
  • Sore throat
  • Congestion or runny nose
  • Nausea or vomiting
  • Diarrhea

COVID-19 Vaccination

COVID-19 can still be serious, especially for older adults, people with underlying health conditions, and those who are immunocompromised. The CDC recommends a 2025-2026 COVID-19 vaccine for people ages 6 months and older, based on individual decision-making, and emphasizes that vaccination is particularly important for adults 65 and older and others at higher risk for severe disease.

Influenza (Flu) 

Seasonal influenza activity remains elevated across the United States and continues to rise, according to the CDC’s latest surveillance data. The 2025-2026 flu season is shaping up to be rather severe, with widespread illness and rising hospitalizations reported across the country. Many states are reporting high or very high flu activity, and several regions are seeing sharp increases in emergency department visits and flu-related hospital stays.

The World Health Organization (WHO) notes that influenza A (H3N2) is one of the major strains circulating globally this season, and it has been associated with increased illness in several regions.

Flu Symptoms

Yale Medicine notes that flu symptoms can range from mild to severe and often begin suddenly. Common symptoms include:

  • Fever
  • Chills
  • Cough
  • Sore throat
  • Runny or stuffy nose
  • Muscle or body aches
  • Headaches
  • Fatigue
  •  Vomiting
  • Diarrhea

Flu Vaccination

The CDC recommends a flu vaccine for everyone 6 months and older, with extra importance for adults 65+, young children, pregnant people, and those with underlying conditions. For 2025-2026, the Food and Drug Administration and the Advisory Committee on Immunization Practices introduced updates to flu vaccine options, including expanded age approvals.

Respiratory Syncytial Virus (RSV)

RSV is a common respiratory virus that can affect people of all ages, but it tends to cause the most severe illness in infants, young children, and older adults. According to the CDC, RSV activity is elevated in many parts of the country, with emergency department visits and hospitalizations increasing among children ages 0-4 this season.

RSV Symptoms

Symptoms usually appear four to six days after infection and may include:

  • Runny nose
  • Decrease in appetite
  • Coughing
  • Sneezing
  • Fever
  • Wheezing

RSV Vaccination

For the 2025-2026 season, the CDC recommends RSV vaccination for adults 75 and older, adults 50-74 at increased risk, and protection for infants through maternal vaccination or a one-time RSV monoclonal antibody dose before their first RSV season.

Protecting Yourself and Others

The symptoms of these viruses can overlap; to be accurately diagnosed, concerned patients should consult their medical professionals for laboratory tests. In addition to getting vaccinated, people can do a few things to protect themselves, such as:

  • Wearing a well-fitting mask in higher-risk situations to reduce the spread of respiratory droplets.
  • Utilizing air filters and promoting air circulation by opening windows.
  • Cleaning frequently touched surfaces to reduce the spread of germs.
  • Washing hands regularly with soap and water.

When trying to prevent the onset of respiratory diseases, the quality of being proactive should not be undervalued. Using one’s discernment is a priceless tool, as it is imperative to stay away from people who are sick; close proximity to illnesses can significantly increase the chances of exposure to a respiratory virus.

 Resources:

Respiratory Illnesses Data Channel | Respiratory Illnesses | CDC

Most Common COVID-19 Symptoms Right Now (January 2026) – Parade

Symptoms of COVID-19 | COVID-19 | CDC

Staying Up to Date with COVID-19 Vaccines | Covid | CDC

Weekly US Influenza Surveillance Report: Key Updates for Week 52, ending December 27, 2025 | FluView | CDC

New influenza variant is surging, but vaccination still our best bet: WHO | UN News

Influenza (Flu) | Fact Sheets | Yale Medicine

Prevention and Control of Seasonal Influenza with Vaccines: Recommendations of the Advisory Committee on Immunization Practices — United States, 2025–26 Influenza Season | MMWR

Respiratory Illnesses Data Channel | Respiratory Illnesses | CDC

RSV Vaccine Guidance for Adults | RSV | CDC

Immunizations to Protect Infants | RSV | CDC

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Are You at Risk for Glaucoma? https://blackhealthmatters.com/know-glaucoma-risks/ https://blackhealthmatters.com/know-glaucoma-risks/#respond Mon, 05 Jan 2026 14:00:57 +0000 http://www.blackhealthmatters.com/?p=13163 More than 4.22 million U.S. adults are living with glaucoma, according to the Vision and Eye Health Surveillance System at the CDC. Glaucoma is a disease related to pressure within […]

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More than 4.22 million U.S. adults are living with glaucoma, according to the Vision and Eye Health Surveillance System at the CDC. Glaucoma is a disease related to pressure within the eye. The most common form, open angle glaucoma, usually has no symptoms in the early stages. That’s why so many people do not know they have it until vision loss has already begun.

Anyone can develop glaucoma, but some groups face higher risk. For Black communities, the risk is especially serious. Glaucoma is one of the leading causes of irreversible blindness in the United States, and while there is no cure, early detection and treatment can protect your sight.

The Types of Glaucoma

Glaucoma isn’t just one disease. It’s a group of conditions that damage the optic nerve, usually because of increased pressure inside the eye. The most common form in the U.S. is primary open-angle glaucoma, which develops slowly and without symptoms.

There are other types as well:

Angle-Closure Glaucoma

This type happens when the drainage angle suddenly becomes blocked. Pressure rises very quickly and it causes strong eye pain, headache, nausea, and blurry vision. This is an emergency and needs immediate treatment to prevent permanent vision loss.

Secondary Glaucoma

Secondary glaucoma develops because of another problem in the eye, like an injury, inflammation, advanced diabetes, or long-term steroid use. These issues can raise eye pressure and block the drainage system. It can develop slowly or more quickly, depending on the cause.

Congenital Glaucoma

This rare type is present at birth. The eye’s drainage system didn’t form the right way, so pressure builds early. Babies may have large or cloudy-looking eyes, tearing, or sensitivity to light. Early treatment is important to protect vision.

Who Is at Higher Risk for Glaucoma?

Race

Black Americans face a disproportionate burden. According to a 2024 meta-analysis published in JAMA Ophthalmology, 3.15 percent of Black adults had glaucoma in 2022 compared with 1.43 percent of white adults.

Age

Risk increases with age. Adults over 60 are much more likely to develop glaucoma than younger adults.

Family History

A family history of glaucoma increases your risk, especially if a parent or sibling has been diagnosed.

Medical Conditions

Conditions like diabetes, high blood pressure, and heart disease may increase glaucoma risk. These conditions already affect our communities at higher rates, which makes regular eye exams even more important.

Corticosteroid Use

Steroids, also called corticosteroids, are medications that reduce inflammation and are commonly used for asthma, allergies, and autoimmune conditions. Most people use low doses safely, but long-term or high-dose use can raise eye pressure. This is a reminder to talk with your doctor about any long-term medications and how they may affect your eyes.

Eye Injuries

Serious eye trauma can raise eye pressure or damage the drainage system. Glaucoma from injury can show immediately or even years later.

Other Factors

Extreme nearsightedness, thin corneas, retinal detachment, eye tumors, and chronic eye inflammation can all contribute to glaucoma risk.

How Often Should You Get Checked

How often you need an eye exam depends on your age and your risk. If you’re under 40 and don’t have any known risk factors, a comprehensive eye exam every few years is usually enough.

Once you turn 40, eye health starts to change, and glaucoma becomes more common. The American Academy of Ophthalmology recommends:

  • Every 2-4 years for adults ages 40-54.
  • Every 1-3 years for adults ages 55-64.
  • Every 1-2 years for adults 65 and older.

Because glaucoma is more common in the our community and tends to appear earlier, Black adults should start getting exams  every 1-2 years beginning at age 40.

How to Protect Your Eyes

You can’t fully prevent glaucoma, but small habits can support eye health and lower your risk.

  • Protect your eyes during sports, yard work, or any activity where something could hit your eye.
  • Know your risk factors, including age, family history, diabetes, and long-term steroid use.
  • Keep up with regular eye exams since glaucoma often has no early symptoms.
  • Limit very high caffeine intake if you’re at higher risk, since large amounts can raise eye pressure.
  • Avoid activities that put your head lower than your heart for long periods, like headstands, because they can temporarily increase eye pressure.
  • Eat leafy greens like spinach and kale to support healthy blood flow to the eyes.
  • Stay active, even with simple daily movement, like walking.
  • Avoid smoking and heavy alcohol use.
  • Take glaucoma medications exactly as prescribed if you already have the condition.

The Good News

With medication, laser treatment, or surgery, it is possible to slow or stop further vision loss. Early detection is key. Protecting your sight starts with showing up for that eye exam, especially if you are Black, over 40, or have a family history.

Resources:

VEHSS Modeled Estimates: Prevalence of Glaucoma | Vision and Eye Health Surveillance System (VEHSS) | CDC

Prevalence of Glaucoma Among US Adults in 2022 – PMC

Frequency of Ocular Examination – American Academy of Ophthalmology

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Carmen de Lavallade, A Legendary Dance Icon, Has Passed Away https://blackhealthmatters.com/carmen-de-lavallade-a-legendary-dance-icon-has-passed-away/ Wed, 31 Dec 2025 23:44:45 +0000 https://blackhealthmatters.com/?p=65285 Carmen de Lavallade, a groundbreaking Black dancer and choreographer, died on Monday, December 29. The 94-year-old legend passed away at a hospital in Englewood, NJ, following a brief illness. Ms. […]

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Carmen de Lavallade, a groundbreaking Black dancer and choreographer, died on Monday, December 29. The 94-year-old legend passed away at a hospital in Englewood, NJ, following a brief illness. Ms. Lavallade was the widow of dancer, actor, director, and choreographer Geoffrey Holder. Their son confirmed her passing.

 

View this post on Instagram

 

A post shared by Alvin Ailey (@alvinailey)

 

A Family Member Inspired Lavallade’s Dance Aspiration

She was born Carmen Paula de Lavallade on March 6, 1931, in Los Angeles. Her family, originally from New Orleans, had migrated West in the 1920s. Her father, Leo, was a bricklayer and a postal worker. Her mom, Grace Grenot de Lavallade, passed away when the dancer was a teen.

Her cousin, Janet Collins, who broke glass ceilings to become the first prima ballerina at the Metropolitan Opera House in the 1950s, fueled Ms. de Lavallade’s interest in dance and served as her mentor. The aspiring dancer was dedicated to learning and took three buses to get to her classes in Hollywood.

It paid off: at the age of 16, she received a scholarship to study with modern dance master and Dance Theater of Los Angeles founder Lester Horton. She brought her high school buddy, Alvin Ailey, to class.

Ms. Lavallade performed as a lead dancer with Horton from 1949 until 1954, when she joined Alvin Ailey’s company. According to the New York Times, Lavallade said, “At Mr. HHorton’sschool, she soaked up his multidisciplinary approach, taking classes in ballet, modern and African dance forms, as well as acting, music and painting.”

 

Ms Lavallade’s Broadway Debut Led to Love

Her exquisite dance prowess caught the attention of influential people. Lena Horne helped introduce Ms. Lavallade to film roles in Hollywood. She acted opposite Harry Belafonte in Odds Against Tomorrow. A role in Otto Preminger’s Carmen Jones led to her being cast in the Broadway production of Truman Capote’s House of Flowers. It debuted in December 1954 with stars including Pearl Bailey, Diahann Carroll, and Alvin Ailey. During production, she met co-star Geoffrey Holder, and the two married in 1955, remaining an artistic power couple until he died in 2014. The two choreographed her signature solo, “Come Sunday.”

Her Career Spanned Six Decades

The prolific actor, dancer, and choreographer led her talent to several companies, including Donald McKayle, the American Ballet Theater, the Dance Theatre of Harlem, and the Metropolitan Opera. She joined the Yale School of Drama as a choreographer and performer-in-residence in the 1970s, before becoming a professor at the Yale Repertory Theater. She continued to dance throughout the decades, giving her final performance at 88.

 

Ms. de Lavallade and her work garnered numerous awards, including the Black History Month Lifetime Achievement Award, the Bessie Award, and the Rosie Award. She received the 2017 Kennedy Center Honors. Her legacy will continue to inspire creatives for decades to come.

Our sincere condolences go out to her family, including her son, Leo, and her sister, Yvonne de Lavallade Davis.

 

 

 

 

 

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Gospel Music Maestro Richard Smallwood Has Died https://blackhealthmatters.com/gospel-music-maestro-richard-smallwood-has-died/ Tue, 30 Dec 2025 23:51:50 +0000 https://blackhealthmatters.com/?p=65262 Award-winning singer, composer, and iconic gospel music artist Richard Smallwood died on December 30th at a nursing home in Maryland. His family announced the news via social media. He was […]

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Award-winning singer, composer, and iconic gospel music artist Richard Smallwood died on December 30th at a nursing home in Maryland. His family announced the news via social media. He was 77 years old. The pianist and choirmaster died from complications of kidney failure.

A Beloved Son of Washington, D.C.

While Smallwood was born in Atlanta, he was raised by his mother, Mabel, and his stepfather, the Reverend Chester Lee “CL Smallwood, in the nation’s capital. Reverend Smallwood was the pastor of the Union Temple Baptist Church in the Southeast section of the district.

His connection to music began when he was five, playing the piano by ear. By seven, he began formal lessons and joined his first gospel group as a preteen. After graduating from McKinley Technical High School, Smallwood went to Howard University. There, he became a founding member of Howard University’s Gospel Choir and a member of the Celestial Singers before graduating cum laude.

His Debut Album Spent 87 Weeks on the Billboard Charts

Inspired by the Edwin Hawkins Singers, the composer and arranger formed The Richard Smallwood Singers in 1977. They were signed to Onyx Records, a division of Benson Records, in 1982. The group’s self-titled debut album topped Billboard Spiritual Albums sales charts for months. Two years later, the group was up for their first Grammy for Psalms.

In 1987, one of Smallwood’s most beloved songs, “Center of My Joy,” was released on the album “Textures.” The song made the composer a crossover sensation. In the 1990s, he formed Richard Smallwood and Vision, which featured a larger choir. Throughout the 90s and early 2000s, the group released four albums and several well-known hits. They include “I’ll Trust You, “Angels,” and “Total Praise.”

Whitney Houston sang a version of Smallwood’s  “I Love the Lord” in the film The Preacher’s Wife, and Destiny’s Child released a live version of “Total Praise” in 2001.

Total Praise was a very personal song for the artist because it was a reflection of the composer’s battle with depression.

The Washington Post reported “Total Praise,” released in 1996 with his gospel group Vision, was inspired by his experience caring for his mother, who had dementia, and for a family friend who had cancer. Mr. Smallwood said he had decided “to write a pity-party song,” but found himself praising God instead, crafting lyrics that reasserted his faith in a moment of despair.”

Grammy Nominations, Dove and Stellar Awards

In total, the contemporary gospel maestro received eight Grammy nominations. He received the James Cleveland Lifetime Achievement Award at the Stellar Awards. And his most recent Dove nomination was this year as a co-writer; Ricky Dillard’s “When I Think” was inducted into the Gospel Music Hall of Fame in 2006.

Smallwood didn’t perform or record as much in recent years because he also had mild dementia and several other health ailments.

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Gospel Music Maestro Richard Smallwood Has Died - Black Health Matters Award-winning singer, composer, and iconic gospel music artist Richard Smallwood died on December 30th at a nursing home in Maryland. gospel composer,gospel pianist,Richard Smallwod,Richard Smallwood and Vision,The Richard Smallwood Singers,Total Praise,Trust You,Richard Smallwood dead
A Conversation About APOL1-Mediated Kidney Disease (AMKD)  https://blackhealthmatters.com/a-conversation-about-apol1-mediated-kidney-disease-amkd/ Tue, 30 Dec 2025 22:03:19 +0000 https://blackhealthmatters.com/?p=65265 Presented By: Vertex Dr. Stacy Johnson  Nephrologist   Clinical Development Director  Vertex  Alonzo Mourning  Disease Advocate   Vertex  Kidney diseases can show up anywhere, including NBA locker rooms. Athletic legend and disease […]

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Presented By: Vertex

Dr. Stacy Johnson 

Nephrologist  

Clinical Development Director 

Vertex 

Alonzo Mourning 

Disease Advocate  

Vertex 

Kidney diseases can show up anywhere, including NBA locker rooms. Athletic legend and disease advocate Alonzo Mourning shared his experience discovering and cheating with APOL1-Mediated Kidney Disease at the Black Health Matters 2025 Health Summit & Expo.  

He was joined by Black Health Matters Founder Roslyn Daniels and Dr. Stacy Johnson, Nephrologist, Clinical Development Director at Vertex.  

Johnson highlighted the deep racial disparities in the diagnosis of kidney diseases. “Although African-Americans make up about 14% of the US population, they represent about 30% of the cases of kidney failure,” she said. The research has deepened into the genetic components of kidney disease in recent years.  

“We have known for a long time that African-Americans have a higher chance of developing kidney disease, ending up on dialysis, or needing a kidney transplant. And it wasn’t until about 2010 when scientists were able to actually identify that there is a genetic cause,” Johnson continued.  

A 2025 review of the Journal of Kidney Medicine reports that “6 million African Americans have a high-risk genotype,” which puts them at risk of kidney disease.  

Johnson clarified that this risk can persist despite adopting doctor recommendations. “I think a lot of times before that people thought oh maybe your kidney disease isn’t getting better because your blood pressure isn’t under control, because you’re just not doing the right things,” she said. “But what we know is that no, there’s nothing that someone is doing wrong. You could do everything that you need to do to take care of your health, and sometimes the kidney disease continues to progress. But having that knowledge means now we can put a name to it. When you can name something, then you can start to deal.”  

“The United States doesn’t really believe in investing in preventative care for its citizens,” said Daniels. “We bear this burden of disease; it’s not our fault.”  

“We’re not getting the care that we deserve along the way, and by the time we’re diagnosed, it’s advanced,” Daniels added. “There’s no stigma here. There’s no pointing fingers.”  

Heart disease is dubbed “the silent killer,” but kidney disease is just as sneaky. Its ability to be confused for other issues makes it extremely dangerous. That casual discomfort you’re dealing with might be a symptom of it creeping into your life undetected.  

“The CDC estimates maybe one out of nine US Americans has kidney disease, and most of them don’t know it,” said Johnson.  

“So that means there are a lot of there are like hundreds of thousands if not millions of people walking around with that are they’re losing kidney function slowly and steadily. Often, they may not have any symptoms. Sometimes they may have pretty mild symptoms like a little bit of fatigue. Maybe they might see some swelling in their feet that comes and goes, maybe they might see foamy urine, and they think, ‘Oh, I wonder if that means anything.’ But then they don’t, you know? No one follows up.”  

That lack of follow-up has severe consequences for many people. Their lives and schedules change. “Unfortunately, by the time it gets to the more advanced stages often people are basically headed towards either needing dialysis or a kidney transplant,” said Johnson.  

Mourning was fresh off the heels of an Olympic win at a point in his life where symptoms of kidney issues became unignorable. His victory lap was cut short.  

“I had just witnessed the birth of my daughter,” he said. “I was defensive player of the year. I had just finished winning the gold medal. I mean, I was at the the top of the world,” he said.  

Mourning noticed a few symptoms, but they did not jump out at him right away. “I was just tired. I had a lot of lethargy,” he said. “My legs were swelling a little bit and initially I kind of attributed it to the intense physical training and the travel and flying over to Sydney, Australia.”  

He was referred to a nephrologist, a medical doctor specializing in the health of the kidneys. “At that time when I was 30 years old I didn’t know what a nephrologist was,” he added. “They diagnosed me with FSGS, focal segmental glomerulosclerosis. It’s a disease that slowly scars the filters in the kidney, and I had the aggressive form.”  

The first opinion was quite drastic. The doctor predicted that Mourning would be on dialysis and the transplant list within 365 days. Evaluations of kidney disease can be subjective. In some cases, it is wise to consult another voice.  

Mourning refused to accept the course of treatment without seeking a second opinion.  

“I was able to find another doctor. And that doctor took a different approach. He said, “Look, let’s try to slow the progression of the disease down with some medication, oral medication,” he said.  

They participated in shared decision making (SDM), a practice advocated for in a 2023 article from the Clinical Kidney Journal. This shifts away from a paternalistic viewpoint and empowers the patient.  

The less aggressive strategy worked out. “I was never on dialysis, and I didn’t need a transplant until three years later.” 

Mourning participated in clinical research to further efforts to gain knowledge about his condition. “My nephrologist informed me about a research study that was designed to better understand the type of kidney disease that I had, and after discussing all of this with him, I had to trust that he was doing the right thing for me,” he said. Genetic testing and other studies can greatly benefit the outcomes of patients. He suggested that attendees talk with their family members to find out if they have been impacted by kidney disease in the past, so that they can share that information with their doctors.  

“We’ve got to know our family history. We’ve got to have dialogue,” Mourning added. 

Daniels explained how coming together as a community can spark dialogue. “You all are the beginning. You’re laying the foundation,” she told attendees. “You all will share with your friends and family the importance of the knowledge shared here.”  

Johnson pointed out the importance of proactivity in healthcare. “I think this conversation is really important,” added Johnson. “We may see some of these symptoms and hope that things are going to change, but hope is not a strategy. We need to ask questions and have these things checked out.”  

Mourning advised the room to learn from his mishaps. “Don’t ignore the signs and the 

symptoms, okay? Don’t just brush it off, okay? That was something that I did.”  

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Unlock Your Wellness with Superpower  https://blackhealthmatters.com/unlock-your-wellness-with-superpower/ Mon, 29 Dec 2025 16:42:30 +0000 https://blackhealthmatters.com/?p=65246 Unlock Your Wellness with Superpower  Your body is always speaking, and Superpower helps you finally understand what it’s saying. Superpower is a health and wellness company focused on making advanced biomarker testing simple, […]

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Unlock Your Wellness with Superpower 

Your body is always speaking, and Superpower helps you finally understand what it’s saying. Superpower is a health and wellness company focused on making advanced biomarker testing simple, accessible, and actionable for everyone. Their mission is to give people clear insights into their bodies without the complexity or cost of traditional medical testing.  

How it Works 

With a simple 15-minute blood draw, either at one of over 2,000 partner labs nationwide or from the comfort of your own home, Superpower measures 100+ biomarkers that influence your energy, hormones, stress, sleep, and overall well-being. This includes metabolic health (including blood sugar, insulin, and A1C), heart and vascular health (like cholesterol, triglycerides, and ApoB), hormone balance (including estrogen, testosterone, SHBG, and cortisol), thyroid function (TSH, T3, and T4), liver and kidney health, inflammation levels, nutrient status (such as vitamin D, iron, and B12), immune system markers, and key indicators of energy and longevity. 

What the Results Will Tell You 

In 5–10 days, you will receive a simple, easy-to-read wellness report that highlights what is supporting your health and what may need more care. There is no medical jargon because your results are explained in a way that matches your comfort level and gives you real clarity. 

Once your sample is analyzed, you will receive an easy-to-understand report and personalized health plan that includes tailored recommendations for diet, lifestyle changes, and supplements. Beyond testing, Superpower offers a connected ecosystem that allows you to book additional diagnostics, purchase curated supplements at members-only discounts, and manage everything through your Superpower dashboard.  

How Much Does This Cost? 

It is a subscription-based service. For the $17/month fee (HSA/FSA eligible), you get continuous access to your dashboard, ongoing support, and new tests whenever you need them. You also gain access to Superpower AI, which is a tool that helps explain your results and answer questions in plain, supportive language. 

Superpower is one of several companies that are leading the way in personalized health solutions. Biomarker testing and wellness tracking are becoming increasingly common as people look for more control and clarity over their health and wellness.  

Whether you are tracking long-term health, addressing symptoms, or simply want a deeper understanding of your body, Superpower gives you the data and the confidence to take the next step. 

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The Secret to a Stress‑Free Holiday Season https://blackhealthmatters.com/the-secret-to-a-stress-free-holiday-season/ Mon, 29 Dec 2025 16:40:39 +0000 https://blackhealthmatters.com/?p=64429 If you have ever found yourself curled up on the couch watching a predictable holiday movie, the kind where the biggest crisis is a missed flight or a burnt pie, […]

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If you have ever found yourself curled up on the couch watching a predictable holiday movie, the kind where the biggest crisis is a missed flight or a burnt pie, you are not alone. Those movies feel good because everything gets resolved in two hours. Meanwhile, real life is a lot messier. And during the holidays, every emotion seems to hit at full volume.

But here is the thing we do not always admit out loud. Sometimes, the stress is not just what is happening around us. It is how hard we judge ourselves for feeling anything other than cheerful.

Why Holiday Stress Feels So Intense

Holiday stress is a reality for many. A report from the American Psychological Association found that 89 percent of adults feel stressed during the holiday season due to money concerns, missing loved ones, or anticipating family conflict. When you are carrying all of that at once, the season can feel heavier than expected. For Black families and caregivers, these demands often sit on top of year-round responsibilities and cultural expectations to stay strong for everyone, which can make the pressure feel even more intense.

When stress rises, the body’s alarm system stays switched on. Sleep becomes lighter, patience gets shorter, and small frustrations feel bigger. None of this means you are doing anything wrong. It means your nervous system is carrying more than usual.

Researchers also note that emotional self-judgment makes stress heavier. People who criticize themselves for feeling sad, anxious, or overwhelmed tend to stay stressed longer. Those who accept their emotions as normal human responses recover more quickly.

The Pressure to Get It Right

Many of us walk into the holidays with an invisible checklist. Perfect meals. Perfect gifts. Perfect behavior from everyone involved. Social media, family traditions, and cultural norms all feed the idea that joy must look a certain way.

Many Americans feel pressure to create meaningful holiday experiences even when they are tired or financially stretched. When you are the one holding the season together, it is easy to believe that one misstep will ruin everything.

The truth is that most families remember connection more than perfection. They remember who made them laugh, who listened, and who created a moment of calm. They rarely remember whether the table settings matched or the desserts looked flawless.

What Your Feelings Are Saying

Psychologists often describe emotions as signals. Sadness can be a support request. Frustration can be a sign that a boundary has been crossed. Anxiety can be a reminder that you need rest or clarity. When you treat emotions as information rather than problems, you create space to respond rather than react.

The National Alliance on Mental Illness notes that acknowledging emotions early can prevent them from building into something heavier.

This is especially important during the holidays, when many people feel pressure to push through discomfort for the sake of tradition.

You can accept an emotion without accepting the situation that caused it. You can feel irritated and still decide to set a boundary. You can feel lonely and still reach out for connection. You can even feel overwhelmed and still choose to slow down.

How to Take Care of Yourself This Season

Sometimes the most challenging part of the holidays is knowing where to start. These small shifts can help you protect your energy and move through the season with more ease.

Keep It Simple

Overscheduling is one of the most significant sources of holiday burnout. Choose the gatherings that genuinely bring you joy and let the rest go. Protecting your time is part of protecting your well-being.

Make Travel Easier

Holiday travel is stressful for almost everyone. If you are flying, choose the simplest route you can. If you are driving, limit the number of stops and events you commit to. The goal is to arrive with your peace intact.

Spend Mindfully

Financial stress is one of the top holiday triggers. A simple budget can make a real difference. Small, thoughtful gifts are just as meaningful as expensive ones. Homemade treats or shared experiences often mean more than anything you can buy.

Eat and Drink with Care

The holidays come with plenty of opportunities to overdo it. The Centers for Disease Control and Prevention encourages moderation with both food and alcohol. Enjoy what you love, stay hydrated, and listen to your body.

Enjoy Family Your Way

Family time can be beautiful and complicated. If you need a breather, take one. A short walk or a quiet moment can help you reset. Caring for yourself is not disrespectful, it is necessary.

Find Common Ground

Differences can feel louder during the holidays. Try to center the things you share rather than the things that divide you. If a conversation becomes tense, it is okay to step away or set a boundary.

Take a Moment

Rest is essential. Give yourself pockets of time to read, nap, stretch, or simply be still. Even ten minutes of quiet can help your nervous system settle.

Honor Your Grief

The holidays can make loss feel sharper. Make space for your feelings, light a candle, or maybe share a story. Create a small ritual that keeps your loved one close.

Keep Your Rhythm

Your body thrives on consistency. Regular meals, enough sleep, and a little movement each day can help you feel more grounded.

Reach Out

If this season is hard for you, you do not have to carry that alone. Lean on your community. Talk to someone you trust. Let people show up for you. The holidays don’t require perfection. They require presence, honesty about what you can and cannot do, and compassion for yourself and the people you love.

You deserve a season that feels like yours, not one where you’re performing for everyone else. The holidays are gentler when people are comfortable, and comfort starts with taking care of yourself in small, real ways. Permit yourself to do that this year.

Resources:

Even a joyous holiday season can cause stress for most Americans

Critical Things to Know About Emotions for Mental Health and Healing | NAMI: National Alliance on Mental Illness

Alcohol Use and Your Health | Alcohol Use | CDC

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Finding Your Way Through Holiday Blues & Grief https://blackhealthmatters.com/finding-your-way-through-holiday-blues-grief/ Mon, 29 Dec 2025 16:39:35 +0000 https://blackhealthmatters.com/?p=64478 There is a certain kind of silence that shows up during the holidays. It slips in between the music, the gatherings, the group texts about who is bringing what. It […]

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There is a certain kind of silence that shows up during the holidays. It slips in between the music, the gatherings, the group texts about who is bringing what. It is the silence that reminds you that someone is not here this year. And even if you have been moving through your days just fine, the season has a way of pressing on that bruise.

People don’t always talk about it, but grief has its own calendar. It doesn’t care that the world is covered in lights or that everyone else seems to be in a matching pajama mood. It arrives when it wants to, sometimes softly, sometimes like a wave that knocks the wind out of you.

And if you are feeling that this year, you are far from alone.

How Grief Colors the Holidays

The holidays intensify emotional stress, especially for people who are grieving. In a 2023 national survey by the American Psychological Association, 38 percent of U.S. adults said that missing family or loved ones is one of the biggest sources of holiday stress. That number sits right alongside financial pressure and family conflict, which shows how deeply loss shapes the season. The number reflects how rituals, traditions, and family gatherings are built around connection. When someone is missing, the whole season feels rearranged.

For many people, the weight can feel even heavier when they are not only grieving someone they have already lost but also preparing for the loss of someone they still have. Anticipatory grief can be its own kind of heartbreak. You find yourself trying to memorize the sound of their voice, the way they laugh, the small details of who they are in this moment. You hold on tightly to the present, knowing that soon these moments will become memories. Living in that in-between space can make the holidays feel tender in a way that is hard to explain, and even harder to carry.

How Grief Sneaks Up on You

Grief does not always arrive in the same way. Sometimes it drifts in slowly, something you can almost steady yourself against. Other times it rushes in all at once, sharp and overwhelming, leaving you confused by how quickly everything inside you can change.

You may find yourself exhausted for reasons you can’t name, avoiding certain songs or certain stores without fully realizing why. A scent, a recipe, or a familiar melody can stop you mid-step. A memory you didn’t ask for can rise up out of nowhere. It’s the quiet kind of grief that settles into your days and your body before you even have the language for it.

None of this means you’re failing or falling apart. It means your heart is carrying something it never wanted, and if we’re being honest, something no one can ever truly prepare for.

You Don’t Have to Pretend You’re Okay

Grief can make you feel out of rhythm with the world, especially during the holidays. In the American Psychiatric Association’s 2024 Healthy Minds Monthly Poll, 47% of Americans said that grieving a loss or missing a loved one was one of their top sources of holiday stress, and 28% said they felt more stressed than the previous year.

So, if everyone else seems to be celebrating while you’re just trying to get through the day without breaking down in the middle of the grocery store, you’re not imagining it; the season really does hit differently when you’re grieving.

Ways to Care for Yourself This Season

There is no single right way to move through grief during the holidays, but there are practices that can make the season feel a little more manageable. Here are a few options you can reach out to when you need support.

Let yourself feel what you feel.

Grief is unpredictable. You may feel heavy one moment and surprisingly okay the next. Both experiences are normal. Permitting yourself to feel what is true for you can ease some of the pressure you may be carrying.

Name what is coming up for you.

Writing down the emotions you expect to feel or those already showing up can make the season feel less overwhelming. Naming things often makes them easier to hold.

Allow the grief to move.

Trying to push grief away usually makes it stronger. Letting it rise and fall in its own rhythm can reduce the intensity of the pain.

Practice self-compassion

If you have the energy to join a gathering, go. If you do not, it is okay to stay home. You are not letting anyone down by honoring your limits.

Take care of your body.

Grief affects sleep, appetite, energy, and concentration. Rest when you need to. Move when it helps. Step outside for light and air. Small acts of care matter more than you think.

Ask for support

The holidays add extra weight to everyone’s plate. If you need help with errands, childcare, cooking, or simply company, reach out to someone you trust. You do not have to carry everything alone.

Tell people what you need.

If certain traditions feel too painful, say so. If you want someone to mention your loved one’s name, say that too. Clarity helps others show up for you in the right way.

Create a small ritual of remembrance.

Light a candle, pour libations, make their favorite dish, play a song they loved, or share a story; rituals do not have to be elaborate to be meaningful.

Start new traditions (if you need to).

If recreating past holidays feels impossible, allow yourself to do things differently this year. Change can be a form of care.

Be around people who feel safe.

You do not have to be cheerful or “on.” You need to be with people who let you be exactly where you are in this moment.

For those who are facing the anticipated loss of a loved one, the holidays can carry a different kind of weight. Try to stay close to what feels meaningful right now instead of worrying about how you think you should feel. Spend time with your loved one in ways that feel natural, take breaks when emotions run high, and let others help with the practical things. It’s okay to feel sadness, fear, gratitude, and love all at once. You don’t have to hold everything together. You only have to move through this season at a pace your heart can manage.

A Few Things to Keep in Mind

Grief shows up differently for everyone, but these are some of the experiences many people share:

  • changes in sleep or appetite
  • difficulty concentrating or feeling mentally foggy
  • waves of sadness, anger, guilt, or numbness
  • fatigue or low energy
  • withdrawal from social activities
  • irritability or restlessness
  • physical tension, headaches, or stomach discomfort
  • trouble feeling connected to things that once brought joy

If you notice these signs in yourself, you’re not doing anything wrong. They’re common responses to loss, and they often shift over time.

You might also find it helpful to talk with a mental health professional if the grief feels overwhelming or complicated to navigate alone. Therapy can offer a steady place to process what you’re carrying and get support that fits your needs.

There is no magical cure for grief. It finds its way into your core, often defying your requests for peace. While that may feel unsettling, remember that grief is natural, your feelings are valid, and your path through this season is uniquely yours. You are allowed to move at your own pace. That in itself is an act of strength.

Resources:

Even a joyous holiday season can cause stress for most Americans

Psychiatry.org – One Quarter of Americans Say They Are More Stressed This Holiday Season Than in 2023, Citing Financial

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Understanding Chemotherapy: Side Effects, Preparation, and Racial Disparities https://blackhealthmatters.com/understanding-chemotherapy-side-effects-preparation-and-racial-disparities/ Mon, 29 Dec 2025 16:36:18 +0000 https://blackhealthmatters.com/?p=65242 Chemotherapy is a drug treatment used to kill the fast-growing cancer cells in your body. It is also used for other diseases. But the experience, especially side effects, may differ depending on race. Here’s what you need to know to […]

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Chemotherapy is a drug treatment used to kill the fast-growing cancer cells in your body. It is also used for other diseases. But the experience, especially side effects, may differ depending on race. Here’s what you need to know to prepare yourself for treatments.   

Your Doctor Will Prescribe a Specific Delivery Method

Chemotherapy isn’t one size fits all. Your oncologist may recommend a specific delivery method based on the type and stage of your cancer.  

Types of Chemotherapy Delivery

  • IV chemo Injected directly into a vein 
  • Oral chemo taken as pills or capsules 
  • Intramuscular IM chemo injected into the muscle 
  • Subcutaneous (SQ) chemo injected into the fatty tissue under the skin 
  • Intra-arterial (IA) chemo directly into an artery that feeds blood to the tumor 

You May Experience Side Effects

Because chemotherapy also affects healthy cells in the body, such as those in the hair and skin, it may affect them as well, leading to side effects. 

According to the American Cancer Society, common side effects include: 

  • Fatigue 
  • Hair Loss 
  • Nausea and vomiting 
  • Appetite changes 
  • Anxiety 
  • Depression 
  • Fertility problems 
  • Skin and nail changes 
  • Constipation 
  • Diarrhea 
  • Infection risk 
  • Peripheral neuropathy  

Four Tips for Managing Side Effects

  • Fatigue: take short naps and ask for help from your loved ones to complete tasks 
  • Hair loss: consider using a cold cap to prevent too much hair loss 
  • Infection risk: practice good hygiene and distance from those who are sick 
  • Mental health: join support groups or participate in counseling  

When to call your cancer team about side effects: 

  • Fever above 100.5–101°F (or as instructed by your team) 
  • Bleeding or unexplained bruising 
  • Rash or signs of allergic reaction (swelling, severe itching, trouble swallowing) 
  • Intense chills 
  • Pain or soreness at the chemo injection or catheter site 
  • Unusual or severe pain, including intense headaches 
  • Shortness of breath or difficulty breathing (If your symptoms are severe, call 911 immediately.)
  • Persistent diarrhea or vomiting 
  • Blood in stool or urine 

Black Patients May Experience Chemotherapy Differently

Side effects of chemotherapy are not the same for everybody and can vary significantly by race. According to a study published in Cancer Epidemiology Biomarkers and Prevention in 2023, “among individual symptoms, Black women reported a higher prevalence of sweating, itching, numbness, change in taste and appetite, and hair loss.”  

These findings emphasize the need for more inclusive clinical trials to identify chemotherapy drugs that are both effective and better tolerated across diverse populations. While these findings can feel discouraging, it is important to know that no one has to face this journey alone. Across the country, various organizations work to close gaps in cancer care and provide resources to help those navigating this journey. 

How to Prepare For Your Chemo Day

Here are some things you can do to make coping with treatment side effects easier. 

1. Pack a chemo bag 

Bring a bag with items that can bring comfort on treatment day, such as snacks, a book, headphones, a blanket, nausea medication, phone chargers, water, comfy socks etc. 

2. Freeze Meals

Cooking during chemotherapy can be challenging due to fatigue, so preparing meals ahead of time can be helpful. 

3. Take care of yourself 

Get lots of rest, drink water, get enough sleep, exercise, and eat balanced meals 

4. Organize your calendar  

Plan your schedule around your treatment days. Give yourself time to rest afterward in order to recover. 

Organizations Supporting Black Breast Cancer Patients:

1. The Tigerlily Foundation 

The Tigerlily Foundation, founded by breast cancer survivor Maimah Karmo, empowers young women throughout their cancer journeys with education, advocacy, and support services, ultimately striving to end disparities.  

2. Sisters Network Inc. 

Sisters Network Inc. is the only black breast cancer survivorship organization founded by four-time breast cancer survivor Karen Eubanks Jackson. This organization aims to assist thousands of women battling breast cancer through education, support, empowerment, and outreach.  

3. African American Breast Cancer Alliance 

The African American Breast Cancer Alliance was founded in 1990 by a group of black women survivors who recognized the lack of breast cancer awareness and support in their community. Their mission involves creating a supportive space for black women facing breast cancer.

4. The American Cancer Society Cancer Action Network’s Black Volunteer Caucus  

The Black Volunteer Caucus focuses on policy change and equity ultimately working to decrease death and suffering in the Black community.  

Resources 

American Cancer Society: Types of Chemotherapy 

American Cancer Society: Chemotherapy Side Effects 

Cancer Epidemiology Biomarkers and Prevention: Race Differences in Patient-Reported Symptoms during Chemotherapy among Women with Early-Stage Hormone Receptor–Positive Breast Cancer  

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How Music is Matching the Moment for Millennial Health https://blackhealthmatters.com/how-music-is-matching-the-moment-for-millennial-health/ Mon, 29 Dec 2025 15:05:09 +0000 https://blackhealthmatters.com/?p=65236 90s babies are aging, and healthcare is catching up. Black Millennials might still be suffering from the pop lock and drop it era, but random knee pain isn’t the only challenge they’re facing. Healthcare […]

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90s babies are aging, and healthcare is catching up.


Black Millennials might still be suffering from the pop lock and drop it era, but random knee pain isn’t the only challenge they’re facing. Healthcare firms are meeting the moment by including hip-hop and R&B in their consumer marketing efforts. 
 

As millennials age, their vast healthcare concerns are moving to the forefront of the healthcare industry priority list. That means integrating messaging that will speak to them directly.  

The music that once signaled a rebellious youth of bar hopping and bottle service is now helping providers court a generation of adults in need of information and interventions to address their collective issues 

Music As a Means of Getting Attention  

Research shows that tapping into cultural competency works when trying to reach specific audiences. “The importance of cultural competency, including culturally and linguistically appropriate resources and tools, cannot be overstated or overemphasized,” according to the Centers for Disease Control (CDC) 

Unlike a generic jingle, a familiar jam can stop you in your tracks. It can reconnect you to a moment from your past. Twisting around familiar beats isn’t the only way to have an impact.  

Speaking the language of music can help create connections, too. We Are Ill founder Victoria named her organization, designed to connect Black women with chronic illness, after the classic Nas album Illmatic.  

New music can have an impact as well. The FDA turned to developing original hip-hop songs to convince young people not to smoke. Gilead turned to rapper and podcaster Big Loon to help spread the message about their efforts to promote safer sex. Power to the Patients turned to Busta Rhymes, Fat Joe, Method Man, Rick Ross, Chuck D, and French Montana to promote their arguments for transparency in healthcare pricing 

Fighting HIV With TLC 

TLC, a group that broke barriers by getting a generation to talk frankly about sex, has had their hit “Creep” reinterpreted for Gilead to promote PrEP. Original and core group member Tionne ‘T-Boz’ Watkins performed the healthcare-centered rendition.  

“In the 90s, we used our platform to speak truth and empower people to love themselves. That mission hasn’t changed,” Watkins told People in November.  

“Black women in the United States are disproportionately affected by human immunodeficiency virus (HIV) and are less likely to be represented among HIV clinical research participants relative to their cumulative HIV burden,” according to Women’s Health. This makes TLC the perfect track to speak to an audience that needs to be informed about their options for protecting themselves.  

Fighting Colon Cancer With Lil’ Jon  

Lil’ Jon has transcended the Nuvo guzzling and the pill popping of the crunk era. The snap music pioneer converted his hit “Get Low” into a track to promote Cologuard, a screening device for colon cancer.  

“The distribution of CRC is not even across U.S. subpopulations; there is marked difference in CRC incidence, cancer stage, and cancer mortality by race and ethnicity. In particular, Black Americans show the highest incidence, and have the highest mortality among major U.S. racial and ethnic groups,” according to the Journal of Advances in Cancer Research 

The American Cancer Society has highlighted the rise in colorectal cancer in people under the age of 55.  

Lil’ Jon shared why he agreed to do the campaign in a 2024 interview with Black Health Matters. “It just makes it easier to palette this subject because it’s funny because the song is called ‘Get Low #2,’ and you have to take a #2 to do the colon cancer screen with the Cologuard kit. So I thought it was pretty hilarious,” he said.  

He’s no slouch when it comes to promoting mental health either. He released an album for meditation.   

Raising Eczema Awareness with Mary J Blige  

Mary J. Blige owned the early 90s with “Real Love.” The kids who grew up singing the classic on their way to elementary school are primed to listen to the remixed version for EBGLYSS, a medication developed to fight eczema, also known as atopic dermatitis.  

The Journal of Allergy and Clinical Immunology reports that “Black people in the US experience greater atopic dermatitis (AD) prevalence, severity, and persistence when compared to White people.”  

Eczema presents differently in Black people making it more important that they be informed about the symptoms of the condition.  

Fighting Vaccine Misinformation with Juvenile 

Taking over for the 99 and the 2000 is like a millennial mating call. It flips a switch in the millennial brain flooding it with memories of when it was time to “Back That Thang Up” in a club that didn’t take Apple Pay or put a time limit on sections,  

This made it the perfect track to match the moment when anti-vaccine information was flooding the internet. Juvenile released “Vax That Thang Up” to promote the COVID-19 vaccine.  

He partnered with Mannie Fresh and Mia X on the track giving it an even stronger NOLA flavor.  

Resources 

Los Angeles Times: Millennials’ escalating health problems raise economic concerns 

Blue Cross Blue Shield: The Health of Millennials 

Centers for Disease Control 

Journal of Advances in Cancer Research 

American Cancer Society: Colorectal Facts & Figures 

Billboard 

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Patient Power Insights from the Front Lines of Myeloma https://blackhealthmatters.com/patient-power-insights-from-the-front-lines-of-myeloma/ Tue, 23 Dec 2025 19:46:41 +0000 https://blackhealthmatters.com/?p=65195 Presented By: Bristol Myers Squibb  Mariana Broussard  Associate Director, Global Patient Advocacy, Multiple Myeloma  Dr. Brian Englehart, MD, MSCI  Multiple Myeloma Medical Engagement Lead   Robert Pugh  Long-Term Multiple Myeloma Survivor Patient […]

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Presented By: Bristol Myers Squibb 

Mariana Broussard 

Associate Director, Global Patient Advocacy, Multiple Myeloma 

Dr. Brian Englehart, MD, MSCI 

Multiple Myeloma Medical Engagement Lead  

Robert Pugh 

Long-Term Multiple Myeloma Survivor Patient Advocate 

Robert Pugh was preparing for an upcoming sporting event when he was diagnosed with multiple myeloma. The life-changing news arrived out of nowhere for the active man who considered himself the picture of health. “ I do not and did not ever have a history of illnesses of any kind,” he told the audience at the Black Health Matters Fall 2025 Health Summit & Expo in Charlotte, North Carolina.  

Pugh shared what it was like learning that he was facing multiple myeloma. “I was preparing for a race, a 15K, and I went in simply for an examination,” said Pugh. He wanted to get a jump on the minor pain he was feeling. It didn’t strike him as cause for serious concern. “As a runner, you’re accustomed to pain.” His doctor examined his back pain and raised an alarm. “He recognized that my white blood cells had decreased. They were not below the average number, but for me, they were below what he was accustomed to,” said Pugh. The physician recommended additional tests and ultimately gave him a referral.  

“I need you to go see this guy,” the doctor told him. Pugh was shocked to learn the guy was an oncologist.  

How Common Is Multiple Myeloma In Black Households? 

Pugh’s experience was not uncommon in the Black community. The International Myeloma Foundation reports that “In the U.S., African Americans are about 14% of the country’s population, but they constitute about 20% of all myeloma patients.”  

“Multiple myeloma is the second most common blood cancer in the United States,” said Mariana Broussard, Associate Director, Global Patient Advocacy, Multiple Myeloma at Bristol Myers Squibb.  It progresses over three stages. Treatments are advancing. There have been innovations in regimens including stem cell transplants but there is no cure. She described the way that the condition disproportionately impacts the Black community.  

“African-American patients are twice as likely to be diagnosed with multiple myeloma compared to white patients. We also often experience worse outcomes due to delays in diagnosis and treatment. Mortality is also about twice as high in the African-American community,” she continued.  

How Does Multiple Myeloma Show Up Differently?  

Unlike the dramatic moments people watch on television where a character finds an oversized lump they can’t ignore, this was not as clear-cut of a process. “’It’s disseminated. It is spread throughout your blood and bone marrow, which is unlike solid tumors, which you know generally begin as a lump or a bump in a solid organ,” explained Dr. Brian Englehart.  

Multiple myeloma is a common form of cancer, but Pugh had zero information about the condition when he received his diagnosis. “I had no idea what that was,” he said. “It just kind of threw me.”  

Pugh sprinted towards denial. He refused to believe what he was told initially. “When I was diagnosed, I thought they had the wrong person,” he said.  

According to a 2022 study in the American Journal of Hematology, “Multiple myeloma accounts for 1% of all cancers and approximately 10% of all hematologic malignancies,” and “each year over 32,000 new cases are diagnosed in the United States, and almost 13,000 patients die of the disease.”  

Diagnosing Multiple Myeloma Can Be Difficult 

Englehart noted that Pugh’s experience of a simple annoyance symbolizing something more serious was not uncommon. “His course was kind of very typical for many patients with multiple myeloma,” he said. “Patients can often present with pain, and it’s in the back, it can be in the hip or ribs.”  

A person’s lifestyle, like Pugh being a runner, or their stage of life can impact how these symptoms are masked. “The other thing is we all, especially as we get older, we all experience pain,” said Englehart. He taught the room the differences in pain that might accompany a serious illness, and not just a stressful day.  

“There are some symptoms that are more worrisome than others, like pain that wakes you up at night or pain that doesn’t go away after a week or two of rest or pain that you can’t attribute to some strenuous activity or something that you’ve done in the preceding couple of days,” he continued. There are other symptoms that can be overlooked as well. “Patients can also have fatigue from anemia. Recurrent infections are also fairly common too, so multiple myeloma is a very tricky disease.”  

Myeloma Can Exist Without Symptoms  

He explained that firming up a diagnosis can be difficult due to the protocol. “There is no one test generally used for diagnosis,” Englehart added. “It’s really a series of tests.”  

“Some patients with myeloma are asymptomatic. They have no symptoms whatsoever and are diagnosed incidentally,” said Englehart. “You go for a routine checkup, and your doctor finds out that you’re more anemic or your kidneys aren’t functioning normally. Sometimes that can lead to a diagnosis.”  

Routine screenings can help patients learn their status and begin treatment sooner. Accessing these can be difficult for those without the necessary resources. “Economic and social characteristics can play a large role in the diagnosis, treatment, and management of multiple myeloma,” said Englehart. “If healthcare access is limited, symptoms may go undiagnosed or untreated.”  

Treating Multiple Myeloma Requires Collaboration  

The trickiness of multiple myeloma is best fought as a unit. Patients have to advocate for themselves and coordinate with different health care providers to improve their outcomes.  

“It really takes a team and a village to help treat and care for patients with multiple myeloma,” said Englehart. “Patients who are diagnosed with multiple myeloma, it’s also important to know that their usual treatment course is dictated by a multidisciplinary team. Meaning it’s groups of different doctors, nurses, clinicians involved in their care. That can be hematologists, oncologists, it can be radiation doctors, radiologists, pathologists, supportive care.  

Multiple Myeloma Can Impact One’s Mental Health  

It can be helpful for one’s healthcare team to include a mental health professional as well. A 2025 article in the Journal of Clinical Lymphoma Myeloma and Leukemia identifies mental health considerations as a gap in the treatment protocols for multiple myeloma patients. It found that “People with myeloma often report high levels of anxiety and depression and are reported to have the lowest quality of life of any cancer type likely due to the incurable nature of the disease.” Pugh confirmed the mental health challenges. “I was the mover and the shaker. I wasn’t moving or shaking. So, I found myself avoiding people, you know? Because you’re just not who you thought you were.”  

His trust and relationships with his providers helped him work through those challenges. They helped him establish a routine for a maintenance phase to keep his health in mind during his day-to-day life. It would look different, but he could make it look the best possible with proper intervention.  

“Myeloma is not something that that comes you take care of it, and it’s over,” he acknowledged  

Pugh advised those recently diagnosed to take the advice they are given to heart to pursue the best health they can and define their own maintenance phase routine.  

“You have to take ownership for what you’re being told,” said Pugh.  

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Life With An Autoimmune Condition https://blackhealthmatters.com/life-with-an-autoimmune-condition/ Tue, 23 Dec 2025 01:02:47 +0000 https://blackhealthmatters.com/?p=65281 Presented By: argenx  Shelley Gerson  Associate Director of US Patient Advocacy   at argenx  Meriel Parker  Myositis Caregiver, Rare Disease Advocate   Caregivers are the cornerstone of the autoimmune illness community. Their support, compassion, and tenacity […]

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Presented By: argenx 

Shelley Gerson 

Associate Director of US Patient Advocacy  

at argenx 

Meriel Parker 

Myositis Caregiver, Rare Disease Advocate  

Caregivers are the cornerstone of the autoimmune illness community. Their support, compassion, and tenacity are essential to patients pursuing the best quality of life possible. Meriel Parker, a Myositis Caregiver and Rare Disease Advocate, and Shelley Gerson, Associate Director of US Patient Advocacy at argenx, discussed life with an autoimmune condition from a caregiver perspective at the Black Health Matters 2025 Health Summit & Expo Recap.  

The two bonded over their mutual experience as caregivers.  

“Meriel and I discovered that we have a common experience, and that we both had dads that had chronic illness, and were caregivers,” Gerson told the audience.  

She requested that other caregivers in the room reveal themselves. Raised hands sliced through the air, proving how common the role is in society.  

According to the Journal of Neurology, “Sporadic inclusion body myositis (IBM) is the most common acquired myopathy in individuals older than 50 years.” Delays to diagnosis are frequent with autoimmune conditions.  

Parker explained how a family outing to a nature center led her father to receive a life-changing diagnosis. “My dad was a formidable, strong man, an entrepreneur. No dream was too big for him,” she said.  

His dreams included hiking. Parker and her daughter were joining him on a family hike to the same location he had taken Parker to previously. The older man was familiar with the terrain. His slowing down was a surprise.  

“He said, ‘My legs are so tired. I just can’t make it up the hill,’ and the hill was a fraction of what I’ve just stepped up on this stage,” she said.  

“It was just a little gradual slope,” she continued, gesturing to the few steps she walked up to join Gerson on stage.  

She knew this was no simple backache.  

“I didn’t say it out loud because I didn’t want him to be concerned, but I said, we’re in trouble because nothing would grip my father, let alone a small sloping hill,” Parker continued. “That began our journey.”  

It was a journey full of red tape that Parker was uniquely prepared for.  

“Having worked in healthcare, I have found, and I’ve seen that, for lack of a better term, the squeaky wheel gets the grease,” she said. “Older African Americans tend to have relatively higher rates of chronic illness than other race/ethnic groups,” according to the Journal of Cross-Cultural Gerontology. They require support.  

Her family spoke on her father’s behalf.  

An autoimmune disease is not like a severed limb or a dislocated joint. It requires detective work to identify.  

“We got him set up with a surgeon, a back specialist to talk with, and went 

through a litany of appointments,” Parker continued. She described their approach to the process as “diligent.”  

“We asked the right questions, and we prompted for referrals to specialists.”  

It is important caregivers step in, because patients might be unable to advocate for themselves due to the effects of their conditions. “When a person is not feeling well, they are trying to manage just living with the condition and the symptoms. It’s very challenging,” said Parker. “We would go to all of his appointments together. Either my mom went with him, or I did, and we would work as a team.”  

Multi-generational living helped the family work together even better. “My father said to me, If I’m going to fight this, if you really want me to be there with you and to fight this, I need to live in the same house as you and my granddaughter because you all are my heir, and that will give me the strength and the joy to be able to live through whatever days I have,’” said Parker.  

They started house hunting immediately. Living with family helped Parker’s father navigate the challenges of the disease, progressing with necessary support. “He went to a cane, and then a rollator, and then to a wheelchair, and a mobilized motorized wheelchair,” said Parker. Family was there to help him learn to use each tool. “The four of us moved in together, and we worked as a unit.”  

They dedicated their bodies to support his body, something caregivers do daily. “His physical strength declined, our physical strength increased,” said Parker.  

The Journal of Geriatric Nursing reports that “The taxing caregiving role often results in psychological and physiological stressors that negatively impact the personal health of the caregiver.” According to the Journal of Family Nursing, “Family caregivers’ support of patients with chronic, life-limiting illness includes difficult, life-altering, and often long-term tasks.” 

Parker confirmed that caregiving requires immense pressure.  

“It’s not unimportant for us to focus on the fact that if you’re a caregiver, you have to take good care of yourself. I learned firsthand of the toll that the stress takes on you,” she said. “But we did what we had to do to keep him with us as long as we could.”  

She devoted herself to her father’s needs to the exclusion of her own. “I did not want to have any regrets, and so I was going to pour in every ounce of energy that I could into having every moment with my father,” said Parker.  

Denying herself the care she needed weakened a core element of the team caring for her father. She found herself seeking treatment soon.  

“I went without sleep a lot, and I started to have muscle tremors on my own and had started to go to a specialist for diagnosis,” she said. During the assessment, the doctor advised her to make changes in her routine. They paid off.  

“I prioritized sleep, and maybe getting a massage once a month, and taking a walk, and taking some time for myself to actually have a break. It was necessary for me to be the best caregiver that I could be for my father,” she said.  

She encouraged the caregivers in the room to consider their physical and mental health before they start deteriorating.  

“I learned the lesson the hard way.”  

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Betty Reid Soskin, the Oldest National Park Service Ranger Has Died https://blackhealthmatters.com/betty-reid-soskin-the-oldest-national-park-service-ranger-has-died/ Mon, 22 Dec 2025 21:37:58 +0000 https://blackhealthmatters.com/?p=65207 Betty Reid Soskin, a woman who inspired us all by serving as the oldest National Park Service Ranger, has passed away in her home in Richmond, California. She was 104 […]

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Betty Reid Soskin, a woman who inspired us all by serving as the oldest National Park Service Ranger, has passed away in her home in Richmond, California. She was 104 years old. Her family acknowledged her December 22, 2025, death through a social media statement.

From the Big Easy to the Bay Area

Born in Detroit on December 22, 1921, Betty Charbonnet lived there briefly with her parents, Dorson Louis Charbonnet and Lottie Breaux Allen, before they moved back to their hometown, New Orleans. The family moved to the West Bay Area in 1927, after losing their home during the Great Flood.

She married Mel Reid shortly after graduating from Crestmont High School. During World War II, she worked as a file clerk in the segregated Union Hall of Boilermakers’, A-36.

In 1945, Reid Soskin opened one of the first Black-owned record shops in California, Reid’s Records in Berkeley. A mother of four, she actively fundraised for the Black Panther Party. She was also active in politics, becoming a delegate for George McGovern in his Presidential bid against Richard Nixon.

After her first marriage ended in divorce, she married a UC Berkeley psychology professor, William Soskin, and they also divorced.

Her Activism Led to A Career in Politics

Before she was a park ranger, Reid Soskin led a life of service to her community. Following the health decline of her first husband, Reid Soskin took over the management of Reid’s Records in the late 1970s. However, because of the drug problems plaguing the area surrounding the store, she made noise at City Hall for them to clean the neighborhood. That led to jobs as a legislative aide, a Berkeley council member, and a field representative for two members of the State Assembly.

From Park Advocate to Park Ranger

In the early 2000s, Reid Soskin first became involved with the National Park Service when she attended meetings between Richmond, California, and the agency as they planned the Rosie the Riveter/WWII Homefront National Historical Park. At 84, she began uncovering the untold stories of African Americans and earned a temporary position with the NPS. In 2007, when she was 86, her position became permanent. Reid Soskin’s role included leading public programs and sharing personal remembrances at the park visitor center.

Despite sustaining injuries during a burglary attack and a stroke, Reid Soskin continued in her role until 2022, when she retired. As the oldest active Park Ranger, Reid Soskin took her responsibility seriously. She even wore it when off-duty as an opportunity to inspire others.

“When I’m on the streets or on an escalator or elevator, I am making every little girl of color aware of a career choice she may not have known she had,” Ms. Soskin said in a 2015 interview with the Department of the Interior. “The pride is evident in their eyes.”

A Mother, Grandmother, and Great Grandmother

Over the years, Reid Soskin received many honors. She was named California Woman of the Year in 1995, the Sierra Club’s Trailblazer Award in 2016, and one of Glamour’s Women of the Year in 2018. In 2021, Juan Crespi Middle School was renamed after the Bay Area icon following student lobbying for a name change.

Reid Soskin is survived by her son, three daughters, five grandchildren, and one great-grandchild. Our condolences go out to the family.

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Frank Grimsley of The Circle on Living With HS During the Holidays! https://blackhealthmatters.com/frank-grimsley-of-the-circle-on-living-with-hs-during-the-holidays/ Thu, 18 Dec 2025 19:33:31 +0000 https://blackhealthmatters.com/?p=64582 The holidays are supposed to be a time of joy. It is the kind of joy that shows up in coordinated family photos, crowded living rooms, and long-awaited reunions. For […]

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The holidays are supposed to be a time of joy. It is the kind of joy that shows up in coordinated family photos, crowded living rooms, and long-awaited reunions. For TV personality and hidradenitis suppurativa (HS) patient Frank Grimsley, known for winning The Circle on Netflix, that joy has often felt out of reach. He began experiencing painful, unexplained symptoms at sixteen and was not officially diagnosed with his condition until 2020. In that time, he missed family traditions, skipped holiday games, and learned to move through celebrations with a kind of vigilance most people never have to think about.

The Reality of HS

Frank is one of the 1 in 100 Americans living with HS, based on prevalence estimates reported in JAMA Dermatology. It is a chronic immune-related skin condition that causes painful bumps, lesions, and flare-ups in areas where skin rubs together. These flare-ups can make holiday travel unbearable, turn festive outfits into sources of dread, and transform simple gatherings into moments of physical stress. HS is often invisible to others, but its impact is constant.

How HS Shapes the Holidays

“Living with HS has always made the holidays feel different for me,” Frank said. “While others focused on the excitement, I was constantly wondering if a flare-up would hit. I felt pressure to show up looking and feeling fine even when I was not.”

Instead of slipping easily into celebration, he found himself quietly calculating pain levels, comfort, and how much his body could handle.

“So, instead of simply enjoying the moment, I often had to prepare myself both physically and emotionally in ways my peers did not.”

When Joy and Pain Collide

Frank remembers one holiday in particular. It was a moment that should have been simple and warm.

“I remember spending parts of the holidays feeling really uncomfortable, even when everything around me was joyful,” he said. “On the outside, I looked fine, but inside, I was fighting through discomfort that made even simple moments feel heavy.”

It is the kind of invisible burden many people with chronic illnesses carry, especially during a season that expects cheerfulness.

Adjusting Traditions and Expectations

Over time, Frank learned to adapt holiday traditions in ways that protected his body and energy.

“I choose clothing that will not irritate my skin. I try to avoid long stretches of sitting in uncomfortable chairs or tight spaces. I build in moments to step away and rest if I need to,” he explained. “I enjoy the holidays, but I just participate at a pace that honors where my body is.”

Balancing Participation and Pain

The desire to be fully present does not disappear, but neither does the unpredictability of HS.

“I had to learn that giving myself grace is not the same as missing out,” he said. “Some years I could do everything, and some years I needed to move slower or say no. My worth is not tied to how much I can physically do.”

What He Wishes Others Understood

Frank wishes that people could see the whole picture.

“I wish people understood that even when I look fine, I may still be dealing with real discomfort,” he said. “I am not being distant or disengaged if I need to sit something out. I am still grateful to be there. I am just listening to my body.”

Strategies That Help

Managing HS during the holidays often means focusing on what can be controlled.

“I take Cosentyx to help manage my symptoms,” Frank said. “Rest is a big one. Staying mindful of stress and protecting my peace is another. I stick to a gentle routine that keeps my body supported, even when my schedule gets busy. And honestly, asking for help or slowing down when I need to has made a huge difference.”

The Power of Community

“Recently, I was part of a Cosentyx event. That was a turning point for me,” Frank said. “Sitting in a room with people who understood this condition on a personal level reminded me of the power of community. Hearing our stories side by side made it clear that none of us are walking this alone.”

During a season when many people with chronic conditions feel isolated, that sense of connection matters.

A Message to Others Living With HS

For people navigating HS or any chronic condition during the holidays, Frank offers a message rooted in compassion and truth.

“You are not behind, you are not broken, and you are not alone,” he said. “Your body may move differently, but your light is still just as strong. Take things at your own pace, protect your peace, and know that there is a whole community of people who understand exactly what you are carrying. You belong in every room you enter, exactly as you are.”

Resources:

Frank Grimsley (@franknthecity) • Instagram photos and videos

The Circle Netflix (@thecirclenetflix) • Instagram photos and videos

Prevalence of Hidradenitis Suppurativa: A Systematic Review and Meta-regression Analysis | Dermatology | JAMA Dermatology | JAMA Network

Hidradenitis Suppurativa | COSENTYX® (secukinumab)

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Victoria Reese Brathwaite Is Reshaping Ideas About Chronic Illnesses https://blackhealthmatters.com/victoria-reese-brathwaite-is-reshaping-ideas-about-chronic-illnesses/ Fri, 12 Dec 2025 18:51:29 +0000 https://blackhealthmatters.com/?p=64449 Victoria Reese Brathwaite knows multiple sclerosis can look like a beautiful young woman contemplating partnership and motherhood. She received a multiple sclerosis diagnosis in 2012. It made her wonder about […]

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Victoria Reese Brathwaite knows multiple sclerosis can look like a beautiful young woman contemplating partnership and motherhood. She received a multiple sclerosis diagnosis in 2012. It made her wonder about her future living with a chronic illness.

Braithwaite Noticed the Lack of Black Female MS Representation

She faced a void of information. “The lack of representation is a big deal,” she told Black Health Matters. Multiple sclerosis (MS) patient outreach efforts did not reach her 25-year-old corner of the internet. A 2022 study from the Journal of Neurology found that MS. disproportionately impacted Black women. You wouldn’t know it by what Reese Brathwaite found on the internet in 2012.

The faces of the patients she saw sharing information did not mirror her own. Searches for multiple sclerosis symptoms rarely churned out baddies with straight-back cornrows.

“When you don’t see yourself, which is a big part of my origin story, but [when] you don’t see yourself in a health condition, especially one that you have to live with for the rest of your life, that really changes the trajectory of how you care for yourself,” she said.

From Patient Advocate for Nonprofit Leader

She founded We Are Ill, a community-focused patient advocacy organization, in 2020. The seeds were planted in 2017, with the hashtag #WeAreIllmatic, putting a new spin on the face of illness.

Being a voice for others struggling was not something the Howard University graduate planned on. “I started off as simply a patient advocate telling my personal story, so I had no idea I would start a nonprofit,” she said.

We Are Ill helps to bring the community together. They host an annual Wellness Weekend that brings community members together.

They are expanding their efforts to offer insights on lupus and neuromyelitis optica spectrum disorder, two other conditions that disproportionately affect Black women. “We’re always trying to make sure that patient care is patient-centered,” said Reese Brathwaite.

Why Creating Community is Essential

People form friendships with those who understand they may need to cancel a dinner due to fatigue and are unfazed by sudden spasms. “Providing social connectedness by community and fellowship that has proven to lead to better health outcomes,” she said. “Underrepresentation can impact healthcare access and hence result in poorer health outcomes in these populations,” according to the International Journal for Equity in Health.

How We Are Ill Provides Support

Patient advocacy organizations can serve as connective tissue between the public and the services developed by healthcare firms. Reese Brathwaite noted that resources can be difficult for patients to access if they cannot be found.

She noted that global corporations may not be as adept at communicating with those who need their support as they believe. “You have all these different departments, and so whoever is working in patient advocacy might not be working in marketing,” she said.

“We’re also dealing with patients who are dealing with their own lives and children, work, careers, spouses, and health conditions. And so, it is a lot to ask patients to go and find and seek out another thing,” she added.

They focus on showing up in the paths of those who need to learn. “We find them where they are.”

They Are Not a ‘Debbie Downer’ Community

Speakers at We Are Ill are briefed before engaging with the audience. The instructions are clear. Leave your pessimism at home. “We are not a ‘Debbie Downer’ community,” said Reese Brathwaite. “We get enough of that.” We Are Ill brings familiarity and glamour to learning about chronic illness. They include happy hours, spirited workout plans, and other activities that attendees might not expect at a healthcare conference. Attendees mill around in customized pilates socks and little black cocktail dresses. Speakers include Ashley Blaine Featherson and Jennifer Holliday.

“We are redefining what sick looks like,” she declared.

They promote living full lives by developing programming that focuses on what is possible, not what isn’t. “We had a session about intimacy and how we can help with intimacy issues, because that’s a big issue in our community,” she said.

Challenging Stereotypes About Black Women and Chronic Illness

Part of what We Are Ill does is challenge the stereotypes existing about Black women dealing with chronic illness. “When we talk about underrepresented and underserved communities, there’s an archetype that comes with it, and that is that everyone is low income, underinsured, uneducated,” she said. “We are actively dispelling that by making sure we’re tapping into our community and showing the representation accurately.”

Assuming that chronically ill Black women can only be located in particular places ensures that some of them will miss out on messages they need to hear to improve their lives.

“These community members are savvy, educated, well-informed,” she added. “They know their stuff. They just don’t trust the healthcare system.”

Stereotypes can work both ways. Medical mistrust due to medical gaslighting can cause Black women to put off seeking therapies that might improve their day-to-day pain. “When we’re not proactive about it, and we let it linger. We normalize it so much so that it is a part of our lifestyle, and it doesn’t have to be,” said Reese Brathwaite. “Proactivity saves lives.”

Being Black women, Reese Brathwaite and her growing team are uniquely positioned to address apprehensive patients. She knows they are speaking to her 25-year-old self in her work.

“We already understand some of the barriers that just exist naturally.”

Resources

Journal of Neurology

World Health Organization

CDC: Social Connection

International Journal for Equity in Health

 

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How We Spend Our Money Matters https://blackhealthmatters.com/how-we-spend-our-money-matters/ Fri, 12 Dec 2025 15:32:07 +0000 https://blackhealthmatters.com/?p=62750 As prices climb, so does skepticism. For many Black consumers, the question has shifted from “Can I afford this?” to “Can I trust this brand?” A new report from The […]

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As prices climb, so does skepticism. For many Black consumers, the question has shifted from “Can I afford this?” to “Can I trust this brand?”

A new report from The Harris Poll, Challenger Retail 2025, explores how different generations are reshaping the retail landscape. We spoke with Justin Pincus, managing director of QuestBrand by The Harris Poll, to understand how rising prices and shifting expectations are reshaping how people shop.

“Consumers treat pricing as a moral signal,” Pincus said. “It’s not just a math equation anymore.”

For Black consumers, that signal matters. We’ve seen what happens when brands talk about equity but remain silent when costs rise. In this climate, transparency is not optional.

Black Spending Power is Rising

At the same time, Black consumer spending in the United States is projected to reach $1.7 trillion by 2030, according to McKinsey & Company. This growth reflects a shift in how trust, identity, and values shape purchasing decisions across generations.

From beauty and wellness to home goods and fashion, Black consumers are shaping trends and demanding accountability. But spending power does not mean spending blindly. We are asking harder questions. Is this brand showing up for us when it counts? Are they raising prices without explanation? Are they still investing in inclusive campaigns, or pulling back when budgets tighten?

Retailers who want loyalty need to earn it. That means transparent pricing, consistent messaging, and products that reflect our lives.

What Our Spending Reflects

This isn’t just about retail. People make decisions differently when money feels tight, and trust demands proof. The QuestBrand report is not a psychology study, but it reveals something psychological. Pricing, messaging, and consistency shape our emotional responses to brands.

For Black consumers, those responses are layered. We are not just asking “Is this worth it?” We are asking, “Does this brand see me?” And in an economy where every dollar has to stretch further, that question carries weight.

Trust Looks Different by Generation

“Each generation isn’t just a demographic, it’s a worldview shaped by the economy and culture they came of age in,” said Pincus.

Boomers still see reliability as the ultimate proof point. Gen X values accountability. Millennials reward emotional intelligence and consistency. And Gen Z looks for transparency and collaboration.

Younger Generations Are More Frugal

Zoomers is reframing what value means. “Gen Z’s embrace of resale isn’t about frugality, it’s about ethics and identity,” said Pincus. In 2024, 63 percent of Gen Z purchased second-hand clothing. A third said they would pay more for sustainable products.

“To Gen Z, resale isn’t a fallback; it’s an ecosystem,” he explained. “They view it as an active way to participate in the circular economy.”

Millennials Want Consistency

Millennials now make up the largest share of retail spending. They are parents, professionals, and household decision-makers. And they are not impressed by gimmicks.

“Millennials reward reliability, but that doesn’t mean invisibility,” said Pincus. “They value consistency, quality, and convenience.”

That expectation shows up in how they judge pricing as well. Millennials want brands to manage costs responsibly without cutting corners. Stores like TJ Maxx and Williams-Sonoma keep their costs in check by working with multiple suppliers, buying directly from factories, and adjusting prices as needed to avoid losses.

What Dependability Looks Like

Dependability is not about being flashy. It is about showing up consistently. “Younger shoppers want brands that understand them, but also deliver without surprises,” said Pincus. “It’s less about dazzling them and more about doing what you say you’ll do.”

Seventy percent of shoppers say they spend more with businesses that understand their preferences. Even so, that connection only builds loyalty when brands stay consistent. That’s why 71 percent of consumers stick with companies that stay true during economic uncertainty.

Transparency Builds Trust

“Transparency drives both trust and momentum,” said Pincus. When shoppers feel kept in the loop, they are more than twice as likely to stay loyal, even after a price increase.

“In a volatile economy, openness signals stability,” he added. “Brands that communicate clearly, explaining not just what changed but why, earn the credibility to keep moving forward.”

Loyalty Comes From Proof

“Stop chasing loyalty programs and start building loyal behavior,” said Pincus. “Younger consumers don’t want to be won back; they want to be recognized.”

That recognition has to show up in product, tone, and timing. Retailers build long-term loyalty by using data to anticipate needs, simplify decisions, and communicate clearly. In contrast, those who rely on discounts alone risk falling behind.

For younger shoppers, loyalty isn’t about perks. It’s about proof.

Brands Win With Us When They Keep Their Promises

A recent Harris Poll found that 74 percent of consumers say they are more loyal to brands that deliver precisely what they promise. But what counts as a promise has changed. For younger consumers, it is about shared values and ongoing engagement. For older ones, it is about steadiness and proof over time.

Understanding how people spend, what earns trust, what signals respect, and what reflects lived experience is essential.

Resources:

Challenger Retail 2025 – Harris Quest

QuestBrand – Harris Poll

The state of Black consumers | McKinsey & Company

Home | Mass Blackout

 

 

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Black Teens Are Confronting Period Stigma https://blackhealthmatters.com/black-teens-are-confronting-period-stigma/ Thu, 11 Dec 2025 18:11:11 +0000 https://blackhealthmatters.com/?p=63843 Black teens are speaking up about what it means to live with period shame. They describe hiding pads in their sleeves, skipping movements in gym class, and pushing through pain […]

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Black teens are speaking up about what it means to live with period shame. They describe hiding pads in their sleeves, skipping movements in gym class, and pushing through pain so they don’t seem dramatic.

The 2025 State of the Period report shows just how common these moments are. Board-certified OB-GYN Dr. Fran Haydanek, partnering with Thinx, a company known for its reusable period underwear, says the findings reveal the weight of stigma and the urgent need for support.

Basic Menstrual Health Screenings Are Not Always Available to Black Teens,

“From the 2025 State of the Period findings, it’s clear that period shame is showing up in the smaller, everyday moments for Black teens,” Dr. Haydanek explains. Eighty-three percent report tucking pads or tampons away when they leave class. More than half avoid specific movements or activities due to concerns about leakage. She says these patterns show how many teens feel they must manage their periods quietly, without the support or understanding they deserve.

The survey also found that nearly one in five Black teens has never received a basic menstrual health screening. Many are navigating their symptoms without guidance, leaving them vulnerable to misinformation and isolation.

A Lack of Support and Preparation

Teens want products they can count on, honest, accurate education, and adults who understand menstrual health and take their pain seriously. Yet only three in ten feel their school supports them.

“Even though access to free products has improved in some places, stigma has grown since 2023,” Dr. Haydanek says. That gap is why she partnered with Thinx to share practical tips for parents, coaches, and after-school instructors.

The disconnect also shows up in education. Many teens report that they first experienced their period before they learned about the menstrual cycle. That lack of preparation leaves them feeling unready and unsupported at a critical moment.

Creating Safe Spaces

Dr. Haydanek believes adults play a central role in shifting stigma. “It is up to parents, teachers, coaches, and mentors to shift the stigmas associated with periods by normalizing and helping teens to feel safe asking for support,” she says.

Her advice is straightforward. She urges adults to create judgment-free zones, empower teens with education, encourage open communication, and suggest products designed for teens. She points to Thinx Teens period underwear, which offers up to twelve hours of leakproof protection, as one option that helps teens move through their day with less worry.

The findings also show that when teens feel supported, they are more likely to ask questions. When asked who they would turn to with a private health concern, many said they would go to a parent or trusted adult rather than a teacher or health professional. That trust is an opportunity for families and mentors to step in with accurate information.

The High Cost of Access

“For a lot of families, it comes down to cost and inconsistent access,” Dr. Haydanek says.

Teens spend about forty dollars a month on products, which can strain tight budgets. Nearly half of Black teens say their families have had to adjust what they buy because of financial pressure. That often means wearing products longer than recommended or relying on friends.

Economic pressure also affects participation in sports and extracurricular activities. Teens report missing activities because of cramping, fatigue, irritability, or fear of spotting. These experiences show how stigma and cost combine to limit opportunities.

Where Brand Messaging Stops Short

“We need to have more discussions about warning signs when it comes to menstrual health,” she says. Periods can signal what is happening inside the body. Irregular cycles, pain that causes missed school or work, or the disappearance of periods altogether should be evaluated by an OB-GYN.

Yet brand messaging often focuses only on empowerment without addressing these health realities. Teens need clear information about when to seek care, not just slogans.

They Are Ready to Break Taboos

The findings also show teens are pushing for change themselves. Eighty-two percent want more advocacy around menstrual health in 2025. Even though only 62% feel in control of their periods, 81% say they have helped someone feel more comfortable talking about theirs. Peer support is reshaping the conversation and breaking the silence.

Measuring Impact

Dr. Haydanek says awareness is not enough. “We need to continue to push for things like the removal of the pink tax on items like menstrual products, because they are not a luxury good. We need access to menstrual products in schools, especially for populations with limited resources. And most importantly, I am pushing for continued funding for gynecologic research.”

The survey makes clear that stigma is real, but so is resilience. Teens are speaking up, supporting one another, and asking for change. With adults who listen and policies that prioritize menstrual health, the next generation can move through their lives with confidence instead of shame.

Resources:

PERIOD SOTP 2025 Report_10.20.25_SHARED

Period and Bladder Leak Underwear | Thinx

Shop All: Teen Period Underwear | Thinx

 

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What the Wicked Discourse Around Ariana Grande and Cynthia Erivo Reveals About Weight Stigma https://blackhealthmatters.com/what-the-wicked-discourse-around-ariana-grande-and-cynthia-erivo-reveals-about-weight-stigma/ Wed, 10 Dec 2025 20:22:10 +0000 https://blackhealthmatters.com/?p=64325 The bodies of public figures like Wicked For Good Stars Ariana Grande and Cynthia Erivo have always been up for discussion. Social media has made the conversation louder than ever.   […]

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The bodies of public figures like Wicked For Good Stars Ariana Grande and Cynthia Erivo have always been up for discussion. Social media has made the conversation louder than ever.  

Both performers have shown up on the press lines for the anticipated musical, appearing significantly thinner than before. Commentary on the topic exploded. Some speculated that the pair might be participating in disordered eating or excessive usage of increasingly popular weight loss medications like GLP-1s.  

How Social Media Has Made Us All Armchair Experts 

Commenting on someone’s appearance has become more commonplace. Social media makes it easier. “The access that we have to speak on people now is quite dangerous,” Wendi S. Williams, PhD, President-Elect of the American Psychological Association, told Black Health Matters.  

“Before the advent of social media and so much use of technology and the ability to propagate a message so vastly, a person could have an opinion about a celebrity or a politician that they see in the news or in one of those magazines, and it would have been an opinion shared either to themselves or within the locality of their friends and family,” she said.  

Anyone can place them into the world where they might cause harm, now.  

Grande posted a message on social media containing a “loving reminder” of the harm that can be caused by commenting on the size of someone’s body. She addressed the comments on her figure during an interview with Oui Oui Baguette 

“So I have heard it all. I’ve heard every version of it, of what’s wrong with me. And then you fix it, and then it’s wrong for different reasons,” said Grande. “It’s hard to protect yourself from that noise,” continued the “7 Rings” singer.  

Lizzo wrote about how the aftermath of losing weight was impacting her in a recent essay on Substack. “I think it’s something that is uncomfortable no matter what scale you’re experiencing it on,” Grande added in the interview.  

“I don’t think that we can ever diminish the impact of so much public opinion on the psyche of one individual,” said Williams.  

 

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Lay People Can’t Assess Someone’s Health by Looking At Them.  

Weight loss leads to speculation about health conditions, including eating disorders, substance abuse issues, and infectious diseases. Weight gain comes with preconceived notions about one’s mental and emotional health. Both excessive thinness and obesity are accompanied by healthcare challenges. The specifics of these are not visible to laypeople.  

Clinicians are the only ones qualified to evaluate the state of someone’s appearance from a healthcare perspective. You wouldn’t know that by listening to everyday discourse on the subject. 

Red carpets are not the only place where weight stigma shows up. It happens to everyday people at holiday dinner tables, in workplaces, and in other intimate settings.  

Dr. Faith Ohuoba, board-certified OB-GYN, sees patients put on baby bump watch by people in their lives when they are facing health issues like fibroid tumors or ascites, a condition that causes abdominal swelling. “It’s actually a problem, it’s not a pregnancy,” she said. Gabrielle Union described dealing with infertility and having people constantly speculate about her body as her pelvic area distended and retracted during treatments.  

According to a 2021 article from Frontiers in Nutrition, “While conversations about weight stigma have historically centered on individuals who are classified with overweight or obesity, evidence suggests that those classified as underweight also experience stigma that exacerbates poor health.”  

Chadwick Boseman, who recently received a posthumous star on the Hollywood Walk of Fame, was openly criticized for his noticeably thinner appearance before the public learned that he was dealing with colorectal cancer. Colorectal cancer is prevalent in the Black community. The weight loss was laughed at by some online who thought his lifestyle was contributing to it. 

His case was an example of how one’s appearance might not tell the whole story about what they are experiencing.  

Publicly Speculating About Someone’s Body Can Impact Their Mental and Physical Health  

According to the International Journal of Obesity, weight stigma can lead to unhealthy behaviors and poor outcomes.  

Health indicators don’t just live on the scale. They can exist in your head as well.  

“Commenting on someone’s weight when they are experiencing a weight eating disorder or just challenges around weight loss or weight management actually is a trigger,” said Williams.  

Unsolicited comments can cause someone stress. 

A 2025 article from Frontiers in Psychiatry reports that “Weight stigma, or social devaluation based on an individual’s body size or weight, is directly related to greater depressive and anxiety symptoms.”  

“I think that we should be very careful about what we say because it may have unintended consequences,” added Ohuoba.  

On this season of Married To Medicine, Dr. Jackie Walters asked newcomer Brandi Milton if she had an enlarged thyroid on camera. Walters issued a public apology later, acknowledging that her actions could have been hurtful.  

“We all could benefit from having a little more empathy, considering how our words and judgements may impact others,” said Ashley Goodwin LCSW. “Commenting on these suspected disorders also adds to the stigma.”  

Ohuoba noted that speculating about someone’s health based on their appearance without their consent can be damaging. 

“I don’t think it’s fair,” she said. “They’re not giving you solutions, they’re not giving you treatment, they’re not giving you anything other than their opinion, which may be harmful.”  

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College Students Home for the Holidays May Need Mental Health Support https://blackhealthmatters.com/college-students-home-for-the-holidays-may-need-mental-health-support/ Wed, 10 Dec 2025 17:16:24 +0000 https://blackhealthmatters.com/?p=64180 College is a time of significant transitions. Students are stepping out of their comfort zones, making hard decisions, and learning to balance independence with responsibility. That growth can be exhilarating, […]

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College is a time of significant transitions. Students are stepping out of their comfort zones, making hard decisions, and learning to balance independence with responsibility. That growth can be exhilarating, but it can also be overwhelming. The holiday season, with its mix of family expectations, financial pressures, and cultural traditions, often magnifies those challenges.

Dr. Annelle Primm, M.D., MPH, Senior Medical Director of the Steve Fund, has spent her career addressing mental health disparities. She explains how the break between semesters can be both restorative and isolating, and what families and communities can do to help students feel supported.

Independence Meets Family Traditions

“College students who have grown accustomed to independence may have to readjust to their family environment when they come home for the holidays,” Dr. Primm says. That shift can spark conflicts over routines or even political beliefs. For students without supportive home environments, the break can feel isolating rather than restorative.

Signs Your Student May Be Struggling

Families should pay close attention to changes in behavior. Dr. Primm points to withdrawal from activities, sleeping much more or less than usual, or significant shifts in appetite. “Persistent sadness, hopelessness, or frequent tearfulness are important signals,” she explains. More concerning signs include talk of being a burden, reckless behavior, or giving away meaningful possessions.

The Extra Burdens Black Students May Carry

While all students face stress, Black students often shoulder additional burdens. “Financial concerns may affect Black students disproportionately,” Dr. Primm notes, pointing to the ripple effects of job losses among Black families. Grief also weighs heavily, as shorter life spans in Black communities mean young people often face losses earlier.

“These pressures converge during the holidays, when financial strain intensifies, and family absences feel most acute,” she says.

Belonging Can Feel Complicated

Returning home can strengthen a sense of belonging through cultural traditions and family connections. But for some, it highlights differences. “If the student’s family is conflicted about them attending college and the student has adopted new ways of thinking, they may feel out of place or estranged,” Dr. Primm observes.

For those staying on campus, an empty environment can amplify loneliness. Social media often compounds the feeling, showing peers surrounded by family and celebration.

Family Moves That Make a Difference

Dr. Primm recommends mindfulness meditation as a way to reduce stress. “Take one step at a time so as to focus on the here and now,” she says. She also urges families to start open, judgment-free conversations, validate students’ experiences, and respect their independence while maintaining connection.

The Steve Fund’s Holiday Mental Health Toolkit offers practical tips and reflection tools to help families navigate this season.

Faith and Community as Healing Spaces

Churches and community groups can play a vital role in reducing stigma. “It is important for people to know that mental health concerns do not signify a failure of faith,” Dr. Primm explains. Trusted messengers can reassure students that seeking help is not a weakness but a strength.

Tech Can Connect or Disconnect

Platforms like My Digital Sanctuary foster community through love, hope, and creativity. But Dr. Primm cautions, “Anything in excess can be problematic. Exclusive reliance on technology without in-person connection may be a barrier to strong mental health.”

Building Year-Round Support

Dr. Primm stresses that support cannot be seasonal. “Creating cultures of care on campus that take into consideration lived experiences should be a goal of the administration, faculty, and staff,” she says. Sustained change requires transparent reporting, inclusion of Black student voices, and dedicated funding.

The holidays should be more than getting through the challenging moments. With care, honesty, and lasting commitment, families and communities can create spaces where students feel seen, supported, and embraced not only during the season of celebration but throughout the year.

Resources:

The Steve Fund

Holiday Mental Health Toolkit – The Steve Fund

My Digital Sanctuary – The Steve Fund

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Sheinelle Jones Shows Us What Fighting for Joy Looks Like https://blackhealthmatters.com/sheinelle-jones-shows-us-what-fighting-for-joy-looks-like/ Wed, 10 Dec 2025 16:56:30 +0000 https://blackhealthmatters.com/?p=64186 On Tuesday, December 9th, Jenna Bush Hagar announced that Sheinelle Jones would join her as the permanent cohost of TODAY’s fourth hour. Jones joined Hagar for the show and announcement. […]

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On Tuesday, December 9th, Jenna Bush Hagar announced that Sheinelle Jones would join her as the permanent cohost of TODAY’s fourth hour. Jones joined Hagar for the show and announcement. “I told my kids first. Kayin was in the school library, so I Facetimed him. And the twins, I went and got wine and gave them water. They were so happy for me. There was so much joy in our house. And we needed that joy,” Jones explained. “When I came back from leave, I talked about fighting for my joy. This is what it looks like.”

 

Jones Reflected on the Past Year

Those who watch TODAY know that Jones returned from a leave that started about a year ago. Holding back tears, she said, “A year ago at this time was tough for me. I decided I should step back and be with my husband. And we were in a fight.”

Jones’ husband, Uche Ojeh, passed away after a battle with brain cancer last May. But with optimism, she said no one could write this script. She fondly recalled the encouragement from the church elders from her home church in Wichita, Kansas, when she tried to sing a solo, “Let the Lord use you,” and feels she can hear them now.

When the mom of three talked more about finding joy in this moment, she wanted us to know how it struck her emotionally.

“It feels divine. It feels like Uche’s up there with God, and he’s Mr. Competitive. Alright, let’s go make this happen for Sheinelle.’

Jenna & Sheinelle Will Make Debut January 12th

Since Hoda Kotb’s departure, there have been more than 60 cohosts rotating with Bush Hager in hopes of snagging that coveted slot. But the pairing with Jones is an ideal choice.

“What people may not know is that Sheinelle and I have this long, beautiful history together,” Bush Hager noted. The two journalists have known each other for a decade. And were often the substitute cohosts for Kathy Lee & Hoda.

Their connection extends beyond the studio, with the two enjoying lunches together and taking their daughters on playdates and outings.

Hoda Imparts Her Wisdom to Sheinelle

Jones’ TODAY family is overjoyed about her new role. And it should come as no surprise that Kotb would be among them. She called Jones the night before the official announcement and offered her some profound words, taking a couple of minutes away from her daughter Clara’s dance recital.

Jones recalls her advice, “Let’s remember this moment. You’re going to talk about how this was a moment that changed your career. And it was the best decision for you and your kids.” Kotb told her that working with Bush Hager will be better than she could imagine.

A Position With A Higher Purpose

As Jones prepares to assume her new role, she sees it as a blessing with a higher purpose and feels a sense of responsibility. “We can bring joy, hope, and comfort,” she said. “Just as healing as it is and fun for me, I hope we can bring the same thing to audiences at home.”

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Here Are 11 Foods That Trigger An Overactive Bladder https://blackhealthmatters.com/5-foods-that-could-trigger-overactive-bladder/ https://blackhealthmatters.com/5-foods-that-could-trigger-overactive-bladder/#respond Wed, 10 Dec 2025 05:00:00 +0000 http://www.blackhealthmatters.com/5-foods-that-could-trigger-overactive-bladder/ Frequent bathroom breaks can feel frustrating, exhausting, and sometimes embarrassing — but for many people, the culprit isn’t just an overactive bladder (OAB). It might be the foods and drinks […]

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Frequent bathroom breaks can feel frustrating, exhausting, and sometimes embarrassing — but for many people, the culprit isn’t just an overactive bladder (OAB). It might be the foods and drinks you consume every day. OAB occurs when the bladder muscle contracts involuntarily, creating a sudden urge to urinate. While treatment can include pelvic-floor exercises, medications, or other interventions, diet is one of the simplest and most overlooked tools for managing symptoms.

Here are some foods and beverages that may worsen urinary urgency — and why cutting back could offer real relief:

Beverages

Coffee and Other Caffeinated Drinks

Caffeine doesn’t just wake you up—it wakes your bladder up, too. Caffeine acts as both a diuretic (increasing urine output) and a bladder irritant (enhancing bladder sensitivity). That espresso shot, cup of tea, or even hot cocoa can send your bladder into overdrive.

Soda and Carbonated Beverages

Carbonation can stimulate the bladder lining, which causes urgency. Additionally, sodas often contain caffeine, sugar, or artificial sweeteners, each of which can trigger symptoms on its own.

Alcoholic Beverages

Alcohol dehydrates and irritates the bladder, while also increasing urine production. Even one drink may increase bathroom visits. Consider limiting yourself to a single serving if you’re dealing with OAB.

Too Much (or Too Little) Water

Hydration is essential, but overdoing it can overwhelm the bladder. Drinking too little concentrates your urine, which irritates the bladder. It is recommended to consume 6–8 glasses of fluids per day, letting thirst guide you.

Foods

Cranberries

While cranberry juice may help prevent UTIs, its acidity and diuretic effects can worsen urgency in people with OAB. It flushes the system but may cause more frequent bathroom trips.

Spicy Foods

That spice from hot sauce, wasabi, or pepper flakes doesn’t just ignite your mouth; it may also inflame your bladder lining. This irritation can worsen urgency and frequency. If you love spice and flavor, try cooking with herbs instead of heat-heavy spices.

Processed Foods

Highly processed foods often contain artificial preservatives, sweeteners, and additives. These are ingredients known to aggravate bladder symptoms. Choosing whole and minimally processed foods is a safer alternative for bladder comfort.

Chocolate

Chocolate contains caffeine and can increase bladder sensitivity. If it’s your go-to treat, consider switching to white chocolate (no caffeine) or dark chocolate (more cocoa, less sugar) to minimize irritation.

Citrus Fruits and Other Acidic Foods

Grapefruits, oranges, cranberry juice, and tomatoes are all acidic enough to irritate the bladder. While citrus provides nutrients, the acidity can increase urgency for people with OAB. You can opt for gentler fruits like apples, pears, or blueberries.

Ingredients

Sugar and Artificial Sweeteners

Both real sugar and sugar substitutes such as Splenda, Equal, Sweet’N Low, and even honey can irritate the urinary system and worsen OAB symptoms. Cutting back on or eliminating sweeteners may provide noticeable relief.

Raw Onions

For some individuals, consuming raw onions can irritate the bladder. Cooking them makes them milder and easier to tolerate, and shallots are a gentler alternative.

Tomatoes

Tomatoes and tomato-based sauces are naturally acidic and may irritate the bladder. Reducing acidity in sauces may make it easier to tolerate. Try adding shredded carrots, a splash of cream, or a tiny pinch of baking soda to neutralize the acidity. Overall, small changes to your diet can make a big difference in bladder comfort. Paying attention to your triggers and adjusting what you eat and drink can help you regain control and reduce frequent bathroom trips.

 

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Life After a Lung Cancer Diagnosis https://blackhealthmatters.com/life-after-a-lung-cancer-diagnosis/ Thu, 04 Dec 2025 20:31:49 +0000 https://blackhealthmatters.com/?p=63849 This article is sponsored by Janssen  Have you been newly diagnosed with non-small cell lung cancer (NSCLC)? Learn if a clinical trial is right for you.  If you have been […]

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This article is sponsored by Janssen 

Have you been newly diagnosed with non-small cell lung cancer (NSCLC)? Learn if a clinical trial is right for you. 

If you have been diagnosed with advanced or metastatic NSCLC or have a specific mutation in the epidermal growth factor receptor (EGFR) gene, the Copernicus clinical trial might be an option for you. The Copernicus clinical research study is evaluating the addition of an investigational medication to an oral medication and chemotherapy for NSCLC.  

What is a clinical research study, and why is it important?  

A clinical trial, also called a clinical research study, is a carefully designed scientific evaluation of an investigational medication. Clinical trials help doctors and researchers determine if an investigational medication is safe and/or effective for the treatment of a condition, disease, or disorder.  

Clinical trials are completely optional, and each one has a specific set of criteria a participant must meet to join. Clinical studies, conducted by doctors and researchers, often require a large number of volunteers to participate in a single study, and sometimes thousands are needed to obtain reliable information. 

What can I expect if I join a clinical trial?  

If you qualify and choose to join a clinical trial, you will first sign an informed consent form (ICF). “Informed Consent” is a process of information exchange before an adult agrees to participate in a clinical trial. During this process, you will be asked to read the ICF, and a study doctor or member of the research team will explain all the details of the study and answer your questions.  

By signing the ICF, you agree to volunteer to take part in the study, you understand the study procedures, risks, and potential side effects, and that you can leave the study at any time, for any reason. If you don’t understand what is expected of you or what is written in the document, you should continue to ask questions and talk with the study doctor, your family, or others that you trust, until you feel you understand. 

What is the purpose of the Copernicus study?  

The purpose of this clinical research study is to determine the safety and efficacy of the addition of an investigational medication in combination with another oral therapy or chemotherapy for adults who have been diagnosed with non-small cell lung cancer (NSCLC). 

Am I eligible for the Copernicus study?  

You may be able to participate in this study if you: 

  • Are 18 years of age or older 
  • Have been diagnosed with advanced or metastatic NSCLC 
  • Have a specific mutation in the epidermal growth factor receptor (EGFR) gene 

Additional eligibility criteria will apply and be assessed by the study doctor or staff during the screening process. Screening will occur prior to being enrolled in the study and receiving any investigational medication. Not all individuals may qualify to participate in the research. 

What can I expect if I join the Copernicus study?  

  • If you qualify and choose to join the study and sign the informed consent form (ICF), you will be asked to attend a screening visit with the study doctor to ensure you meet all eligibility criteria. 
  • Eligible patients will be placed in a study group. Participants will receive the investigational medication + oral study medication.  
  • The oral study medication is taken once a day by mouth. The investigational medication is given as an injection under the skin. 
  • The study medication will be given in recurring 28-day cycles. 
  • At study clinic visits, participants will have their health evaluated through various health exams and tests. 
  • Study participation may last up to about 3 years, as long as the participant wants to continue, and the study doctor believes it is safe. 

What is expected during my participation in the Copernicus study?  

Your study doctor and research staff will guide you throughout your participation in the study. However, you can expect the following general expectations:  

  • Tell the study doctor/staff about any health problems you have during the study.  
  • Come to all study visit appointments.  
  • Ask the study doctor/staff any questions you have about the study. 
  • Tell the study doctor/staff about any new medicine you take during the study, as well as any changes to your medicines.  

How do I learn more about participation in the Copernicus study? 

You can talk to your doctor to find out if you are a candidate for a clinical trial. Click here to visit the study page and learn more about the Copernicus study.   

Where can I go to learn more about NSCLC?  

There are several online resources available. For further information and research support groups, consider visiting the following websites. Consider asking your doctor if they can recommend local support groups near you.  

This article is brought to you by Janssen. 

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Every Heart Counts: Tackling Cardiology Deserts https://blackhealthmatters.com/every-heart-counts-tackling-cardiology-deserts/ Wed, 03 Dec 2025 09:01:50 +0000 https://blackhealthmatters.com/?p=63568 Heart disease is the leading cause of death in the United States, yet millions of Americans still lack reliable access to preventive heart care. Black families are especially affected, facing […]

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Heart disease is the leading cause of death in the United States, yet millions of Americans still lack reliable access to preventive heart care. Black families are especially affected, facing higher risks and fewer resources.

The Association of Black Cardiologists (ABC), led by President Anthony Fletcher, MD, is confronting this crisis through its Every Heart Counts: ABC Cardiology Deserts Campaign.

What Are Cardiology Deserts

Dr. Fletcher describes a cardiology desert as “a community where people don’t have reliable, timely access to cardiologists or preventive cardiovascular care.” These deserts exist in both rural and urban settings. In rural areas, patients may travel long distances to see a specialist, while in cities, socioeconomic barriers and overburdened health systems often block access.

Barriers Beyond Distance

Even proximity to a clinic does not guarantee care. A recent ABC survey found that:

  • One in four adults must travel 10 to 20 miles to see a heart specialist, particularly in Louisiana, Arkansas, Georgia, and Mississippi.
  • Twenty two percent of respondents said they tried but could not secure a cardiology appointment.
  • Nearly one in five Black adults have never received a basic heart screening.

Knowledge gaps add to the challenge. Forty percent of Americans surveyed had no prior awareness of the two major types of cholesterol. HDL is commonly referred to as good cholesterol, and LDL is commonly referred to as bad cholesterol. Among Black respondents, that number rose to 54 percent. Only about one third of adults know their own cholesterol levels.

Changing Perceptions Through Trusted Voices

Dr. Fletcher notes that heart health involves more than treatment after a diagnosis; prevention is essential. Survey findings show that one in five adults believe they do not need heart care, with an emphasized prevalence among older adults, rural residents, and women. In response, ABC works with local leaders, churches, and community organizations to encourage screenings and preventive care. Fletcher explains that these community voices help make heart health feel safe and achievable.

Supporting Primary Care Providers

In many under-resourced areas, primary care providers are the only option for heart health. ABC equips them with training, tools, and resources to identify risks earlier and connect patients to appropriate care. With seed sponsorship support from Amgen, the campaign is already active in Arkansas, Georgia, Louisiana, and Mississippi, states where the need for preventive care is most urgent.

Building Long Term Change

For communities historically excluded from heart health conversations, long term change means breaking cycles of crisis care. ABC’s goal is to move from emergency interventions to sustained, equitable access to preventive screenings and education that reflect lived experiences.

A Call to Black Families

The numbers are shocking, nearly one in five Black adults have never received a cardiovascular screening. That means millions may be living with hidden risks. Dr. Fletcher urges families to learn their heart health history, schedule annual screenings, and regularly check blood pressure and cholesterol. These simple steps, he says, “can be lifesaving.”

Cardiology deserts are a national crisis, but they do not have to be permanent. With trusted voices and equitable access, ABC’s Every Heart Counts campaign is working to ensure that every heart truly counts.

Resources:

Association of Black Cardiologists – Saving the hearts and minds of a diverse america

FILE_4757.pdf

Missing Coordinates: America’s Cardiology Deserts | Amgen

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Seasonal Affective Disorder is More Than the Winter Blues https://blackhealthmatters.com/fight-off-cold-weather-blues/ https://blackhealthmatters.com/fight-off-cold-weather-blues/#respond Wed, 03 Dec 2025 05:00:00 +0000 http://www.blackhealthmatters.com/fight-off-cold-weather-blues/ The ‘most wonderful time of the year’ can leave you feeling SAD, which stands for seasonal affective disorder. It is a type of depression that impacts us during certain seasons, […]

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The ‘most wonderful time of the year’ can leave you feeling SAD, which stands for seasonal affective disorder. It is a type of depression that impacts us during certain seasons, most often during fall and winter. Many experts believe that reduced daylight sets off a chemical reaction in the brain, leading to symptoms of depression.

What Are the Symptoms of SAD?

According to the Cleveland Clinic, the symptoms of Seasonal Affective Disorder are:

  • Sadness, feeling depressed most of the day, almost every day.
  • Anxiety.
  • Carbohydrate cravings and weight gain.
  • Extreme fatigue and lack of energy.
  • Feelings of hopelessness or worthlessness.
  • Trouble concentrating.
  • Feeling irritated or agitated.
  • Limbs (arms and legs) that feel heavy.
  • Loss of interest in usually pleasurable activities, including withdrawing from social activities.
  • Sleep problems (usually oversleeping).

Who Experiences SAD?

According to the National Institute of Mental Health, SAD develops in young adulthood, and it is more often seen in females than males. Those living in the Northern parts of the United States are more likely to feel the impact of shorter daylight hours, such as in Alaska and New England, than in states like Texas or Florida. In addition, if you have been previously diagnosed with depression or bipolar II disorder, you may be susceptible to SAD symptoms.

If you think you may have this disorder, see your health-care provider, who will ask about your history of symptoms and may perform blood tests to rule out disorders with similar symptoms to SAD.

Top Ten Cities Where SAD Hits Hardest

For the past four years, Thriveworks has analyzed Google search trends and weather trends to predict when SAD may peak. In 2025, it was the third week of November. In addition, they have identified the ten markets where SAD hits the hardest:

  1. Idaho Falls, ID
  2. Harrisonburg, VA
  3. Springfield, MA
  4. Salt Lake City, UT
  5. Syracuse, NY
  6. Missoula, MT
  7. Ottumwa, IA
  8. Bowling Green, KY
  9. Binghamton, NY
  10. Utica, NY

The Best Treatments for SAD

To effectively treat SAD, you may need a combination of the following treatments.

  • Light therapy
  • Cognitive behavioral therapy
  • Antidepressant medication
  • Spending time outdoors
  • Vitamin D supplements

“Treatment is the same as with other types of depression,” says Nicole Nicome, M.D., of Atlanta, except for light therapy. Antidepressant medication can be effective, as well as talk therapy, exercise, getting enough sleep, and maintaining a healthy diet. Light therapy is a special treatment for SAD that uses a 10,000 lux light source that mimics sunlight. Most practitioners instruct patients to sit in front of a light for 30 minutes a day to simulate sunlight. If light therapy is going to work, it usually does so in three to four weeks.

In addition,  Katie Hanselman, a board-certified psychiatric nurse at Thriveworks, suggests these additional actions that can help you manage symptoms:

  • Wake up at the same time every day—yes, even weekends. Your circadian rhythm controls serotonin production, and inconsistent wake times disrupt this system. A stable wake time naturally regulates your sleep-wake cycle within two to three weeks, even if your bedtime varies. Rising at the same time every day can naturally stabilize a variable bedtime.
  • Move your body in ways that feel good. Whether it’s a YouTube yoga class, a walk with the dogs, joining a fitness class, or taking the stairs, it all counts. Physical activity supports mood regulation, but the key is consistency over intensity.
  • Connect with people daily, even in small ways. Seasonal depression often comes with the urge to isolate, which can worsen symptoms. Daily social contact—whether it’s dinner with family, helping a neighbor, or simply a text to friends—helps counter the loneliness-depression cycle.
  • Limit alcohol and other substances. While it can be tempting to think that a drink or two will ease your distress, substance use typically worsens existing depression symptoms. If you use substances regularly, check with a professional before stopping on your own to make sure you have the support you need.

As with any depressive disorder, if your thoughts turn to hurting yourself or anyone else, get help immediately.

Resources

John Hopkins: What is Seasonal Affective Disorder?

Cleveland Clinic

National Institute of Mental Health

ThriveWorks:Seasonal Affective Disorder

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Yes, HIV is Still an Epidemic in 2025 https://blackhealthmatters.com/yes-hiv-is-still-an-epidemic-in-2025/ Mon, 01 Dec 2025 21:02:50 +0000 https://blackhealthmatters.com/?p=63547 It’s World AIDS Day. It reminds us that talking about HIV in communities of color can still be challenging. Dr. Alftan Dyson, head of strategic medical partnerships at ViiV Healthcare, […]

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It’s World AIDS Day. It reminds us that talking about HIV in communities of color can still be challenging. Dr. Alftan Dyson, head of strategic medical partnerships at ViiV Healthcare, says people are often surprised HIV is still a thing. “Well, yes, it is a thing. And to the tune of, we have about 39,000 new HIV diagnoses just in the US alone each year,” Dr. Dyson said.

Dyson joined Tamar Braxton and others for a panel called Breaking the Silence, presented by ViiV Healthcare, earlier this year to raise awareness of the HIV epidemic, the taboos and stigmas around prevention, and the importance of mental health.

Taboo & Stigma in Communities of Color

Dr. Dyson believes the other reason that we don’t hear as much about HIV is because of the communities that are impacted. “Communities of color, in particular, struggle with talking about sexuality, sex, and sexual health in positive ways,” she said.

“A third thing would be stigma, not just around the HIV diagnosis itself, and just in general, like it’s a barrier. I often tell people, HIV is not actually what’s going to cause someone you know to lose life; it’s actually going to be the stigma,” Dr Dyson continues.

“Because you have this stigma that prevents you from seeking care. Sometimes there’s a stigma that prevents you from seeking prevention options.”

Forty Years of HIV Advancements

There is fear for many surrounding HIV because they can recall the early years of the disease when those diagnosed had short life spans. But things have changed. “We’ve come to a place now, 40 years later, where we have good antiretroviral therapy, so people who are living with HIV can thrive and do well on antiretroviral therapy, on their medications, and as long as they’re on medicine and achieving undetectable viral loads,” Dr. Dyson said.

Bianca Ordoñez said, “Part of it is the stories we hear about people with HIV.” “In news stories, we usually see the trauma, the fear, the shame, the moment of that diagnosis, how it destroyed a person’s life. And while that can be true, and while that can be part of the story, it’s not the full story,” she explained.

For example, I’m in a sero discordant relationship, which means that I’m HIV positive and my husband is HIV negative,”  Ordoñez said. “Together, we have a beautiful, healthy, HIV negative baby girl. So when telling the story of people living with HIV, I would really rather you guys include HIV as a comma instead of a period.”

Why Tamar Braxton is So Vocal About HIV and HIV Prevention

We know that a lot of what Tamar Braxton does is unplanned, and that was the case with her viral Snapchat video. She told the crowd at NABJ.

“I had no idea that going on my Snapchat, figuring out if someone I was dating was 100,000 other people. It just so happened to go viral, helping this sister feel less alone. To help her understand that her purpose is for a purpose.”

But she also mentioned the media’s obsession with clickbait. “We like stories that are going to get traction. But the truth is, a journalist’s job is to bring the news and what is not news about HIV and HIV prevention. So I’m here to help normalize these conversations and make people less uncomfortable about them,” she said

“Why not speak about something important to our community, and that is important to me now, and I mean, I’m going to show up here every time, and so this is a normalized conversation. Having uncomfortable conversations doesn’t make you different; it makes you strong and powerful.”

The singer mentioned data Dr. Dyson shared: at the end of 2023, only 11% of Black folks who could benefit from HIV prevention had received it, whereas 70% of their white counterparts received it. “That’s news. That’s important information to share in the community.”

Panelist Tamar Braxton lit up the stage with her powerful voice and perspective. Photo courtesy of ViiV Healthcare.

 

Mental Health Must Be Included in the HIV Conversation

Yolo Akili Robinson from The Black Emotional Mental Health Collective shared some of the ways they teach in the community. “We have what we call healing circles. So while we think it’s very important to have individual care, you sometimes need to sit in a one-on-one situation. What we do is create collective spaces led by wellness practitioners, therapists, psychiatrists, and other professionals with different healing modalities,” he said.

“And we say, bring your mama, your cousin, your uncle, all them, because we’re going to learn about grief. We’re going to learn about trauma. We’re going to learn about HIV stigma together, as opposed to in these individualized scenarios. We’re going to learn how to process and reframe our emotions together,” Robinson said.

Communities need to be able to move through the uneducation and grief and feel safe.

Moderator Justin Carter of The Shade Room led our panel through an engaging, thought-provoking discussion. Photo courtesy of ViiV Healthcare.

Caption opening image: Our incredible panelists captured after an inspiring discussion (from left to right): Justin Carter (moderator), Bianca Ordoñez, Tamar Braxton, Yolo Akili Robinson, and Dr. Alftan Dyson. Photo courtesy of ViiV Healthcare.

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IMG_5181 anelist Tamar Braxton lit up the stage with her powerful voice and perspective. Photo courtesy of ViiV Healthcare. IMG_5200 Moderator Justin Carter of The Shade Room led our panel through an engaging, thought-provoking discussion. Photo courtesy of ViiV Healthcare.
What You Need to Know About Health Insurance Now! https://blackhealthmatters.com/what-you-need-to-know-about-health-insurance-now/ Tue, 25 Nov 2025 23:42:31 +0000 https://blackhealthmatters.com/?p=63391 According to a Gallup poll published this year, 62% of Americans believe it is the government’s responsibility to ensure that all Americans have healthcare coverage. Yet the potential expiration of […]

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According to a Gallup poll published this year, 62% of Americans believe it is the government’s responsibility to ensure that all Americans have healthcare coverage. Yet the potential expiration of the ACA’s Premium Tax Credit put millions’ health coverage in jeopardy. Here’s what you need to know about insurance for 2026 and beyond.

The Big Beautiful Bill Has a Long Rollout

The US Congress passed and signed H.R. 1, the One Big Beautiful Bill Act, into law. This new federal law will cut $1 trillion in healthcare spending through 2034 and potentially result in up to 15 million more people living without health insurance by 2034. The estimated impact of the One Big Beautiful Bill Act, or the 2025 Budget Reconciliation Act, does not seem to reflect the desires of most US citizens, who believe that access to healthcare is a right that the government should provide.

How These Benefits Have Helped Black and Brown Communities

According to The Urban Institute, ‘Enrollment in the nongroup market in 2025, which includes the Marketplace, is estimated to be substantially higher across all racial and ethnic groups with enhanced PTCs relative to a scenario without enhanced PTCs. Enrollment increases among Black people (79 percent higher) and Hispanic people (61 percent higher) with enhanced PTCs are greater than enrollment increases among White people (42 percent higher).

A report by Oliver Wyman estimates that there may be a slow reversal of the gains we’ve made in insuring our families. The report predicts that up to 1.3 million Black enrollees and 2.4 million Hispanic/Latino enrollees will leave the ACA marketplace by 2027. A decline of 52% and 48% respectively, if the PTCs expire.

The Healthcare Marketplace Premiums Are Very Different for 2026

Earlier this month, millions of previously eligible people began applying for, or attempting to renew, their health insurance policies through the Affordable Care Act (ACA) Health Insurance Marketplace. They got sticker shock.  As a result of federal budget cuts to healthcare spending approved by Congress, they are no longer eligible for the same low-cost coverage initially provided by legislation signed into law under the Obama administration.

Changes to the ACA Health Insurance Marketplace will be gradual, but being aware of how these policy shifts will impact you and your household could be critical in preserving your access to affordable healthcare in the future.

 The Enhanced Premium Tax Credits (PTCs) Will Expire

Earlier laws provided additional PTCs, allowing for enhanced subsidies that made health insurance more affordable for many middle-income people and those above 400% of the federal poverty level. As a result, beginning with health insurance plans after 2025 (or in some cases after 2026), people who benefited from these enhanced subsidies could see a significant reduction in subsidy amounts, leading to higher out-of-pocket insurance premium costs and cost-sharing.

What this Could Look Like:

A 40-year-old woman with an annual income of $28,000 (138% of the federal poverty level for one person in many states) purchased a Silver-level insurance policy on the ACA marketplace that is heavily subsidized.

She pays $325 for the year (1% of her annual income) after the PTC is applied. According to an analysis by KFF (an independent source for health policy research, polling, and news), if the PTCs expire, her payment could rise to $ 1,562 (6% of her annual income).

If you are someone in the upper income range (for example, above 400% federal poverty level) and previously benefited from enhanced subsidies tailored for that income range, you are especially at risk of seeing a drop in support, making your coverage more expensive.

What this Could Look Like:

According to a KFF analysis, a 60-year-old couple earning about $85,000 annually (402% of the poverty level) could see an annual premium increase of over $22,600 in some states if the PTCs expire.

 Changes to the Enrollment Process and Verification

The new law requires additional, more frequent verification of eligibility for lower-cost insurance premiums, such as income documentation or proof of citizenship.

What this Could Look Like: According to the Center on Budget and Policy Priorities, people who previously self-reported their income may now have to provide official documentation, such as pay stubs or employer letters. For someone with an income that can vary throughout the year, like seasonal workers, gig workers, or the self-employed, this could be particularly difficult. They’ll have to collect pay records, possibly explaining income swings.

It will also require anyone who receives health insurance through the ACA Marketplace to manually re-enroll each year to maintain their coverage. Unlike before, policyholders will not be automatically re-enrolled for the following calendar year.

It reduces or eliminates specific special enrollment periods for low-income enrollees or other people seeking to enroll outside the standard enrollment period. If your income changes or you have a significant life event and want to enroll outside the typical open enrollment window, you may have fewer opportunities to do so.

The standard open enrollment period for most states will be from November 1, 2025, to January 15, 2026.

State-specific Exceptions Reported by healthinsurance.org and KFF:

1. California: November 1 – January 31, 2026

2. New Jersey: November 1 – January 31, 2026

3. New York: November 1 – January 31, 2026

4. Rhode Island: November 1 – January 31, 2026

5. District of Columbia (D.C.): November 1 – January 31, 2026

6. Massachusetts: November 1 – January 23, 2026

7. Idaho: October 15 – December 15, 2025

8. Virginia: November 1 – January 30, 2026

More Restrictions on Eligibility for Immigrants

The law creates stricter eligibility requirements for certain lawfully present immigrants, causing previously eligible immigrants to lose their Medicaid/CHIP benefits and access to lower-cost Marketplace premiums.

What this Could Look Like: The rule removes DACA (Deferred Action for Childhood Arrivals) recipients from the definition of “lawfully present” for ACA eligibility. DACA recipients could lose eligibility for ACA Marketplace plans and the associated premium tax credits.

Changes to access affordable health insurance, for now, are inevitable. And because many of these shifts have been placed in the hands of your state lawmakers, the rules will vary. It is imperative that everyone, even those with employer-sponsored private insurance, carefully review their health insurance options at the very beginning of the open enrollment period. Do not wait. Plan for how you and your family will offset a potential increase in premium cost or changes to your eligibility. Do your research now. The ACA Health Insurance Marketplace is live at healthcare.gov, and the open enrollment period has begun.

For eligible US citizens who are struggling with the federal government’s decision to cut healthcare spending and create even more barriers to affordable, adequate healthcare, a simple yet powerful form of defense is to use your voice in upcoming elections. It was our elected officials who voted to pass the 2025 Budget Reconciliation Act that created the now-lawful reductions to healthcare subsidies that millions of us need.

Allow your voice to be heard among the collective. Your next opportunity to elect lawmakers who will work in the interest and desire of you and your community will be in early 2026.

In the words of one of our greatest civil rights leaders and creative minds, “The proof that one truly believes is in action.” -Bayard Rustin

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UTIs in Older Adults: The Hidden Confusion Behind a Common Infection https://blackhealthmatters.com/utis-in-older-adults-the-hidden-confusion-behind-a-common-infection/ Tue, 25 Nov 2025 18:12:32 +0000 https://blackhealthmatters.com/?p=63283 Urinary tract infections (UTIs) are among the most frequent infections in adults over 65. They are often brushed off as routine, but in older adults they can masquerade as something […]

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Urinary tract infections (UTIs) are among the most frequent infections in adults over 65.

They are often brushed off as routine, but in older adults they can masquerade as something else entirely. That is what makes them tricky, and sometimes dangerous.

When a UTI Looks Like Something Else

Doctors and caregivers know that UTIs in seniors rarely follow the textbook. Instead of the familiar burning sensation or urgency, the infection can show up as:

  • Sudden confusion or delirium, often mistaken for dementia progression.
  • Excessive sleepiness or fatigue, dismissed as “just aging”.
  • Loss of appetite, confused with depression or medication side effects.
  • Dizziness and falls, attributed to balance problems or frailty.
  • Bed-wetting or incontinence, assumed to be a bladder control issue.

According to Harvard Health, these atypical signs are especially common in postmenopausal women, whose hormonal changes leave urinary tissues more vulnerable. And as UCSF clinicians point out, delirium caused by infection is often mistaken for dementia, a misdiagnosis that can delay treatment until the infection becomes severe.

Why Risk Rises With Age

Several factors make UTIs more common in older adults:

  • Weakened immunity with age.
  • Chronic conditions like diabetes or kidney disease.
  • Catheter use in hospitals or nursing homes.
  • Functional disability that limits self-care.
  • Exposure to bacteria in long-term care facilities.

According to Cleveland Clinic, urinary tract infections are among the most commonly diagnosed infections in older adults. For women over age 65, the incidence rate is over 10 percent, and it rises to almost 30 percent for women over age 85. Misdiagnosis rates in hospitalized older adults may be as high as 40 percent.

The Treatment Puzzle

Treating UTIs in older adults is not always straightforward. Doctors often need to be careful about which antibiotics they prescribe, because many seniors are already taking medications for diabetes or kidney problems. Some antibiotics can interfere with those medicines or make side effects worse.

The Centers for Disease Control and Prevention (CDC) advises using targeted antibiotics such as nitrofurantoin or fosfomycin. These are drugs that specifically attack the bacteria most likely to cause UTIs. On the other hand, the CDC warns against using fluoroquinolones in people with advanced kidney disease.

Fluoroquinolones are a powerful class of antibiotics, but in older adults they can sometimes trigger confusion, known medically as delirium, dangerously low blood sugar, or even problems with blood vessels.

In 2025, the Infectious Diseases Society of America (IDSA) published its first set of guidelines for what doctors call “complicated UTIs.” A complicated UTI is one that happens in someone with other health issues, or one that does not respond to standard treatment. According to the IDSA, certain bacteria are now resistant to many of the usual antibiotics. “Resistance” means the bacteria have adapted so the drugs no longer kill them effectively. As a result, doctors often have to turn to stronger medications, which can clear the infection but also carry more side effects.

What Happens If It’s Missed

In many older adults, a UTI may not cause a fever. Without that obvious warning sign, the infection can go unnoticed and untreated for a long time. When bacteria are left to multiply, they can travel from the bladder up into the kidneys. This more serious infection is called pyelonephritis, which simply means a kidney infection.

A kidney infection can cause urine that looks cloudy or smells bad, sharp pain in the back or side, fever with chills, and nausea or vomiting. If the infection continues to spread, it can enter the bloodstream and affect the whole body. This stage is called urosepsis. Sepsis is the body’s extreme reaction to infection, and in this case it starts in the urinary tract.

Urosepsis is a medical emergency. It can cause dangerously low blood pressure, damage to organs, and in severe cases, death. Early signs include confusion, rapid breathing, and swelling in the tissues. That is why recognizing a UTI early, even when it does not look typical, is so important for older adults.

Prevention That Works

While UTIs are common, there are practical steps that can reduce risk:

  • Stay hydrated with plain water. Drinking enough fluids helps flush bacteria from the urinary tract.
  • Practice good hygiene. Wipe from front to back after using the bathroom, and choose showers instead of long baths to limit exposure to bacteria.
  • Urinate regularly. Avoid holding urine in, which allows bacteria to multiply and weakens the bladder over time.
  • Consider vaginal estrogen. For postmenopausal women, this can restore tissue health and lower infection risk.
  • Explore methenamine. This non-antibiotic option is gaining attention for preventing recurrent infections, according to JAMA Network Open.

The Core Message

UTIs in older adults are common, but their disguises make them easy to miss. Families and caregivers should pay attention to sudden changes in mood, appetite, or cognition, which may be signs of infection rather than aging. With smarter prevention and careful treatment, older adults can avoid the complications that turn a simple infection into a serious health crisis.

References:

UTI in older women: Why postmenopausal women are susceptible to urinary tract infection, and what to do about it – Harvard Health

1015-Degesys- UTI in the Elderly HREM 2025 Final pdf.pdf

The Truth about UTIs in Older Adults

Outpatient Clinical Care for Adults | Antibiotic Prescribing and Use | CDC

Complicated Urinary Tract Infections (cUTI): Clinical Guidelines for Treatment and Management

Guidelines for the Prevention, Diagnosis, and Management of Urinary Tract Infections in Pediatrics and Adults: A WikiGuidelines Group Consensus Statement | Infectious Diseases | JAMA Network Open | JAMA Network

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Donald Glover Revealed He Suffered a Stroke https://blackhealthmatters.com/donald-glover-revealed-he-suffered-a-stroke/ Tue, 25 Nov 2025 16:03:54 +0000 https://blackhealthmatters.com/?p=63295 This past weekend, Donald Glover revealed that he postponed his global tour when he discovered he had suffered a stroke. Glover shared this during his set at Tyler, the Creator’s […]

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This past weekend, Donald Glover revealed that he postponed his global tour when he discovered he had suffered a stroke. Glover shared this during his set at Tyler, the Creator’s Camp Flog Gnaw, a music festival held at Dodger’s Stadium in Los Angeles on November 22nd and 23rd.

Glover Had a Very Bad Headache

The five-time Grammy Award winner told the audience, “I had a really bad pain in my head in Louisiana, but I did the show anyway.”  He waited until the next 2024 tour stop to get checked out,” he said.

“I couldn’t really see well, so when we went to Houston, I went to the hospital, and the doctor was like, ‘You had a stroke.”

“And the first thing I thought was like, ‘Oh, here I am still copying Jamie Foxx,’” he joked, referring to Foxx’s stroke in 2023. “That’s really like the second thing. The first thing was like, ‘I’m letting everybody down.’ I know it’s not true.

Between Atlanta, Mr. & Mrs. Smith, Bando Stone & The New World, was there much rest? It looks as if he was creating with every fiber of his being. Black men need to take going to the doctor seriously.

Symptoms of a Stroke

According to the American Stroke Association, Glover didn’t have the most common symptoms of a stroke, which are:

  • Face Drooping
  • Arm Weakness
  • Speech Difficultly
  • (all equal) Time to Call 911

But the Community star did complain of some of these symptoms.

  • Numbness (face, arms, legs, or one side of the body)
  • Confusion
  • Trouble Seeing
  • Trouble Walking
  • Severe Headache

If you experience any of these symptoms, call 911.

The Actor and Musician Also Discovered He Had a Hole in His Heart

The artist, who retired the Childish Gambino alter ego last year, said doctors also discovered he had a hole in his heart at the same time he got his stroke diagnosis.

According to the Mayo Clinic, a patent foramen ovale, the clinical term for a hole in the heart, occurs in about 1 in 4 people. And like Glover, most people don’t realize they have it until it is discovered during a test for another health issue.

Glover had two surgeries to treat the issues.

A Second Chance

Last year, Glover decided that he would be retiring his alter ego, Childish Gambino. “It really was just like, ‘Oh, it’s done.’ It’s not fulfilling,” Glover admitted. “And I just felt like I didn’t need to build in this way anymore.” But this past year has given the artist a chance to reflect.

When he took the stage at Dodger Stadium, he performed as Childish Gambino once again. “Everybody has two lives, and the second life starts when you realize you have one,” he told his fans in Los Angeles. “You should be living your life how you want. It can only get better.”

Find out how hypertension can put you at risk for a stroke.

Resources

American Stroke Association Stroke Symptoms and Warning Signs

Mayo Clinic Patent foramen ovale

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Are You Too Thin to Have Prediabetes? https://blackhealthmatters.com/are-you-too-thin-to-have-prediabetes/ https://blackhealthmatters.com/are-you-too-thin-to-have-prediabetes/#respond Fri, 21 Nov 2025 07:00:03 +0000 https://blackhealthmatters.com/?p=22483 Many people assume that if they are thin or “normal weight”, they are automatically safe from type 2 diabetes. This is not necessarily the case. Research shows that weight alone […]

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Many people assume that if they are thin or “normal weight”, they are automatically safe from type 2 diabetes. This is not necessarily the case. Research shows that weight alone does not determine blood sugar health. Type 2 diabetes can (and does) affect people of all body sizes. But it all starts with prediabetes.

According to the Centers for Disease Control and Prevention (CDC), about 10% of people with type 2 diabetes are of normal weight. That means weight alone does not determine your risk.

We May Need to Adjust Our Understanding of What Healthy Means

This misconception is so common that researchers say it’s time to rethink our understanding of “healthy.” “Being at a healthy weight may not necessarily be healthy,” said Arch Mainous, a professor of health services research, management, and policy at the University of Florida. “We have some strong data that says we need to rethink our model of what we think is healthy. This may require a paradigm shift so that we’re not just looking for diabetes in the overweight and obese.”

Even before type 2 diabetes develops, many normal-weight people enter a stage called prediabetes. This is where blood glucose levels are elevated but not yet in the diabetes range. This stage can last for years without symptoms. However, prediabetes still damages the body and raises the risk of heart disease and type 2 diabetes later on.

Understanding Type 2 Diabetes

Type 2 diabetes is a condition where the body becomes resistant to insulin or does not produce enough of it to regulate blood sugar. Insulin’s job is to help glucose get into your cells for energy. When insulin does not work properly, blood sugar builds up in the bloodstream.

Over time, uncontrolled blood sugar can lead to:

  • Heart disease
  • Kidney damage
  • Nerve damage
  • Vision problems

Understanding your risk beyond weight is crucial.

Why Normal-Weight People Still Develop Type 2 Diabetes

1. Genetics Family history is one of the strongest predictors.

  •  One parent with diabetes:40% risk
  •  Both parents with diabetes: 70% risk

Keep in mind that genetics can override body size. Additionally, certain ethnic groups also carry a higher genetic risk regardless of weight. This includes African Americans, South Asians, Native Americans, and Hispanics.

2. Visceral Fat (“TOFI”—Thin Outside, Fat Inside)

You can look thin on the outside and still carry harmful visceral fat around the organs. This hidden fat produces inflammatory chemicals that lead to insulin resistance. Simply, this means a person can weigh less but still be metabolically unhealthy.

3. Sedentary Lifestyle

Even when you are at a normal weight, being inactive affects how your body processes glucose. As Mainous put it: “Saying that sitting is the new smoking sounds trite, but there’s a certain level of truth to it.” The lack of bodily movement reduces insulin sensitivity, ultimately making blood sugar harder to regulate.

4. Diet

A thin body does not protect you from the effects of:

  •  Sugary drinks
  •  Refined carbs
  • Processed foods

These foods spike blood sugar and force the pancreas to work overtime. This can gradually lead to insulin resistance, regardless of your weight.

5. Age

As we age, our metabolism slows and insulin sensitivity decreases. That’s why the American Diabetes Association recommends routine screening beginning at age 35, regardless of weight.

6. Gestational Diabetes

Even thin, healthy women can develop diabetes during pregnancy. Nearly half of the women who experience gestational diabetes will develop type 2 diabetes later in life.

What You Can Do — Despite Size and Prediabetes

  •  Ask for blood sugar screening (A1C)
  • Move regularly, even 10-minute walks
  • Improve diet quality, not just calorie count
  • Know your family history
  • Watch for symptoms, no matter your weight

Since prediabetes is silent and can occur at any body size, experts stress that everyone should know their numbers. A simple A1C test can detect prediabetes early, which is when lifestyle changes are most effective.

The bottom line: Your health is not defined by the number on the scale; it is what is happening beneath the surface that matters the most. The real question is: what is happening beneath yours?

Resources

Centers for Disease Control and Prevention

Can people with normal weight get type 2 diabetes

American Diabetes Association: Prediabetes

American Diabetes Association: Early Screening and Risk Monitoring

Gestational Diabetes

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What You Should Know About Treating FSGS https://blackhealthmatters.com/what-you-should-know-about-treating-fsgs/ Thu, 20 Nov 2025 23:13:12 +0000 https://blackhealthmatters.com/?p=63230 Robert Sanchez, co-founder of Kidney Forward, discovered that he had Focal segmental glomerulosclerosis (FSGS) after he started feeling off. When he received his diagnosis, he wasn’t sure what he had. […]

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Robert Sanchez, co-founder of Kidney Forward, discovered that he had Focal segmental glomerulosclerosis (FSGS) after he started feeling off. When he received his diagnosis, he wasn’t sure what he had. Sanchez ended up on dialysis and subsequently received two kidney transplants. While there is no cure for FSGS, slowing down the progression of the disease may be possible with proper treatment and lifestyle changes. Work with your HCP to find the right balance.

Sanchez’s Symptoms Seemed to Come Out of the Blue

“I would wake up with these huge migraines. I was peeing bubbles. But because I’m a man, I thought, maybe I’m working too much,” he said. His then-girlfriend told him he didn’t look right; he was swollen. “I went to my boy’s house, and I showed him my legs; my calves were just big. He said, We’ve got to the hospital now.” Sanchez said. “We went to Mount Sinai, and there I was diagnosed with FSGS. I didn’t know what it was.”

He was sent to another hospital, where he didn’t get the information or the care he needed. “During the first visit, I was there for a minute, and the doctor said, Yeah, this is what’s going to happen. Boom, boom, take this, take this medication, and I’ll call you next week,” Sanchez recalled. “And I left feeling like, Wait a minute. What was happening to me?”

The APOL1 genotype is present in 75% of Black patients with FSGS. According to Scientific Reports, “Approximately 20% of patients may eventually progress to end-stage renal disease (ESRD) due to its complex etiology, unclear pathogenesis, and insensitivity to glucocorticoid therapy.”

Through his organization, Sanchez aims to bring better access and equity to the kidney transplant process.

What Are the Treatment Options for FSGS?

The Mayo Clinic reports that there are a few approaches you and your nephrologist may choose to treat your FSGS.

Medications may include:

  • An angiotensin-converting enzyme (ACE) inhibitor or an angiotensin II receptor blocker (ARB). These can lower blood pressure and reduce protein in the urine.
  • Medicines to lower cholesterol levels. People with FSGS often have high cholesterol.
  • Medicines to help the body get rid of salt and water, which are known as diuretics. These can improve blood pressure and swelling.
  • Medicines to lower the body’s immune response. For primary FSGS, these medicines may stop the immune system from damaging the kidneys. These medicines include corticosteroids. They can have serious side effects, so they’re used with caution.

Lifestyle changes you need to keep in mind:

  • Don’t use medicines that can damage your kidneys. These include some pain relievers such as nonsteroidal anti-inflammatory drugs (NSAIDs). NSAIDS you can get without a prescription include ibuprofen (Advil, Motrin IB, others) and naproxen sodium (Aleve).
  • Eat a healthy diet. To protect your kidneys and lower your blood pressure, limit salt and protein.
  • Don’t smoke. If you need help quitting, talk with a member of your healthcare team.
  • Stay at a healthy weight. Lose weight if you’re overweight.
  • Be active on most days. Being active is good for your health. Ask your healthcare team what types of exercise and how much exercise you can do.

According to LowerProteinuria.com, there are also some gaps in the treatment landscape.

  • Treatments such as corticosteroids, immunosuppressants, SGLT2is, ACEis, and ARBs often yield limited response, with few patients achieving complete remission of proteinuria (<0.3 g/d) and most remaining at high risk of kidney failure progression.
  • Corticosteroids and immunosuppressants are associated with a high side effect burden that significantly impacts the quality of life for patients.

Why Treating Genetic FSGS May Be Different

An article in the journal Kidney Research and Clinical Practice states that “Genetic FSGS may be less responsive to immunosuppressive therapy, and clinicians should consider discontinuing immunosuppression to protect patients from the potential side effects of such therapy if no clinical benefit is demonstrated after receiving positive gene test results.”

The good news is that genetic testing that identifies specific biomarkers may help in developing more targeted therapies in the future. “In recent years, the spread of next-generation sequencing, updates in biological techniques, and improvements in treatment have changed our understanding of FSGS.”

FSGS Clinical Trials

There are promising therapies on the horizon for FSGS; however, none have received FDA approval. If you are interested in exploring clinical trials, NephCure has revamped its Clinical Trial page and added a featured tool called Am I a Match? It is designed specifically so that those with RKD can easily find trials. Check out the American Kidney Fund and the National Kidney Foundation for additional resources..

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Jayme Lawson and Wunmi Mosaku’s Sinners Sisterhood Shines https://blackhealthmatters.com/jayme-lawson-and-wunmi-mosaku-sinners-sisterhood-shines/ Wed, 19 Nov 2025 08:23:47 +0000 https://blackhealthmatters.com/?p=62894 At the Elle Magazine Women in Hollywood Awards on November 17, the women of Ryan Coogler’s Sinners were honored. Jayme Lawson (Pearline) and Wunmi Mosaku (Annie) were at the Four […]

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At the Elle Magazine Women in Hollywood Awards on November 17, the women of Ryan Coogler’s Sinners were honored. Jayme Lawson (Pearline) and Wunmi Mosaku (Annie) were at the Four Seasons to take the stage (their other co-star, Hailee Steinfeld, was under the weather). Their acceptance speeches highlighted the power of sisterhood on screen and behind the scenes.

Sinners Broke Records and Changed Minds

Predictions were mixed about how well Ryan Coogler’s horror film set in 1932 in Clarksdale, Mississippi, would perform at the box office before its premiere. Warner Bros., the studio that released it, low-balled some of the other predictions, estimating the movie would make $35-40M total, according to Variety. The opening weekend was estimated closer to $48M and it has grossed more than $279M and upwards of $367M worldwide according to BoxOfficeMojo.com.

In a letter to fans, Coogler wrote of another successful collaboration with Michael B. Jordan (who played dual roles):

“Eternal gratitude. My heart is bursting with it. I want to thank each and every one of you who bought a ticket to see Sinners,” read the letter. “Who decided to drive to see the film in different formats. Who bought popcorn and a drink, booked a sitter and carpooled, and stood in the lobby afterward and talked and made a friend. Who changed their work schedules. Who saw the film in groups.”

The movie was recently back in IMAX theaters for special showings around Halloween.

Coogler and Jordan Present the Awards

Coogler told the audience that the movie Sinners is powered by women and the story doesn’t move forward without them. “They are truth-tellers, and perhaps more importantly, they are the beating heart of the story,” the director said.

Mosaku, who previously starred in Lovecraft Country, has been lauded as the UK’s best-kept secret by Jordan. “As [Mosaku] once said, the scariest part of this movie is the feeling that no matter how far you’ve gone, you still might be exactly where you started,” Jordan said in his remarks. “Wunmi, thank you for your gentle wisdom, your love, your support. Tonight, we honor you − and always.”

Coogler thanked Lawson for her artistry, “for us, you were never too much. You were always enough.”

Lawson Talks About the Power of Sisterhood

Jayme Lawson tried her best not to cry too hard, saying, “her momma’s gonna be pissed.” But in their shared acceptance speech, the actress said,  “Mike and Ryan for trusting us with this story and these characters. We love and cherish you both, and we know that we are only up here because of you two.”

“Sinners is a cultural phenomenon because it very remarkably introduced to the world to an authentic communal melting pot. And at its core, it breathed life into some bad women,” she continued.

“When you find your sisters in this industry, you hold on for dear life and you not dare let them go. But not just our sisters in front, but behind the cameras as well. Autumn, Zinzi, Hannah, Ruth, Francine, Pam….a culture was created with this film to see and be seen, and that is rare.”

Mosaku Reminds Us to Keep Showing Up

Mosaku, who was also emotional, said, “To be amongst these fiercely talented women and being acknowledged tonight is an honor and a joy. It is a luminous reminder to keep showing up with honesty and integrity.

“I hope this moment inspires any woman listening to be fertile soil for women to thrive outside of the boxes, labels, and expectations.”

The UK-Nigerian actress continued, “Ryan, the light that was placed in you is undeniable and incandescent.. And we are so grateful for the women who inspire and love you so deeply that you champion by representing them in all their complexities and humanity on and off the camera.”

She thanked Coogler and Ryan for their steadfast collaboration. And noted how their contributions to this industry have expanded the landscape for opportunities for women of color.

Mosaku said, “You both see us and encourage us and all the women in your lives, to take up as much space as possible.”

 

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Perceptions of Beauty: Social Media’s Impact on Our Teens https://blackhealthmatters.com/perceptions-of-beauty-social-media-impact-on-our-teens/ Wed, 19 Nov 2025 05:20:32 +0000 https://blackhealthmatters.com/?p=62859 Social media is an integral part of daily life for most teens, but it is also where many begin to question their self-worth. For Black youth, the pressure hits harder […]

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Social media is an integral part of daily life for most teens, but it is also where many begin to question their self-worth. For Black youth, the pressure hits harder because curated content often rewards comparison over confidence—especially when it comes to beauty, wellness, and appearance. To understand how this affects mental health and identity, especially within our community, we spoke with Dr. Lauren Hartman, a double board-certified specialist in Adolescent Medicine and Pediatrics.

When Tweens and Teens Do Not See Themselves

“The biggest challenge I see among my patients is when they go online and don’t feel a sense of belonging. For many Black and Brown youth, scrolling through social media means constantly viewing beauty products marketed primarily for white complexions and rarely seeing themselves authentically reflected in wellness or beauty content,” Dr. Hartman explains.

“This lack of representation sends a harmful message that their natural features aren’t valued or ‘standard.’ When teens can’t find themselves in the images that define beauty and health, it has a profound impact on how they perceive themselves. They’re left feeling like outsiders, which is especially harmful in spaces that claim to be about self-care and confidence.”

The Sephora Kid Phenomenon

It may have been a rite of passage for teenagers to get their first skincare system from Clinique decades ago, but today, skincare is being marketed to younger and younger audiences.  An article in the journal Pediatric Dermatology, “This new obsession has been coined the ‘Sephora Kid’ trend, where young children engage in complex, multistep skincare regimens, spurred on by influencers on social media.”

“However, the increasing use of skincare products poses real physical dangers to young people, and the impact of unrealistic beauty ideals and social pressures is mounting. Social media has dramatically increased opportunities for comparison outside of one’s peer group.”

The article mentions the psychological impact of two things: highly-edited, and unrealistic images, combined with stealth advertising dominating their social feeds. They give teenagers, tweens, and those even younger “distorted realities that challenge their self-esteem.”

What the Research Shows

Recent studies confirm what many Black families already know. Social media can be both empowering and harmful, depending on what teens see and how they interpret it.

A 2024 study from the University of Southern California (USC) found that online platforms can support identity development for Black youth, but only when they see themselves reflected in affirming ways. Without that, constant exposure to Eurocentric beauty standards and curated perfection can erode self-esteem.

The 2025 USC follow-up study found that daily exposure to exclusionary content, limited representation, and online racism, including algorithmic bias, was linked to increased symptoms of anxiety and depression in Black adolescents. Algorithms are the behind-the-scenes systems that decide what content shows up in your feed. If those systems favor certain beauty standards or viral videos, they can reinforce harmful patterns without teens even realizing it.

Excessive screen time and symptoms of depression and anxiety, especially among girls and Black youth, were among the findings of a 2025 CDC report. Teens who reported feeling less attractive or less confident after scrolling were more likely to experience sleep disruption, disordered eating, and social withdrawal.

These findings support what Dr. Hartman sees in her practice. When Black teens do not see themselves reflected or feel pressured to conform to narrow standards, they are more vulnerable to self-doubt and digital burnout.

Watch For the Red Flags

Dr. Hartman encourages parents to watch for two major red flags. She says increased time on their phone, coupled with a noticeable decline in mood, is a key signal.

“If your teen is spending more hours scrolling but seems increasingly withdrawn, anxious, or down afterward, that’s a signal something isn’t sitting right. You might also notice them constantly checking for likes or comments, seeming preoccupied with how posts perform, or making negative comments about their appearance after being online.”

Boundaries That Build Trust

“It’s helpful, and encouraged, to establish clear boundaries around social media, and parents shouldn’t be afraid to set them,” Dr. Hartman explains. “I think sometimes parents worry so much about being liked by their teen that they lose sight of the fact that parenting is our job, not friendship.”

She recommends setting guidelines such as time limits on social media, no phone use after 9 PM, deciding which apps are acceptable or off-limits, and actively monitoring accounts. “Here’s something important to remember. Just because their friends are on certain platforms doesn’t mean your child needs to be.”

Dr. Hartman also urges parents to go beyond rules and talk about how social media works.

“Help your teen understand how social media works behind the scenes. Talk with them about how algorithms are designed to keep them scrolling, how influencers are often paid to promote products or lifestyles, and how many posts are carefully curated or edited, and aren’t real life,” she says.

“When teens recognize they’re being marketed to, often in ways designed to make them feel inadequate so they’ll buy something, they feel more empowered to think critically about what they’re seeing. This shifts the conversation from ‘you can’t use this’ to ‘let’s talk about what’s really happening here and how to protect yourself.’”

Cultivate Habits That Instill Confidence

Dr. Hartman recommends starting with phone-free zones and times. “No devices at mealtime, during family time, or late at night. These boundaries create natural pauses and protect sleep, connection, and presence.”

She also emphasizes emotional awareness.

“Encourage your teen to notice how social media makes them feel. After scrolling, do they feel energized or drained? Inspired or inadequate? Building this self-awareness helps them become more intentional users, not just passive victims of the algorithms. They can learn to curate their feeds by unfollowing accounts that trigger negative feelings.”

Diet Culture is Back

Diet culture is having a major resurgence right now, and it’s showing up across social media platforms with different, and often dangerous, trends,” Dr. Hartman warns. “The good news is that parents don’t need to keep up with every viral trend. But parents can notice whether their teen’s relationship with food has changed.”

She lists warning signs to watch for.

“Skipping meals or significantly decreasing portion sizes, making excuses to avoid eating, eliminating entire food groups, using the bathroom during or immediately after meals, or dramatically increasing exercise. If you notice these behaviors, I’d suggest a conversation with them and considering reaching out for professional support with a doctor, school counselor or therapist.”

Model What You Want to See

“The most important thing, and admittedly the hardest, is to model the behavior you hope to see in your teen,” says Dr. Hartman.

“This means setting time limits for yourself, not scrolling at the dinner table, putting your phone away at night, and being fully present during family time. Teens are incredibly perceptive. If they see you constantly on your device, while you’re also telling them to limit screen time, it isn’t going to be as effective. When you demonstrate healthy boundaries with technology, you’re showing them it’s not only possible but that you find it valuable.”

Resources:

Lauren Hartman, MD – Aspen Grove Adolescent & Young Adult Medicine | Adolescent medicine | California, USA

New study finds that Black and Latinx youth online engagement can foster a positive sense of self | USC Rossier School of Education

Pediatric Dermatology

USC Rossier study links online racism, including algorithmic bias, to negative impacts on Black adolescents’ mental health | USC Rossier School of Education

Associations Between Screen Time Use and Health Outcomes Among US Teenagers

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Stop Believing These 11 Diabetes Myths https://blackhealthmatters.com/stop-believing-these-11-diabetes-myths/ Wed, 19 Nov 2025 04:06:47 +0000 https://blackhealthmatters.com/?p=62556 It’s time to clear the air on some of the most common myths about diabetes. More than 38 million U.S. adults are living with and nearly 96 million have prediabetes, […]

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It’s time to clear the air on some of the most common myths about diabetes. More than 38 million U.S. adults are living with and nearly 96 million have prediabetes, according to the Centers for Disease Control and Prevention (CDC). Our communities continue to face disproportionate burdens, with higher rates of complications and death due to systemic barriers in care and prevention. But managing diabetes doesn’t have to be scary or restrictive.

Let’s break down the myths and get to the facts.

Myth 1: Eating too much sugar causes diabetes.

Type 2 diabetes develops from a mix of genetics, insulin resistance, and lifestyle factors. Insulin resistance means your body doesn’t respond well to insulin, the hormone that helps move sugar from your blood into your cells. Eating a lot of sugar doesn’t directly cause diabetes, but it can contribute to weight gain, which increases your risk. The American Diabetes Association (ADA) confirms that excess calories from any source, not just sugar, can lead to obesity, a major risk factor.

FACT: Sugar doesn’t cause diabetes, but too much of it can raise your risk if it leads to weight gain.

Myth 2: Type 1 diabetes is more serious than type 2.

Both types are serious and require lifelong management. Type 1 is an autoimmune condition and is usually diagnosed in childhood. Type 2 diabetes is more common and often linked to lifestyle, but both can lead to complications like kidney failure, heart disease, and vision loss if not managed properly. The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) emphasizes that neither type should be minimized.

FACT: All types of diabetes are serious and deserve proper care.

Myth 3: If you don’t take medication, your diabetes must not be that bad.

Some people manage type 2 diabetes with diet and exercise alone, especially early on. But diabetes can change over time. Even if you’re not on medications now, that could shift later. Regular monitoring is key.

FACT: Medication isn’t a measure of severity. It’s one of many tools to manage diabetes.

Myth 4: Insulin cures diabetes.

Insulin helps control blood sugar, but it’s not a cure. There is currently no cure for diabetes, though research is ongoing. The ADA notes that insulin is essential for many people, but it’s part of a broader management plan.

FACT: Insulin is a treatment, not a cure.

Myth 5: You’ll eventually lose your sight or limbs if you have diabetes.

Complications are real, but they’re not inevitable. With regular checkups, blood sugar control, and healthy habits, many people with diabetes live full lives without major complications.

FACT: Managing your diabetes can help prevent serious complications.

Myth 6: You can’t eat dessert if you have diabetes.

You can enjoy sweets in moderation. The key is balance. If you’re having cake, cut back on other carbs that day. The Joslin Diabetes Center recommends counting desserts as part of your total carbohydrate intake.

FACT: Dessert isn’t off-limits. It just needs to fit into your overall carb count.

Myth 7: Carbs such as bread and pasta are off-limits.

Carbohydrates are part of a healthy diet. The trick is portion control and choosing whole grains when possible. The ADA encourages people with diabetes to include carbs thoughtfully, not avoid them entirely.

FACT: You can eat carbs. Just be mindful of portions and pair them with fiber and protein.

Myth 8: Certain foods like grapefruit or cabbage soup burn fat.

There’s no magic food that melts fat. Only a calorie deficit and physical activity lead to weight loss. The National Institutes of Health confirms that while some foods may slightly boost metabolism, they don’t cause fat loss.

FACT: No food burns fat. Exercise and balanced eating do.

Myth 9: Eating after 8 p.m. causes weight gain.

It’s not about the clock. It’s about how much you eat and how active you are overall. The CDC notes that late-night eating only leads to weight gain if it pushes your daily calories over your needs.

FACT: Timing doesn’t cause weight gain. Extra calories do.

Myth 10: Skipping meals helps you lose weight.

Skipping meals can backfire, especially for people with diabetes. It can lead to overeating later or dangerous blood sugar drops. That drop is called hypoglycemia, and it can cause symptoms that include shakiness, confusion, dizziness, or even fainting. The ADA warns that skipping meals can increase your risk of hypoglycemia if you’re on insulin or other medications.

FACT: Eating regular, balanced meals supports better blood sugar and appetite control.

Myth 11: Managing diabetes means you have to follow a super restrictive diet.

Diabetes requires thoughtful eating, but that doesn’t mean your meals have to be bland or joyless. You don’t need to cut out entire food groups. Instead, focus on portion control, choosing whole grains over refined carbs, and pairing carbohydrates with fiber, protein, or healthy fats to slow down blood sugar spikes.

The CDC also recommends building meals around foods you enjoy, using smart swaps, and consistent meal timing. Restrictive diets often backfire. They can lead to frustration or binge eating. A sustainable approach includes fruits, vegetables, lean proteins, and even occasional treats, just planned with intention.

FACT: Diabetes management does involve boundaries, but it doesn’t mean cutting out everything you love. Smart planning and balance are key.

Managing diabetes isn’t about perfection. It’s about staying informed and refusing to let myths shape your care. Whether you’re newly diagnosed or supporting a loved one, you deserve clear information and a plan that fits your life. The science continues to evolve, and so can your approach.

If you’ve heard these myths before, now you know better. If you’ve lived by them, now you can move forward with truth.

Resources:

National Diabetes Statistics Report | Diabetes | CDC

Know Your Facts About Diabetes | American Diabetes Association

What Is Diabetes? – NIDDK

Managing Diabetes During Rosh Hashanah | Joslin Diabetes Center

Dietary Supplements for Weight Loss – Consumer

Tips for Maintaining Healthy Weight | Healthy Weight and Growth | CDC

Causes and How to Prevent Hypoglycemia (Low Blood Glucose) | American Diabetes Association

Diabetes Meal Planning | Diabetes | CDC

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Grey’s Anatomy Doc Shares His Real-Life Health Diagnosis https://blackhealthmatters.com/greys-anatomy-doc-shares-his-real-life-health-diagnosis/ Tue, 11 Nov 2025 21:22:12 +0000 https://blackhealthmatters.com/?p=62444 James Pickens Jr. has played Dr. Richard Webber for 22 seasons on the Shondaland hit Grey’s Anatomy. He can easily converse in medical terminology and counsel someone with a life-threatening diagnosis. […]

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James Pickens Jr. has played Dr. Richard Webber for 22 seasons on the Shondaland hit Grey’s Anatomy. He can easily converse in medical terminology and counsel someone with a life-threatening diagnosis. But what happens when the TV doctor becomes the patient? Pickens found out when he heard, “You have prostate cancer.”

This News Didn’t Come Out of Left Field

“It’s not the kind of news anyone wants to hear, but to be honest, prostate cancer has run through my family. My father had it. He had a lot of brothers; several of them had it. I would have been surprised if I hadn’t gotten it,” said the 73-year-old actor.

“I’ve got a 90-year-old first cousin, who’s still alive, actually; he had it. His son has it. A couple of his brothers had it. No one, as far as I know, has succumbed to it.”

The Statistics

According to the Prostate Cancer Foundation, 1 in 6 Black men still develop prostate cancer and are more than twice as likely to die from the disease. The National Cancer Institute says that prostate cancer is highly heritable. Inherited factors cause up to 60% of prostate cancer risk. “Risk factors for prostate cancer include age, a family history of prostate cancer and other cancers, genetics, and ancestry (such as West African ancestry).” You can take a risk quiz here.

Because of His Family History, Pickens Began PSA Testing Early

Pickens’ dedication to his health may have helped catch his prostate cancer early. “I  started getting my annual physical 34 years ago. And I started my PSA testing when I was 41; I’m 73 now. My urologist said. ‘Because you were so diligent in that piece of your health, it was to your advantage. We were able to catch it so early because you were being tested.”

Pickens’ Diagnosis

In 2024, the actor went for his annual physical, which included checking his PSA levels.  He was referred to a urologist, who told him his numbers were still in the normal range, but they needed to check again in a year.

“I went back in January, and when my PSA numbers came back,  my primary said, ‘Yeah, you know what? It’s ticked up some more. I want to send you back to the urologist.” Pickens said.

“The urologist looked at him and said,” Yeah, there’s something here. Let’s do an MRI,’ which we did, and it revealed, as he called it,  something suspicious.”

They scheduled a biopsy, which revealed a tumor. A PET scan showed that the cancer had not spread and was isolated to one quadrant of the prostate.

His Treatment Choice

The Grey’s star had two options: radiation, or he could elect to do a radical prostatectomy. After weighing the options, he chose the latter. His radical prostatectomy was done robotically by two urologists. He stayed a day in the hospital afterward.

“We caught it really early, and so they thought that would be the best route to take.  I do have a rare variant that you don’t see very often. They wanted to err on the side of caution and keep an eye on it,” he said.

“It was rare enough that they wanted to make sure that they were crossing all the T’s and dotting all their I’s. But they hadn’t seen one that was detected as early as mine.”

Why He’s Sharing His Story

Pickens wants to remove the stigma that men have in talking about their health, especially prostate cancer. “Where we are and how we view the medical community, especially as African American men,” he points out.

“We know the history of that, and how far that goes back in terms of our trepidation about being tested, and getting something as simple as a physical.”

Years ago, the actor participated in a Black barbershop men’s health summit with Dick Gregory. The group targeted 50 cities to set up screenings at barbershops and offered free haircuts. In the process, they might get their blood pressure checked and brochures on prostate cancer and diabetes. He got the group to add his hometown, Cleveland, to the tour.

“We brought in a wonderful, bright, Black physician out of the DC area and his team. And we identified ten barbershops in the area where I lived. These brothers would come in and get a haircut,” Pickens said.  ”

We were able to get a blood pressure test and put something in their hand. And in more than one case, we would run into brothers who  had never had a physical.”

It’s Movember, A Time to Talk About Prostate Cancer

If you have ever noticed men growing out their facial hair in November, they are probably doing so in for Movember, in support of men’s health, among the major initiatives is prostate cancer.

“I recall when I was a kid, my dad was one of many brothers. I think he may have had seven, eight brothers. But I know at least four or five were still alive when I was a kid.  When one of them would fall ill, my dad would grow a mustache. And he’d grow a beard with it,” Pickens said.

“I remember asking, very clearly, like it was yesterday. I said, ‘Dad, why are you growing your beard like that? He said, I’m growing it for my brother who was sick.’ So there was a cultural piece to it as well.”

Resources

Prostate Cancer Foundation

National Cancer Institute

Zero Prostate Cancer Risk Factors

Mayo Clinic: Prostatectomy

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Got Sensitive Skin? Here Are the 20 Best Winter Moisturizers https://blackhealthmatters.com/got-sensitive-skin-here-are-the-20-best-winter-moisturizers/ Mon, 10 Nov 2025 23:17:43 +0000 https://blackhealthmatters.com/?p=62097 Nothing is worse than an icy wind whipping up against your sensitive skin. It can leave it dry, stressed out, and, most of all, reactive. Because when your skin is […]

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Nothing is worse than an icy wind whipping up against your sensitive skin. It can leave it dry, stressed out, and, most of all, reactive. Because when your skin is sensitive, you never know what might trigger it. Your complexion needs some TLC, and we asked the experts for their top picks. Here are 20 to keep everyone in the house soothed and hydrated.

Our skincare routine should shift with the temperature to keep our melanin glorious. We asked the experts about their favorite ingredients in a winter moisturizer that suits sensitive skin. Read on, they’ve got you covered this season.

Yes, Our Skin Can Be Sensitive Too!

Just as we are often perceived to endure more pain, our is sometimes seen as less sensitive. But a study published Journal of Drugs in Dermatology evaluating skin sensitivities across the Fitzpatrick Skin Types showed that perception and reality are two different things.

“Skin sensitivity can occur across all skin types, and patients should be asked about self-perceptions of sensitivity as it is likely an indicator of true sensitivity.”

How Is Sensitive Skin Different?

It requires a bit of extra care and consideration to stay healthy, especially when the air is biting. This kind of skin is hyperreactive. Even the subtlest change can have a large impact on sensitive skin.

“Individuals with sensitive skin commonly experience sensations such as tingling, itching, or burning,” according to a 2024 article from the Journal of Dermatologic Science and Cosmetic Technology. Changes in routine for sensitive skin should be managed carefully.

In addition, men’s skin is about 20% thicker than female skin. It also contains more collagen, which helps to give it a tight, firm appearance. Add to that it is oilier, because men have more sebaceous glands, giving them more pores. But shaving stresses their skin out, especially Black men, many of whom are prone to ingrown hair. Bottom line, their skin may be even more sensitive than Black women’s. So this is one time where you can share your sensitive skin products, but if they shave, they need to invest in some good products and the right razor.

 In What Ways Can Winter Weather Impact Sensitive Skin?

The humidity is pulled out of the winter air, leaving a drying environment for sensitive skin. Because of the increased use of heating methods, including furnaces, radiant floor heating, space heaters, and, more people are exposed to dry heat that can irritate sensitive skin and sap away the moisture of the space that you’re in. If you are not in control of the office thermostat, for example, that might show up on your cheeks and forehead later.

Dermatologists witness the havoc the cold air can have on the skin regularly. “I often see an increase in skin conditions exacerbated by dehydration,” said Dr. Toral Vaidya, MD, MPH, and Prose spokesperson. “Hyaluronic acid, squalene, and glycerin are all gentle ingredients that are essential to lock moisture into the skin during times when the air is dry,” said Dr. Nancy Samolitis, founder of facile.

What Ingredients Should You Avoid Putting On Sensitive Skin When the Temperature Drops?

Winter is not the time to load your sensitive skin up on moisturizers that are stacked with chemical exfoliants. Reading the ingredients on that toner might save you trouble later.

“Stay away from compounds that have a lot of denatured alcohol because that’ll make you dry and more itchy,” advised Jeanine Downie, M.D., director of Image Dermatology.

Nourishment is the goal here. You want to put back what has been taken away. Leaving out those harsh chemicals and turning to heavy soothing ingredients is the way to go. It can help to ward off dryness by creating a barrier between you and the elements.

How Should You Protect Kids’ Sensitive Skin In The Winter?

The whole family should consider how the weather impacts their skin health, including the little people. “Kids are more prone to have sensitive skin, especially in the cooler months of winter. It’s important to choose rich, fragrance-free creams or ointments that rebuild and seal the barrier,” said Dr. Joni Jefferson, DO, Founder & Medical Director at Zen Aesthetics.

“I always recommend that children avoid products with artificial fragrance, as it is a very common allergen,” added Samolitis.

Jefferson suggested not diving into a new product right away without vetting it properly. “Patch-test new products on a small area first, especially for children with eczema or very reactive skin,” she added. “I would also be cautious with lanolin if there’s a history of allergies.”

“I’d also avoid propylene glycol, which is a common allergen and skin irritant,” said Dr. Karan Lal, DO. He recommended alternatives that are a bit gentler. “Instead, I’d look for cetyl alcohol, dimethicone, niacinamide, shea butter, petrolatum, glycerin, and hyaluronic acid.

Colloidal oatmeal is a favorite ingredient of Wagner’s. Dr. Heather Woolery-Lloyd, M.D., finds petrolatum “especially helpful for children with eczema.” “It’s found in products like

Aquaphor healing ointment and CeraVe healing ointment,” she said. She warned that certain ingredients can detract from efforts to care for sensitive skin in colder temperatures. “In children with sensitive skin, ingredients to avoid would include acids like glycolic acid and salicylic acid,” said Woolery-Lloyd.

Our Top 20 Winter Moisturizer Choices For Sensitive Skin

CeraVe Healing Ointment $9.99

This drugstore option has the best texture! It feels like an ointment, but it functions like a moisturizer. It is firm but not greasy. Replace it with your makeup primer of choice and feel the difference.

Tower 28 Beauty SOS Daily Skin Barrier Redness Recovery Moisturizer $24.00

The perfect companion to the viral rescue spray. This moisturizer pours back into the skin with soothing ingredients like ceramides. It earned the National Eczema Association Seal of Acceptance for its ability to calm breakouts. The National Psoriasis Foundation and the National Rosacea Society have recognized its protective qualities as well.

Cetaphil Skin Activator Hydrating and Firming Cream $16.99

A dermatologist recommended cream that feels so good after the shower you’d take when finished shedding your winter layers. It actively plumps your skin up with gentle ingredients like Centella Asiatica, an ingredient frequently cited for its wound healing properties. Turn to it when your hands feel like they’ve been lashed by the cold.

La Roche-Posay Lipikar Eczema Soothing Relief Cream $18.99

This moisturizer pulls double duty on the face and body. It is creamy but not heavy. We love to use it on sunburns and shield our faces from the winter wind with it.

Embryolisse Lait-Crème Concentré, Multifunction Daily Face Moisturizer $19.00

Nearly every makeup artist at fashion week has this in their kit for a reason. It glides across the skin thanks to ingredients like shea butter and aloe vera. It transforms even the most haggard skin instantly.

Good Molecules Rich Cream with Ceramides $14.00

Good Molecules is known for its strong active toners, but this thick moisturizer formula deserves attention, too.

Oyin Whipped Shea Butter $19.99

This moisturizer was specifically designed with the winter months in mind. Its whipped texture is perfect for the season. In addition to shea butter, it contains jojoba and avocado oils.

Nécessaire The Body Cream Fragrance-Free $48

That aesthetic body wash all your favorite creators have in their showers is not the only thing that Nécessaire is good for. The brand is worth the hype, and this product proves it. It is designed to make the skin barrier stronger without the irritating burden of fragrance.

Pooka Pure and Simple Seamoss Body Butter $18.99

This creamy formula offers relief from winter dryness with a trio of shea butter, sea moss oil, and avocado oil.

Prose Custom Moisturizer $44.20

A custom moisturizer is the closest thing you’ll ever get to having a dermatologist in your pocket. It is developed by having the consumer complete a questionnaire about their direct skin concerns. It can also be designed to omit fragrance. It is a top-tier option that is worth the extra effort.

Neutrogena Sheer Zinc Kids Mineral Sunscreen Broad Spectrum SPF 50+ $8.99

This option is actually invisible on multiple skin tones. It goes on easily, and it is free of synthetic dyes.

Aveeno Kids Sensitive Skin Face & Body Gel Cream $9.49

This hypoallergenic formula suits little ones of all ages. It dries down quickly, so it can absorb before your child has a chance to rub it off, and there are creatures on the bottle that might make the application process a bit more fun for them.

Eucerin Baby Lotion $13.49

Eucerin has been the go-to brand for sensitive skin for generations. Their baby lotion is perfect for sensitive skin. It is not only fragrance-free it is also made without parabens and drying alcohols.

The Ordinary Natural Moisturizing Factors + HA $14.00

Designed to seal the powerful serums from the brand, this is a lightweight moisturizer that offers an added dose of hydration. Pair it with their squalane cleanser.

Facile Barely There Hyaluronic Acid Lightweight Moisturizer – $25

A moisturizer that sinks into the skin instead of just sitting on top of it. It shows instant results on tired skin.

Bolden F-Hydra Moisturizer – $24.49

This Black-Owned brand has been consistently dropping heat for years. Their squalane-based moisturizer hydrates deeply. There is no tacky feeling after application. It’s smooth.

103 Collection Vegan Antioxidant Facial Moisturizer $14.99

This Black-owned option has a delightfully milky texture. It is also fragrance-free and vegan certified.

Mad Hippie Ultra Rich Barrier Cream $17.99

Mad Hippie offers some of the richest creams on the market. Their Triple C night cream has been one of our favorites for a very long time. Their Ultra Rich Barrier Cream is a full-body formula that locks in moisture without any potentially harsh elements. It’s great to toss in your bag when you’re on the go in the cold.

Aveeno Calm + Restore Oat Gel Moisturizer $26.99

Those oatmeal baths you got as a kid are still relevant for saving your skin. Soak up the dermatologist-recommended glycerin from this gel moisturizer.

Neutrogena Ultra Gentle Daily Facial Moisturizer $14.99

Black people experience rosacea symptoms as well. This gentle formula from Neutrogena neutralizes some of its symptoms, like intense redness that can be harsher in the winter.

Resources

Journal of Drugs in Dermatology

Journal of Dermatologic Science and Cosmetic Technology

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Nnenna Freelon Finds Her Widow Song https://blackhealthmatters.com/nnenna-freelon-finds-her-widow-song/ Mon, 10 Nov 2025 04:30:45 +0000 https://blackhealthmatters.com/?p=62102 When jazz singer Nnenna Freelon lost her husband of nearly 40 years, she couldn’t see herself as a widow. The image brought to her mind someone diminished, not quite whole. […]

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When jazz singer Nnenna Freelon lost her husband of nearly 40 years, she couldn’t see herself as a widow. The image brought to her mind someone diminished, not quite whole. “I didn’t see myself that way. I rejected that word for a very long time,” she said. “I rejected being a widow and widowhood and what I thought it meant.” But her new book, Beneath the Skin of Sorrow: Improvisations on Loss $27.95 (Duke University Press), released at the end of last month, and the album she released this past spring, Beneath the Skin, are part of a trilogy reflecting her grief journey. In the process, Freelon has found her Widow Song in a new form of creative expression, using her background on the bandstand.

A Trio of Losses

The year 2019 was an emotionally devastating year for the seven-time Grammy Award-nominated artist. Her husband, esteemed architect Phillip Freelon, died in July from amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease. Mr. Freelon was renowned for creating significant spaces that celebrated our history and culture, most notably as the lead architect for the National Museum of African American History and Culture. Six months later, her sister Debbie passed away from lung cancer. In between those two losses, her dog, Basie, died one month after her husband.

Nnenna called the weeks and months after the funeral, the time for a redefinition of living without your mate. In what ways can we offer support to one another as a community?

“I was supported in ways I didn’t expect. When my husband passed, somebody I don’t know who cut my grass for about six weeks; they never knocked on the door and said, ‘Do you need your grass cut?’ I just looked out the window, and the grass was short. And the edges were done,” she recalled.

“That kind of loving kindness where someone thinks she doesn’t have time to worry about cutting grass. Or you go to your door and there is a beautiful casserole or cake. This is weeks after. These are the kindnesses, the simple things, that we can do.”

Grief Is a Multilayered Process

One of the things Freelon noticed is how grief shows up in us. “I want to suggest that your whole being grieves. Every part of you is grieving. Sometimes we attend to the heart— yes, the heart is broken. Maybe it needs some specific soothing, or a certain practice, music, or being in nature,” she explains.

But your body is also grieving; it needs rest, good rest, not a catnap here and there. [Especially after] waking up at 3:30 am like we all do.

And the grieving brain is constantly trying to process what has happened. Freelon notes that people go over and over things. Mantras, scriptures, or affirmations may help.

“It might be a surprise who shows up as helpful and who just shows up.  Everybody is not helpful,” she suggests.”And you need to create boundaries, especially for those unhelpful folks.”

A Personal Project Becomes a Public Tribute

When Phil was diagnosed with ALS, Nnenna was planning to go back into the studio to record new music. “But when life calls you off the bandstand into boots on the grounds, that’s where you need to be,” she told Dr. Bob Lee in a 2021 interview.

She became his primary caregiver until his death. “How did Freelon find the strength, and even the time, to balance the conception and recording of these tracks with the strenuous demands of caregiving? “Some of [them] were actually recorded in a quiet space when I had a moment,” she told Jazz Times via Zoom from her Durham, North Carolina home.”

Still, the project wasn’t meant for public consumption. Freelon doubted whether it was good enough to put out. But those who heard it found it powerful. They convinced her to finish the project. Time Traveler (Origin), released in 2021, her 11th studio album, was her first in a decade. Then, it was nominated for a 2022 Grammy.

“This is the mystery and the divine energy of it. I wasn’t sure I could sing, honestly. Singing is a very emotional enterprise, very personal, and I was broken,” she told Lee.

“I also realized I had to be willing to be vulnerable, to trust my audience, and myself enough that whatever came up and out, if it was true and authentic, it was going to be alright.”

Freelon explained that she had to go inside her grief and find the joy inside her pain.

 

Big Love, Big Loss, Big Impact

It would take years before Freelon has the other two elements for the trilogy.

“I tried being strong, I tried my faith, and all the things the older women in my life say worked.  And none of them worked for me. “What did work was tarrying with my grief,<> improvising with my grief, sitting still long enough to let those feelings wash through me, changing the key,” the singer and composer said.”

“That’s something I learned on the bandstand. Sometimes you’ve got to change the key. Swing with the rhythms. Don’t fight it. And if you feel some kind of way, go somewhere and sit down. Don’t try to be strong. Your children need to see you fall apart. They need to know you are human. Let them see your tears flow.”

It was from that perspective, the things she learned as a jazz musician, that the next two projects were born. The book Beneath the Skin of Sorrow, Improvisations on Loss, and the album Beneath the Skin.

The book is created like a large movement in four sections: Round Midnight, Stolen Moments, A Love Supreme, and Time Traveler. Each contains a collection of poems,  memoirs, meditations, and recipes.

Freelon wrote the book she wished she had in the early days of her grief journey. It’s a smallish book, something to put on your nightstand, or in your purse; It isn’t a “how to do grief” book. “I am writing from a jazz woman’s perspective and also a universal perspective; I wrote that book, and I hope it can accompany people on their journey, no matter what it is,” she said.

The Language of Grief

While at a speaking engagement, the singer, still dissatisfied with the word “widow,” polled the audience for an alternative word. “Somebody raised their hand and said, ‘I want to suggest the word window. You are now a window into another world. You see things that others cannot see.’ And it almost brought me to tears,” Freelon says.

“That’s exactly what we are. Windows [some of us] may be stained glass, or may have a crack or two, may not be totally clear, may have some smudges on it, but we are windows. We are beautiful, black windows.”

The Widow Song

But yet in Beneath the Skin, an album of all original compositions, she has included The Widow Song. Both of those projects are about what lies underneath the surface of things.

“Because one of the things I had to realize is that I have this whole world underneath the veneer of sorrow,” the singer said. “You’re at the funeral, there are tears, a veil over your face, and your head is bowed. But if we allow ourselves to continue to be curious about the things that can grow from grief.”

“You were given a tough pill to swallow. You’re going to have to decide how you want to walk from that point forward.” Freelon continued.

Beneath the Skin and the book are a part of the trilogy that started with Time Traveler. The singer agrees, “It’s a continuation of the journey. And it’s, it’s interesting. Sometimes you create art, and sometimes art creates you.”

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Facing the Unknown: What it’s Like to Participate in a Clinical Trial https://blackhealthmatters.com/facing-the-unknown-what-its-like-to-participate-in-a-clinical-trial/ Sun, 09 Nov 2025 15:00:39 +0000 https://blackhealthmatters.com/?p=61894 This article is sponsored by Johnson & Johnson When you’re living with non-small cell lung cancer (NSCLC), you are juggling a lot—from appointments to decision-making. And when the words “clinical […]

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This article is sponsored by Johnson & Johnson

When you’re living with non-small cell lung cancer (NSCLC), you are juggling a lot—from appointments to decision-making. And when the words “clinical trial” come up, it can be intimidating to understand and navigate what that means. However, clinical trials may be an option worth exploring. Understanding what they involve and how to talk to your doctor about them can turn those uncertainties into a part of your journey.

What is a clinical trial?

A clinical trial is a study that tests medicines and other treatments to understand how and if they work and if they are safe enough to be offered to qualifying patients. Participating in a study can sound intimidating at first, but some things you’ve heard about clinical trials may be popular misconceptions.

One of the biggest misconceptions about clinical trials is that they’re only available for patients as a last resort. That is simply untrue. A lot of trials are available to patients even before standard treatments have been tried. Even more, some clinical trials are available to healthy adults.

What’s it like to participate in a clinical trial?

Clinical trials treat patients as partners in the process, with rights, protections, and full control over their decision to join—or to leave at any point.

The process of joining a clinical trial usually begins with a screening phase which involves reviewing medical history, scans, and lab tests, and sometimes checking for specific genetic markers that are especially relevant. Participants are given detailed paperwork and consent forms that explain what the trial involves, any possible risks, and potential benefits. You’re encouraged to ask all of your most pressing questions during this time, so you can fully understand what will take place. If a participant qualifies and chooses to enroll, a baseline assessment follows—blood tests, physical exams, etc. This helps the researchers understand any changes that happen during the trial.

Once you’ve officially begun the clinical trial, the experience is very hands-on with frequent check-ups, imaging scans, lab work, and any other necessary tests. You’ll also be monitored closely for any side effects. You may be encouraged to continue standard treatments while receiving the study drug or procedure. Being surrounded by so many resources, you may find that you have even more access to doctors and nurses than before. For caregivers, this can mean reassurance that their loved one is being cared for and that any concerning changes will be addressed quickly. This also means that participation requires a level of commitment. Participants are expected to show up for appointments and clinic visits, and depending on the treatment, some lifestyle adjustments are necessary.

What can caregivers expect from a clinical trial?

For caregivers, encouragement, organization, and support are the top expectations. Anything from helping your loved one make and attend appointments, processing information they’re receiving, and supporting them through the ups and downs. The journey can be tiring, but it can also feel purposeful, knowing you are both part of something that may help with the progress of medicines.

Are clinical trials available for lung cancer patients?

Certainly. Clinical trials happen throughout the calendar year. Doctors and scientists are committed to finding and learning about the options for ailments and are often looking for eligible participants. However, there are specific clinical trials available to those diagnosed with NSCLC. Learn more about a J&J NSCLC clinical trial here.

Clinical trials are also a powerful way to support equity in healthcare. For Black communities, taking an active role in NSCLC trials can help ensure medical advancements reflect the needs of all patients. Together, we can reduce health disparities in lung cancer outcomes.

There are many clinical trials ongoing for NSCLC. A J&J clinical trial is currently recruiting adults living with NSCLC to participate in a study. Click here to learn more about it and see if you qualify.

This article is sponsored by Johnson & Johnson

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Actress & Activist Toks Olagundoye on Surviving Breast Cancer https://blackhealthmatters.com/frasiers-toks-olagundoye-on-surviving-breast-cancer/ Thu, 06 Nov 2025 18:45:52 +0000 https://blackhealthmatters.com/?p=61605 Toks Olagundoye is an actor, writer, and advocate known for her sharp wit and unshakable presence on screen, most recently as Olivia Finch in the Frasier reboot. At the height […]

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Toks Olagundoye is an actor, writer, and advocate known for her sharp wit and unshakable presence on screen, most recently as Olivia Finch in the Frasier reboot. At the height of her career, still grounded in the intensity of early motherhood, she got a call from her doctor, she had breast cancer.

What followed changed everything. The pace of her days. The demands on her body. Her sense of control. But now she’s telling the story herself. She’s a breast cancer survivor, and she’s still here.

The Moment She Feared Had Arrived

Toks had gone years without a full mammogram. Between breastfeeding and the demands of daily life, it stayed on the back burner. After several reminders, her OBGYN became more direct and told her it was time to stop waiting. So, she went.

During the scan, doctors found calcifications. These are tiny calcium deposits that can form in breast tissue. While often harmless, certain patterns can signal early signs of cancer. A biopsy confirmed it in August 2022.

“I was told I had stage zero triple negative breast cancer,” she said.

Triple-negative breast cancer is one of the most aggressive types. According to the American Cancer Society, it grows quickly and does not respond to hormone therapies because it lacks three common receptors. That limits treatment options and increases the risk of recurrence. Within three weeks, her cancer had already advanced to stage one.

Toks had always feared cancer. It ran deep on her mother’s side with diagnoses across generations. Her father’s side, rooted in Nigeria, had fewer known cases, though she believes there may have been more that went unnamed. So when the biopsy confirmed triple-negative breast cancer, she wasn’t shocked.

“I had been terrified to get cancer my whole life,” she said. “I was almost relieved, honestly, to just know which one it was and get it done.”

Then Came the Reality Check

At just 46 years old, Toks had to shift into survival mode. In September, weeks after her diagnosis, she began treatment with a lumpectomy and radiation. A lumpectomy removes the tumor and a small amount of surrounding tissue. But when the pathology came back, the margins were not clear. That meant cancer cells were still present at the edges. She would need more surgery and chemotherapy.

Before starting chemo, she tried one round of egg fertilization. She and her husband had hoped for a second child. But her gynecologist stepped in.

“He’s like, stop it. Triple negative moves so quickly you’re gonna die,” she said. “I was like, okay, all right, Jesus.”

From Lumpectomy to Mastectomy

After another surgery with no clean margins, her oncological surgeon recommended a mastectomy. A mastectomy removes the entire breast to prevent further spread. Toks chose to remove both.

“She was like, listen, none of this is showing in any of the imaging we did,” she recalled. “We’re not seeing any of what we’re taking out of your body, so it’s making us really nervous.”

She began chemotherapy in early November, just after wrapping Fatal Attraction. The treatment was intense. Every three weeks, she returned for another round.

“I did four rounds of very strong chemo,” said Toks. “A week after I stopped chemo, I started working on Frasier.”

To help protect her hair, she used cold capping. The process involves cooling the scalp during chemotherapy to reduce hair loss, and it worked. Toks was able to keep about 50 percent of her hair.

The Circle That Held Her

Toks kept working, not to prove anything, but because it helped her feel like herself. Work was also essential to Tok’s healing.

“My husband was picking me up from work. My mother was dropping me off,” she said. “I had tons of people helping me carry things. That was a little difficult because I couldn’t carry my kid for a really long time.”

Her sister, best friend, and nanny helped care for her son. Insurance paperwork was handled by her financial manager. On set, her team made space for her to rest when she needed it.

“Sometimes I was like, I need to go upstairs and just rest for 25 minutes,” she said. “And they’d be like, yeah, no worries, we’ll make time for you.”

Parenting Through Treatment

While navigating surgeries and chemotherapy, Toks was also parenting a young child. Her son was still small and still used to their routines. She had to explain why things were changing, why she couldn’t carry him, why their time together looked different.

“We used to call my boobs my boo boos,” she said. “I said, so we can’t do boo boo time anymore, and he was sad, but he understood.”

She approached those conversations with honesty and compassion. She didn’t hide what was happening, but she didn’t overwhelm him either.

“I keep in mind that my kid is new here,” she explained. “I don’t put things on him that he doesn’t deserve.”

Her son responded with kindness. He would come in to chat, then tuck her into bed.

“He’d be like, Mommy, you need your rest,” he’d say.

She believes children know when something is wrong, even if no one tells them.

“I feel like you’re actually just making them more scared and anxious because they don’t know what the thing is,” she said.

Rest Is a Right

Toks spoke directly to the pressure Black women face to keep going no matter what. She spoke about how Black communities are among the most capable in the world.

“Especially Black women. We are versatile, good at problem solving and hard working. And we are insanely intelligent.”

She knows how deeply that pressure can affect health.

“One of the reasons that Black people get sick so much is that we don’t rest,” she said. “We have to stop believing the myth that rest equals laziness.”

A Community Lifeline

For Toks, healing was never just about her body. It was about being part of something larger. She spoke openly about the realities Black people face, and the strength that comes from community.

“I feel like Black people are placed in a position of being stressed out and not being able to give our families what they need,” she said. “We are placed in a position of not being able to live in clean areas, not being able to afford healthy food, not being able to afford health care, not being able to afford to take time off work.”

She named the systems that create those conditions. But she also named the power our communities hold.

“I think that we need to start talking to each other,” she said. “We need to start asking questions. We need to start sharing information.”

Advocacy Begins with Access

Toks now works with the Breast Cancer Research Foundation. She is using her voice to push for better access, better care, and better outcomes for Black women.

“Almost half of the women who are diagnosed with breast cancer are going to be Black women,” she said. “And one of the reasons for that is the disparity in what is available to us. We are placed in a position of being stressed out and not being able to give our families what they need.”

She has seen the consequences of delayed care and poor insurance firsthand. People she loves have waited far too long for the imaging and procedures they needed. She knows how quickly diseases can spread and how dangerous those delays can be.
She encourages people to ask questions, share what they learn, and help each other navigate the system.

“You need to figure out, as young as you possibly can, what your plan for your health care is,” she said. “If you’re going to somebody and you don’t feel heard, or you feel dismissed, or you feel like you can never get an appointment, find somebody else.”

And she wants Black women to know they matter.

“You need to see yourself and your life as precious,” she said. “We take care of so many other people. We have to be healthy too. Otherwise, we can’t take care of everybody else.”

Resources:

Triple-negative Breast Cancer | Details, Diagnosis, and Signs | American Cancer Society

Breast Cancer Research Foundation | BCRF

Will Scalp Cooling Save Your Hair During Cancer Treatment?

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Black Representation in Systemic Sclerosis Research https://blackhealthmatters.com/black-representation-in-systemic-sclerosis-research/ Wed, 05 Nov 2025 18:26:37 +0000 https://blackhealthmatters.com/?p=61905 Systemic sclerosis, also known as scleroderma, is a rare autoimmune disease that can cause hardening and tightening of the skin, joint pain, fatigue, and in some cases, damage to internal […]

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Systemic sclerosis, also known as scleroderma, is a rare autoimmune disease that can cause hardening and tightening of the skin, joint pain, fatigue, and in some cases, damage to internal organs. While it affects people of all backgrounds, Black patients often face more aggressive disease, worse symptoms, and higher rates of complications compared to other groups.

Despite these realities, Black patients are underrepresented in clinical research for systemic sclerosis. Lack of representation often leads to a gap in information and what researchers understand about how new treatments work in various groups.

The DAISY trial is studying an investigational medicine in patients with systemic sclerosis. Eligible patients must be at least 18 years of age, have been diagnosed with systemic sclerosis in the last six years, and are either not taking medication for it or receiving stable doses of certain medications. Click here to learn more about this research study.

Participating in DAISY is optional. You can change your mind and opt out at any time.

Systemic Sclerosis in the Black Community

Systemic sclerosis may be rare, but its impact is felt deeply in Black communities. Studies show that Black patients are:

  • More likely to be diagnosed at a younger age
  • More likely to experience severe disease
  • At higher risk of lung involvement, which can make breathing difficult
  • Less likely to receive timely diagnosis and treatment

These disparities don’t just happen by chance. They are rooted in a variety of barriers to care, delayed diagnoses, and a lack of representation in research. Clinical trials promote quality care for those who qualify, regardless of their background.

What the DAISY Trial Is About

Clinical trials are part of the research process that explores experimental treatments and determines if they are safe and effective. There are specific criteria that the trial clinical team will review with you to see if DAISY is the right fit.

If you qualify and choose to take part, you won’t be left to navigate the journey alone. You’ll be supported by a team of medical staff who will answer your questions, monitor your health, and guide you step by step.

The results from this clinical trial could help people living with systemic sclerosis in the future.

Building Trust

It’s natural to have questions or doubts about clinical trials. There are built-in safety measures to ensure the clinical trial process is safe for those eligible to participate. Today’s trials have strict safety standards designed to protect participants.

Clinical trials are not just about science. Your experiences matter. Your participation helps researchers understand, and you contribute to closing the knowledge gap. You also help ensure that treatments are developed with the insight needed to make certain Black patients are represented in the data.

Take the Next Step

Living with systemic sclerosis can feel isolating, but you are not alone. Others are walking this path with you. Participation is always your choice.

If you or someone you love has been recently diagnosed with systemic sclerosis, the DAISY clinical trial may be an opportunity worth exploring. Click here to learn more, take the screener, and find out if the DAISY trial is right for you.

Content sponsored by AstraZeneca.

 

References:

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Why Clinical Trials Matter for Black Patients Living with Lupus Nephritis https://blackhealthmatters.com/why-clinical-trials-matter-for-black-patients-living-with-lupus-nephritis/ Wed, 05 Nov 2025 17:59:49 +0000 https://blackhealthmatters.com/?p=61902 Lupus nephritis (LN) is a serious complication of lupus that causes inflammation in the kidneys. If not properly managed, it can lead to permanent kidney damage, dialysis, or even the […]

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Lupus nephritis (LN) is a serious complication of lupus that causes inflammation in the kidneys. If not properly managed, it can lead to permanent kidney damage, dialysis, or even the need for a kidney transplant.

For Black patients, research shows that lupus is more common, more severe, and diagnosed at younger ages compared to other groups. Additionally, Black patients are at greater risk for worse outcomes when lupus attacks the kidneys.

IRIS is a clinical trial evaluating an investigational drug in patients living with lupus nephritis. You may be eligible to participate if you are at least 18 years of age, have been diagnosed with lupus nephritis, and are taking medication to treat it.

Clinical trial participation offers a pathway for those eligible to access a potential new treatment while receiving regular check-ups and assistance in managing their condition. Click here to learn more about a new clinical trial for people with lupus nephritis. Remember that taking part in a clinical trial is always voluntary, and you can opt out at any time.

Why Representation Matters in Research

When it comes to lupus nephritis, representation in clinical trials has been limited. Historically, Black patients have been underrepresented in research despite being disproportionately affected by the disease. This lack of representation creates a significant health gap.

By participating in clinical trials like IRIS, Black patients help researchers better understand how the study medications may affect those who take them. Every participant adds valuable information. Your voice, your experience, and your journey truly matter in shaping the future of lupus care.

Understanding the IRIS Trial

The IRIS clinical trial is studying an investigational treatment for lupus nephritis. The goal is to determine how this treatment affects individuals living with lupus nephritis.

If you qualify and choose to join the study, you’ll be cared for by a dedicated medical team throughout the entire study. Your health and safety will always be our top priority. The doctors and staff will explain the process, answer your questions, and guide you at every step.

Taking part in a clinical trial is always voluntary. If you decide to join IRIS, you’ll not only have the potential to benefit personally but also contribute collectively to the advancement of lupus care.

Trust the Process

It’s no secret that many in the Black community carry deep concerns about clinical research. Today, clinical trials are governed by strict safety rules, and protecting participants is the top priority.

Additionally, the IRIS study team understands that lupus nephritis does not affect everyone equally. By working with patients from different backgrounds, they are committed to making sure the research reflects the real-world experiences of Black communities.

When you participate, you are supported and cared for by a dedicated team throughout the process.

Consider Clinical Trials

Choosing to take part in research is a powerful step. For you, it may mean access to new treatments and closer monitoring of your condition. For the community, it means helping ensure that future lupus nephritis therapies are designed with Black patients in mind.

If you or someone you love is living with lupus nephritis, now is the time to learn more about IRIS. To learn more about the IRIS study and see if you may qualify, click here to take the screener questionnaire.

Content sponsored by AstraZeneca

 

References:

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A Full Body Scan Found Lung Cancer & Saved Her Life https://blackhealthmatters.com/a-full-body-scan-found-lung-cancer-saved-dionne-harmons-life/ Wed, 05 Nov 2025 17:14:14 +0000 https://blackhealthmatters.com/?p=61441 As an Emmy-winning producer behind some of television’s biggest moments, Dionne Harmon was used to high-stress environments. But in late 2023, Dionne paused. She was scrolling through Instagram when she […]

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As an Emmy-winning producer behind some of television’s biggest moments, Dionne Harmon was used to high-stress environments. But in late 2023, Dionne paused. She was scrolling through Instagram when she saw Kim Kardashian’s post about Prenuvo, a company that offers full-body MRI scans designed to catch health issues before symptoms appear. “I literally looked it up right then,” she told People. Her scan revealed a large mass in her right lung. She had Stage 3 lung cancer.

A Nonstop Schedule

Her fiancé Jesse Collins, who runs his eponymous production company, Jesse Collins Entertainment, has overseen mega events including the Super Bowl Halftime Show, the BET Awards, and more. Together, they’ve built careers on precision and performance.

“We both work hard and don’t always take care of ourselves the way we should,” she explained to People. “And sad to say, several of our friends have dropped dead of heart attacks because it’s a high-stress world. Jesse started his own company after his boss, John Cossette, died of a massive heart attack, so there’s always been that fear.”

So when she saw the post, she looked up the company and booked an appointment for the two of them.

Prenuvo’s scans range from $2,500 to $4,500, and appointments can take months to secure. Dionne booked two, one for herself and one for Jesse. At the time, she was more concerned about him.

They got scanned in March 2024. Jesse’s came back healthy. Unfortunately, Dionne did not.

Dionne Had No Symptoms

Her scan revealed a large mass in her right lung. The technician told her to contact a pulmonologist right away. A pulmonologist is a doctor who specializes in lung health, and even they were initially skeptical. Dionne had no symptoms. She didn’t smoke. It didn’t add up.

Still, she followed through. First came a chest X-ray, then a PET/CT scan. Unlike a regular scan, this one shows how tissues and organs are functioning, not just how they look. The results confirmed that the mass was active, and that meant cancer was likely. She was sent for a biopsy, where doctors removed a small piece of tissue to test under a microscope.

The diagnosis was confirmed by Dr. Graeme Rosenberg, a thoracic surgeon at USC. It was lung cancer, Stage 3.

“Most lung cancers are found by accident in the non-smoking population,” Rosenberg told People.

During surgery, doctors found that the cancer had already reached one of Dionne’s lymph nodes. The spread was microscopic, too small to appear on scans, but it changed her diagnosis. She was officially considered stage 3, despite having no symptoms and no visible warning signs.

Her surgeon told her they had acted just in time. A few months later, the cancer might have moved further, limiting her treatment options or removing them altogether.

“If you had found this six months later, we’d be talking about how to make the rest of your life comfortable,” Dionne recalled being told. “I would’ve died, for sure.”

She underwent robotic-assisted surgery using the Da Vinci system, which resulted in part of her lung being removed. The operation was a turning point. It gave her a chance to recover before the cancer could spread further.

Why Lung Cancer Gets Missed

Dionne’s story isn’t rare. It’s just rarely caught. Lung cancer is still widely seen as a smoker’s disease, but that assumption leaves too many people overlooked. According to the American Cancer Society, early-stage lung cancer often comes without symptoms. And when signs do appear, they’re easy to dismiss. A lingering cough. A little wheezing. Fatigue that feels like stress. For Dionne, there was nothing. No warning. Just a scan that saw what she couldn’t feel.

If There Had Been a Sign

Some of the earliest signs of lung cancer can include:

  • A persistent cough.
  • Chest pain that worsens with deep breathing or laughing.
  • Shortness of breath or wheezing.
  • Hoarseness or voice changes.
  • Frequent respiratory infections.
  • Unexplained fatigue or weight loss.

Dionne had none of these. No cough, no fatigue, no unexplained weight loss. By all accounts, she was fine until the scan said otherwise.

Recovery Wasn’t Pretty

The surgery was successful, but the recovery was difficult. Dionne, known for her independence and Type-A energy, had to rely on her mother for basic care. “My mom having to help me in the bathroom and wipe me was insane,” she recalled. Her fiancé Jesse became her full-time support system, keeping everything running while she healed. “It was amazing how he instantly went into support mode. Nothing mattered besides making sure I was okay and got through this.”

Instead of chemotherapy, Dionne qualified for a targeted drug therapy. She swallows one pill daily and schedules lung scans every six months. So far, everything has been clear.

In April 2025, Dionne ran the Paris Marathon. It was her way of reclaiming her body and her life.

“I was like, ‘I’m going to run this Paris marathon,'” she said, “just to prove to myself that I could, a year after my surgery and with [only a portion] of my right lung.”

From Survivor to Advocate

Now, Dionne is working with Rosenberg to launch a foundation focused on early lung cancer detection. She also got the chance to thank Kardashian directly. Her team reached out, and Kardashian responded with a post and a kind message. For Dionne, it was a meaningful moment. She told People that the post had ultimately led to her diagnosis and treatment, and she considers it life-saving.

A Warning to Black Women

The experience reshaped how Dionne thinks about health and visibility. She had always pushed through, showing up even when rest might have served her better. But this time, she paused and listened to her body. And it made all the difference.

Resources:

Emmy Producer Discovers Stage 3 Cancer After Prenuvo Body Scan (Exclusive)

Comprehensive whole body MRI scan for preventative care | Prenuvo

Lung Cancer Signs & Symptoms | American Cancer Society

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11 Things to Know About the COVID-19 Vaccines in 2025 https://blackhealthmatters.com/11-things-know-covid-19-vaccines/ https://blackhealthmatters.com/11-things-know-covid-19-vaccines/#respond Tue, 04 Nov 2025 10:30:30 +0000 https://blackhealthmatters.com/?p=25556 Last summer, there was a surge in COVID-19; a New York Times article reported that it had become so normalized that people didn’t see it as a reason to disrupt […]

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Last summer, there was a surge in COVID-19; a New York Times article reported that it had become so normalized that people didn’t see it as a reason to disrupt plans. Epidemiologists, including Bill Hanage, associate director of the Center for Communicable Disease Dynamics at Harvard T. H. Chan School of Public Health, predicted COVID-19 would move from pandemic to endemic. Have our COVID-19 risks changed with our attitudes?

What is an Endemic?

Harvard’s Hanage said, “It certainly has a sort of social definition — a virus that’s around us all the time — and if you want to take that one, then we’re definitely there.”

He told NPR, “Endemic doesn’t necessarily mean good,” he said. “Tuberculosis is endemic in some parts of the world, and malaria is endemic in some parts of the world. And neither of those is a good thing.”

In other words, just because COVID-19 is something we have gotten used to, it doesn’t mean we don’t have to take precautions. This is true especially if we are going to interact with vulnerable populations.

Here are 11 things you need to know about COVID-19 and the vaccine:

The New Variants Keep Coming

1. The dominant variant in the United States is”XFG” Stratus.

Stratus was first detected in the United States in March. Still, it took months for it to overtake Nimbus “NB.1.18.1. “Stratus has been around in Southeast Asia since January of this year, and came to the United States around the spring,” explains Dr. Magdalena Sobieszczyk, chief of the Division of Infectious Diseases at New York-Presbyterian/Columbia University Irving Medical Center.  Symptoms of the Stratus variant are:

  • headache
  • fever
  • “razor blade” sore throat
  • cough
  • runny nose
  • congestion
  • nausea, vomiting, or diarrhea.

2. The 2025 vaccine should be effective against the Stratus variant.

Dr. Sobbieszcyk points out that the currently available COVID-19 vaccine updated for the 2025-2026 season targets a strain called LP.8.1, which is closely related to the predominant strain. “We expect that the vaccine should be effective at protecting against severe disease, and there are no new concerns about safety or efficacy,” she said.

There Are Three COVID Boosters

3. There are three COVID boosters available. 

In August, the U.S. Food and Drug Administration (FDA) approved new COVID boosters that you can get from  Moderna, Pfizer, and Novavax.  Each of them targets the descendants of the omicron variant.

4. A new study shows a COVID-19 vaccine booster will protect you against severe infection.

A recent study published in the New England Journal of Medicine reports that getting a COVID vaccine booster could be life-saving, no matter your age. Last season’s mRNA COVID vaccine reduced people’s risk of emergency department visits by 29 percent, hospitalizations by 39 percent, and death by 64 percent. The study authors said the vaccine was effective across all age groups, and in people with and without chronic conditions.

Here’s What You Should Know About Getting Vaccinated

5.  Clinicians offer these guidelines on who should get vaccinated.

The American Academy of Pediatrics (AAP) and the American Academy of Family Physicians (AAFP) both recommend that babies six to 23 months be vaccinated. The AAP recommends a risk-based strategy for children ages two through 18. Parents can vaccinate their children if they like, but they recommend vaccination if their child has diabetes or asthma, for example. The AAFP recommends that adults 18 and older be vaccinated. Individuals 65 and over must be vaccinated because they are still more likely to be hospitalized and die from COVID-19.

6. Some people will feel side effects from their COVID-19 booster.

They can last up to two days. These are short-term mild or moderate vaccine reactions that resolve without complication or injury.  The side effects include pain at the injection site, fatigue, headache, muscle pain, fever, and chills.

7. If you’ve recently had COVID-19, you can still get a COVID booster, but you need to wait. 

According to Penn Medicine, anyone who has had a recent COVID-19 infection should wait three weeks after recovery before getting the latest booster. Timing may be different, however, if you are immunocompromised. Please speak with your HCP.

Getting a COVID-19 Vaccine May Cost Money If You Don’t Have Insurance, But There Are Resources Available

8. The COVID-19 vaccine is no longer free.

The Bridge Access Program, which made COVID-19 vaccines and treatments free for those who were underinsured or lacked insurance, was phased out in August 2024. If you have insurance, you are most likely covered. According to GoodRx, with coverage through Medicare and Medicaid, you should get the COVID-19 booster free of charge if an in-network provider administers it.

The vaccine booster, without insurance, can cost more than $200. Here are a few options and resources that can help:

The COVID-19 Vaccine and Cancer

9. The 2025 vaccine is safe for people with cancer or who have been treated for cancer.

According to Mini Kamboj, MSK’s Chief Medical Epidemiologist, at Memorial Sloan Kettering, the COVID vaccine is recommended for people with cancer or who have been treated for it.  “The latest CDC estimates show that about 1 in 6 people hospitalized with severe COVID-19 have weakened immune systems. This can happen if you are getting cancer treatment or have a history of cancer. The COVID-19 vaccine protects you from getting very sick if you get the infection.”

10. The COVID mRNA vaccine sparks an immune response to fight certain cancers.

In an observational study published in Nature, researchers discovered patients with advanced skin or lung cancer, who received a COVID-19 mRNA vaccine within 100 days of starting immunotherapy, lived significantly longer than those who didn’t get the vaccine.

You Still Need to Stay Vigilant

11. In 2024, COVID-19 deaths fell out of the top ten.

According to NPR, COVID-19 slipped from the top ten causes of death last year. In 2020, it was number three; now it is number 15, according to the CDC. However, it was a factor in about 47,000 deaths in the United States in 2024.

If you have any preexisting conditions, are in frequent contact with someone who is immunocompromised, or is in their advanced years, ensure that you and they are vaccinated. We can’t afford to let our guards down. Even if you are healthy, chances are, everyone around you isn’t.

Resources

Harvard School of Public Health: Experts Say COVID-19 is endemic. What does that mean?

New York Presbyterian Hospital: What to Know About COVID Variant XFG (Stratus) and How to Protect Yourself

Memorial Sloan Kettering: 2025–2026 COVID-19 Vaccine for People With Cancer & Others With Weakened Immune Systems

Your Fall Vaccine Guide

Annual COVID Vaccines Protect People against Severe Disease, Even with Prior Immunity

Nature: SARS-CoV-2 mRNA vaccines sensitize tumours to immune checkpoint blockade

VaccineInformation.org

 

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When Breathing Gets Harder (COPD and Pneumonia) https://blackhealthmatters.com/when-breathing-gets-harder-copd-and-pneumonia/ Thu, 30 Oct 2025 21:53:32 +0000 https://blackhealthmatters.com/?p=54319 Chronic Obstructive Pulmonary Disease (COPD) and pneumonia are two respiratory conditions that often show up together, and when they do, the results can be deadly. For Black Americans, who already […]

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Chronic Obstructive Pulmonary Disease (COPD) and pneumonia are two respiratory conditions that often show up together, and when they do, the results can be deadly. For Black Americans, who already face systemic barriers to healthcare, this pairing is especially dangerous. Stats only scratch the surface. It’s the lived realities within our community that we need to talk about.

What Is COPD and Why Does It Matter

COPD is an umbrella term for lung diseases like emphysema and chronic bronchitis. It makes breathing harder over time, and there’s no cure.

  • Emphysema damages the air sacs in the lungs, making it harder to take in oxygen.
  • Chronic bronchitis causes swelling and mucus buildup in the airways, leading to a persistent cough and breathing difficulties.

In 2023, COPD was the fifth leading cause of death in the U.S., claiming over 141,000 lives, as reported by the CDC in its 2025 Data Brief.

To make matters worse, Black Americans are less likely to be diagnosed with COPD, even when they have symptoms. That means fewer chances for early treatment and more risk when pneumonia enters the picture.

The Dangerous Duo: COPD and Pneumonia

Pneumonia is an infection that inflames the air sacs in the lungs. For someone with COPD, pneumonia can be life-threatening. The lungs are already compromised, and the infection adds fuel to the fire. According to the Global Initiative for Chronic Obstructive Lung Disease (GOLD) 2025 report, pneumonia is one of the most common causes of hospitalization and death among people with COPD.

The pneumonia vaccine is an essential tool for managing COPD, yet it’s not reaching our community equally. That shortfall leads to more complications and more loss, as documented by the CHEST Foundation in 2023.

A Look at the Numbers

In 2023, the age-adjusted prevalence of COPD among Black adults was 3.5%, compared to 4.4% in White adults, according to the CDC. At first glance, that might seem like good news. But experts warn that underdiagnosis is a major issue in Black communities. A study published by the Journal of the COPD Foundation found that race and gender disparities are evident across all severities of airflow obstruction. In plain terms? Too many Black patients with COPD are left undiagnosed and unheard. And when pneumonia hits someone with undiagnosed COPD, the outcome can be devastating.

Why the Disparities?

These disparities reflect systems that haven’t been built with Black communities in mind. The gaps in care, diagnosis, and trust are real and reinforced in everyday clinical settings.

  • Delayed diagnosis: Black patients are less likely to be referred for lung function tests. Symptoms are overlooked. Screenings get skipped. The result is missed opportunities for early treatment and a higher risk during flare-ups.
  • Lower vaccination rates: Pneumonia and flu vaccines are essential for COPD management, but they are reaching Black adults at lower rates. That shortfall increases complications and leads to more hospital visits.
  • Barriers to care access: Limited insurance coverage, long commutes to clinics, and under-resourced neighborhoods make accessing basic care more challenging. And once patients do reach the doctor, they often face shorter appointments, fewer referrals, and lower chances of seeing a specialist. As reported by Healthgrades, Black Americans with COPD are less likely to see a pulmonologist and more likely to be managed solely by primary care providers, where only 19% recommend pulmonary rehab, compared to 54% of specialists.
  • Broken trust with health systems: Black patients have endured dismissal, bias, and neglect within medical spaces for decades. That history shows up in rushed visits, poor follow-up, and misdiagnoses. The system has earned mistrust. Rebuilding trust means delivering care that’s culturally competent, designed with equity in mind, and backed by accountability.

CHEST also reports that, over the last two decades, Black Americans have experienced the smallest decline in COPD mortality, just 0.7 per 100,000, compared to 5.5 among White Americans.

Spotting Pneumonia in COPD

COPD and pneumonia share similar symptoms, including cough, shortness of breath, and fatigue; however, they’re not interchangeable. For someone living with COPD, pneumonia can slip in, disguised as a routine flare-up. But sure signs stand out:

  • Fever or chills: COPD rarely causes fever or chills. If it spikes, think infection.
  • Sharp chest pain when breathing: Not typical of COPD alone.
  • Sudden changes in mucus color or volume: Green or yellow may indicate an infection.
  • Rapid breathing or heart rate: A sign the body’s under stress.
  • Nausea, vomiting, or dizziness: Red flags like these often indicate that it’s more than just COPD.

Spirometry, also known as a lung function test, is often overlooked or misread in primary care. A 2024 study published in PLOS ONE found that many patients diagnosed with COPD were actually dealing with asthma or had normal lung function. At the same time, people who truly have COPD often go undiagnosed and face their symptoms without medical support, which raises the risk of serious complications like pneumonia being mistaken for a routine flare-up.

For caregivers and loved ones, noticing these changes can be the difference between early treatment and a dangerous spiral. You don’t need a medical degree, just awareness and trust in your instincts.

What You Can Do

If you or someone you love has a chronic cough, shortness of breath, or frequent respiratory infections, take it seriously. Ask your doctor about COPD and ensure that lung function testing is part of the conversation. Misdiagnosis can delay treatment and put lives at risk, especially when pneumonia is mistaken for something less urgent.

Get vaccinated against pneumonia and the flu, and lean on trusted resources like community clinics and health fairs for support. COPD and pneumonia continue to disproportionately affect our community. With awareness and advocacy, that reality can change. Breathing is a biological right, but too often it’s treated like a resource only some can afford to protect. Striving to know more is the first step in the right direction.

Resources

Products – Data Briefs – Number 528 – April 2025

2025 GOLD Report – Global Initiative for Chronic Obstructive Lung Disease – GOLD

Partnering With the African American Community to Curb COPD – American College of Chest Physicians

Chronic Obstructive Pulmonary Diseases | Journal of the COPD Foundation

COPD in Black Americans | Black People and COPD

Exploring the causes of COPD misdiagnosis in primary care: A mixed methods study | PLOS One

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What Women Should Know About Lung Cancer https://blackhealthmatters.com/what-women-should-know-about-lung-cancer-2/ Thu, 30 Oct 2025 13:00:59 +0000 https://blackhealthmatters.com/?p=55107 If you’re a woman in America, the cancer most likely to take your life isn’t breast cancer. It’s lung cancer. And Black women face even greater risks. Despite its alarming […]

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If you’re a woman in America, the cancer most likely to take your life isn’t breast cancer. It’s lung cancer. And Black women face even greater risks.

Despite its alarming toll, lung cancer remains overlooked, under-screened, and underfunded. Black women have higher death rates despite lower smoking rates. While lung cancer rates are declining among men, they continue to rise in women. And it’s no longer just about smoking.

Why Lung Cancer Deserves More Attention

According to the American Lung Association, lung cancer causes more deaths than breast, colon, and pancreatic cancers combined. Yet public awareness remains low, and many women still believe they’re too young or too healthy to be at risk.

Black Americans are disproportionately affected. As reported by the American Cancer Society, systemic barriers in screening, diagnosis, and treatment contribute to worse outcomes, even though Black communities smoke less on average.

Here’s what every woman needs to know about lung cancer.

Lung Cancer Doesn’t Care How Old You Are

Many women in their 20s and 30s still believe lung cancer is an older person’s disease. But that’s not the full story. While most diagnoses occur between ages 55 and 65, women under 50 are now being diagnosed at higher rates than men in the same age group. In fact, women younger than 45 are more likely than men to develop lung cancer, according to a report published by the American Cancer Society.

You Don’t Have to Smoke to Be at Risk

Smoking remains the biggest risk factor, but it’s not the only one. According to the CDC, about 1 in 10 lung cancer cases occur in people who’ve never smoked. And women who’ve never smoked are still more likely than men to develop the disease. Exposure to radon, air pollution, and certain processed foods may also increase risk.

If you do smoke, quitting is still the most powerful step you can take. But don’t assume that being a nonsmoker means you’re in the clear.

Survival Rates Aren’t Improving Fast Enough

Here’s the good news: five-year survival rates have doubled, rising from 13% to 27%, according to the Lung Cancer Initiative. That’s thanks to better screening, targeted therapies, and immunotherapy. But lung cancer still causes more deaths than any other cancer in the U.S.

Women with lung cancer often face worse outcomes than men, especially when diagnosed late. Symptoms can be subtle or mistaken for other conditions. Watch for:

  • A persistent cough.
  • Shortness of breath.
  • Hoarseness.
  • Chest pain.
  • Coughing up blood.

If something feels off, don’t wait.

You Might Need to Advocate for Screening

Low-dose CT scans can detect lung cancer early, before symptoms appear. But access and awareness remain uneven. Updated guidelines from the American Cancer Society now recommend screening for adults aged 50 to 80 with a 20-pack-year smoking history. Still, fewer than half of eligible people are getting screened.

If you’re at risk, ask your doctor directly. And if you’re uninsured or underinsured, look into community screening programs or patient navigators who can help.

Treatment Is Evolving and You Have Options

Today’s lung cancer care looks very different than it did even five years ago. Advances include:

  • Targeted therapies for specific genetic mutations like KRAS, EGFR, and ALK.
  • Immunotherapy that activates your immune system to fight cancer cells.
  • Minimally invasive surgeries and robotic techniques that reduce recovery time.
  • Same-day diagnosis and treatment in some centers, reducing delays.

If you’re diagnosed, your care team may recommend surgery, radiation, medication, or a combination. You may also qualify for a clinical trial offering cutting-edge treatments.

The Bottom Line

Lung cancer is still the deadliest cancer for women, but it doesn’t have to be. Awareness, early detection, and access to care can change the outcome. Whether you’re a smoker, a nonsmoker, young, or older, your risk is real, and your health is worth protecting.
If you’re concerned, speak up. If you’re eligible, get screened. And if you’re diagnosed, know that you are not alone, and you are not without options.

Resources:

Lung Cancer Trends Brief | American Lung Association

Cancer Disparities in the Black Community | American Cancer Society

Cancer Incidence Rate for Women Under 50 Rises Above Men’s | American Cancer Society

Lung Cancer Among People Who Never Smoked | Lung Cancer | CDC

ACS Cancer Updates 2025 | Lung Cancer Initiative

Lung Cancer Screening Guidelines | American Cancer Society

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Create a FSGS Treatment Plan That Works For You or Your Child https://blackhealthmatters.com/create-a-fsgs-treatment-plan-that-works-for-you-or-your-child/ Wed, 29 Oct 2025 21:05:38 +0000 https://blackhealthmatters.com/?p=61421 You or your child has been diagnosed with focal segmental glomerulosclerosis or FSGS—a rare kidney disease that affects how thoroughly your organ filters excess waste. The diagnosis is confirmed via […]

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You or your child has been diagnosed with focal segmental glomerulosclerosis or FSGS—a rare kidney disease that affects how thoroughly your organ filters excess waste. The diagnosis is confirmed via biopsy. In a book published on the subject, it states, “FSGS is a common cause of nephrotic syndrome, accounting for 40% of cases in adults and 20% in children. FSGS occurs more frequently in males and Black patients, with males affected approximately 1.5 to 2 times more often than females.” A FSGS diagnosis can be overwhelming; a treatment plan can help.

Misdiagnoses Happen

At the 2025 NephCure Health Equity Conference, one mother explained what it was like when her son was misdiagnosed at age four. “He had swelling in his eyes, his stomach. He couldn’t open his eyes,” she said. “They gave him all these allergy tests, but we knew it was something different, so we went back.”

This time, the parents saw their son’s pediatrician, and she knew it was nephrotic syndrome. “My husband and I are looking her saying, ‘What is nephrotic syndrome?’ getting ready to look it up on our phones. She said, ‘Put your phones away. We need to get your son under the care of a pediatric nephrologist right away.”

When Are Children Diagnosed?

According to the National Kidney Foundation, children are often diagnosed with nephrotic syndrome between the ages of two and nine. “Swelling in the legs, abdomen, and around the eyes is usually the first sign of nephrotic syndrome in children. Swelling around the eyes may be confused with allergies. However, urine tests that show large amounts of protein usually point to nephrotic syndrome.”

FSGS is the second most common cause of nephrotic syndrome in children. FSGS most often occurs in older children and adolescents.

What Kind of Pediatric Nephrologist Are You?

Another mother said, “So many people don’t really know enough about rare kidney disease, even nephrologists. I learned last year in the summit that there’s a difference between pediatric nephrologists who know about kidney disease,” she explained.

“There are also pediatric nephrologists who know about rare kidney disease, and I didn’t realize the difference.” She explained that they had consultations with six pediatric nephrologists before they found the right fit.”

“Is this person knowledgeable about what my kid has or not, and that really helped me decide, am I going to have a relationship with this person or am I moving on?” she said.

Treating a Child is a Group Effort

When treating children who are living with FSGS, treatment plans are a bigger group effort as opposed to the effort of 1 or 2. While many adults can navigate new treatment plans alone or with the help of a family member or significant other, the treatment plan for children “must extend beyond the child to the family system”, says Dr. Daryl O. Crenshaw, MD, FACP, FASN, FASH, a board-certified nephrologist who practices in Thomasville, GA. These professionals are part of their care ecosystem.

  • Pediatric Nephrologist
  • Dietician
  • Social Workers
  • Primary Care Doctor

That doesn’t mean that the patients themselves are to be overlooked. “Children engage best when care is framed as something they can do rather than something being done to them,” says Crenshaw. Depending on their age, involving your child in their treatment may be the best way to get them to understand what is going on. It also helps build trust and develop confidence, which will take you a long way.

Finding Community and Support

“Our pediatric nephrologist gave us the rundown from A to B about athletics. That it was terrifying, but it prepared us for what we were going to be up against,” the first mom said. “I’m like, okay, organization. I think I got this under control. I’m a mom. I can do it all, but every time my son relapsed, it was a different type of relapse.”

She knew that support and community would be critical to her journey. There were overwhelming fears about having her child labeled as “sick” at school. Her pediatric nephrologist initially recommended the NephCure’s walk in her city, but the family wasn’t ready. Two years later, she circled back and got the information.

“So we went to the walk, and then when we met the families, and everyone from NephCures, our lives really changed. At that point, because it made a difference,” she said.

Involve Your Child in Their Treatment

  • Give them an active role in their treatment and more broadly, their health.
  • Understanding how certain foods or choices can impact them. It can help encourage them to remain adherent and honest with you and their provider.

Whether you’re working with an HCP on a treatment plan for yourself, your child, or a loved one, always remember that you are not powerless; you are a partner. If there are questions that you feel moved to ask, ask them; if you’re experiencing new or different symptoms, bring that up; if there are ways you think something can be going more smoothly according to your needs, limitations, and lifestyle, don’t be afraid to talk about it with your doctor.

When creating a treatment plan, one of the most important things to remember is that it’s a collaborative effort. Both you and your doctor want what is best for you, and the best treatment is the one you are most likely to adhere to.

Partnering With Your Doctor as an Adult

According to Dr. Crenshaw, “Treatment guidelines provide structure, patients provide context,” he said. “The real art [of creating a treatment plan] is adjusting principles for the patient in front of me—whether that means accounting for their comorbidities, socioeconomic challenges, or medication adherence barriers.”

It helps to do the following, so your nephrologist has as much information as possible:

  •  Keep track of your symptoms
  • Write down any questions you might have for your provider beforehand
  • Bring a list of any medications you currently take.

In addition, you may discuss your day-to-day life and your medical history. As your treatment plan is being developed, your doctor may want to know more about your environment. How close is your access to fresh food? What are your transportation options? All these things affect your health.

Understanding these correlations can get patients to better stick to their treatment. “Adherence increases when I take time to connect the science to their story. Plans thrive when they feel personalized”, says Dr. Crenshaw.

Managing Your FSGS

  • Eat a low-sodium diet.
  • Consume plenty of fruits and vegetables.
  • Reduce alcohol consumption.
  • Keep blood sugar under control.
  • Maintain a healthy weight.
  • Exercise.
  • Quit smoking.

Additional reporting by Christine Jean-Louis.

Resources

Focal Segmental Glomerulosclerosis 

National Kidney Foundation

Understanding FSGS

NephCure

 

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How Gucci Mane & Keyshia Ka’oir Manage His Mental Health https://blackhealthmatters.com/how-gucci-mane-keyshia-kaoir-manage-his-mental-health/ Mon, 27 Oct 2025 20:58:19 +0000 https://blackhealthmatters.com/?p=61371 Gucci Mane discussed managing his mental health challenges on The Breakfast Club, where he appeared with his wife Keyshia Ka’oir Davis. The couple described the plans they have in place […]

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Gucci Mane discussed managing his mental health challenges on The Breakfast Club, where he appeared with his wife Keyshia Ka’oir Davis. The couple described the plans they have in place to address his recurring episodes of psychosis. We got some insight from professionals.

He Reveals His Mental Health Diagnoses in a New Book

The rapper, whose real name is Radric Davis, recently released a book titled Episodes: The Diary of a Recovering Mad Man (Simon & Schuster). It was Co-written with Kathy Iandoli. Within its pages, the rapper reveals he has been diagnosed with “bipolar disorder and schizophrenia.” It is part of a growing canon of texts in hip-hop culture that address mental health-related stressors.

Davis touched on his mental health struggles in his previous book, The Autobiography of Gucci Mane, but his latest book goes into his challenges in graphic detail. He is not the only artist sharing his struggles. Big Sean co-authored Go Higher: Five Practices for Purpose, Success, and Inner Peace with Jay Shetty earlier this year. Juicy J talked about his mental health in his 2023 book Chronicles of the Juice Man: A Memoir.

Understanding Schizophrenia

Schizophrenia is a severe mental illness that heavily impacts one’s thoughts and behavior. “Schizophrenia is one of the top 15 leading causes of disability worldwide,” according to the National Institute of Mental Health.

What Is Bipolar Disorder?

“Bipolar disorder (formerly called manic-depressive illness or manic depression) is a mental illness that causes clear shifts in a person’s mood, energy, activity levels, and concentration,” per the National Institute of Mental Health.

Both Conditions Face Intense Stigma

Like anxiety and depression, there can be long periods of time where a person with bipolar disorder and schizophrenia does not have an episode. While generalized anxiety disorder and depression are more frequently discussed by those in the limelight, bipolar disorder and schizophrenia are less visible.

The couple shared that Davis has not had a full-blown episode in years.

“The stigma is stronger for those diagnoses than, say, anxiety or depression, even though depression and anxiety can also be very debilitating. It’s not always perceived with the same lens,” said Cassandra Raphael, MD, MPH.

“There is a lot of stigma that comes with those classes of diagnosis with schizophrenia and bipolar,” said Stacy McCall-Martin, LMFT, DSW-C, a therapist with firsthand clinical experience working with people facing the condition.

“Specifically in the Black community,” added Martin. “We are coming from lineages where we don’t talk about these types of things.”

Recently, Cardi B, who revealed her own bouts with depression during a press run for Am I The Drama?, shamed Nicki Minaj by alleging she had been diagnosed with it. “Quiet as kept, the truth is you have been diagnosed with schizophrenia and bipolar disorder for almost 9 years,” she wrote in a post on X, according to Hot 97. The alleged diagnoses were a weapon in their ongoing social media war.

Gucci Gets Vulnerable

The Breakfast Club host Charlemagne Tha God praised Radric for his extreme vulnerability when Radric opened up about his symptoms.

“You dealing with stuff like you’re hearing voices,” he said. Paranoia can accompany the symptoms. “I might think that you trying to fight me you ain’t even did nothing,” he continued. “That’s what I used to deal with.” “I might think that you trying to fight me you ain’t even did nothing,” he continued. “That’s what I used to deal with.”[sic]

Keyshia, a celebrated beauty mogul in her own right, confirmed the severity of the episodes her husband faces. “It was really, really bad. It’s really sad because you’re seeing someone you don’t know,” she said.

She clarified that she was not afraid of her husband. She also explained that she insists the couple avoid specific environments during Davis’ episodes, including tall buildings and high balconies, out of concern that he might commit an act of self-harm.

“I’m like, is he going to jump? Is the voice going to tell him to jump?” said Keyshia. “That’s the scary part. Not me being scared of him hurting me.”

Was the interview Reminiscent of the one with Mike Tyson, Robin Givens, and Barbara Walters?

Some on social media compared the interview with the 1988 interview Mike Tyson and Robin Givens gave to Barbara Walters during their brief marriage. Givens shed light on Tyson’s mental health at the time and expressed concerns that he might self-harm.

“He’s got a side to him that’s scary,” Givens told Walters then. “Michael is a manic depressive.” Bipolar disorder was previously referred to as manic depressive disorder. The term has since been phased out in the medical field.

What kinds of Treatments are available for Schizophrenia and Bipolar Disease?

Schizophrenia and bipolar disorder can be treated with a combination of therapy and medications. “It cannot go unmedicated, and the quicker the better,” said Keyshia during the interview.

“Therapy and medication. Those two go hand in hand,” confirmed Martin.

Access to these treatments is not equitable due to disparities in the healthcare system. “People who are most impacted living with the symptoms are not getting the care that they need,” said Martin. “The ones that are out on the margin don’t have those resources.” How

Have Gucci Mane’s Mental Health Challenges Shown Up In The Public Eye?

Both diagnoses are marked by erratic behavior. Davis has shown this repeatedly in his conduct on social media, where he has made accusations and called out people in the industry. There are now family plans in place to prevent this from happening and protect his privacy.

How Does Keyshia Ka’oir Davis Support Her Husband Through Episodes?

Keyshia explained how she helps protect her husband during an episode. “Stress is a trigger, and stress brings on episodes. So, I don’t allow any stress,” she said. She manages their businesses and intervenes to limit their exposure to stressful situations.

Stress has routinely been linked to aggravating bouts of psychosis.

“I have a system,” Ka’oir told The Breakfast Club. “I take his apps off his phone. First thing I do, I delete Instagram. I delete everything. Even if I gotta change his password, I’m changing it because I don’t need the public to know he’s having an episode.”

McCall-Martin confirmed that having a go-to protocol is useful. “It’s absolutely imperative to have a plan or pre-plan in place,” she said.

“Having a structured plan in place for the caretaker and for the person experiencing the symptoms helps to keep things as stable as possible around them.”

Raphael emphasized the importance of consulting with the person you are caring for while they are well. “Establish that plan with your loved one,” she recommended, noting that they may not have the “insight” necessary to do so in the midst of an episode.

“Once you’ve had your first break or your first manic episode, your first break of psychosis, then you know that. ‘Okay, this can happen to me.’ And hopefully, as a final and essential part of the process of recovering from that episode, is establishing a plan,” she continued.

What Kind Of Support Do Caregivers Need?

Bipolar disorder does not only affect the individual—it also places a significant burden on caregivers and family members,” according to a 2025 article from Frontiers in Psychology.

The Breakfast Club asked Keyshia how she cares for her mental health, and she disclosed that she does not have a therapist. McCall-Martin advises that caregivers routinely receive mental health treatment.

“There’s a large possibility of burnout when it comes to providing care for someone,” she said. “You can’t pour from an empty cup,” added Raphael.

“You want your relative to be well, and you invest wholly into that project, but it can’t come at the cost of your own mental health, so you need to sleep well. You need to eat well. You need to be able to take a break when you need to take a break.”

 

Resources

National Institute of Health: Schizophrenia

National Institute of Health: Bipolar Disorder

Community Mental Health Journal

Nature.com

Frontiers in Psychology

 

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How Gucci Mane & Keyshia Ka’oir Manage His Mental Health - Black Health Matters Gucci Mane discussed managing his mental health challenges on The Breakfast Club, where he appeared with his wife Keyshia Ka'oir Davis. The couple described the plans they have in place to address his recurring episodes of psychosis. We got some insight from professionals. He Reveals His Mental Heal bipolar disorder,Episodes The Diary of a Recovering Mad Man,Gucci Mane,Keyshia Ka'Oir,Keyshia Ka'oir Davis,Schizophrenia,The Autobiography of Gucci Mane,The Breakfast Club,Gucci Mane mental health download-1
How Sleep Affects Chronic Disease https://blackhealthmatters.com/sleep-affects-chronic-disease/ https://blackhealthmatters.com/sleep-affects-chronic-disease/#respond Thu, 23 Oct 2025 16:04:27 +0000 http://www.blackhealthmatters.com/?p=13580 New research confirms that poor sleep habits are tied to chronic diseases like diabetes, heart disease, obesity, and depression. Those risks run deeper than most expect. Chronic illness affects millions, […]

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New research confirms that poor sleep habits are tied to chronic diseases like diabetes, heart disease, obesity, and depression. Those risks run deeper than most expect.

Chronic illness affects millions, and more health experts now treat sleep as a key part of prevention and recovery. The CDC links sleep deprivation and sleep disorders to serious long-term health outcomes.

Diabetes

Studies show that short or disrupted sleep can raise the risk of type 2 diabetes. Sleep affects how the body regulates blood sugar, and poor sleep can lead to higher levels of hemoglobin A1c, a marker for long-term glucose control. Improving sleep quality may help people with diabetes manage their condition more effectively. Harvard Health notes that sleep loss disrupts insulin sensitivity and increases inflammation, both of which play a role in diabetes.

Heart Disease

Sleep apnea is a condition where breathing repeatedly stops and starts during sleep. It can make the body work harder overnight and raise the risk of high blood pressure, stoke, and irregular heartbeats. The National Heart, Lung, and Blood Institute reports that treating sleep apnea can lower the chance of cardiovascular risk and improve survival. One common treatment is a CPAP machine, which helps keep airways open while you sleep. Studies show that using a CPAP can reduce the risk of dying from heart-related issues in people with moderate to severe sleep apnea.

Obesity

Sleep affects metabolism and appetite. Children and adults who sleep less tend to gain more weight. The CDC highlights that sleep loss can disrupt the hypothalamus, the part of the brain that controls hunger and energy use. This is especially important for kids, whose brains are still developing. Kids who sleep less are more likely to gain excess weight, and those patterns can carry into adulthood.

Depression

Sleep and mental health are closely linked. People who don’t sleep well are more likely to feel anxious, overwhelmed, or depressed. Another common sleep disorder is insomnia, which means having trouble falling asleep, staying asleep, or waking up too early without feeling rested. In fact, sleep problems often show up before a mental health diagnosis. The same Harvard Health review found that teenagers with sleep issues developed depression 69 percent of the time and anxiety 27 percent of the time. Another study of young adults ages 21 to 30 showed that those with a history of insomnia were four times more likely to develop major depression within three years. Treating sleep disorders like apnea or insomnia can help ease symptoms and improve mood. That’s why sleep is now considered a key part of mental health care.

Emerging Insight

A global study of over 88,000 adults found that irregular sleep schedules, such as going to bed at different times or having a disrupted body clock, are linked to higher risks for dozens of diseases. These include liver damage and even gangrene.

Researchers say it is time to rethink what “good sleep” means. It is not about how many hours you get. It’s also about keeping a steady rhythm. That rhythm is called your circadian rhythm. It is your body’s natural 24-hour cycle that helps regulate sleep, energy, digestion, and immune function. When this rhythm is thrown off, it can trigger inflammation and raise the risk for chronic illness.

If you have been feeling off beat and restless, it may be time to take sleep seriously. Getting good rest is not a luxury. It is part of staying well. Talk to your doctor and consider tracking your sleep. Small changes can help your body recover what it’s been missing.

Resoruces:

Sleep Deprivation, Sleep Disorders, and Chronic Disease

How sleep deprivation can harm your health – Harvard Health

Advancing Heart, Lung, Blood, and Sleep Research

Phenome-wide Analysis of Diseases in Relation to Objectively Measured Sleep Traits and Comparison with Subjective Sleep Traits in 88,461 Adults

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Inside Rick Ross’s Health Transformation https://blackhealthmatters.com/rapper-rick-ross-loses-100-pounds/ https://blackhealthmatters.com/rapper-rick-ross-loses-100-pounds/#respond Thu, 23 Oct 2025 16:02:32 +0000 https://blackhealthmatters.com/?p=20195 Rick Ross built a public persona around confidence. When his health gave out mid-flight, the consequences were immediate. That moment forced him to rethink what strength meant and what it […]

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Rick Ross built a public persona around confidence. When his health gave out mid-flight, the consequences were immediate. That moment forced him to rethink what strength meant and what it would take to recover.

The Wake-Up Call

In 2011, Rick Ross suffered two seizures within six hours. One happened mid-flight and forced his private jet to make an emergency landing. At the time, he reportedly 350 pounds, slept just three hours a night, and was eating 24-ounce steaks a 4 a.m., according to PEOPLE. His doctor told him that if he did not change his lifestyle, he might not survive.

Building a Routine That Worked

Ross began working with a Reebok trainer and developed a CrossFit-inspired workout that he called “RossFit.” His routine includes a warm-up jog followed by five exercise stations such as deadlifts and pushups. He trains for 30 minutes, four days a week. He also started working out with friends to stay motivated.

According to XXL, Ross told Men’s Health, “I’m happy. I’m still losing weight, and now I’m starting to build hard muscle in places.”

Ross didn’t cut everything out at once. He knew that quitting all the foods he loved would only backfire, so he made gradual changes instead. That approach helped him stick with it and avoid falling back into old habits.

Eating With Intention

Ross did not eliminate fast food entirely. He told PEOPLE that he still eats at places like Checkers and Wingstop, but only between noon and 5 p.m., and only two or three days a week. The rest of the time, he works with a chef to prepare meals that are healthy and satisfying.

“My advice for anyone looking to lose weight is to not make it feel like a job,” he said. “You’ve got to enjoy it.”

Sleep became a priority as well. Ross realized that rest was just as important as food and movement, especially after years of pushing through exhaustion.

More Than a Decade Later

By 2025, Ross has maintained a weight loss of at least 75 pounds. Some estimates place the total closer to 100. He continues to train, eat intentionally, and speak publicly about the importance of health. His transformation has sparked broader conversations about wellness among Black men, especially in communities where structural barriers delay diagnosis and treatment.

Ross’s journey began with fear and moved through trial and error. He didn’t set out to meet a goal on the scale. He focused on building a routine that felt possible. Over time, that routine became a life that supports him and it’s still unfolding.

Resources:

Rapper Rick Ross Reveals How He Lost 75 Lbs. to Save His Life After His Seizures

Rick Ross Reveals How Much Weight He Lost to Avoid Seizures

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How Pumpkins Can Improve Our Oral Health https://blackhealthmatters.com/how-pumpkins-can-improve-our-oral-health/ Wed, 22 Oct 2025 20:24:50 +0000 https://blackhealthmatters.com/?p=61227 Pumpkins are back in season! But did you know that beyond its flavor, pumpkins hold real superfood benefits, especially when it comes to oral health? It is packed with vitamins […]

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Pumpkins are back in season! But did you know that beyond its flavor, pumpkins hold real superfood benefits, especially when it comes to oral health? It is packed with vitamins and minerals that promote strong teeth, healthy gums, and a resilient immune system.

A Holistic Approach to Oral Health

To learn more, Black Health Matters sat down with Dr. Anjali Rajpal, a Beverly Hills-based dentist known for her holistic approach to dental care, who describes herself as a practitioner of the art of dentistry. Dr. Rajpal explained how pumpkins support our oral health, the connection to overall wellness, and how small daily changes can make a big difference in long-term health.

Pumpkins are Rich in Beta-Carotene (Vitamin A), plus Vitamin C and Minerals.

BHM: Beyond the fall flavor, what makes pumpkin such a powerful superfood for our teeth and gums?

Dr. Rajpal: Pumpkins are similar to carrots in color, which means they’re rich in beta-carotene that converts into vitamin A. This supports tissue repair and the mucous membranes in the mouth. Pumpkins also contain vitamin C, which helps reduce inflammation, and minerals like zinc and magnesium, both of which have anti-inflammatory properties. These nutrients help strengthen enamel, remineralize the tooth surface, and protect the mouth from bacterial invasion and erosion.

Vitamin C helps reduce inflammation and enables you to resist cavities.

BHM: Can you specify which vitamins and minerals play the most significant role in oral health?

Dr. Rajpal: Vitamin A, vitamin C, zinc, and magnesium are the main ones. Vitamin C is highly antioxidative, which helps reduce stress and inflammation in the tissues. This allows the teeth and gums to help resist cavities, decay, and general wear.

Your Pumpkin Spiced Latte Will Not Give You Oral Health Benefits

BHM: How should people consume pumpkins for oral health benefits — is it just by eating them, or can it be applied directly to the mask?

Dr. Rajpal: It doesn’t really matter whether you eat or drink it—it’s more about how you consume it. Avoid pairing pumpkins with refined sugar, since sugar increases inflammation and the risk of cavities. Instead, combine it with natural ingredients like cinnamon or bananas for sweetness. The key is to consume it in a non-sugary form.

BHM: How does eating pumpkins affect not just our teeth but our overall oral wellness?

Dr. Rajpal: It nourishes the gums and enamel, helps fight oxidative stress, and balances the oral microbiome, which strengthens the foundation of your smile. You want to minimize harmful bacteria and maintain balance in your mouth’s natural ecosystem. Good nutrition supports mineral balance, promotes cellular repair, and contributes to overall health, all of which lead to a healthier smile.

Daily Habits for Maintaining a Bright, Healthy Smile

BHM: What are your top daily habits for maintaining a bright, healthy smile?

Dr. Rajpal: The most crucial thing is mechanical removal of plaque. The plaque is soft, so a soft-bristle toothbrush works perfectly. Brush all surfaces of the teeth and angle the bristles slightly under the gums to clean along the gum line. Flossing is just as important—it’s the only way to clean between tight contact points. Go slightly below the gumline to remove bacteria that collect there. Brush at least twice a day and floss once a day. Mouthwash is also great. I recommend natural ones with essential oils rather than synthetic flavorings. Iodine salt is antibacterial and helps reduce bacterial load, especially for patients with mild gum disease or deeper gum pockets. Lastly, an alkaline-based diet is essential. Too much acid causes inflammation and breaks down the tooth structure. Leafy greens and other alkaline foods create an environment where bacteria are less likely to thrive.

BHM: Can you give examples of what an alkaline diet includes?

Dr. Rajpal: Leafy greens are a significant component, along with fresh fruits that aren’t high in sugar, like blueberries and raspberries, which are also rich in antioxidants. Nuts, seeds, beans, and non-starchy vegetables are great as well. On the other hand, acidic foods include soda and sugary juices. Constantly sipping on sweet drinks exposes your teeth to acid for long periods. It’s better to eat or drink and then give your mouth a break so your saliva can naturally cleanse it. Meats, grains, and processed foods tend to be more acidic and contain chemicals that stress the immune system. Crunchy fruits and vegetables help naturally clean your teeth as you eat them, which is another bonus.

What to DIY and What to Leave to the Pros

BHM: What advice do you have about popular social media whitening hacks and over-the-counter whitening products?

Dr. Rajpal: Many over-the-counter products contain preservatives that can become acidic and irritate enamel. I’ve had patients come in using whitening toothpaste that’s too abrasive, so I tell them to switch to something gentler, like Sensodyne or MI Paste. MI Paste helps remineralize tooth structure with calcium and phosphate and reduces sensitivity. That’s why I recommend professional whitening in a dental office — we use pure hydrogen peroxide without harsh chemicals. It’s safer and less likely to cause sensitivity. It’s always better to use products that help strengthen enamel instead of stripping it down.

BHM: What small changes can people make at home that can have a significant impact on their oral health?

Dr. Rajpal: If you’re not effectively removing plaque with a manual toothbrush, consider switching to an electric one. The key is to let the brush do the work—hold it in place and slowly move it from section to section while slightly angling the bristles toward the gums.

For those with braces, wires, or gum recession, I recommend the Sonicare Power Flosser or a Waterpik. These water jets help clean between teeth and in areas that brushes and floss might miss.

Oil pulling with coconut or sesame oil is another excellent option. You rinse with it before brushing to help dislodge bacteria. Coconut oil is antifungal and antibacterial—so it’s safe, natural, and beneficial for your mouth.

 Pumpkins may be a fall favorite, but their benefits last all year long.

From protecting enamel to reducing inflammation, pumpkins remind us that oral health is deeply connected to overall wellness. Dr. Rajpal stresses the connection between oral inflammation and overall bodily health, citing its links to conditions like heart disease and diabetes, among others.

She also advocates for improving access to dental care and nutrition education in underserved communities. Through her work with Face Forward, a nonprofit that helps victims of abuse by reconstructing their smiles, Dr. Rajpal continues to show how oral health can restore not only confidence but also hope. This fall, let the spirit of the pumpkin season inspire you to evaluate your oral health. Take this opportunity to review the simple, everyday habits that contribute to a healthy smile.

Resources

Pumpkins are a Dental Health Superfood

The American Journal of Medicine

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Jayla Health Knows Perimenopause https://blackhealthmatters.com/jayla-health-knows-perimenopause/ Wed, 22 Oct 2025 18:46:33 +0000 https://blackhealthmatters.com/?p=59893 Perimenopause is often misnamed, misunderstood, or missed entirely, especially for Black women. The symptoms may be subtle, but the stakes are high. When care falls short, women lose time, answer,s […]

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Perimenopause is often misnamed, misunderstood, or missed entirely, especially for Black women. The symptoms may be subtle, but the stakes are high. When care falls short, women lose time, answer,s and trust. Jayla Health is working to change that.

We spoke with Antonia Walters, Co-Founder and CEO of Jayla Health, Inc., and Dr. Rachel Blake, Medical Advisor to Jayla Health, Inc., about what perimenopause really looks like and how culturally aware care can make all the difference.

Why Naming Perimenopause Matters

“When perimenopause is dismissed, Black women often end up suffering in silence for years,” said Antonia Walters. “Symptoms like heavy bleeding, brain fog, or fatigue can be brushed off as ‘just life,’ which delays treatment and increases the risk of more serious health issues, such as anemia or high blood pressure.”

She added, “For us, this stage is a health crossroads. Research from the SWAN study shows Black women tend to reach menopause earlier, experience longer and more intense symptoms, and face higher risks like fibroids and heart disease.”

Dr. Rachel Blake agreed. “When perimenopause symptoms are written off, particularly by healthcare providers, it truly endangers black women’s lives and livelihoods.”

What Support Should Look Like

“Supportive, culturally aware care means listening fully and meeting us where we are,” said Walters. “It looks like a provider asking about lived experience. Whether that’s how fibroids run in a family, or how cultural beliefs around menopause shape expectations.”

“It also means acknowledging systemic disparities. Black women are more likely to undergo hysterectomies, face misdiagnosis, or have symptoms dismissed as stress. Navigating these health risks requires more than just medical care. It needs understanding and care teams that reflect the women they serve.”

Dr. Blake added, “Culturally aware or culturally competent care takes into consideration the full lived experience of the patient in addition to their medical needs. It centers culture within discussions about goals of care, treatment plans, and even fears and anxieties about medical care.”

“For black women in particular, this is important given the historical context of racism and abuse in our healthcare system. This has unfortunately been passed down through generational trauma and must be considered in the care of every black woman.”

Hormone Changes Can Start Earlier

“I wish more of us knew that hormone changes can start earlier than expected, sometimes in the late 30s, and that symptoms don’t always look like hot flashes,” said Walters. “Subtle shifts like disrupted sleep, anxiety, or irregular cycles may be the first signs.”

“The SWAN study has shown that Black women often face heavier bleeding, more intense hot flashes, and longer symptom duration than White women. Understanding this helps us track what’s happening and seek support sooner, instead of wondering if it’s ‘just stress.’ With the right information and tools, we can take proactive steps to feel prepared instead of caught off guard.”

Dr. Blake said, “Throughout our 30s and even 40s, we are often hyper-focused on family planning. Be that childbearing and fertility, or contraception and pregnancy prevention.”

“I wish more Black women knew that during these times, particularly during our late 30s and early 40s, we also need to focus on our overall health. Many women don’t realize that hormonal health is an important component of overall health. Your hormonal health can be closely linked to your bone, heart, brain, and mental health.”

“So, by your overall health during your 30s and 40s, you can set yourself up to thrive during perimenopause, the menopausal transition and beyond.”

Testing That Reflects Your Cycle

“Our test is urine-based and measures follicle-stimulating hormone (FSH), which naturally rises as a woman approaches menopause,” said Walters. “It can be done at home every other day for five days, giving a fuller picture of hormone changes over time.”

“By contrast, most doctors use a blood test that captures only one point in time. That is, unless you have the time and money to go back repeatedly. The real value comes from pairing this data with a telehealth consultation led by a provider specially trained in perimenopause and menopause.”

“No single test can ‘diagnose’ perimenopause, but when results are combined with clinical expertise, the insights are powerful. And because 90 percent of our providers are women of color, patients also see themselves reflected in the care they receive.”

Dr. Blake said, “Jayla’s FSH test is performed in the comfort of your own home, which, for many women, may be easier and more convenient than getting the test done at a physician’s office.”

“FSH can fluctuate over the course of the menstrual cycle, so this type of serial testing is beneficial to obtain a clearer picture of what is happening inside each woman’s body. Following up this hormone testing with a telehealth consult helps patients to understand their results and really put this result into context with their overall symptom profile and menopause journey.”

Care That Doesn’t Dismiss You

“Jayla is building care that goes beyond prescriptions,” said Walters. “We’re a full-stack model that combines testing, telehealth, pharmacy, and education in one place.”

“For Black women, stress, systemic barriers, and the ‘weathering’ effects of discrimination influence our health journey. We’re intentional about making care seamless and supportive so that women don’t feel left behind.”

“Our approach is rooted in science but also in lived experience, recognizing that hormones influence every part of life. Ultimately, our goal is to modernize women’s healthcare. That means care that is accessible, relatable, and trustworthy. Too many of us have been underserved for far too long.”

Dr. Blake added, “All of Jayla’s providers are certified by the Menopause Society, which means that they can counsel patients about the full range of perimenopause and menopause symptoms and treatments.”

“Jayla providers are certified by the Menopause Society and specialize in perimenopause and menopause care. They follow evidence-based guidelines and take every symptom, question, and concern seriously during this often-confusing time.”

That kind of care is expert, evidence-based, and culturally aware. It is exactly what Black women deserve. Ready to take the next step? Jayla Health’s 2-minute quiz can help you get matched with perimenopause care that fits your needs.

Resources:

Expert Perimenopause Care – Jayla

Disparities in Reproductive Aging and Midlife Health between Black and White women: The Study of Women’s Health Across the Nation (SWAN) | Women’s Midlife Health | Full Text

Quiz – Jayla

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Audible Opens The Pillars in Newark https://blackhealthmatters.com/audible-opens-the-pillars-in-newark/ Wed, 22 Oct 2025 00:02:59 +0000 https://blackhealthmatters.com/?p=60733 Audible, the leading creator and provider of premium audio storytelling, has made a significant investment in Newark, its global headquarters since 2007. On Wednesday, October 15th, 2025, Audible CEO Bob […]

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Audible, the leading creator and provider of premium audio storytelling, has made a significant investment in Newark, its global headquarters since 2007. On Wednesday, October 15th, 2025, Audible CEO Bob Carrigan and Newark Mayor Ras J. Baraka joined a host of politicians, dignitaries, community leaders, and entrepreneurs for the opening of The Pillars—a 15,000 square foot community-centered investment. The three Black-owned businesses chosen have our well-being in mind in different ways.

What Exactly are the Pillars?

The company used philanthropic dollars to renovate the ground floor of 33 Washington Street, transforming it into a retail hub in the heart of the city’s Arts and Education district. It is steps away from the Newark Museum of Art and across the street from Harriet Tubman Square. This is an area the company has invested in through other arts initiatives.

“I am really thrilled to be celebrating the grand opening of The Pillars. This is our largest, most ambitious investment yet in Newark’s future. By transforming 15,000 square feet here and the facade of the building, we’re further deepening our roots in the city, because we understand that when Newark thrives, we all thrive,” Carrigan explained. “The Pillars represent this shared destiny, a space that brings together local entrepreneurs, celebrates creativity, and reflects the best of Newark.”

The interior court of The Pillars includes Audible listening booths where visitors can consume some of the latest content. Photo courtesy of Audible

Mayor Ras J. Baraka applauded the investment and discussed how corporations, the Newark Alliance, and art institutions are collaborating with the city. “You see that the art institutions and the corporations that have bought into what we are trying to do in the city of Newark, they have decided to work collaboratively to lift our city economically, socially, mentally, and spiritually, right across the street from Harry Tubman Square, he explained.

Finding the Retailers

Aisha Glover, Global Head of Urban Innovation at Audible, oversaw this massive project over four years. She collaborated with the economic impact, neighborhood investment, real estate, design, and various other departments to complete this project. Glover also found the retailers she thought would be the best fit for the space.

The three new retailers join 25 others who have come through Audible’s Business Attraction Program. They can receive up to $250,000 in undiluted grants for office space, relocation assistance, stipends, and mentorship with Audible employees, among other perks.

Tansy, Plant and Ecclectic Home Decor

The COVID-19 pandemic taught us how critical plants can be to our environment and to our physical and mental well-being. But Shawna Christian was way ahead of us.

She opened her first store in Burbank in 2019, after running an IT company. She told the LA Times, “I turned 50 and realized I wanted to do something different before I passed away. So I spent all of my money and opened a plant store.” Well, she’s shaking things up again by moving to Newark.

Christian said she didn’t know a lot about Newark before she arrived, but her experience has been impressive. “I’ve never seen such love and support from a city for creative artists and entrepreneurs. It is mind-blowing what is happening in the city,” Tansy’s founder said. “The Pillars is a huge representation of what this area is going to be.”

In addition to plants, Tansy has a cornucopia of fair-trade items from all over the world. And she ships!

Pooka Pure and Simple

Of the three retail tenants coming to The Pillars, Dawn Fitch, owner of Pooka Pure and Simple —a natural brand of body products —is the only one who has previously had a store in Newark. For her company, celebrating 25 years in business this year, it was a homecoming.

Fitch joked, “I’ll be sandwiched between my favorite things, plants and yoga!. But I also want to say to Audible, like this opportunity, this grant, is amazing as a small business, after 25 years, to receive this type of support is just unfounded, and it isn’t just the financial support, it was the team who is amazing,” she said.

With a larger space, it is also an opportunity to bring new things to her Pookalitas (her loyal customers).”Something new that we’re doing is a fragrance blending bar, because we think scent is so much a part of people’s stories,” Fitch said.

HealHaus Will Open in November

Darian Hall, founder of HealHaus, felt like he didn’t have the support he needed to thrive with his studio in Brooklyn.

“The impetus for me starting that business was to really provide mental health services and wellness for our community. And it’s deeply personal for me. Why I got into this work. And a lot of times when you’re on your entrepreneurial journey, you feel like you’re on an island by yourself,” he explained.

When I got the call from Audible to be a part of this program, it was like, Wow, God makes no mistakes. And it’s been an incredible blessing to be a part of this.

I am so excited to bring the services we offer at HealHaus to the city of Newark because the community needs them. We need the yoga, the meditation, the therapy right for our communities to really thrive, and for Audible to back that, is really amazing.”

Check out the website for the full lineup of classes and the menu at the cafe.

Mayor Baraka said he was excited to see that the retailers looked like him. He is proud that companies like Audible are holding the line. “So, it is important for us to show people what humanity looks like, what democracy looks like, and what the beauty of diversity can do to cities that are growing.”

 

 

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The Pillars ribbon cutting The Pillars interior court 2 The interior court of The Pillars includes Audibles listening booths were visitors can consume some of the latest content. And be awed by a lighting installation which is sound and voice activated designed by Nina Cooke John Tansy Pooka HealHaus
K. Michelle Opens Up About the Toll of Cosmetic Surgery https://blackhealthmatters.com/k-michelle-opens-up-about-the-cost-of-cosmetic-surgery/ https://blackhealthmatters.com/k-michelle-opens-up-about-the-cost-of-cosmetic-surgery/#respond Tue, 21 Oct 2025 19:19:55 +0000 https://blackhealthmatters.com/?p=27813 K. Michelle has been through more than most people know. Her voice has taken her from R&B to country, but lately she’s been talking about something else. After years of […]

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K. Michelle has been through more than most people know. Her voice has taken her from R&B to country, but lately she’s been talking about something else. After years of surgeries and recovery, she’s speaking up about the damage her cosmetic procedures left behind and what she wants other women to understand before they make the same choice.

What She Told Cam Newton

K. Michelle joined Cam Newton on his Funky Friday podcast for a conversation that felt honest and unfiltered. They talked about music, body image, and the years she spent recovering from cosmetic procedures.

When Cam asked what she wanted people to know, she didn’t hesitate. “I’m not against plastic surgery. Do your research. Do what you need to do if that is for you,” she said. “But no amount of plastic surgery is going to make you love yourself anymore.”

She described what it was like to have one of the most talked-about bodies in the industry while quietly dealing with pain. “I had the hugest [butt] in life. I could not walk,” she said. “People magazine said I had one of the best bodies ever. That almost cost me my life.”
She explained that once silicone is injected, it doesn’t leave.

“You can take out a breast implant. You can take out things like that. But once you inject silicone shots into your body, that is motor oil that forever lives in your body.” She called it a permanent decision for a temporary fix.

The conversation also touched on shifting beauty standards. K. Michelle is no stranger to shifting trends, especially when it comes to the body types that have been favored over the decades. The truth is, it moves fast and rarely makes room for those who made permanent choices to fit in. These days, she consistently emphasizes the importance of clarity before going on the table.

How It Started

Her honesty didn’t start with Funky Friday. K. Michelle has long been vocal about what her body’s been through.

“I had just got a new record deal, and I felt like the bigger the butt, the bigger the career,” she told Essence in 2022. “I already had a big butt. It was just ridiculous.”

In 2012, she underwent illegal silicone injections to enhance her hips and butt. “I wanted to look like a Coke bottle,” she told PEOPLE. She had already had her breasts augmented and fat transferred from her stomach to her rear. When she learned that one of her favorite rappers had done it, she decided to go through with the injections, despite knowing the man in Atlanta offering them wasn’t a licensed doctor.

For a while, she was happy with the results. Her career gained momentum, and she was cast on Love and Hip Hop. But in 2017, her body began to break down. She experienced migraines, fatigue, and pain in her back and legs. Doctors initially suspected lupus before discovering that the silicone had spread through her tissue and was threatening her ability to walk.

She tried liposuction, hoping it would remove the material. Instead, it pushed the silicone further. After a few performances on tour, she was rushed to the emergency room.

Rebuilding Her Body, Reclaiming Her Voice

What followed was a long and painful recovery including multiple surgeries, two blood transfusions, and the removal of dead tissue. Speaking with PEOPLE, she explained, “I had these lumps, and I was very disfigured.

Her body was inflamed, her mobility was compromised, and the procedures were physically and emotionally draining. She spent months healing, adjusting to a body that no longer matched the image she once pursued. The experience forced her to slow down, reflect, and begin speaking publicly about what she had endured.

In her 2022 appearance on the Tamron Hall Show, K. Michelle described the physical toll of removing illegal silicone injections. She began the process of reclaiming her health and removing the foreign substances from her body, a journey that would span years and multiple surgeries.

“It took me about 13 surgeries later in three years.” she said.

Filming Her Truth

In 2022, K. Michelle launched My Killer Body with K. Michelle on Lifetime. The show featured real people dealing with botched procedures, emotional trauma, and the aftermath of chasing beauty. It also documented her own recovery and the realities of living with permanent damage.

The show challenges how beauty is presented online, where final images rarely reflect the risk or recovery behind them.

Healing With Honesty

Recovery is ongoing. K. Michelle still struggles with the physical and emotional impact of her surgeries. “Some days, I’m like, I’m never getting back on that table,” she told Essence. “But then I might put on something, and a dent from my reconstruction is there, and I say, I’m going to get this fixed. I’m human. I go back and forth.”

She’s faced speculation about her appearance, with fans assuming she’s had more work done. But she emphasizes that her focus is on health, not perfection.

“I feel hopeful, and I feel happy to be healthy and able to function,” she said. “I think that brings another beauty within itself.”

Beauty Isn’t Always Easy

K. Michelle’s story reframes the idea of beauty. She isn’t opposed to cosmetic surgery. What she challenges is the misinformation and lack of transparency that often surround it. Her experience has become a platform for pushing safer, more honest conversations about body modification, especially in communities where access to safe care is limited. She urges people to look beyond the polished results and understand the risks, recovery, and the emotional toll.

For her, surgery is not a casual choice. It requires research, preparation, and a clear understanding of what’s at stake. You only get one body, and it deserves to be protected.

Resources:

K. Michelle & Cam get BRUTALLY honest about Love, Regret, Dating Mistakes & Country Music Truths

With ‘My Killer Body,’ K. Michelle Wants To Tell ‘The Whole Truth’ About Plastic Surgery | Essence

K. Michelle Says Removing Butt Injections Was ‘Scary’

K. Michelle Had to Get 13 Operations to Remove Botched Silicone Injections

Watch My Killer Body with K. Michelle Full Episodes, Video & More | Lifetime

 

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Care for HER: A New Model for Black Breast Cancer Support https://blackhealthmatters.com/care-for-her-a-new-model-for-black-breast-cancer-support/ Mon, 20 Oct 2025 18:09:06 +0000 https://blackhealthmatters.com/?p=60503 Many public narratives still portray breast cancer as a disease of older white women. They shape screening guidelines, design clinical trials, set treatment protocols, and decide where cancer centers go. […]

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Many public narratives still portray breast cancer as a disease of older white women. They shape screening guidelines, design clinical trials, set treatment protocols, and decide where cancer centers go. But Black women face a different reality. In our communities, women receive diagnoses at younger ages, experience higher mortality rates, and face triple negative breast cancer (TNBC), a subtype with no approved therapies to prevent recurrence.

We spoke with Ricki Fairley, CEO and Co-Founder of TOUCH, The Black Breast Cancer Alliance, and Sue Weldon, Founder and CEO of Unite for HER, about what it means to build care that reflects the truth of Black women’s experiences and what it takes to change the system.

How Breast Cancer Impacts Us Is More Than Just Data Points

“The devastating mortality numbers associated with being Black and diagnosed with breast cancer are so much more than just data points, they validate a wholly different lived experience and disease,” said Ricki Fairley.

“Most people, when they picture breast cancer, picture an older white woman. And everything about breast cancer care has oriented around that perceived ‘typical’ patient. Black women have been largely left out of the conversation.”

Fairley defines Black Breast Cancer as “the constellation of exposures, experiences, and lack of science for Black women diagnosed with breast cancer that causes Black women to face disproportionately worse breast cancer outcomes.”

How TNBC Affects Our Community

Triple Negative Breast Cancer (TNBC) is a fast-growing subtype of breast cancer that doesn’t respond to hormone therapies or targeted treatments. It’s much harder to treat, more likely to return, and disproportionately affects Black women, especially those under 40.

“We now have data that validates that the biology of a Black TNBC breast cancer cell looks significantly different from a white breast cancer cell,” Weldon said. “The treatments that we currently have available were based on clinical trials where the patient participation was not commensurate with the burden of disease.”

In other words, Black women are underrepresented in the very trials that shape today’s treatments, despite facing the highest risks.

TOUCH launched BlackTNBCSanctuary.org in 2024, a TNBC resource created by the community, for the community. Unite for HER expanded access to its Wellness Passport Program, offering integrative therapies, nutrition support, and community care.

“This wrap-around approach ensures that, even in the face of limited medical options, the women we serve are seen, supported, and given the care they need to truly live well,” Weldon said.

Unite for HER’s model is built around restoring quality of life. Patients receive therapies that ease side effects, reduce stress, and help them reclaim joy in their days. The program also fosters community, offering a space where women feel seen and supported.

The Care for HER Model is Designed Especially for Us

Care for HER is a new delivery model for Black breast cancer care. Co-created by TOUCH and Unite for Her, it fuses two proven systems. Patients receive round-the clock nurse navigation rooted in cultural experience, along with integrative therapies such as acupuncture, nutrition counseling, and wellness support. These services are now offered as one unified program, available nationwide and free of charge.

“We asked, what if we combined resources?” said Weldon. “We created a comprehensive approach to help Black women better access and adhere to their treatments. At the same time, we knew it was vital to amplify education about the stark health disparities, most notably that Black women die from breast cancer at a 40% higher rate than white women.”

Why Black Nurse Navigators Are Critical

In 1990, Dr. Harold Freeman created patient navigation to reduce delays in care for Black breast cancer patients. TOUCH Co-Founder Valarie Worthy, a longtime nurse and survivor, trained under Freeman.

“You have to have walked this path, both culturally and medically, to truly understand what it feels like,” said Fairley. “For patients, this is an unparalleled resource, to be understood, to have a trusted expert in their corner, and to see someone who has survived this disease.”

Today, Black women still receive later diagnoses and face a 40 percent higher mortality rate than white women. Most have never encountered a nurse navigator, and even fewer have access to one who shares their lived experience. TOUCH’s program fills that gap with culturally grounded guidance and 24/7 support, because cancer doesn’t care what time it is.

Spotting Access Barriers

The barriers to timely, equitable breast cancer care are layered. Obstacles such as dismissal by doctors at young ages, earned medical mistrust, and the inability to take time off work, among others, are major roadblocks. “There are too many barriers blocking access to care for Black patients to count,” said Fairley.

“Black women under age 35 get breast cancer at twice the rate of white women and die at three times the rate. The screening guideline of age 40 is too late for us.”

Clinical trial participation stays low because Black patients are rarely invited. When they are, it’s often during a crisis, like right after a diagnosis. Some women fear they’ll be denied real treatment. In clinical trials, a sugar pill refers to a placebo, a harmless fake treatment used for comparison. “Many of the Black Blessties who participated in our research mistakenly thought they were going to get a sugar pill and die,” Fairley said.

TOUCH uses the term Blesstie to describe a Black woman diagnosed with breast cancer. It’s a term that honors survival, sisterhood, and support.

Building Impact and Equity

“This growth reflects the importance of forming meaningful referral partnerships,” said Weldon. “We work with hospitals, cancer centers, and community organizations that share our mission. When these partnerships come together, the impact is profound. The metrics clearly affirm the value of this approach in advancing equitable care.”

That impact requires sustained investment. “At Unite for HER, we cannot keep up with the growing demand for our program without it,” Weldon said. “Each woman we serve receives $2,000 in integrative therapies and services. We’re proud to offer these resources. We have to raise the full amount every year.” TOUCH’s 24/7 navigation also depends on funding. “We wish we could offer it to everyone,” Fairley said.

“No woman should have to search for these resources or worry about how to afford them. They should be seamlessly built into every treatment plan,” Weldon said. Fairley added, “Until clinical trials reflect the burden of disease, we won’t get drugs that truly treat Black Breast Cancer.”

The vision is clear. Weldon said, “A future without Black breast cancer disparities is one where no woman feels unseen, unheard or dismissed.” She added, “True equality would be transformative.” Fairley shares that hope. “We don’t want anyone to die of breast cancer. But we do want to close the survival gap for Black women.”

This is where equity really begins.

Resources:

Touch BBCA

Unite for HER | Breast Cancer and Ovarian Cancer Support & Services

Home Page – Black TNBC Sanctuary

Your Wellness Passport | Unite For HER: Helping to Empower and Restore Breast and Ovarian Cancer Patients Nationwide

Care for HER | Unite For HER: Helping to Empower and Restore Breast and Ovarian Cancer Patients Nationwide

Blesstie Love – Touch BBCA

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Black Mothers Are Still Being Left Behind https://blackhealthmatters.com/black-mothers-are-still-being-left-behind/ Mon, 20 Oct 2025 17:50:07 +0000 https://blackhealthmatters.com/?p=60594 Too many Black mothers are walking into pregnancy without the information they need. Too many are walking out of childbirth feeling unsupported or unsure of what just happened. A new […]

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Too many Black mothers are walking into pregnancy without the information they need. Too many are walking out of childbirth feeling unsupported or unsure of what just happened. A new national report helps explain why.

The State of Maternal Health 2025 report, released by The Harris Poll, draws from the experiences of more than 2,300 women across the United States.

The findings highlight how often Black women enter pregnancy without the information they need and leave childbirth without the support they expected.

Whether during prenatal visits or in the weeks after delivery, the gaps in care continue to put lives at risk.

Discrimination Shapes Access to Care

Black women were three times more likely than white women to report discrimination, bias, or profiling as a barrier to receiving care during pregnancy or childbirth.

Forty percent said they faced challenges accessing care at all, including difficulty taking time off work or finding childcare to attend appointments.

These barriers reflect a system that places the burden on patients to navigate obstacles that shouldn’t exist in the first place.

Limited Prenatal Guidance

The report found that Black women are less likely than white women to receive adequate prenatal care. Many also reported not being informed about key aspects of labor and delivery. Among those who have been pregnant:

  • 87 percent did not know cervical checks during labor are optional.
  • 80 percent were unaware that provider-directed pushing can negatively affect both mother and baby.
  • 66 percent did not know lying flat during labor can reduce blood flow to the baby.
  • 56 percent were unaware of the risks associated with elective inductions.
  • 54 percent did not know upright birthing positions can benefit outcomes.

These gaps in education can directly affect how safe and prepared someone feels during childbirth.

Self-Advocacy Is Still Expected

Survey respondents were asked whether they felt they had to fight for care. Black women were more likely to agree.

Self-advocacy is often expected but not always met with clear information or responsive care.

For many Black mothers, it means carrying the weight of being both the patient and an advocate.

That kind of pressure can lead to a slow-burning exhaustion, one that leaves mothers feeling unsure and isolated.

Postpartum Support Falls Short

Among Black women who have been pregnant, 59 percent experienced postpartum mental health issues. Nearly half of those women said they received little or no support. More than half strongly agreed that the standard six-week checkup is not enough. And nearly one third said they felt forgotten once the baby was born.

Childbirth is still treated as a finish line, when it should be the start of support.

While delivery receives clinical attention, the weeks and months that follow are often overlooked. Emotional wellbeing, physical healing, and mental health support are treated as optional, leaving many Black mothers to navigate postpartum challenges without consistent care or follow-up.

Centering Recovery

When asked what should change first if Black women were centered in the design of maternal care, respondents pointed to patient education and postpartum support. That includes clear information about birthing positions, pain management options, and mental health resources. It also requires providers to stop assuming that patients already know what to expect.

Christina Lojek, Research Manager at The Harris Poll, reflected on the emotional toll behind the numbers. “I think women feel like they are alone and drowning, but don’t know how or want to scream for help because it feels like they are expected to just go without and get it done.”

She went on to describe how that pressure is shaped by cultural expectations. Pregnancy and childbirth are often treated as something women should push through, even without support, because generations before them did. That belief feeds into the bounce-back mentality, where recovery is rushed, care is minimal, and mothers are expected to move on without acknowledgment of what they’ve endured.

This study moves past statistics and into lived experience. It reflects what Black mothers have been naming for years and gives advocates something concrete to work with. It’s a step toward accountability, and a reminder that better care begins with paying attention to what’s been ignored.

Resources:

Third Annual State of Maternal Health Report

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What Finding Comfort in True Crime May Cost Us https://blackhealthmatters.com/what-finding-comfort-in-true-crime-may-cost-us/ Mon, 20 Oct 2025 17:42:45 +0000 https://blackhealthmatters.com/?p=60655 It starts with a podcast on your commute. A Netflix binge after dinner. A YouTube rabbit hole before bed. For many, true crime has become a go-to way to unwind. […]

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It starts with a podcast on your commute. A Netflix binge after dinner. A YouTube rabbit hole before bed. For many, true crime has become a go-to way to unwind. But psychologists say that comfort might be masking something deeper. The genre’s popularity raises questions about how we process trauma, fear, and justice.

The Rise of True Crime Culture

True crime has gone mainstream. Once a niche genre, it now streams alongside rom-coms and dramas, drawing millions with every release. Each new series sparks online buzz, Reddit threads, and amateur investigations. Viewers dig into case files, map timelines, and debate motives. While that scavenger hunt can be informative and sometimes empowering, it also prompts a deeper look at why we turn to tragedy for entertainment.

Audio platforms have followed suit. True crime podcasts now dominate listening charts, pulling audiences with suspenseful storytelling and the promise of answers. But experts say that comfort might not be what it seems.

Why Do We Relax to Violence?

In a 2023 interview on The Mel Robbins Podcast, clinical psychologist Dr. Thema Bryant warned that watching true crime to relax may signal unresolved trauma. “If your idea of relaxing before bed is watching three episodes of Law & Order,” she said, “then I would encourage you to think about why is trauma relaxing to you.”

@melrobbins If your idea of “relaxing” before bed is watching a few episodes of Law & Order (or any other true crime show), listen up. @dr.thema has a really important question for you to ask yourself: “Why is trauma relaxing to me?” This was just ONE of the many incredible mic drop moments and knowledge bombs that Dr. Thema, the current president of the American Psychological Association, drops in this episode. Listen now! 🎧 “6 Signs You’re Disconnected From Your Power and How to Get It Back: Life-Changing Advice From the Remarkable Dr. Thema Bryant” #melrobbins #melrobbinspodcast #truecrime #truecrimepodcasts ♬ original sound – Mel Robbins

This goes beyond personal preference. It reflects patterns of emotional regulation. According to Dr. Chivonna Childs of the Cleveland Clinic, repeated exposure to violent content can increase anxiety, skew our perception of danger, and desensitize us to real-world harm. What starts as curiosity can turn into a coping mechanism, one that numbs rather than heals.

What Happens in the Brain?

True crime doesn’t just entertain. It stimulates the brain in specific ways. According to a recent article from NeuroLaunch, watching true crime can activate the brain’s reward system. Each twist, clue, or reveal may trigger a release of dopamine, the chemical that helps us feel pleasure and motivation. That’s part of why the genre feels satisfying or even addictive.

But there’s another side. Cortisol, the body’s stress hormone, can spike during intense or disturbing scenes. This can lead to sleep disruption, emotional fatigue, or increased anxiety, especially when the content is consumed regularly or late at night.

Experts also point out that our brains are wired to scan for threats. True crime taps into that instinct, offering a sense of control or preparedness. But when consumed too often, it can reinforce fear rather than reduce it.

In short, true crime can feel rewarding and informative. But it also has the potential to overstimulate the nervous system, particularly when it becomes part of a nightly routine.

True Crime, True Fixation

In 2025, Boston University researcher and assistant professor Dr. Kathryn Coduto, published a peer-reviewed study that helps explain why true crime feels so immersive and why it can be hard to stop watching, scrolling, or posting about it.

Her research looked at how people engage with crime stories online, especially when those stories are still unfolding. She found that many viewers experience something called cognitive preoccupation, which means they can’t stop thinking about the case. That mental pull often leads to compulsive behavior, like constantly checking for updates or posting theories on social media.

Coduto also introduced the term forensic fandom, a detective-like mindset where everyday people try to solve crimes using online clues. Social media platforms make this easy by offering visibility, shareability, and real-time updates. But the easier it is to engage, the harder it becomes to disconnect. Her study found that:

  • People who felt emotionally connected to victims or perpetrators (called parasocial relationships) were more likely to post compulsively about the case.
  • Compulsive posting and scrolling were linked to negative outcomes, including emotional distress, disrupted sleep, and difficulty focusing on work or school.
  • Women were especially likely to experience emotional strain, often because they saw themselves in the victims or felt a need to stay informed for safety.

Whose Stories Get Seen and Whose Don’t

Most of the cases participants follow involve missing or murdered white women. These stories often receive widespread media coverage, which makes them easier to follow and more visible across platforms.

But this pattern is not random. Research has consistently shown that white victims, especially women, are more likely to receive national attention compared to Black, Indigenous, or other marginalized victims. This imbalance influences which stories people see, share, and emotionally invest in. It also means that many cases involving people of color are overlooked, underreported, or forgotten entirely.

The visibility of a case often determines how deeply people engage with it. When there is more information available, such as news updates, social media posts, or podcasts, it becomes easier for viewers to follow along, form opinions, and feel involved. However, that visibility is often shaped by race, gender, and perceived relatability rather than the facts of the case alone.

This raises a deeper question about whether we’re engaging with the full spectrum of harm or only the stories that are most visible.

What We Can Do Differently

True crime isn’t going away. But how we engage with it can change. Experts suggest setting boundaries around when and how we consume this content. That might mean avoiding it before bed, taking breaks from social media speculation, or choosing stories that honor victims, not exploit them.

It also means being mindful of whose stories we follow. If certain victims are always visible and others are not, we can ask why and seek out coverage that reflects a fuller picture.

True crime can inform and even inspire action. But it can also overwhelm, distort the truth and be distracting. The difference lies in how we choose to engage and whether we’re willing to step back when the story starts to take over.

Resources:

Conquer Overwhelm: Your Ultima… – The Mel Robbins Podcast – Apple Podcasts

How True Crime can Impact your Mental Health

True Crime’s Psychological Impact: Mental Health Effects Explored

Compulsive use of social media in emerging crime news stories: Perceived channel affordances and forensic fandom.

 

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R&B Maestro D’Angelo Has Passed Away at 51 https://blackhealthmatters.com/rb-maestro-dangelo-has-passed-away-at-51/ Tue, 14 Oct 2025 18:30:08 +0000 https://blackhealthmatters.com/?p=60616 D’Angelo, a Grammy Award artist whose music helped define the neo soul era, passed away on Tuesday, October 14th. His family confirmed via a statement. He was just 51. The […]

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D’Angelo, a Grammy Award artist whose music helped define the neo soul era, passed away on Tuesday, October 14th. His family confirmed via a statement. He was just 51.

The Family’s Statement

According to Rolling Stone “The shining star of our family has dimmed his light for us in this life … After a prolonged and courageous battle with cancer, we are heartbroken to announce that Michael D’Angelo Archer, known to his fans around the world as D’Angelo, has been called home, departing this life today, October 14th, 2025,” his family said in a statement. “We are saddened that he can only leave dear memories with his family, but we are eternally grateful for the legacy of extraordinarily moving music he leaves behind.  We ask that you respect our privacy during this difficult time, but invite you all to join us in mourning his passing while also celebrating the gift of song that he has left for the world.”

D’Angelo Developed His Talents Early

Born in Richmond, VA, he learned to play the piano before age five in church and played for his grandfather, who pastored a Pentecostal church. By sixteen, he had formed two different singing groups, according to People: Three of a Kind and Michael Archer, and Precise. He tried out for Amateur Night at the Apollo twice, the first time he didn’t win. The second time, he took his prize money and invested in equipment, which eventually led to his Brown Sugar record deal.

He Was Part of the Soulquarians

The Soulquarians were a loose collective of singers, musicians, and producers that included J Dilla, QuestLove, Erykah Badu, and Common. They were at the forefront of a movement that charted new paths in soul, R&B, and hip-hop while maintaining a deep admiration for the past.

His Music was a More Sensuous Version of 70s Soul.

In the New York Times, Ben Sisario wrote, “In the years leading up to his triumph with the 2000 album ‘Voodoo,” D’Angelo was a leading light of the era’s revolution in soul music, melding the sweetly seductive melodies of classic singers like Al Green and Marvin Gaye with the beats and urgency of hip-hop.

His biggest songs, like “Lady,” “Brown Sugar,” and “Untitled (How Does It Feel),” were hailed as supreme examples of the trend, which sought not a revival of Black pop traditions but a transformation of them.

He Was Nominated For 14 Grammys and Won Four

D’Angelo was nominated for 14 Grammy awards and won 4. Best R&B Album for Voodoo, Best R&B Album for Black Messiah. He also won Best R&B Vocal Performance for “Untitled (How Does It Feel)” and Best R&B Song for Black Messiah’s “Really Love.”

Although “Untitled” won him awards, the sexy video came with unintended consequences. This led to him being named a sex symbol, a breakdown, depression, alcohol, drugs, rehab, and seclusion for periods. But he came back.

Our sincere condolences go out to his family.

About Pancreatic Cancer

Pancreatic cancer is a type of cancer that starts in the pancreas. Pancreatic adenocarcinoma is the most common type of pancreatic cancer. The American Cancer Society estimates that about 67,440 people (34,950 men and 32,490 women) will be diagnosed with pancreatic cancer. The pancreas is deep in the body so it is difficult to find early.

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R&B Maestro D'Angelo Has Passed Away at 51 - Black Health Matters D'Angelo, a Grammy Award artist whose music helped define the neo soul era, passed away on Tuesday, October 14th. He was just 51. B;ack Messiah,Brown Sugar,D'Angelo,Erykah Badu,Lady,Michael D'Angelo Archer,neo-soul,Questlove,Soulquarians,Untitle,Voodoo,D'Angelo
FSGS: The Essential Questions to Ask Your Doctor https://blackhealthmatters.com/fsgs-the-essential-questions-to-ask-your-doctor/ Mon, 13 Oct 2025 11:09:05 +0000 https://blackhealthmatters.com/?p=60543 Focal segmental glomerulosclerosis is a rare kidney disease that affects 7 out of 1 million people, according to the American Kidney Fund, and is most common among the Black and […]

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Focal segmental glomerulosclerosis is a rare kidney disease that affects 7 out of 1 million people, according to the American Kidney Fund, and is most common among the Black and Pacific Islander populations. Asking the right questions can bring clarity and understanding to FSGS. We spoke to Dr. Daryl O. Crenshaw, MD, FACP, FASN, FASH, to better understand the condition and identify essential questions you might want to ask your HCP or nephrologist.

What is FSGS?

A healthy kidney oversees filtering the blood in your body to remove and flush waste like proteins, toxins, excess water, and more. Focal segmental glomerulosclerosis, or FSGS, is a condition where parts of the kidney that filter waste are damaged or scarred. Because of this damage, some of the waste that your kidneys should be filtering leaks out into urine.

Dr. Crenshaw, a board-certified nephrologist in Thomasville, GA, brilliantly uses the analogy of rice in a strainer. “Imagine your kidneys act as the strainer holding in rice, which represents the essential substances your body needs,” he says.

“The more damaged your ‘strainer’ is, the easier it is for ‘grains of rice’ (essential substances) to pass through and enter the urine. Accumulation of vital substances in your urine can cause health complications, especially over time.

What are the Symptoms of FSGS?

  • Swelling could be in the legs, ankles, and even around the eyes.
  • Weight gain is due to fluid buildup
  • Foamy urine from protein buildup, called proteinuria

When should I see a doctor?

Note: If you are experiencing any of the symptoms listed above, please get in touch with your HCP as soon as possible.

Are There Different Types of FSGS?

According to the Mayo Clinic, there are four types of FSGS.

  • Primary FSGS. Many people diagnosed with FSGS have no known cause for their condition. The condition is called primary (idiopathic) FSGS.
  • Secondary FSGS. It may occur because of another disease, such as diabetes or sickle cell, drug toxicity, obesity, or other kidney diseases. But controlling the underlying cause may slow the progression.
  • Genetic FSGS, a type of kidney disease caused by mutations in genes that play a role in the structure and function of the glomeruli, the tiny filters in the kidneys.
  • Unknown FSGS. Despite Clinical evaluation, the underlying cause has not been identified.

Questions to ask:

If I have diabetes or sickle cell disease, could I be at risk for FSGS?

Does my lupus put me at risk for FSGS?

What tests should I have annually?

One of my family members has FSGS. Does that mean I may have it too?

How early do I need to test my children?

What Kind of Health Complications Can Occur from FSGS?

  • Nephrotic Syndrome is a condition that causes you to release an excessive amount of protein in the urine (pee). Nephrotic syndrome usually results from a problem with your kidneys’ filters (glomeruli). Glomeruli (glo-mare-yoo-lye) are tiny blood vessels in your kidneys. If you have nephrotic syndrome, losing different proteins may cause various problems. Some proteins help prevent blood clots. When you lose those proteins in your pee, blood clots can form.
  • End-stage kidney Disease means your kidneys can no longer filter waste from your blood. It is often the final stage of CKD, but it can also develop suddenly or happen as a result of injury. Dialysis and transplant are the options then.

If You Don’t Have Symptoms: Be Proactive

Dr. Crenshaw encourages patients to be proactive and ask the right questions to understand their kidney health better.

Can you run the following test?

  • Complete blood work
  • Glomerular Filtration Rate (GFR)
  • Creatinine
  • Urine test to measure the amount of blood and protein in proteinuria

Once you have the tests, it is critical to keep track of your results. Then ask the following?

What are the results of my tests? What do they mean?

When should I come back for follow-up testing?

Dr. Crenshaw gives a complete breakdown of the CKD stages here. All this information will help you understand how well your kidneys are functioning currently and whether you are at higher risk for chronic kidney disease in the future.

Review Your Current Medications

Suppose you are someone who has high blood pressure, diabetes, and other comorbidities such as Hep B, Hep C, HIV, syphilis, or has been exposed to certain infections (including COVID-19). In that case, it’s essential to know that you may be predisposed to lower kidney function.

Will any of the medications I am currently taking hurt my FSGS diagnosis? Or my kidneys (if you are being proactive)?

Are there OTC medications I should avoid?

What about supplements? Are they safe to take?

Should I Consider Genetic Testing?

Dr. Crenshaw encourages everyone with African ancestry to request testing to check for any genetic disposition. There are several genetic variants related to kidney disease. One that explicitly impacts those in our community is called an APOL-1 variant, which could directly affect the progression of FSGS, heart disease, and other conditions. It has been described as an accelerator that causes your disease to progress at a faster rate.

Ask your nephrologist:

What are the benefits of genetic testing?

Do I need a referral for genetic counseling?

Does my insurance cover this?

Are there other things I need to know about genetic testing, including any possible disclosures to life insurance companies?

How do I Find a Good Nephrologist?

Your doctor may not automatically refer you to a nephrologist.  However, you can begin researching on your own, especially if your plan doesn’t require a referral. Read reviews before you decide. Tap into kidney organizations, connect with their patient and support networks for ideas as well. Check out our Nephrologist guide too.

 

FSGS can become a serious condition, so regularly monitoring your kidney function is essential for managing kidney health. Dr. Crenshaw shared that about 90% of people in the United States have kidney disease and are unaware of it. A statistic that is sure to wake us up about our kidney health: asking the right questions is key to understanding FSGS and its possible effects. It is not only a great way to get ahead of your kidney health, but also to encourage others to do the same.

 

Additional Reporting by Christine Jean-Louis

Resources

American Kidney Fund: FSGS

Mayo Clinic

National Kidney Foundation: Genetic Variants and Kidney Disease

 

 

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The Memory Skirt Weaves Fashion and Cognitive Health Together https://blackhealthmatters.com/the-memory-skirt-weaves-fashion-and-cognitive-health-together/ Mon, 13 Oct 2025 08:27:41 +0000 https://blackhealthmatters.com/?p=60570 Arlinda McIntosh’s mother was in her early 60s when the family began noticing small but concerning changes in her behavior: she would sweep the floor repeatedly, forget she had left […]

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Arlinda McIntosh’s mother was in her early 60s when the family began noticing small but concerning changes in her behavior: she would sweep the floor repeatedly, forget she had left the stove on, and leave the water running in the sink. Her mom is part of the inspiration behind the creation of The Memory Skirt, a garment that sparks connection around identity.

“Unfortunately, we didn’t know what was behind her memory and thinking issues until her late 80s,” McIntosh says. “Back then, we just did the best we could in caring for her—but I really wish we had known more.”

That lack of answers stayed with Arlinda. Today, in her late 60s herself, the fashion designer and founder of Sofistafunk is both vigilant about her own cognitive health and inspired to create garments on what she calls a “creation with a cause”:

The Memory Skirt, Her Fashion Tells a Story

McIntosh, best known for her voluminous, whimsical skirt collections beloved by stars including Lauryn Hill, Queen Latifah, Mary J. Blige, and Yvette Nicole Brown, has always believed her designs should do more than look beautiful. “My skirts tell stories. They celebrate who we are and where we’ve been,” she says. The Memory Skirt takes that idea even further, weaving personal histories into wearable art.

Each one-of-a-kind piece incorporates a variety of fabrics, colors, textures, and needlework that reflect the life of the wearer. A recent commission was for Rita, a former journalist living with early symptomatic Alzheimer’s disease. Her skirt was designed with simulated newspaper clippings, fuchsia begonias, butterflies, cactus, and pink-and-gold-toned fabrics that remind her of home. “This skirt was my way of celebrating Rita,” McIntosh explains. “It was threaded with care, resilience, and hope.”

A Personal Wake-Up Call

McIntosh admits that as she got older, she began to notice a few “memory moments” of her own—things she once brushed off as stress or the overload of life as a mother, grandmother, and entrepreneur. But her family history weighed on her and pushed her to dig deeper. ”

One day, I thought, perhaps this is more than normal aging, and I should speak with my doctor to discuss it further,” she says. In true McIntosh fashion, she researched everything she could before her appointment, stumbling across terms like amyloid plaques—protein buildups in the brain linked to memory and thinking issues. “That was enough to give me even more reason not to miss my appointment,” she says. “After all, self-advocacy is my top priority—and there’s nothing wrong with a little cognitive testing—because I have many more skirts to sew.”

A Creative Legacy on A Mission

McIntosh’s career in fashion spans more than four decades, from hand-finishing garments at Norma Kamali in the 1970s to launching Sofistafunk in 2000 with her daughter-in-law. Known for slow, sustainable design (aka upcycling), she primarily works with natural fabrics like cotton, linen, wool, and silk, believing they carry an energy that supports well-being.

With The Memory Skirt, McIntosh masterfully blends artistry with advocacy. Inspired by her late mother and grandmother—women she once watched pick cotton and tobacco as sharecroppers in North Carolina, and both of whom later experienced memory and thinking issues—she sees the project as both a celebration of life stories and a gentle reminder for others to pay closer attention to their own cognitive health.

Why It Matters

McIntosh’s message is clear: if you notice memory or thinking changes in yourself or a loved one, don’t ignore them. Talk to a doctor. Ask if testing could be the next step in getting a complete evaluation. “Understanding that my mother’s symptoms were more than normal aging has totally shaped the way I approach my own health today,” she says. Through Arlinda’s designs, she’s making something beautiful out of something deeply challenging—a way to destigmatize memory and thinking issues while honoring the people who live with them every day.

Learn More

If you want your own version of The Memory Skirt? McIntosh says, “You can email her up to three photos and she will convert them into ‘heat transfers’ that will be beautifully incorporated into your skirt’s design.” She has had clients submit images from family albums, fashion magazines, vintage catalogs (i.e., Spiegel), and old album covers (i.e., Nat King Cole).

It depends on what your parent or loved one is or was into. For more information, go to sofistafunk.com and follow her on Instagram @funkingafter50. To learn more about memory and thinking issues and what steps you can take if you’re concerned for yourself or someone you love, visit More Than Normal Aging.

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How to Know When Your Child’s Not Okay https://blackhealthmatters.com/how-to-know-when-your-childs-not-okay/ Mon, 13 Oct 2025 06:53:11 +0000 https://blackhealthmatters.com/?p=57946 Children’s emotional pain isn’t always obvious. Sometimes it sounds like “I’m fine,” even in kids too young to explain what they feel. Dr. Byron McClure, Director of Innovation at 7 […]

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Children’s emotional pain isn’t always obvious. Sometimes it sounds like “I’m fine,” even in kids too young to explain what they feel. Dr. Byron McClure, Director of Innovation at 7 Mindsets, offers clear guidance on how to stay present, ask direct questions, and recognize when a child may need more support. He breaks down what parents often miss and how to act before distress turns into crisis.

How to spot signs of mental distress in your children before they begin to escalate.

BHM: How can parents stay present when a child insists, they’re fine?

Dr. McClure: Stay close without pushing. You might say, “I hear you saying you’re fine. I’ll be right here if you want to talk.” That steady presence, even without words, can speak louder than questions. It shows your child they’re not alone, even if they’re not ready to open up.

BHM: What does emotional pain look like when it’s masked by silence or composure?

Dr. McClure: It can look like you are doing everything right on the outside while shutting down on the inside. Some children learn to hide their distress to avoid judgment or protect themselves. Watch for subtle shifts such as less eye contact, irritability, pulling back from friends, or a kind of calm that feels rehearsed. These changes often mean it’s time to check in and connect them with support.

BHM: How can parents tell when stress becomes something deeper?

Dr. McClure: Stress comes and goes. Deeper pain sticks around and starts to disrupt daily life. If you notice significant changes in sleep, appetite, mood, or interest, or hear talk about hopelessness, don’t wait. These are warning signs. Act quickly and get help in place.

Advice on having conversations about suicidal thoughts, saying they’re fine when they’re not and finding support systems

BHM: How can parents ask about suicidal thoughts with care?

Dr. McClure: Be clear and speak with care. You might say, “Sometimes kids feel overwhelmed and think about not wanting to be here. Has that ever happened to you?” Asking directly doesn’t plant the idea. It opens the door for honesty and shows your child you’re strong enough to hear the truth and ready to help.

BHM: If a child insists they’re fine, how can parents keep the door open without pushing them away?

Dr. McClure: Respect what they say, but keep space open. You can respond with, “Okay, I’ll respect that. Just know you don’t have to go through this alone. I’m here when you’re ready.” That balance of space and support builds trust and lets your child know you’re not going anywhere.

BHM: What support systems outside of therapy can parents lean on?

Dr. McClure: Look for trusted anchors, mentors, coaches, faith leaders, extended family, and community groups. These adults can offer another safe place for your child to turn. Parents don’t have to carry everything alone. Building a circle of care makes a real difference.

How distress shows up in younger kids versus teens, and how we can support our youth better in the future.

BHM: How do signs of distress differ between younger kids and teens?

Dr. McClure: Younger children often show distress through behavior, like acting out, regressing, or clinging. Teens may withdraw, isolate, or take risks. Younger kids need reassurance and stability. Teens need space and respect for their independence, along with consistent check-ins and presence from their parents.

BHM: What gives you hope in supporting Black youth mental health?

Dr. McClure: I see more families and schools talking about mental health early, not waiting for a crisis. That gives me hope. Parents should hold onto the truth that early help works. Building mental health through strength, routines, and safe connections matters just as much as preventing illness.

BHM: What would you change about how we care for Black children’s mental health?

Dr. McClure: I would rewrite systems that focus on deficits first. Care should begin with strengths and proactive support, not just reactions when problems show up. Every parent should know their child is not a problem to be fixed. They are a whole person with gifts, and early support helps those gifts shine.

Resources:

Dr. Byron McClure – 7 Mindsets

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Dr. Byron McClure
Megan Thee Stallion Is Mental Health Champion of the Year https://blackhealthmatters.com/megan-thee-stallion-is-mental-health-champion-of-the-year/ Sat, 11 Oct 2025 05:02:00 +0000 https://blackhealthmatters.com/?p=60547 Megan Thee Stallion has been chosen as the 2025 Mental Health Champion of the Year by the Trevor Project. The Traumazine rapper has been open about her struggles with anxiety. […]

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Megan Thee Stallion has been chosen as the 2025 Mental Health Champion of the Year by the Trevor Project. The Traumazine rapper has been open about her struggles with anxiety.

Why They Chose Megan

Megan Thee Stallion, whose real name is Megan Pete, has shared about her mental health struggles in her work and during interviews. The hot girl coach is willing to share her experiences to help others realize that hope lives on the other side of their challenges. “I’m honored to receive this year’s Mental Health Champion award from The Trevor Project,” Pete said. “My goal has always been to use my platform to help break stigmas around mental health and provide resources for those seeking safe spaces to have honest and heartfelt conversations. Mental health impacts all of us, so it’s important to lead with love and empathy. I’m grateful for organizations like The Trevor Project that are committed to spreading awareness and supporting our LGBTQ+ youth in powerful ways.”

What is The Trevor Project?

The Trevor Project is an organization dedicated to eliminating suicide among LGBTQ+ young people. It provides counseling and research aimed to help those fighting through stigma, discrimination, and internalized homophobia. Their previous mental health champions of the year include Janelle Monáe and Lil Nas X. “Suicide rates among persons aged 10–24 years increased significantly during 2018–2021 among Black persons,” according to a 2023 report from the CDC. The Journal of Aggression and Violent Behavior found that “Lesbian, gay, and bisexual youth are three times more likely than heterosexual youth to attempt suicide” in 2022.

The Work That Megan Does

Pete does more than pay lip service to the importance of mental health. She partnered with the state of California to remind young people that they are not a burden for asking for help.

She develops digital tools that the everyday person can turn to for guidance. Those concrete resources help everyday people find where they can get help.

The Trevor Project Reflects on Megan’s Work

“Megan Thee Stallion is a mental health champion in every sense of the word,” said Jaymes Black, CEO of The Trevor Project, about choosing to honor Pete’s consistent work. “Her raw honesty, bold advocacy, and deep love for her community make her an extraordinary role model – particularly for Black LGBTQ+ youth, who face some of the highest rates of discrimination, mental health challenges, and suicide risk. Megan’s activism doesn’t just stop at words; she builds real, tangible resources for vulnerable communities that are too often overlooked or left behind. As a queer Black person, I wish I had someone like Megan to look up to when I was growing up. Her courage, her authenticity, and her unwavering commitment to mental health advocacy will echo for generations. The Trevor Project is proud to honor her incredible impact, especially at a time when LGBTQ+ young people are being stripped of life-saving resources. Megan Thee Stallion’s voice is not just powerful. It’s essential.”

She’s Not Just Dropping Bars, There Are Real Life Resources Available For Her Hotties

Her site Bad Bitches Have Bad Days Too features directories for therapy providers, community helplines, and helpful podcasts. The site derived its name from lyrics to the Megan Thee Stallion track “Anxiety.”

The song features the lyrics “All I really wanna hear is ‘it’ll be okay’/ Bounce back ’cause a bad b***ch can have bad days” and “They keep sayin’ I should get help/ But I don’t even know what I need/They keep sayin’ speak your truth/And at the same time say they don’t believe.”

She created the Pete & Thomas Foundation to promote healthcare access for all.

According to a 2023 article in the Journal of Psychiatric Annals, “Black people comprise 13% of the United States population, yet comprise nearly 20% of those who are living with mental illness,” and “Black people are disproportionately affected by mental illness, including depression.”

Megan is Working to Break Stigmas Around Mental Health in the Rap Community

Discussions about mental health in the rap community have become more prominent in recent years. Cardi B and Big Sean have talked about how depression has negatively impacted their careers. Lil’ Jon released an album of affirmations designed to help listeners heal their minds and bodies.

Mental health stigma affects all communities, but it shows up in distinct ways in the Black community. Pete acknowledged this during a PSA for the Ad Council’s “Seize the Awkward” campaign, an initiative designed to help young people share information about their mental health so they can get help.

“I’ve always been told I gotta be strong. Thick-skinned. Stiff upper lip. Tough as nails. But to be everything for everybody – it wears on you. Black doesn’t crack, they say. But it can. I can. We all can. Y’all, it’s okay not to be okay. Reach out to a friend if you see them going through it. No matter who you are, being vulnerable is what makes us whole,” she said.

 

Resources

CDC: Notes From the Field

The Journal of Aggression and Violent Behavior

Bad Bitches Have Bad Days Too

Journal of Psychiatric Annals

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Megan Thee Stallion Is Mental Health Champion of the Year - Black Health Matters Megan Thee Stallion is the Trevor Project's 2025 Mental Health Champion of the Year. 2025 Mental Health Champion of the Year,depression,Megan Thee Stallion,mental health,suicide,The Trevor Project,Megan thee Stallion TTP_2025_MHCYAward_Socials_v2_IG – 1
Reading Rainbow is Back With a New Host https://blackhealthmatters.com/reading-rainbow-is-back-with-a-new-host/ Wed, 08 Oct 2025 03:18:39 +0000 https://blackhealthmatters.com/?p=60351 When we heard that one of our favorite shows, PBS’ Reading Rainbow, was getting a reboot, we greeted the news with hope and trepidation. Because LeVar Burton served as the […]

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When we heard that one of our favorite shows, PBS’ Reading Rainbow, was getting a reboot, we greeted the news with hope and trepidation. Because LeVar Burton served as the host and executive producer of the series from 1983 to 2006, spanning 23 seasons, we don’t want to see his legacy tarnished. The new series is being produced by Kidzuko, a YouTube channel distributed by Sony Pictures. And they have picked someone who can connect with audiences today, Mychal Threet, aka Mychal the Librarian.

Burton’s Reading Rainbow won more than 250 Awards. Among them are 26 Emmys and a Peabody Award, and sparked a love of books in generations of children.

If You Don’t Know Mychal the Librarian

Mychal, a librarian at the Solano County Library in Dixon, California,  endeared himself to his growing following by simply being himself, sharing his passions for his vocation, and being vulnerable about his mental health struggles. He was an advocate for visiting local libraries, not only taking out books but also using the services.

 

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He offered positive mental health messages. While sometimes sharing his own struggles.

 

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Mychal became known for his greetings to the extent that people started making drawings to give to him.

 

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But as his notoriety grew, the online bullies and trolls wouldn’t leave him alone. And those who want to ban books would show up at his library to harass him. All of that wasn’t good for his mental health. He left his full-time job, but he has never stopped spreading the joy that can be found in libraries.

About the Reading Rainbow 4-Part Reboot

The new Reading Rainbow follows a similar format to the previous iteration. This is a case of “If it ain’t broke, don’t fix it.” According to NPR, Buffalo Toronto Public Media, which co-produced the original series in 1983, also co-produced the new season. It will only run for four episodes.

It appears that when Burton attempted to reboot himself, issues arose between the two companies. We won’t hold that against Mychal.

 

 

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But in the spirit of sparking the joy of reading, here is the trailer, and some books that we think your little one will love:

Chef Carla Hall has a new picture book, Carla and the Tin Can Cake Party, about a game of dress-up gone wrong at the grandparents’ house, with a lesson learned about a family recipe.

In Dorethea Taylor’s There’s a Dragon in My Closet, a young boy blames all his misdeeds on an imaginary dragon in his closet.

Finally, get this duo by the late Faith Ringgold. Her classic Tar Beach, which features Cassie Louise Lightfoot’s magical wish for freedom, is told from the rooftop of her Harlem apartment building, also known as “Tar Beach.”  In Cassie’s Word Quilt, the follow-up, she offers readers a behind-the-scenes look at her day-to-day life—from her home to her neighborhood, school, and more. At every stop, Cassie is teaching them new words, ones they’ve never heard before.

 

And if you want to give your child a special treat, check out Ms. Ringgold reading Tar Beach on the original Reading Rainbow below.

 

Embed Video

Start at

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Reading Rainbow is Back With a New Host - Black Health Matters When we heard that one of our favorite shows, PBS' Reading Rainbow, was getting a reboot, we greeted the news with hope and trepidation. LeVar Burton,Mychal the Librarian,Mychal Threet,Reading Rainbow,reboot,reading rainbow reboot carla-and-the-tin-can-cake-party-9781665935630_lg theres-a-dragon-in-my-closet-9781534476462_lg 9780517885444-1 9780553112337
Seeing Breast Cancer Through a New Lens https://blackhealthmatters.com/seeing-breast-cancer-through-a-new-lens/ Tue, 07 Oct 2025 07:46:28 +0000 https://blackhealthmatters.com/?p=60159 Felicia Reed, 49, is making real dreams come true for several women living with a form of metastatic breast cancer. Her team helps her shape what she calls “legacy shoots” […]

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Felicia Reed, 49, is making real dreams come true for several women living with a form of metastatic breast cancer. Her team helps her shape what she calls “legacy shoots” for the women she photographs. It started as a give-back project. Reed had quit her job as a breast imaging technician to launch this initiative. But it means even more now that she is a breast cancer survivor herself.

Reed Was Impacted by Breast Cancer Early in Life

Reed says her dance with breast cancer began when she was just 18. “My mother, who had been diagnosed with an aggressive form of the disease, lost her battle when she was 40,” Reed says.

But the pain of that kind of loss revisited her family. When her younger sister was diagnosed with the same aggressive form of breast cancer. This was the first glamour shoot Reed did for a woman living with breast cancer. “It brought her such joy,” Reed says. Unfortunately, she passed away at age 38.

“Then, at age 33, my older sister was also diagnosed, but miraculously, she continues to fight her own battle,” the photographer adds.

Her  Diagnosis, Her Own Story

“Our family history was a stark reminder of the importance of early detection and being vigilant,” Reed says. “I have always been proactive about my health, especially regarding breast cancer.”

Reed, who was a breast imaging tech doing mammograms before she became a successful photographer, says, “I started getting mammograms at 30 and kept up with them religiously for nearly 15 years. It went from routine to reality in November of 2021. “I received an unexpected callback for additional images and, of course, anxiety set in,” Reed says. Soon, she faced the daunting prospect of a biopsy.

“The irony was that I had spent over 15 years working in breast imaging and was now on the other side of the exam table,” Reed adds.

Black Women and Breast Cancer By the Numbers

As the rates of breast cancer overall are going down, rates of aggressive and invasive breast cancer in Black and Brown women continue to rise, according to the Breast Cancer Research Foundation (BCRF). According to BCRF, in 2025, more than 319,750 new cases of invasive breast cancer and 59,080 new cases of ductal carcinoma in situ (also known as stage 0 breast cancer) will be diagnosed in women in the United States. While there has been an overall 44 percent decline in breast cancer deaths since 1989—thanks to gains in awareness, earlier diagnoses, and more effective treatments—there is a persistent mortality gap between Black women and white women.

Reed’s Diagnosis and Treatment

“My diagnosis was invasive ductal carcinoma, Stage 1, Triple Positive – considered one of the more manageable forms of breast cancer,” Reed says. “I was given the option of 12 weeks of chemotherapy, and if I chose a mastectomy, I could avoid radiation.” The photographer chose that form of treatment and has had five surgeries to date.

“While I couldn’t control my diagnosis, I could control my attitude and approach to this challenging journey.”

The mom, wife, and sister says, that her strong faith helped her navigate the treatment that got her through to the other side. She says the support of her husband and two teen sons was invaluable. “I held a steadfast belief that I was healthy, before each test, and that I would remain healthy. My body was, and still is, a remarkable healing machine,” she adds.

Making Breast Cancer Patients Feel Beautiful is Even More Important to Her Now

Reed has also remained focused on bringing beauty and joy to other women living with breast cancer through her photography, even while she was still in treatment.

She never forgot the joy that the experience of being a cover girl gave her sister. The aspiring creative partnered with the local Breast Cancer Resource Center of Central Texas to conduct the photo shoots. “I have the nonprofit choose the women who will participate, and I bring together a team that pampers them and creates legacy photos for them and their family.” I am honored to be a part of their journey.

Even though Reed acknowledges that her journey hasn’t been easy, she says, My breast cancer journey has also been marked by resilience, hope, and a strong mindset.

“I hope my story inspires other women facing similar battles to stay positive, proactive, and determined,” she says.

 

 

Resources

Breast Cancer Resource Fund

Understanding Ductal Cancer Carcinoma in Situ

Stage 1 Triple Positive Breast Cancer

 

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This Is What Perimenopause Feels Like https://blackhealthmatters.com/this-is-what-perimenopause-feels-like/ Tue, 07 Oct 2025 05:55:54 +0000 https://blackhealthmatters.com/?p=59383 If you’ve been feeling off, your sleep is unpredictable, your mood shifts, and your period shows up early, late, or not at all. You are not alone. These changes often […]

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If you’ve been feeling off, your sleep is unpredictable, your mood shifts, and your period shows up early, late, or not at all. You are not alone. These changes often get blamed on stress or age, but they may be signs of perimenopause.

This phase before menopause affects hormones and can throw off your cycle, energy, and sense of balance. We spoke to Dr. Nicole Sparks, an OB-GYN and lifestyle content creator, about what to expect and when to speak up.

 The First Signs of Perimenopause

Perimenopause often begins subtly. Hormone levels shift, and these changes can manifest in various ways, such as trouble sleeping, mood swings, or irregular menstrual periods. Many people assume it is stress or aging, but these symptoms may be your body’s way of signaling something more specific.

“Some of the signs and symptoms associated with perimenopause are vague and non-specific,” says Dr. Sparks. “So, you may attribute them to stress or ‘getting older’ when it may be more serious than that. Hot flashes, sleep disturbances, and irregular periods are some of the first signs patients present with.”

She adds, “It’s ok to have occasional irregular periods. Maybe you’ve started exercising more than usual, or were traveling, and your period came early or late. But if you notice a pattern of persistent irregular periods and symptoms over time, that’s when you should seek help.”

How Perimenopause Impacts Black Women Differently

“Most women start having symptoms of perimenopause in their mid to late forties, but some experience them as early as their thirties,” says Dr. Sparks.

“Perimenopause usually lasts four to eight years and ends when you’ve gone one full year without a period.”

For Black women, the timeline may be earlier and the symptoms more intense. “Studies show that perimenopause can begin earlier in Black women,” she says. “Because of chronic stress and socioeconomic factors, symptoms like irregular periods, sleep disturbances, and hot flashes may be dismissed as normal, and women may not seek help.”

How Shifts in Estrogen Impact Hair, Weight, and Hormones.

Estrogen is often regarded as a reproductive hormone, but it also plays a crucial role in hair growth, metabolism, and the body’s fat storage. During perimenopause, as estrogen levels begin to decline, these systems start to shift in noticeable ways.

“All of the symptoms during perimenopause and menopause tie directly back to a decrease in estrogen,” Dr. Sparks explains.

“Estrogen helps promote the active growth phase of hair follicles. When it decreases, follicles stay longer in the resting phase, and you may notice increased shedding and thinning.”

Estrogen also affects metabolism and the body’s fat storage. “You may notice your metabolism slowing down in your late thirties and early forties,” she says. “You’re burning fewer calories at rest. Fat storage shifts, especially to the abdomen. And when estrogen drops, so does your insulin sensitivity, which can lead to weight gain and increased appetite.”

Estrogen also helps maintain bone strength, so when levels fall, the risk of osteoporosis increases. That is a condition where bones become weaker and more likely to break. Supporting your body with calcium, vitamin D, and weight-bearing movement like walking or resistance training can help protect your bones during this transition.

They Also Affect Our Mood, Brain, and Mental Health

Hormonal shifts during perimenopause also influence brain chemistry, including neurotransmitters like serotonin and dopamine. These are chemical messengers that help regulate mood, focus, and emotional stability.

Estrogen helps your brain produce and utilize serotonin, which supports emotional stability and sleep. It also affects dopamine, a neurotransmitter that plays a crucial role in motivation and attention.

Progesterone works with calming systems in the brain that help you feel settled and sleep well.

When these hormones start to rise and fall unevenly, it can throw off how your brain handles emotions, focus, and stress.

“It’s not all in your head, and you’re not alone,” says Dr. Sparks. “Serotonin and dopamine are neurotransmitters that help regulate mood. When estrogen and progesterone fluctuate, you may feel irritable one minute and fine the next.”

She continues, “You may notice brain fog, struggling to find words or remember lyrics, and have difficulty concentrating.

These hormone shifts can contribute to anxiety and depression. Add in sleep disturbances and insomnia, and it can make everything feel worse.”

Sleep Disruptions

Sleep changes during perimenopause can mean trouble falling asleep, waking up too early, or feeling unrested. Hormones such as estrogen and progesterone also influence melatonin, the hormone that helps regulate the sleep-wake cycle.

When melatonin is disrupted, your body may struggle to determine when it is time to wind down.

Simple changes, such as maintaining a regular bedtime, limiting screen time before sleep, and avoiding caffeine late in the day, can help. If insomnia persists, consult your doctor about treatment options tailored to your needs.

Can It Impact Your Diabetes or Hypertension?

“If you are living with diabetes or high blood pressure, it’s important to know how perimenopause can affect your conditions,” Dr. Sparks says. “Estrogen is a protective factor for our heart. When levels decline, it increases your risk for cardiovascular disease, which is the number one cause of death in Black women.”

She explains that lower estrogen can also lead to insulin resistance, which affects how well your body manages blood sugar.

“These changes can lead to higher blood pressure, higher blood sugar, and increased weight gain. Let your doctor know if you start to notice shifts in these numbers.”

Perimenopause often overlaps with the onset of chronic conditions. Bone density, cholesterol, and blood sugar levels can shift without apparent symptoms. Regular checkups and updates to laboratory tests, such as blood pressure, cholesterol, and hemoglobin A1c, can help detect changes early and guide your care.

Pregnancy Can Still Occur

Perimenopause doesn’t mean pregnancy is off the table. Ovulation can still happen, even if cycles are irregular or symptoms are hard to track.

Birth rates among women in their late 30s and early 40s have continued to rise, as more people choose to start families later in life.

This unpredictability can be stressful. If you’re trying to conceive, it may take longer and require fertility support. If you’re not trying to conceive, it’s worth reviewing your birth control options. The American College of Obstetricians and Gynecologists (ACOG) recommends seeking an infertility evaluation after six months of trying if you’re over 35, and before trying if you’re over 40.

Advocating for Better Care

“You aren’t married to your doctor,” says Dr. Sparks. “If your concerns are being dismissed, find a new provider. It’s unfortunate, but many women aren’t taken seriously when they bring up perimenopause.”

She encourages preparation. “Advocate for yourself. Bring a list of symptoms and why you’re concerned. Keep a diary so you can be specific. Ask if your symptoms could be related to perimenopause and what that means for your health.

“Make sure your labs, blood pressure, cholesterol, and diabetes screenings are current. If they aren’t, request updates. And if your provider still doesn’t listen, don’t hesitate to get a second opinion.”

You do not have to wait until things get worse. If you are noticing changes in your cycle, mood, sleep, or energy, start tracking them. The more specific you are, the easier it is to get answers and the care you deserve.

Resources:

About Nicole – Nicole Alicia MD

Evaluating Infertility | ACOG

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Abbott Elementary’s Tyler James Williams On Living With Crohn’s https://blackhealthmatters.com/abbott-elementarys-tyler-james-williams-on-living-with-crohns/ Wed, 01 Oct 2025 07:51:11 +0000 https://blackhealthmatters.com/?p=45054 Tyler James Williams, a name many of us recognize from his breakout role in Everybody Hates Chris, has always been a beloved figure in the entertainment world. Now starring in […]

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Tyler James Williams, a name many of us recognize from his breakout role in Everybody Hates Chris, has always been a beloved figure in the entertainment world. Now starring in the hit show “Abbott Elementary,” the Golden Globe winner continues to impress the world with his talent. But over the past few years, Williams has become a powerful voice for those living with Crohn’s disease, a chronic condition that affects the digestive system.

This year, he’s taking that work to a new level through national partnerships and candid storytelling that explores what it’s really like to live with Crohn’s.

What Is Crohn’s Disease?

Crohn’s disease is a type of inflammatory bowel disease (IBD) that can cause severe abdominal pain, diarrhea, weight loss, and fatigue, according to the Mayo Clinic. It’s an unpredictable illness that can flare up without warning, making everyday life a constant balancing act between managing symptoms and trying to lead a normal life.

From Crisis to Campaign

In September 2025, Williams partnered with AbbVie to launch Beyond a Gut Feelinga national campaign aimed at breaking the stigma around gastrointestinal health. In the campaign video, he uses a chaotic film set as a metaphor for uncontrolled IBD. “You wouldn’t put up with an out-of-control video like this,” he says. “So why put up with uncontrolled IBD?”

The campaign marks a turning point in Williams’ journey with Crohn’s disease, a condition he didn’t fully understand until it nearly cost him his life. Diagnosed in his early 20s, he spent years pushing through symptoms while trying to stay healthy and build muscle. By 24, he was in crisis. “It just crashed. Everything shut down,” he told Men’s Health. Emergency surgery removed six inches of his lower intestine, but the damage was too severe. His intestines perforated, he went septic, and doctors raced him back into surgery.

For months, he relied on a feeding system that delivered nutrients directly into his veins and used an ostomy bag. At one point, Williams weighed just 105 pounds and was too weak to stand.

That experience reshaped how he thinks about health. In the Beyond a Gut Feeling campaign video, he reflected, ” I looked at it a lot as, well, my abdomen hurts right now. I need that to stop hurting so I can do my job,” he says. “Where the actual answer is, something’s wrong here. I need to figure out what that is.”

For Williams, recovery was physical and emotional. Williams had to reevaluate his relationship with wellness and happiness. He gave up alcohol, red meat, and coffee to reduce flare-ups. “Symptom management is important for feeling better, but it does not change the course of the disease,” he explains. “That’s why I’m focusing on long-term goals like visible improvement of the lining of the intestinal tract.”

Now in remission, Williams is sharing what he’s learned. He used to brush off his own symptoms and push through the pain just to get through the day. That approach nearly cost him everything. Now he pays attention, and he wants people to know that being well comes first.

Brotherly Wellness

Crohn’s doesn’t just affect one person; it reshapes routines and relationships. In the same interview with Men’s Health, Tyler revealed that his younger brother Tyrel also has Crohn’s disease. Tyrel’s first flare-up happened in early 2020. Since then, the brothers have focused on their health together, trading support and staying honest about what their bodies need.

“I had to learn how to stop making dramatic changes quickly and develop a better relationship with my body,” said Tyler. This journey has strengthened their bond, allowing Tyler to inspire others and offer support and empathy to those facing similar circumstances.

Awareness

It’s important to note that while Crohn’s disease is more common in non-Hispanic White populations, the rates of hospitalization and death are disproportionately higher within the Black community. According to the CDC, the prevalence of Crohn’s disease among non-Hispanic Black individuals is about 0.5%. Still, the rates of hospitalization and death are much higher compared to other racial groups. This highlights the specific hardships our community faces due to systemic disparities. Raising awareness is a valuable step we can all take toward improving our individual and collective health.

Here are some common symptoms associated with Crohn’s disease, according to the Crohn’s & Colitis Foundation:

  • Persistent diarrhea.
  • Rectal bleeding.
  • Urgent need to move bowels.
  • Abdominal cramps and pain.
  • Sensation of incomplete bowel evacuation
  • General symptoms like fever, weight loss, and loss of appetite.
  • Constipation, which can lead to bowel obstruction.

Tyler James Williams’ battle with Crohn’s disease highlights the importance of looking after our health and well-being. Health issues can sometimes throw us off track, and often, we might not even know they’re there. Remember, self-care includes speaking up about your feelings and seeking help when needed. While it may feel uncomfortable at first, reaching out can make a real difference. So, if you think you might be experiencing symptoms of Crohn’s, it’s important to talk to your doctor and get the support you deserve.

Resources:

Crohn’s disease – Symptoms and causes – Mayo Clinic

Beyond A Gut Feeling

Tyler James Williams’s Big Secret for Becoming Stronger Than Ever

IBD Facts and Stats | IBD | CDC

Crohn’s Disease Symptoms: What to Watch For | Crohn’s & Colitis Foundation

 

 

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Abbott Elementary's Tyler James Williams On Living With Crohn's - Black Health Matters "Abbott Elementary's," Tyler James Williams has been quietly battling Crohn's disease, a chronic condition that affects the digestive system. Abbott Elementary,crohn's disease,Everybody Hates Chris,IBD,irritable bowel disease,ostomy bag,Tyler James Williams,Tyler James Williams Crohn's
Activist Assata Shakur Dead At 78 https://blackhealthmatters.com/activist-assata-shakur-dead-at-78/ Tue, 30 Sep 2025 22:02:39 +0000 https://blackhealthmatters.com/?p=59413 Assata Shakur died Friday, September 26th, in Cuba at 78. She was revered as a political activist who dedicated her life to liberation by some. To others, she was a […]

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Assata Shakur died Friday, September 26th, in Cuba at 78. She was revered as a political activist who dedicated her life to liberation by some. To others, she was a controversial figure who loomed large over the American political landscape.

The Cuban government confirmed that Shakur’s death occurred and attributed it to “health conditions and advanced age.” They have not released a more specific cause of death at this time.

She was a Member of the Black Panther and the Black Liberation Army

Born Joanne Deborah Chesimard, she rose through the ranks of the Black Panther Party and the Black Liberation Army.

She publicly championed revolutionary ideas that were celebrated and hated. She spoke out against mass incarceration and critiqued what she considered the limitations of public education.

Assata Shakur Was Convicted of the Murder of a State Trooper and Fled to Cuba

The story of how she came to live and died in Cuba seems unbelievable. But she was convicted of the murder of a state trooper named Werner Foerster in connection with a 1977 shootout on the New Jersey Turnpike. That incident resulted in her being sentenced to life in prison.

Somehow, Assata escaped from custody and fled to Cuba. The country embraced her and refused to extradite her. They granted her political asylum. Her escape from the Clinton Correctional Facility for Women in New Jersey became international news, followed closely by both her supporters and detractors. When the authorities posted wanted signs seeking her out, some of her devotees responded by hanging posters that declared “Assata is welcome here.”

Assata’s Case Was Frequently Cited

Assata released an autobiography in 1987 that detailed her perspective on the shootout. It was titled “Assata” and outlined her political beliefs. She maintained her innocence throughout her life.

The case was frequently cited by political pundits as diplomatic efforts between the United States and Cuba progressed. It pulsated beneath the world’s consciousness, with people across the political spectrum eager to use it as a mascot for various causes and ideas.

It inspired a ripped-from-the-headlines episode of the long-running CBS political drama Madam Secretary, where a similar case threatens to disrupt trade embargo negotiations.

News of Her Death Impacted Many

Many were deeply affected by the news of her passing. They took to the internet to share their feelings.

Following her death, a wave of social media posts has featured her photograph and quotes. Some have issued heartfelt salutes and somber farewells. Others have issued harsh declarations.

Marc Lamont Hill discussed the impact Assata’s book had on him personally on his Instagram. “Assata wrote the second book that changed ( and likely saved) my life. She taught me about the power of Freedom Dreams. She showed me the beauty of struggle. And she proved that “a wall is just a wall. And nothing more at all. It can be broken down.”

However, when he joined Joe Budden’s podcast, he offered a proper tribute, including his perspective on her case.

She was Royalty in the Hip-Hop Community

However, the hip-hop community, especially, revered Assata. She was the godmother to the iconic rapper Tupac Shakur. She was a dear friend of his mother, Afeni Shakur, who was a member of the Black Panther Party. Tupac appeared to share some of Assata’s beliefs and infused them into his music. The rapper frequently spoke about ideals that were present in his godmother’s public statements in his music before his own tragic death at the hands of a Las Vegas gunman in 1996 at the age of 25.

On his 1993 single “Keep Ya Head Up,” he advocated for the kind of community initiatives that Assata and those she sat with worked on.

He expressed support for young Black women struggling on welfare and heavily criticized what he saw as cuts to social programs in favor of funding the military-industrial complex.

Following his death, the song “Changes” was released on his 1998 album. It featured lyrics that advocated for communal consideration.

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Your Guide to a Fall Reset https://blackhealthmatters.com/your-guide-to-a-fall-reset/ Tue, 30 Sep 2025 17:34:28 +0000 https://blackhealthmatters.com/?p=58386 Fall brings a change you can feel. The air is cooler, the days are shorter, and everything starts to move a little differently. For many, though, autumn still feels busy. […]

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Fall brings a change you can feel. The air is cooler, the days are shorter, and everything starts to move a little differently.

For many, though, autumn still feels busy. The calendar fills, and expectations pile up. But this season can be something else, a reset, a return to yourself, a chance to feel more grounded.

We spoke with clinical pharmacist Dr. Christina Madison and therapist Nedra Glover Tawwab, a New York Times bestselling author, to explore how to navigate this season with greater ease and clarity.

Calm Mornings

Picture a morning that doesn’t start with a screen. The blinds are cracked just enough to let in the light. There’s a warm drink in your hands, and nowhere you need to be just yet.

“Honoring rest without guilt means recognizing that productivity isn’t just measured by constant action,” said Nedra Tawwab. “It’s also about our ability to recharge and reflect.”

That kind of intentional rest can be a cue to check in with your health. According to Aflac’s Wellness Matters Survey, 9 out of 10 Americans have delayed routine checkups and screenings that could help catch issues early. Slowing down is actually a form of self-care.

She encourages people to listen to their natural inclination to slow down, especially when they feel run down or overworked. “Giving ourselves permission to pause, savor quiet moments, and trust that rest is an essential part of growth” is key, she said.

Dr. Christina Madison agrees that fall is a good time to check in. “Shorter days and quieter weekends can be a great opportunity to check in on both your mental and physical health,” she said. “Consider pursuing mindful activities that can help manage stress and pass the time when you’re not able to get outdoors or see friends and family as much, such as reading, cooking, yoga, or journaling.”

Feel-Good Movement

Movement in fall doesn’t have to be intense. It can be restorative. You can make your movement meet you. Stretch in the living room. Dance while dinner simmers. Stroll through a park with leaves crunching underfoot.

“As the colder months approach, one of the first healthy habits people often falter on is their workout routines,” said Dr. Madison. “It’s easy to feel lazy about our physical fitness as the temperatures start to drop and the days are shorter, but the key is to stay on top of it and make movement enjoyable.”

She recommends indoor movement options, such as yoga or walking, to keep your body active without facing the cold. “Moving your body is not only good for your physical health but also your mental health,” she said.

Tawwab adds that rest is not a sign of weakness. “We should reach out for support from trusted friends, family, a therapist, or even a primary care physician to talk about how we are feeling,” she said. “Above all, we should remember that it is ok to move at our own pace.”

If you’re feeling unusually tired or burned out, it may be worthwhile to consult a healthcare provider. Remember, your physical, mental, and emotional health are all connected.

Eat What Supports You

Yes, nutrients matter. But what matters just as much is how they show up in meals that support you.

Dr. Madison recommends leaning into seasonal vegetables like carrots, sweet potatoes, and leafy greens. “They’re packed with nutrients that naturally support your overall health,” she said.

If you’re considering new supplements or experiencing changes in your energy levels, it’s a good idea to consult with your healthcare provider. Fall can be a time when underlying issues surface, and early conversations can help you feel more informed and prepared.

It’s not only what’s in the dish, but how it supports you. That could mean adding grains like brown rice, oats, or quinoa to your meals. Try cooked vegetables like sweet potatoes, carrots, or squash. Leafy greens, such as those with lemon or vinegar, can support digestion. Garlic, turmeric, and olive oil also offer benefits, especially when paired with something warm and filling. These ingredients can work together to support energy, mood, and immunity.

Hydration is essential in the fall, but it can manifest differently than in summer. Alongside water, try warm drinks that support digestion and circulation. Herbal teas, such as ginger, cinnamon, or nettle, can be soothing. Broths made from vegetables, bones, or mushrooms offer minerals and warmth. Sipping them slowly can help calm the nervous system and support gut health.

This is all about eating in a way that feels good for you this season.

Elevate Your Space

This is the season to soften your space. Think warm lighting, cozy textures, and scents that evoke a sense of calm.

“To stay grounded in the fall, I recommend creating a space in your home or office that feels calm and comfortable,” said Dr. Madison. “Your home should be your sanctuary.”

She suggests cozy lighting, relaxing scents from candles or oil diffusers, and even creating a reading nook. “Many studies have shown that when your space is more cluttered, it can directly impact your mood and productivity,” she said.

Try layering blankets, switching to warmer bulbs, or placing a favorite book within reach. Even small changes can shift the energy of a room.

Protect Your Peace

Life doesn’t slow down just because the season changes. That’s when boundaries matter most.

“During the fall, animals hibernate to recover and restore their energy,” said Tawwab. “Perhaps we can take a cue from nature and practice wisdom regarding how we use our energy during the fall months.”

She recommends setting limits on work hours, saying no to extra commitments, and prioritizing physical health. “Boundaries around technology and social obligations are important for us when it comes to ensuring we have time to recharge after a busy day or week,” she said.

For those navigating grief or emotional fatigue, Tawwab suggests simple grounding practices. “Try to get outside to breathe in some fresh air, go for a walk, or even just open the blinds to consume as much natural light as possible.”

Let It Go, Let It In

Fall can be a season of release. Nedra Tawwab encourages us to let go of the pressure to perform and embrace who we are. “Let go of the expectations you have about how you ‘should’ show up,” she encourages. “Instead, embrace who you are during this season.”

Connection may look different right now, but it still matters. “We are the stewards of our mental, physical, and emotional health, and we are more empowered than we think.”

With intention and grace, this season can feel softer, more honest, and more yours.

Resources:

The Public Health Pharmacist

Nedra Tawwab

Wellness Matters | Aflac

 

 

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Bears QB Caleb Williams Put Suicide Prevention in the NFL https://blackhealthmatters.com/bears-qb-caleb-williams-put-suicide-prevention-in-the-nfl/ Tue, 30 Sep 2025 17:20:46 +0000 https://blackhealthmatters.com/?p=59379 This year, the national conversation around suicide prevention reached an unexpected stage: the NFL. When Chicago Bears quarterback Caleb Williams took to the field earlier this month with “988” painted […]

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This year, the national conversation around suicide prevention reached an unexpected stage: the NFL. When Chicago Bears quarterback Caleb Williams took to the field earlier this month with “988” painted on his fingernails, he wasn’t just making a fashion statement. He was putting the Suicide & Crisis Lifeline on display for millions of viewers. That small but powerful gesture sparked conversations about mental health, demonstrating that athletes can utilize their platforms to break down stigma and remind people that help is just a three-digit phone call away.

The Stats And Their Impact On Our Community

Death by suicide is now one of the leading causes of death in the United States, with troubling increases among Black youth in particular. While the subject is complex, it is also preventable—when communities are equipped to recognize the warning signs, talk openly about mental health, and connect loved ones to lifesaving support.

But what does a moment like this mean for suicide prevention, especially in Black communities where stigma and mistrust often run deep?

Vic Armstrong, VP Health Equity and Engagement at the American Foundation for Suicide Prevention, Answers Our Questions

To answer that question, Black Health Matters spoke with Vic Armstrong, Vice President for Health Equity and Engagement at the American Foundation for Suicide Prevention (AFSP). Armstrong has dedicated his career to making suicide prevention resources accessible, culturally relevant, and rooted in community trust.

In this conversation, he shares what everyone should know about suicide warning signs, the importance of 988, and why representation from public figures like Caleb Williams can help save lives.

BHM: Can you share how your personal background has shaped the way you approach this field of work today?

I grew up in a rural community in North Carolina. We didn’t talk about mental health at all. We didn’t see therapists—it just wasn’t part of the culture. If someone were struggling, we’d say they were “going through something” or “just having a hard time.” But therapy wasn’t seen as an option, and even if it was, there weren’t many providers who looked like us or understood our experiences.

On top of that, there’s mistrust. We’ve seen how medical institutions have mistreated Black communities—Tuskegee [Syphilis Experiment], Henrietta Lacks, and others. That history doesn’t just disappear. It creates barriers where people think, “I don’t know if I can trust this system.”

So, for me, this work is personal. I know what it’s like to grow up without resources, without seeing mental health as a real option. That’s why I believe in ensuring that people see themselves reflected in this work and know there are safe spaces where they can discuss and receive support.

BHM: Could you talk about what health equity means in the context of mental health and suicide prevention, and why it’s such an important part of the conversation?

Vic Armstrong: That’s a great question. People often confuse health equity with DEI. They’re related, but different. DEI focuses on the internal environment of an organization—creating diversity, equity, inclusion, and belonging. Health equity, however, focuses on population health. It’s about ensuring everyone has the opportunity to live their healthiest life.

In suicide prevention, health equity means creating resources that truly reach all communities. Think of it like a business: if your product isn’t reaching a segment of the population, you ask, “Why not?” and adjust. We approach health equity in the same way—what do we need to do to reach communities that are being left behind?

Many think of health equity only in terms of race and ethnicity, but it’s broader. For example, rural communities face unique challenges compared to urban ones. First responders—more die by suicide than in the line of duty. Veterans: In the past 10 years, we’ve lost more to suicide than soldiers killed in the entire Vietnam War. Construction workers also face disproportionately high suicide rates. Therefore, health equity is about creating resources for all communities disproportionately impacted, not just one segment.

Addressing Some Common Misconceptions Associated With Mental Health Crises/Suicide Attempts

BHM: Can you explain how the 988 Suicide & Crisis line works, and address some common misconceptions about it?

Vic Armstrong: Absolutely. 988 is the national three-digit dialing code for suicide prevention and mental health crisis. Think of it like 911, but for mental health. Anyone in the United States can dial or text 988, and they’ll be connected to a trained crisis counselor.

One of the misconceptions is that calling 988 will automatically summon the police to your door. That is not true.

In fact, in the majority of cases—over 98%—crises are resolved over the phone without the need for law enforcement. The goal is to de-escalate, provide immediate support, and connect people to local resources.

Another misconception is that it’s only for people who are actively suicidal. That’s also not true. You can call 988 if you’re just overwhelmed, anxious, or worried about a loved one. It’s for anyone experiencing emotional distress. So, 988 is really about making mental health support more accessible. Instead of trying to remember a 1-800 number, people now have an easy, three-digit number to call in times of crisis.

Black Men’s Reactions to Caleb Williams’ Message

BHM: Recently, Caleb Williams, the NFL quarterback for the Chicago Bears, publicly displayed 988 on his fingernails. How significant is it when public figures like him use their platform to raise awareness?

Vic Armstrong: It’s huge. When someone like Caleb Williams, who’s young, successful, and admired, openly talks about 988, it normalizes the conversation. Especially for Black men, who often face stereotypes about being “strong” and “tough,” seeing a Black male athlete talk about mental health sends a powerful message: It’s okay to ask for help.

It chips away at stigma. It makes young men think, “If he can talk about this, maybe I can too.” We’ve seen a similar impact when other athletes and entertainers speak up, but Caleb’s timing is especially important given the rising suicide rates among Black youth.

BHM: Considering the stigma around Black men and mental health, some may see painted nails as nontraditional masculinity. Do you think men will connect with his message?

Vic Armstrong: I do. Celebrities and athletes are performers. For Caleb, it was about impact. Black men have often been socialized to stay silent, avoid showing weakness, and equate vulnerability with failure. Caleb’s message helps counter that—it shows it’s okay to ask for help. I think more men are beginning to embrace that truth.

BHM: What can other athletes and public figures learn from Caleb Williams’ example?

Vic Armstrong: Speaking out about mental health doesn’t bring backlash—it elevates you. Charlamagne tha God, Megan Thee Stallion—they’ve all used their platforms to normalize mental health conversations, and it resonates with youth. For Black youth, especially, there’s fear of being perceived as flawed. However, when successful athletes and entertainers display vulnerability, it creates a sense of permission and hope. Caleb’s example can inspire others.

What to Do When You Recognize Potential Suicidal Behavior in Others

BHM: What should people look out for in terms of suicide warning signs, and how should they start that conversation?

Vic Armstrong: I always tell people to think of warning signs in three categories: changes in talk, mood, and behavior.

Changes in talk might sound like someone saying, “I’m thinking of killing myself.” You should always take that seriously. It could also be things like, “I don’t want to be here anymore,” or “I’m tired of living like this.” In those moments, ask directly, “Are you thinking of killing yourself?” Asking doesn’t put the idea in their head—it opens the door to talk.

Mood changes could be if someone who’s usually upbeat becomes depressed, agitated, or irritable, or if they suddenly seem overwhelmingly sad. Look for changes from their normal baseline.

Behavioral changes might include risk-taking, substance use, or withdrawal. For example, I worked with a father whose son started driving at dangerously high speeds—later, we learned it was suicidal behavior. You should also pay attention to situational changes, such as grief, loss, and becoming an empty nester.

When starting a conversation, get the person alone and calmly point out what you’ve noticed: “I’ve seen you withdrawing. Do you want to talk about it?” Give them space. Your role isn’t to fix them—it’s to listen. If you’re concerned, ask directly about suicide. Be calm, confident, and straightforward. Don’t phrase it in a way that pressures them to say “no,” like “You’re not thinking about suicide, are you?” Suicide is complex. Listening without judgment can create a sense of safety.

BHM: For anyone reading this who may be struggling—or who has a loved one struggling—what would you want them to know?

Vic Armstrong: I’d want them to know that you matter. Your life has value. No matter how heavy things feel right now, there is help and there is hope. If you’re struggling, reach out—call or text 988. If you’re worried about someone else, don’t be afraid to check in. Asking directly, “Are you thinking about suicide?” can open the door to a life-saving conversation. And finally, don’t underestimate the power of community. Sometimes healing begins when we feel seen, heard, and understood

BHM: Thank you for breaking that down. On the topic of resources, what are some that AFSP offers?

Vic Armstrong: I encourage everyone to visit AFSP.org. One of my favorite resources there is “Talk Away the Dark,” which offers tips on starting tough conversations. We also have guides for supporting people who are hesitant about therapy, and resources for suicide loss survivors.

Our Talk Saves Lives program is an introduction to suicide prevention. We’ve adapted it into culturally relevant versions, like Let’s Save Lives for the Black community (Listening, Empathy, Trust, Support). There are also tailored versions for Hispanic communities.

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Understanding Blood Cancers https://blackhealthmatters.com/understanding-blood-cancers/ Wed, 24 Sep 2025 22:29:38 +0000 https://blackhealthmatters.com/?p=58254 Blood cancer affects how your body produces blood cells and how well those cells work—leukemia, lymphoma, and myeloma are the most common types. Most blood cancers start in your bone […]

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Blood cancer affects how your body produces blood cells and how well those cells work—leukemia, lymphoma, and myeloma are the most common types. Most blood cancers start in your bone marrow. This is the soft, sponge-like material in the center of your bones. Your bone marrow makes stem cells that mature and become one of the following:

  •  Red blood cells, which carry oxygen throughout your body
  • White blood cells, which fight infection
  • Platelets, which control bleeding, are regularly generated in a healthy body to replace old, dying ones. The excessive production of white blood cells in the bone marrow leads to blood cancers.

There Are Different Types of Blood Cancer

Leukemia, lymphoma, and Myeloma are some of the most common types of blood cancer.

Leukemia

  • Leukemia is the most common blood cancer in the U.S. and the most common form of childhood cancer. There are many types of leukemia, but in general, it occurs in the bone marrow when abnormal white blood cells are produced at an abnormally high rate. This interferes with the bone marrow’s ability to produce red blood cells and platelets.

Subcategories of leukemia:

  • Acute erythroid leukemia, Acute lymphoblastic leukemia (ALL), Acute megakaryoblastic leukemia, Acute myeloid leukemia (AML), Acute promyelocytic leukemia (APL), Chronic lymphocytic leukemia (CLL), Chronic myeloid leukemia (CML), Chronic myelomonocytic leukemia (CMML), Childhood leukemia, Hairy cell leukemia (HCL), Large granular lymphocytic leukemia (LGLL), Mast cell leukaemia (MCL).

Lymphoma

  •  Lymphoma is a type of cancer that affects the lymphatic system, which plays a crucial role in the body’s immune response to infection. Lymphoma cells can form tumors in areas such as your lymph nodes. There are two primary forms: Hodgkin and non-Hodgkin lymphoma.

Subcategories of lymphoma

  • Burkitt lymphoma, Diffuse large B-cell lymphoma (DLBCL), Double-hit lymphoma Follicular lymphoma, Grey zone lymphoma, High-grade B-cell lymphoma not otherwise specified (NOS), Hodgkin lymphoma, MALT lymphoma, Mantle cell lymphoma, Nodal marginal zone lymphoma, Nodular lymphocyte-predominant Hodgkin lymphoma (NLPHL), Non-Hodgkin lymphoma, Peripheral T cell lymphoma (PTCL), Primary central nervous system lymphoma (PCNSL), Skin lymphoma (cutaneous lymphoma), Small lymphocytic lymphoma (SLL), Splenic marginal zone lymphoma, Triple-hit lymphoma, Waldenström macroglobulinemia (WM).

Myeloma

  • Myeloma originates in the bone marrow and affects white blood cells called plasma cells, a type of white blood cell that plays a crucial role in the immune system by producing antibodies to combat germs. Multiple Myeloma is the most common subtype of plasma cell neoplasms. Symptoms usually don’t appear until the cancer is widespread and advanced. Rarer forms of blood cancer include:
    • Myeloproliferative neoplasms (MPN). In this type of cancer, the bone marrow produces an excessive number of white blood cells, red blood cells, or platelets.
    • Myelodysplastic syndromes (MDS). With MDS, your bone marrow makes abnormal blood cells. Sometimes, blood cells are abnormal because they fail to develop fully. Immature cells are called blasts.
  • Non-cancerous blood conditions: MGUS

Risk Factors

For Blood Cancer

  • Certain factors may play a role in increasing your blood cancer risk, including:
  • Age. Your risk of developing a condition increases as you age.
  •  Sex. Blood cancers are more common in males.
  • Smoking. A smoking history or exposure to secondhand smoke may increase your risk.
  • Exposure to toxic chemicals. Long-term exposure to benzene and formaldehyde can increase your risk of specific health issues. You’re more likely to encounter them if you work in an industry like manufacturing.
  • Previous cancer treatment. Previous chemotherapy or radiation therapy may increase your risk of developing blood cancer.
  • Biological family history. Some types of blood cancers may run in families. But most people who receive a diagnosis don’t have a family member with blood cancer.
  •  Several autoimmune diseases, genetic disorders, and conditions that cause long-term inflammation are associated with increased blood cancer risk. Blood cancers aren’t avoidable.

But even someone with a clean bill of health can develop blood cancer. However, you can lower your risk by avoiding certain risk factors, such as smoking.

Additional Risk Factors for Leukemia, Lymphoma, and Myeloma

Leukemia: Advancing age, being male, family history of blood cancer, smoking, genetic disorders like Down syndrome, Chronic exposure to high doses of radiation or industrial chemicals, and a History of chemotherapy or radiation cancer treatment.

Lymphoma: advancing age, although people between the ages of 15 and 35 are at risk for Hodgkin lymphoma; being male; a family history of blood cancer; and a History of infection and disease. For example, the Epstein-Barr virus, which causes mono, can increase the risk for Hodgkin and autoimmune disorders, such as rheumatoid arthritis, a weakened immune system, Chronic exposure to certain industrial chemicals, and radiation.

Myeloma: Advancing age, being male, being African American, Family history of blood cancer or other plasma cell diseases, such as monoclonal gammopathy of undetermined significance (MGUS) or solitary plasmacytoma, being overweight or obese, and Chronic exposure to radiation and chemicals.

Symptoms

People with blood cancer may experience a range of symptoms, including:

  • Fatigue
  • Shortness of breath
  • Swollen lymph nodes
  • Frequent infections

Other symptoms include: Bone pain, Drenching night sweats, Enlarged liver or spleen, Joint pain, Persistent fever, Unexplained weight loss, Unusual bruising or bleeding (warning signs include tiny red skin spots or purplish skin patches), rash, or itchy skin that is unexplained. Learn more about the symptoms of blood cancer.

Bruises: On lighter skin, bruises start red and gradually darken. However, on darker skin, bruises may be hard to see at first but become darker than the surrounding skin over time.

Rashes: They often appear as clusters of tiny spots or larger blotches. On lighter skin, rashes look red or purple. On Black and brown skin, they appear as dark purple or darker spots. These spots don’t fade when pressed.

Paleness (A Loss of Pallor): Easier to spot in light skin as unusual paleness. In individuals with Black or brown skin, pallor may appear grayish or manifest as paler palms, lips, gums, tongue, or nail beds. For all skin types, pale inner eyelids can also be a sign.

How is Blood Cancer Diagnosed?

  • Leukemia: Your doctor will order a complete blood count (CBC) test, which can help identify abnormal levels of white blood cells in relation to red blood cells and platelets.
  • Lymphoma: Your doctor will need to perform a biopsy, which involves removing a small portion of tissue for examination under a microscope. In some cases, your doctor may also order an X-ray, CT, or PET scan to detect swollen lymph nodes.
  • Myeloma: Your doctor will order a CBC, as well as other blood or urine tests, to detect chemicals or proteins produced as a result of myeloma development. In some cases, bone marrow biopsy, X-ray, MRI, PET, and CT scans can be used to confirm the presence and extent of the spread.

How is Blood Cancer Treated?

Common treatments for blood cancer include:

  • Chemotherapy. Chemotherapy is a primary treatment for blood cancer. It kills cancer cells to either slow down the disease’s progress or eliminate the cancer. Healthcare providers use various types of chemotherapy drugs to treat different blood cancers.
  •  Radiation therapy. This treatment uses radiation to damage the DNA in abnormal cells, preventing them from replicating. Providers may use radiation to ease symptoms (palliative care). They often combine radiation therapy with other forms of treatment.
  •  Immunotherapy. This treatment improves your immune system’s ability to fight cancer. Some of the most commonly used immunotherapies for blood cancer are monoclonal antibodies and CAR T-cell therapy.
  • Targeted therapy. These treatments target weaknesses in cancer cells related to abnormal genetic mutations.
  • Autologous stem cell transplant. Providers can collect bone marrow stem cells from your body before giving you high doses of chemotherapy. Once chemotherapy kills the cancer cells, they’ll give your healthy stem cells back to you. They’ll develop into healthy blood cells.
  • Allogeneic stem cell transplant. Sometimes, damaged bone marrow needs to be replaced with healthy bone marrow. Providers identify a suitable bone marrow donor and use the donor’s cells to replace your damaged ones.
  •  Stem cell transplantation: Healthy stem cells can be infused into your body to help resume healthy blood production following therapy to destroy malignant blood cells.

Resources

Blood Cancer United.org

Yale Medicine: Blood Cancers

Summa Health: Leukemia Risk Factors

Blood Cancer UK symptoms and signs

International Myeloma Foundation

Race and Ethnicity Risk Factors for Leukemia

Cleveland Clinic

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What’s In Them Genes? Let’s Learn About AMKD https://blackhealthmatters.com/whats-in-them-genes-lets-learn-about-amkd/ Wed, 24 Sep 2025 19:10:11 +0000 https://blackhealthmatters.com/?p=58081 APOL1-mediated kidney disease does not have a face. It is a gene-related condition that can impact a Black person from any background, from a stoic grandmother to a vibrant teenager. […]

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APOL1-mediated kidney disease does not have a face. It is a gene-related condition that can impact a Black person from any background, from a stoic grandmother to a vibrant teenager. There are many occasions where it does not reveal itself until it is too late.

Black Health Matters Harlem Week Health Summit welcomed patient advocates and healthcare professionals to discuss the importance of sharing information about APOL1-mediated kidney disease. Kemi Williams, PhD, MBA, described the disease’s relationship with the Black community.

“This is a rapidly progressing chronic kidney disease that disproportionately affects people of West African ancestry, particularly African Americans,” she said.

“Knowledge and awareness of the disease is very low,” she added. “We’re hoping to change that today.”

Most of us who have kidney disease don’t know it.

Daryl O. Crenshaw, MD, noted the horrific impact of the limited awareness. “We understand now that about 37 million Americans have kidney disease, but the caveat is that most do not know they have it,” he said.

“At least 50 percent of Black Americans have at least one of the APOL risk variants, and having two of the APOL risk variants increases your chance of developing kidney disease.”

Kidney disease can lead to serious complications like kidney failure. “African Americans develop kidney failure at rates 4–5 times higher than Americans of European descent,” according to Trends in Endocrinology and Metabolism.

Joshua Albright discovered his kidney disease by accident.

Patient advocates and brothers Joshua and Jorden Albright shared their family’s experience with APOL1-mediated kidney disease.

Joshua accidentally learned about his kidney issues when visiting a family member impacted by kidney disease. “My aunt had given a kidney away to another family member, and we stopped by her house basically just to check on her, and she had a blood pressure machine out so she could check her blood pressure, and my sister and my cousins were playing around with the blood pressure machine. They put the cover on my arm, and my levels were extremely high,” he said.

It didn’t bother him much. His youth deceived him into believing it wasn’t a big deal. “At that time, I was 17, turning 18. I couldn’t care less what my blood pressure said, to be honest. I was trying to go see what the plan was that night with my friends,” he said.

Joshua’s mother thought there was something wrong and immediately called his PCP.

His mother and doctor took it seriously. “My mom actually reached out to my primary care doctor, and they let her know that I should be rushed to urgent care just to get a follow-up kind of,” said Joshua.

“Shout out to all those mothers and sisters out there that are being the healthcare advocates and warriors within their families, pushing them to get a test,” interjected Williams.

After discovering that his brother had the APOL-1 gene variant, Jorden got tested as well, and he had a different one.

Following his brother’s diagnosis, Jorden was diagnosed as well. The family was attuned to the risk. “I’m very, very blessed that my brother was diagnosed,” he said. “We learned that Josh had the G1 variation. I had the G2.”

How Joshua made clinical trial participation work while a college student.

Joshua was open about his decision to participate in a clinical trial. One reason he didn’t hesitate was that there were concerns about his privacy as a college student and his quality of life. He believes it is essential to focus on the patient’s life outside of their medical concerns in clinical trials. “I was diagnosed right before college. They gave me the flexibility to be able to coordinate at-home visits,” he said.

“I remember when I was in college, I was a little bit…I felt like I looked at my kidney disease as a weakness. I didn’t want everybody in the dorms knowing I had a nurse coming to check on me, so I would actually go all the way home to my parents’ house, and they would have a nurse meet me there. I’d have at-home visits.”

“It” puts the patient first.”

Resources

Trends in Endocrinology & Metabolism

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Beyond Belief: Surviving & Thriving with HIV/AIDS https://blackhealthmatters.com/beyond-belief-surviving-thriving-with-hiv-aids/ Mon, 22 Sep 2025 21:15:15 +0000 https://blackhealthmatters.com/?p=57937 At the 2025 U.S. Conference on HIV/AIDS, ViiV Healthcare’s plenary session “Beyond Belief” highlighted the groundbreaking changes in the life expectancy for a person diagnosed with HIV/AIDS. It also showcased […]

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At the 2025 U.S. Conference on HIV/AIDS, ViiV Healthcare’s plenary session “Beyond Belief” highlighted the groundbreaking changes in the life expectancy for a person diagnosed with HIV/AIDS. It also showcased individuals who are thriving after being diagnosed, and how spirituality plays a role in their recovery. Among them is the iconic Rae Lewis-Thornton, now 63. Nearly four decades ago, she was told her diagnosis was a death sentence.

What the Beyond the Belief Session Covered

The session featured intergenerational elements. They were designed to highlight the new stages of life. The idea is to expand conversations and stay connected to the condition. As people live longer with the condition, this session was the first step in helping us realize we need to adapt our thinking.

The session brought “real stories of aging, community, and many forms of belief that continue to move us forward—whether rooted in faith, science, relationships, or lived experience” to thousands of attendees at the conference. “A variety of cultural and historical factors, such as religious and moral belief systems and political ideologies, can manifest in health care systems’ policies,” according to the American Medical Association Journal of Ethics. Interacting with faith-based communities and respecting patients’ faith has proven to be an effective strategy for engaging populations that need it the most.

Rae Lewis Thornton, Dr. Keith Green, Jeff Berry, Louie Ortiz Fonseca, Grissel Granados during “Beyond Belief” at USCHA. Courtesy of ViiV Healthcare.
Rae Lewis Thornton, Dr. Keith Green, Jeff Berry, Louie Ortiz Fonseca, Grissel Granados during “Beyond Belief” at USCHA. Courtesy of ViiV Healthcare.

Rae Lewis-Thorton is Fighting for Policy Changes and Access to Treatments

Lewis-Thornton made her presence known in the session. As an icon in the community, she uses her voice to fight for policy changes and increased access to treatment. Her life stands as an example of the hope found by many today. “There were no medicines to treat HIV, and funeral directors were afraid to even bury somebody with HIV, so you know it was a cruel time, and so I kept my infection a secret for seven years. I think I told five people those first seven years,” she told Black Health Matters.

She went from living with the secret to speaking out boldly, going beyond fear and shame, bolstered by her belief. She told the story of how one can thrive after a diagnosis. Since then, her voice has encouraged many others. Lewis spoke on the importance of incorporating spaces that hold the beliefs of others as something of value alongside useful scientific information.

Living Beyond Belief

“When we begin to think about where we are with this disease? Yeah. I am living beyond belief, and I think a lot of that has to do with science, and I think a whole lot of it has to do with God,” said Lewis-Thorton.

A 2024 study at Harvard argued that “In a reimagined clinical and public health system, spiritual factors would be routinely considered in creating person- and community-centered policy and practice.” It identified spirituality as a determinant of health.

Randevyn Piérre, ViiV Healthcare Head of US External Affairs in a purple suit and white suit in front speaking in. front of the audience at USCHA
Randevyn Piérre, ViiV Healthcare Head of US External Affairs, engages with the audience during “Beyond Belief” at USCHA—courtesy of ViiV Healthcare.

“It’s important that we all work to make HIV a smaller part of people’s lives who are living with HIV, and that includes reducing stigma that includes holistic health and seeing people less as whole humans and the wholeness of their humanity, meaning that it is important that we recognize all parts of us and all parts of our health,” said Randevyn Piérre, Head of U.S. External Affairs, ViiV Healthcare.

Reality star and entrepreneur Dwight Eubanks shared how his place of worship led to his prostate cancer diagnosis earlier this year.

You can’t see that wholeness unless you go to where the people are, something the session was determined to do.

A 2022 report from the U.S. Department of Health and Human Services’ Office of Minority Health (OMH), Black women were 10 times more likely than non-Hispanic White women to be diagnosed with HIV.

You Can’t Fight This Disease Alone: Community is Key

When we examine the numbers and who is being infected, community organizations must be part of the response.

“Black women are in the church, and so it’s important that organizations that do this work like this speak to us in our social location, that they speak to us at the center of who we are,” said Lewis-Thornton.

“People who are living with this disease need something greater than themselves, something higher than themselves in their lives. And so, whatever they, however they, address their spirituality. I think it is significant to live with this disease. You can’t not do it. You know, we are not super people and we cannot do it alone, and I think we need to believe in something greater than us.”

But Black women can’t be both the most infected and the only ones stepping up to treat them. How will faith-based organizations commit themselves to this work in the future?

They Incorporated Contemporary Worship Music to Help Deliver the Message to Millennials and Gen Z

Because the audience spanned a range of ages, the session used a more Contemporary style of praise and worship to bridge the gap. It represented a shift towards inclusion, reflecting the way millennials and Gen Z communicate. Lewis-Thornton described the energy present during the musical interlude.

“Everyone receives messages and communications differently, depending on the messenger, depending on the channel. So, for us to be able to amplify this crucial information around HIV, and to prioritize awareness in different ways, is really an awesome opportunity that’s really critical,” said Randevyn Piérre, Head of U.S. External Affairs, ViiV Healthcare.

“ViiV is really committed to reaching communities in ways that are relatable, and in ways that are relevant, and in ways that resonate and music resonates in many ways with many people, and so we wanted to try something that we’d seen, popping up, in different spaces online that folks were really reacting to and sort of make it relatable and tie it into the experience at USCHA.”

Resources

HIV.gov

American Medical Association Journal of Ethics

HHS.gov

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Beyond Belief Speakers Rae Lewis Thornton, Dr. Keith Green, Jeff Berry, Louie Ortiz Fonseca, Grissel Granados during “Beyond Belief” at USCHA. Courtesy of ViiV Healthcare. Randevyn Piérre, ViiV Healthcare Head of US External Affairs Randevyn Piérre, ViiV Healthcare Head of US External Affairs, engages with the audience during “Beyond Belief” at USCHA. Courtesy of ViiV Healthcare.
Understanding Suicide Risk in Bipolar Teens https://blackhealthmatters.com/understanding-suicide-risk-in-bipolar-teens/ Mon, 22 Sep 2025 18:40:30 +0000 https://blackhealthmatters.com/?p=57186 New research is helping decode the brain and social patterns behind suicide risk. And teens are showing us what real prevention looks like. Suicide is now the second leading cause […]

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New research is helping decode the brain and social patterns behind suicide risk. And teens are showing us what real prevention looks like.

Suicide is now the second leading cause of death among U.S. adolescents. For teens living with bipolar disorder, the risk is even higher. But recent studies are revealing how brain development, emotional pain, and social pressure collide. Early, responsive care could change everything.

The Risks We Can’t Ignore

Suicide attempts among teens are disturbingly common. The CDC reports that nearly 1 in 10 high school students tried to take their own lives in the past year. For youth with bipolar disorder, the risk climbs even higher.

A 2023 review in FOCUS: The Journal of Lifelong Learning in Psychiatry found that suicide death rates in this group are up to 20 times higher than in the general population.

Between 5 and 8 percent will die by suicide. The numbers speak for themselves and for the kids behind them. Early support can make all the difference.

Their Brains Tell The Story

There is a scientific reason behind the increased risks among this population. MRI scans have revealed distinct brain differences in bipolar teens who’ve attempted suicide. These youth often show reduced volume and weaker connections in the frontal-limbic system. In other words, the areas regulating impulse control and emotions.

If they are acting out or overly emotional, they may not be able to control their behavior.

The changes are especially pronounced in the frontal cortex, a region still under construction during adolescence. A study led by Yale researchers found these structural shifts may help explain why some teens are more vulnerable to impulsive, high-risk behaviors, even when they’re receiving care.

Where Teens with Bipolar Disorder Live Impacts Their Access to Support (and So Much More)

While brain scans show how bipolar disorder can affect emotion and impulse control, the environment around a teen plays a significant role, too. A recent study from Weill Cornell and Columbia University used machine learning to map suicide risk across thousands of U.S. counties. Instead of focusing on individual traits, the researchers examined social conditions, including poverty, housing quality, pollution, and access to healthcare.

They found three distinct community profiles, each with its own pattern of suicide rates. Rural areas struggled with isolation and aging infrastructure. Stressed communities faced family strain and environmental hardship.

In diverse urban regions, income gaps and cultural barriers to care were more common.

For teens living with bipolar disorder, these findings matter. The places they grow up in can shape how easy it is to get help, how safe they feel, and how much support is available when things get hard.

Symptoms May Look Different in Our Teens

Black youth are often underrepresented in mental health research and underserved in clinical care. Misdiagnosis, stigma, and systemic bias delay treatment and hide early warning signs.

As reported by the Journal of the American Academy of Child & Adolescent Psychiatry, Black adolescents are less likely to receive timely psychiatric care and more likely to be misclassified or criminalized for symptoms of mania or depression.

According to the Child Mind Institute, providers often miss signs of depression in Black teens because their symptoms don’t match the narrow clinical scripts built around white youth. Instead of sadness or withdrawal, some teens may show irritability, fatigue, or behavioral changes. Without cultural context or training, these signs are misread as defiance or aggression.

The same report notes that Black teens are more likely to be diagnosed with conduct disorders or schizophrenia, while white teens with similar symptoms are more often diagnosed with depression. This gap in recognition leads to missed opportunities for early intervention and appropriate care.

What Real Prevention Looks Like

Science is evolving, and so is the strategy. By identifying vulnerable brain circuits, tracking behavior, and removing barriers to care, researchers and clinicians are developing more effective interventions.

For families, this means pushing for care that sees the whole child. It means demanding research that reflects real life. And it means listening to teens who are already showing us what they need.

Prevention is possible. But it starts with paying attention to what bipolar teens are teaching us, about pain, about strength, and about the kind of care that meets them where they are.

Resources:

Youth Risk Behavior Surveillance — United States, 2023

Suicide Assessment and Prevention in Bipolar Disorder: How Current Evidence Can Inform Clinical Practice

Gray and white matter differences in adolescents and young adults with prior suicide attempts across bipolar and major depressive disorders – ScienceDirect

Machine Learning Uncovers Social Risk Clusters Linked to Suicide Across U.S. | Newsroom | Weill Cornell Medicine

43.4 BLACK AND BLUE: UNDERSTANDING STIGMA AND DIAGNOSTIC BARRIERS TO INCREASE TREATMENT RECEIPT FOR AFRICAN AMERICAN YOUTH WITH DEPRESSION AND ANXIETY DISORDERS – Journal of the American Academy of Child & Adolescent Psychiatry

Misdiagnosis of Mood Disorders in Black Teenagers – Child Mind Institute

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Lori Harvey’s Endometriosis & PCOS Symptoms Were Dismissed https://blackhealthmatters.com/lori-harveys-endometriosis-pcos-symptoms-were-dismissed/ Wed, 17 Sep 2025 23:09:18 +0000 https://blackhealthmatters.com/?p=57752 Lori Harvey had to fight to be diagnosed with endometriosis and PCOS. She was in pain, and her OBGYN told her to take some Tylenol; she’d be fine. The model, […]

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Lori Harvey had to fight to be diagnosed with endometriosis and PCOS. She was in pain, and her OBGYN told her to take some Tylenol; she’d be fine. The model, actress, and beauty entrepreneur shared her journey with the painful condition on a recent episode of the SheMD podcast. Her road to receiving the appropriate care began with a conversation with her mother. According to People, she’s had these symptoms since she was sixteen.

Dissatisfied With the First Doctor, Lori Harvey Got a Second Opinion

“I’ve been so frustrated,” she told her mother, Majorie Harvey, on the phone. “I’ve been going to my gynecologist because I’ve just been feeling like something’s off in my body.” She recalled their chat to hosts Dr. Thaïs Aliabadi and Mary Alice Haney. Dr. Aliabadi, whom Harvey lovingly referred to as “Dr. A,” is the second doctor she sought out.

Lori Harvey Discovered She Has Two Conditions

Endometriosis is a chronic, multisystemic disease of inflammation affecting approximately 10% of the female population,” according to the Journal of Reproduction and Fertility. A 2019 literature review published in the Journal of Obstetrics and Gynecology reported that “Black women were less likely to be diagnosed with endometriosis.” Additional research is needed on the topic.

“Polycystic ovary syndrome (PCOS) is a common hormonal condition that affects women of reproductive age,” according to the World Health Organization. Their research reflects that up to 70% of those living with this condition and the pain it causes might be unaware of what is happening to their bodies.

PCOS May Impact Black Women Differently

“There are several racial and ethnic differences in PCOS phenotypes and in PCOS-associated metabolic dysfunction,” according to the Journal of Fertility and Sterility.

Lori was experiencing excruciating symptoms, consistent inflammation, fluctuating weight gain, facial hair, acne, and other symptoms associated with PCOS and endometriosis. She began experiencing these symptoms in her teenage years.

There is an increased risk for depression, anxiety, and eating disorders with these conditions as well. The hosts commented on how the condition’s ability to negate the efficiency of diets as a trigger for those who might be suffering from eating disorders, especially those in vulnerable populations like teenage girls. Lori later commented that symptoms impacted her “relationship with food” but did not say she had an eating disorder.

Black women with PCOS have an increased risk for severe metabolic issues according to the Journal of the Endocrine Society, making its presence about more than pain. It can lead to fertility issues as well.

The Blanket Dismissal of Her Symptoms By Lori’s Previous Doctor

Lori stressed the disconnect between her and her previous doctor that prevented her from learning she had both conditions. She spoke up, but was unheard.

“Every time I go to her, she’s like, ‘You’re fine, you’re fine, you’re fine. Nothing’s wrong.’ And I was like, ‘But I don’t feel fine. I feel like something is just off.'”

She described the intense suffering that came with that “off” feeling. “I used to have the most excruciating periods of my life, every single time I felt like I needed to go to the hospital, just crazy cramps. I’m taking 800 milligrams of Ibuprofen. Nothing is working, it’s just debilitating,” said Harvey.

Her previous doctor did not share her concerns about the impact the pain had on her life. They felt that over-the-counter remedies were sufficient for what she was enduring.

“They’d be like, ‘Oh, just take some Tylenol, you’ll be fine.’ And I’m like, there’s no way this is normal,” she continued. “When you keep telling these doctors who are supposed to be there to help you that you don’t feel right and something’s off and they keep telling you you’re fine, it’s almost like you’re getting gaslit.”

The Pain She Felt Was Not Normal

After years of “suffering in silence,” Lori sought a second opinion that validated menstrual discomfort should not be completely sitting her down. Together they discovered there was “a lot going on” inside her body.

The second doctor told her, “Yeah, babe, you’re right. It was not normal, and I’m so sorry that you’ve just been living with this, and people have been telling you that this is just how it’s supposed to be because it’s not.”

Money and Privilege Don’t Always Help

The hosts pointed out that if Lori’s fame and privilege didn’t help her in advocating for herself with previous doctors, that didn’t bode well for the average person. PCOS can be treated with hormone therapy, including oral medications, creams, and gels.

Lori was prescribed metformin, a prescription drug routinely used to control high blood sugar in patients with type 2 diabetes. It served her needs. “It just regulated my blood sugar and literally got my body to normal,” Lori said

“My hormones are leveled out and I’m like, oh, I feel good in my body finally for once,” she added.

Lori gushed about the relief she got from being appropriately treated post-diagnosis. “So, she literally changed my life,” she said about her new OB-GYN.

She is so passionate about the improvement proper treatment has made in her life that she has taken to quizzing friends about it to help them, “Even in conversation, if one of my friends is telling me something like ‘Oh I’m getting this, I’m getting that’ I’m like do you have PCOS,” she said. “You should get tested,” she advises them.

Resources

Journal of Reproduction and Fertility

Journal of Obstetrics & Gynecology

World Health Organization: PCOS

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Lori Harvey's Endometriosis & PCOS Symptoms Were Dismissed - Black Health Matters Lori Harvey had to fight to be diagnosed with endometriosis and PCOS. She was in pain, and was told her to take some Tylenol; she'd be fine endometriosis,gaslit by her doctor,Lori Harvey,Marjorei Harvey,PCOS,PCOS symptoms different in Black women,Lori Harvey endometriosis
Prevent Chronic Diseases Before They Happen https://blackhealthmatters.com/prevent-chronic-diseases-before-they-happen/ Wed, 17 Sep 2025 19:41:34 +0000 https://blackhealthmatters.com/?p=57729 Healthcare starts in the kitchen. Chef Alexis Aquino educated attendees at the Black Health Matters Harlem Health Summit about the importance of connecting the food they’re eating to their well-being. […]

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Healthcare starts in the kitchen. Chef Alexis Aquino educated attendees at the Black Health Matters Harlem Health Summit about the importance of connecting the food they’re eating to their well-being. His workshop provided tangible examples of how to effectively use food as medicine, helping to prevent chronic diseases.

Also known as Chef Lex, Aquino is the executive director of the Brownsville Community Culinary Center.

Chef Lex Talks Being a Culinary Instructor in Harlem

He has deep connections to the Harlem community. He shared what he learned observing as a community member educating congregants of a church on Saint Nicholas and as a culinary instructor at Harlem Children’s Zone. Chef Lex worked to educate the children in the Harlem community on how to eat healthier as a part of that role. He presented them with information on how to make better choices that would support their health.

“What I discovered in my time while I was here in Harlem working with such a special group is that food is a relationship that we have with ourselves,” said Aquino. “Every single day we have a conversation with ourselves through a plate, where we make a choice and typically, it’s a choice that we enjoy.”

How the Foods We Choose to Eat Reflect Our Lives and Cultures.

He emphasized the many parts of life that are reflected in the food we choose to eat. Our celebrations, our sadness, our sacrifices, our core values, according to Aquino, can all eventually be found at the bottom of our bellies. He described the way food intersects with our personal and collective histories. Food choices can reflect where you are from and who you are tied to. “We make a statement to ourselves of love, of care, of cultural connection, of communal connection, and so, no matter what systematic experiences that we’re having, we can always empower ourselves through the conversation of food,” he continued.

Some of the nutrition issues faced by Black communities are systemic, but others are modifiable with changed behavior. “Proper nutrition offers one of the most effective and least costly ways to decrease the burden of many diseases and their associated risk factors,” according to the Journal of Nutrition.

 We Can Address Risk Factors in Our Community By Starting With the Youngest Among Us

Risk factors can start earlier for some than others. The Journal of the American College of Nutrition reports that “Childhood overweight and obesity can be prevented through improved diet quality, thus warranting intervention programs aimed at increasing access to healthy foods and improving food choice.”

These interventions are beneficial for young Black people who are at a higher risk for. Sometimes they require support to shift their habits or go out of their comfort zones.

Aquino shared some unique experiences he had observing young people in the Harlem area who required intervention to make improved dietary choices. “I had the pleasure of bringing that conversation to some young folks in Harlem that needed empowerment,” he said. “They needed self-esteem to go beyond just what they were experiencing in their schools, experiencing in the streets, even experiencing amongst their friends.”

Chef Lex Talks About His Program in Brownsville

He has gone on to work in the community of Brownsville, Brooklyn.

At the Brownsville Community Culinary Center, he “provides free, world-class culinary vocational training to Brownsville residents.” “We are a workforce program primarily,” he said. “We pay our students to be a part of the training.”

“There’s no financial barriers for them as they’re going after a career path,” he added. His work contributes to the economic and physical well-being of the community.

Students Learn How to Use Nutrition as Preventive Medicine

The training provided to students in the program centers not only on flavor but also on function. Participants learn how to use nutrition as preventive medicine. They bring that to their professional work in the culinary field and into their homes. They learn to make balanced plates that provide fulfillment without being too saturated with fat, sugar, or carbohydrates.

Their efforts are sorely needed in an area plagued by illnesses associated with poor nutrition.

Brownsville Has a High Rate of Diabetes

“Brownsville is home to some of the most challenging demographics of folks, and of all of the five boroughs, we have the highest rate of diabetes,” he said. The New York Department of Health reports that “The rate of avoidable adult diabetes hospitalizations in Brownsville is the highest in the city, more than twice the Brooklyn and citywide rates” and “40% of Brownsville adults consume one or more sugary beverages per day, the second-highest rate in the city.”

Diabetes management efforts require the development of a balanced diet that can be maintained by the person managing the illness. He demonstrated how easy it is to create a recipe suitable for people with diabetes.

He prepared a light melon salad that gave zest without syrup and a flavorful pumpkin pesto salad that didn’t pack on the carbs.

The Importance of Incorporating Cultural Awareness into Healthy Meals

Aquino offered attendees examples of dishes they could recreate at home to mind their health without abandoning their taste buds. Cultural awareness can improve dietary outcomes. The dishes were developed in his Brownsville space to translate cultural ingredients into healthy meals for those affected by health issues.

“We are constantly testing recipes to make sure they are culturally relevant,” he said. He explained that you don’t have to douse something with sugar or salt to enjoy it. “The flavor equation is taste plus texture plus memory,” he said.

Aquino smiled as his helpers walked through the aisles, handing over plates to attendees who shared how much they enjoyed the snack. He shared how much the moment meant to him.

“I like to think. That, at the core of it, being healthy should equal being happy. Because what’s the point of taking care of yourself if you’re not able to enjoy yourself?”

Resources

Journal of Nutrition

Journal of the American College of Nutrition 

New York Department of Health: Brownsville

American Journal of Medicine

Clinical Liver Disease

 

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Navigating Your Osteoarthritis Journey From Diagnosis to Surgery https://blackhealthmatters.com/navigating-your-osteoarthritis-journey-from-diagnosis-to-surgery/ Wed, 17 Sep 2025 17:56:23 +0000 https://blackhealthmatters.com/?p=57715 Andrie Leday, III, dispelled myths about osteoarthritis during the Black Health Matters Harlem Week Health Summit. He refuted the belief that the condition is automatic. “We don’t have to hurt […]

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Andrie Leday, III, dispelled myths about osteoarthritis during the Black Health Matters Harlem Week Health Summit. He refuted the belief that the condition is automatic. “We don’t have to hurt as we get older, we don’t have to become immobilized as we get older. That is not a natural part of the human design,” said Leday.

According to the Journal of Bone and Mineral Research, “This silent condition frequently remains undiagnosed until complicated by fracture.” It impacts the joints.

Leday described the many unpleasant pathways osteoarthritis takes to interrupt one’s life.

“It’ll manifest in wear and tear in your joints and grinding away at your cartilage. You’re going to have symptoms like pain, stiffness, swelling,” he said. “You’re going to see changes that develop slowly, and they only get worse. It does not get better, so any type of joint change that you’re going to experience is typically irreversible. And often it goes undiagnosed. Until it progresses to a point where it’s much more difficult to manage.”

Leday noted that the condition goes further than the body by highlighting its emotional and mental consequences connected to the fact that “OA may result in impairment of social function.” Isolation and limitation can trigger anxiety and depression.

The Risks for Osteoarthritis That You Should Know About

The risks for osteoarthritis rise with age, but there are other factors to be mindful of, including genetic and lifestyle factors. Comorbidities enhance the chance of being impacted by osteoarthritis. Obesity is a significant risk factor, as added weight places stress on one’s joints. “Overweight women are four times more likely to have the risk of developing knee osteoarthritis,” said Leday.

“For those who suffer from diabetes, that prevalence is actually twofold,” he added. Osteoarthritis can also have an adverse effect on attempts to manage blood sugar in those dealing with type 2 diabetes.

Leday Explains Some of the Approaches to Osteoarthritis Treatment

Initial treatment typically begins with lifestyle changes, such as adopting an exercise routine. If that is not enough to keep symptoms at bay, osteoarthritis is treated with surgical intervention.

Leday explained that there are different levels of surgical intervention, from “a minimally invasive approach to relieve some of the strain of the osteoarthritis” to full-fledged replacement procedures.

He Also Mentioned When You Might Want to Consider Surgical Options

He identified major signs that you should consider surgical intervention. “Number one, if you can no longer complete your routine daily task without help. Number two is if you have significant pain, pain that keeps you awake at night, despite using medications, pain that keeps you from being able to walk or bend over, and pain that isn’t relieved by rest.”

Some studies have shown that Black patients face higher levels of severe pain and a higher disability rate.

Listen to Your Body and Talk to Your Doctor

Leday emphasized the importance of being honest with your healthcare providers about what you’re experiencing. “One of the key notes that I’ve heard throughout these conversations and presentations today is to listen to your body,” he said. It is not enough to listen to your body. You have to honor what it is saying at all times, even when it might feel slightly embarrassing or might make you feel like you’re being a bother. Keeping a journal might help you communicate about what you’re feeling to your doctor.

He warned against admitting “it hurts like the devil” at home and downplaying discomfort as “a little stiff but it’s all right, it’s not that bad” while talking to doctors. “Be honest with yourself and be honest with your provider when you go in,” Leday added.

Osteoarthritis is Degenerative: Seek treatment as soon as possible.

Seeking treatment for osteoarthritis symptoms as soon as possible is the only way to ensure the most positive outcomes. “It often provides pain relief and functional improvement, so early diagnosis and treatment are important,” he said. “Delaying surgery may lower your quality of life, as well as osteoarthritis is degenerative, so it won’t get better. It actually may get worse.”

Some people assume joints added through surgery are worn out quickly and will automatically have to be replaced. But he pointed out that things have changed.

“The advancements in implant technology have surpassed what they were many years ago, so the joints you have today will last much longer than previously understood,” he continued.

He shared that progress in surgical interventions can help patients reach their goals and live more fulfilling lives. “We literally just had someone just this past year with our joints in their body run the New York Marathon, so this is an opportunity to, again, extend life,” said Leday.

“This is an opportunity to keep it moving.”

Resources

Journal of Bone Research

Reumatologia

Journal of the National Medical Association

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10 Cities Where Black Singles Are Finding Real Connection https://blackhealthmatters.com/where-black-singles-are-finding-real-connection/ Tue, 16 Sep 2025 20:06:51 +0000 https://blackhealthmatters.com/?p=56690 As summer fades and cooler weather rolls in, the shift in season tends to bring a shift in energy. With holidays on the horizon and routines settling, it’s natural for […]

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As summer fades and cooler weather rolls in, the shift in season tends to bring a shift in energy. With holidays on the horizon and routines settling, it’s natural for people to start craving more intentional connection. Something deeper than a swipe or a situationship.

BLK, the dating and social app built for the Black community, surveyed thousands of users across the country to find out where that kind of connection is actually happening. Respondents rated their cities on dating satisfaction, partner availability, cultural alignment, and overall community vibe. The result is a list of cities where connection isn’t a guessing game. It’s showing up, feeling right, and making sense.

1. Houston, TX

Sitting at the top of the list, Houston leads with its mix of Southern hospitality and unapologetic ambition. Its strong Black community, active social scene, and deep cultural roots make it a place where connection feels natural, whether over brunch, at a community event, or just moving through everyday life.

2. Chicago, IL

Chicago has layers. From historic neighborhoods to buzzing community spaces, it’s a city where Black singles can find both comfort and curiosity. The vibe changes with the weather, but the chances to meet someone who feels like home stay consistent.

3. New York, NY

New York moves fast, but the connections here can be intentional. With so many Black creatives, professionals, and community spaces across the boroughs, it’s a place where dating doesn’t have to feel transactional. It can feel like finding someone who gets your pace.

4. Charlotte, NC

Charlotte is growing, and so is its dating scene. Young Black professionals are planting roots here, drawn by career opportunities and a social landscape that’s starting to reflect their values. It’s a city where building something, romantic or otherwise, feels possible.

5. Washington, DC

DC has range. From policy circles to poetry nights, it’s a place where Black singles connect through shared purpose and cultural pride. The dating scene often comes with intention, and the community makes space for it.

6. Baltimore, MD

Baltimore keeps it real. The city’s creative spirit and tight-knit neighborhoods offer space for connection that isn’t performative. Whether it’s through art, activism, or everyday life, Black singles here are finding relationships that feel grounded.

7. Atlanta, GA

Atlanta’s reputation as a cultural hub still holds. The city’s mix of legacy and innovation creates a dating scene that’s vibrant and layered. For Black singles, it’s a place where excellence is expected and connection often follows.

8. Detroit, MI

Detroit is rebuilding, and so are the ways people connect. The city’s creative resurgence and strong sense of identity make it a space where Black singles meet others who value authenticity and shared experience.

9. Philadelphia, PA

Philly doesn’t try to impress. It just shows up. The city’s Black art scene, community events, and everyday realness make it a place where connection can grow without pretense. For singles looking for something solid, it delivers.

10. Dallas, TX

Dallas is stretching beyond its stereotypes. With a growing Black creative class and more spaces for cultural expression, the city is becoming a place where Black singles find both comfort and possibility.

Cities That Didn’t Make the Cut

Some cities ranked lower in dating satisfaction and connection among Black singles. According to BLK’s survey, these include:

  • Cincinnati, OH
  • Wichita, KS
  • Columbus, OH
  • San Diego, CA
  • Phoenix, AZ
  • Indianapolis, IN

Each scored low on partner availability, cultural alignment, and overall vibe. For many Black singles, the dating scene in these cities feels disconnected from their lived experience.

Love shows up in all kinds of places. If you’re open to it, BLK is one place to start.

Resources:

BLK

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Mariah Carey Got Her First VMA Award (Folks Were Concerned) https://blackhealthmatters.com/mariah-carey-got-her-first-vma-award-folks-were-concerned/ Tue, 16 Sep 2025 16:38:19 +0000 https://blackhealthmatters.com/?p=57174 When Mariah Carey sang the medley of her hits at the VMAs on Sunday, September 7th, her voice and octave range were impeccable. Mariah is a Diva; she’ll walk, even […]

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When Mariah Carey sang the medley of her hits at the VMAs on Sunday, September 7th, her voice and octave range were impeccable. Mariah is a Diva; she’ll walk, even glide, with the right person leading, because working the stage is a requirement these days. (And maybe a fear of falling in those high heels is a real issue.) But many speculated about her health because of the way she moved. But she has also had a tough year.

Did Mimi Cause More People to Tune In?

For the first time in six years, the VMAs hit a new ratings high. It wasn’t Sabrina Carpenter who did it. It was probably the combination of Busta Rhymes and Mariah finally receiving their flowers after three decades, plus the heavy-hitter lineup. But the VMAs even beat Sunday Night Football for the top spot with 5.5M views, according to Deadline.

Her Speech Was Lighthearted, Funny, and Sincere

When Mariah accepted the VMA Vanguard award from Arianna Grande, she was calm and relaxed. “Thank you so much, MTV, for giving me the first VMA award,” the songstress said.”I just have one question: What in the SAM HILL were you waiting for?”

“I am kidding. Being here brings back amazing memories, like when I presented LL COOL J with the Vanguard Award. Or when Whitney Houston and I opened the show with a faux stand-off,” she continued.

“Music videos are my way of life, mini movies visualizing the short fantasy of it all. And let’s be honest, sometimes it’s just an excuse to bring the drama of things I wouldn’t do in real life. Like going in drag for Obsessed, or playing my alter ego in Heartbreaker.”

Mariah Carey Has Earned the Right to be Called a Diva

In 1998, VH1 debuted a series of benefit concerts featuring powerhouse female vocalists. The first concert featured Celine Dion, Gloria Estefan, Aretha Franklin, Shania Twain, Mariah Carey, and Carole King. Mariah even sang a duet of “Chain of Fools with Miss Franklin. She returned in 2000 for “A Tribute to Diana Ross,” which featured herself, Miss Ross, Donna Summer, and Faith Hill as the headliners.

However, upon reading reviews of her memoir, The Meaning of Mariah Carey, I was struck by what Ariana Davis wrote in her review about the diva persona she conceals. “By seeing all that Carey experienced far too early in her life, we come to understand that ‘diva’ image was created as a defense mechanism—a barrier to shield us all, and herself, from the pain she grew up with and still carries to this day.”

 

The Past Year Has Also Been Tough

Mariah has a history of bipolar II disorder, which can cause periods of depression and hypomania, she told People in 2018. Initially, when she was diagnosed in 2001, no one was talking about mental illness. And she was fearful and guarded. Hence, that diva shell we have come to know.

But in times of extreme stress,  medication may need to be reevaluated. She has had a very stressful year. We may not remember that Mariah lost both her mother, Patricia, and older sister, Alison, who passed away on the same day last August.

Mariah released a statement a few days later to People that said,

“My heart is broken that I’ve lost my mother this past weekend. Sadly, in a tragic turn of events, my sister lost her life on the same day,” the Grammy-winning singer, 55, said in an exclusive statement to PEOPLE.

“I feel blessed that I was able to spend the last week with my mom before she passed,” adds Mariah. “I appreciate everyone’s love and support and respect for my privacy during this impossible time.”

Mariah detailed her complicated family dynamics in her memoir.

Like many aspects of my life, my relationship with my mother has been marked by contradictions and competing realities. It’s never been only black-and-white — it’s been a whole rainbow of emotions,” she wrote in her 2020 memoir, The Meaning of Mariah Carey.

 

 

 

 

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Mariah Carey Got Her First VMA Award (Folks Were Concerned) - Black Health Matters When Mariah Carey sang her hits at the VMAs on Sunday, September 7th, people loved her voice and were concerned about her lack of movement. bipolar II,depression hypomania,diva,grief,grief reovery,Health,Mariah Carey,mental health,The Meaning of Mariah Carey,Mariah Carey
Severance’s Tramell Tillman Takes Home An Emmy https://blackhealthmatters.com/severances-tramell-tillman-takes-home-an-emmy/ Mon, 15 Sep 2025 23:51:23 +0000 https://blackhealthmatters.com/?p=57158 If you’ve ever watched Severance on Apple TV+, then you know that Tramell Tillman deserved to take home the Outstanding Supporting Actor in a Drama series. His portrayal of Seth […]

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If you’ve ever watched Severance on Apple TV+, then you know that Tramell Tillman deserved to take home the Outstanding Supporting Actor in a Drama series. His portrayal of Seth Milchick, given that it was the last acting field to honor a Black actor in its 77-year history, made it that much sweeter. He deserved it this season for his body of work. But two things will forever make him legendary, if you know Severance. “Choreography and Merriment” was an epic display of his character, Milchilck, displaying a bit of his “outie” and “devour feculence,” which I will explain more about later.

Tillman’s Speech

The 40-year-old, who grew up in Prince George’s County, Maryland, strode up to the podium decked out in head-to-toe white.

“You remember what you want to remember. You make time for what you want to make time for. Do the work. Show up. And most importantly, for the love of God, don’t embarrass me in public,” he exclaimed.

My first acting coach was tough, y’all, but all great mothers are. Momma, you were there for me when no one else was, and no one else would show up. Your lovingkindness stays with me. And this is for you,” he continued.

Thank you to the Academy. I am full, I am honored, I am humbled, and as my momma would say, Woo, look at God.”

What You Should Know About Severance

In the not-too-distant future, workers have the option of having a brain implant installed that separates their work and home lives. Their work and home life memories are entirely separated. They have no idea what they do at work.

Gamerant describes it succinctly: “The terms they use to differentiate their two selves are ‘innie’ (work self) and ‘outie’ (home self). With the implant, their outie arrives at Lumon, boards the elevator to go down to the Severed Floor (located just above the basement), and during the elevator trip, their brain switches to the consciousness of their innie.”

The four main characters, Marc, Dylan, Irving, and Helly, work in a department at Lumon. Tillman is their supervisor, Seth Milchick. He is a company man through and through in Season One. In Season Two, part of his veneer starts to crumble.

Even Tillman Doesn’t Know That Much about Milchick

In an interview with The Breakdown, Tillman talked about the interview process for the role. “I remember Ben [Stiller] telling me even before I got the role, ‘This guy could be mean, and this guy could be nice.’ Okay, great. I don’t know how much to do with that.”

Trimmel identifies multiple roles he plays as the supervisor: teacher, mentor, enforcer, and, above all, his absolute devotion to Lumon.

“There is something that Lumon gives him that he can’t get anywhere else, and what that is has not been established yet, and that’s the fun of it,” Trimmel said.

But he equates the character he plays with a cult-like devotion to the work.

The Things That Bring Milchick Close to Cracking Mirror Our Real Lives

His character’s performance review felt like another day as an articulate Black person in corporate America, but more treacherous.

Afrodiza has broken down the character and compared it to what it is like for us in corporate environments. You don’t have to watch the series to relate.

But Yet, Trimmel Made Sure That the Marching Band Was an HBCU

Trimmel had a standout episode in Season 1, Episode 7, in which he lets loose and does a funky dance with the team, inspired by the “Music Dance Experience.” The actor didn’t necessarily want to make dancing a “thing.”

However, when director Ben Stiller came to the season finale and talked to him about his idea of a marching band, Tillman saw an opportunity. If he had his choice, it would be an HBCU-style band, and he would be the drum major.

“I went to two HBCUs, and one of them was Jackson State University. They housed the Sonic Boom of the South, one of the best marching bands in the country, and I would watch them during my undergrad years with such awe and amazement in the athleticism, the creativity, and the passion that these musicians and dancers served with,” he told Variety.

At least in that moment, he could find joy in the character he was playing. And we found joy in celebrating his accomplishments.

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Severance's Tramell Tillman Takes Home An Emmy - Black Health Matters If you've ever watched Severance, then you know that Tramell Tillman deserved to take home the Outstanding Supporting Actor in a Drama series 77th Emmy Awards,Ben Stiller,choreography and merriment,John Turturro,Outstanding Supporting Acting Drama series,Seth Milchick,Severance,Tramell Tillman,Tramell Tillman Severance
CAR-T Therapy Is Changing Ovarian Cancer Care https://blackhealthmatters.com/car-t-therapy-is-changing-ovarian-cancer-care/ Fri, 12 Sep 2025 01:14:22 +0000 https://blackhealthmatters.com/?p=56997 Ovarian cancer remains one of the deadliest gynecologic cancers, often diagnosed late and prone to recurrence. For Black women, who face systemic barriers to early detection and equitable care, the […]

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Ovarian cancer remains one of the deadliest gynecologic cancers, often diagnosed late and prone to recurrence. For Black women, who face systemic barriers to early detection and equitable care, the stakes are even higher. Now, a promising new approach called CAR-T cell therapy is offering a glimmer of hope for patients with advanced disease.

The research is still unfolding, but here’s what we know so far about how CAR-T therapy is being used to treat ovarian cancer.

What Makes Ovarian Cancer So Hard to Treat

According to the National Cancer Institute’s SEER Program, an estimated 20,890 women in the United States will be diagnosed with ovarian cancer in 2025. About 12,730 are expected to die from the disease. The five-year relative survival rate is 51.6 percent, but that number drops significantly for Black women, who face unique barriers to early detection, timely treatment, and access to clinical trials.

As Dr. Oliver Dorigo, director of gynecologic oncology at Stanford Medicine, explained in a Stanford Cancer Institute report, “Ovarian cancer remains a very difficult disease to treat, especially when it recurs. Many patients are in dire need of better therapies.”

What Is CAR-T Cell Therapy?

CAR-T stands for chimeric antigen receptor T-cell therapy. It’s a form of immunotherapy that modifies a patient’s own T cells, white blood cells that help fight disease, to better recognize and destroy cancer cells. Researchers collect T cells from the blood, reprogram them in a lab, and return them to the body, where they act as targeted cancer hunters.

This therapy has shown remarkable success in blood cancers like leukemia. Now, researchers are adapting CAR-T therapy for solid tumors, including ovarian cancer.

Inside the Promise of CAR-T Therapy

Stanford researchers, including Dr. Oliver Dorigo and Dr. Crystal Mackall, a leading expert in cell therapy, are testing CAR-T cells that target a protein called B7-H3, which is highly expressed in ovarian tumors. Their phase 1 trial, launched in late 2024, is exploring both intravenous and direct abdominal delivery. That abdominal approach could offer more precise targeting, since ovarian cancer often remains confined to the abdomen.

Early Results and What Comes Next

Initial findings from the trial are encouraging. Researchers saw early promise and learned from side effects in the first six patients, helping to refine the therapy.

Researchers are also exploring ways to improve CAR-T therapy for solid tumors, including ovarian cancer. That includes pairing it with other treatments and finding ways to help immune cells reach tumors more effectively.

What This Means for Black Women

While these therapies are still in early stages, they reflect a shift toward more personalized, immune-based treatment. Approaches like CAR-T could eventually offer longer-lasting results with fewer side effects.

But access matters. For Black women, who are often underrepresented in clinical trials and underserved in cancer care, these innovations won’t mean much unless they’re available to everyone. A recently updated PARP inhibitors trial, which tested a targeted therapy for ovarian cancer, included only 1.6 percent Black participants, according to data from ClinicalTrials.gov. Without diverse participation, researchers can’t fully understand how well these treatments work for the people who may need them most.

Breakthroughs Without Representation

Studies show that Black women are 25 percent less likely than white women to receive ovarian cancer treatment that follows national guidelines, according to a meta-analysis published by Oxford University Press.

Even when cancer stage and treatment type are similar, Black women often face worse outcomes. Many Black women experience resistance to chemotherapy and recurrence sooner than other groups.

These gaps in care aren’t explained by biology alone. Many Black women are diagnosed with high-grade serous tumors, the most aggressive form of ovarian cancer. Yet access to genetic testing, personalized treatment plans, and clinical trials remains limited. Some providers delay referrals or underestimate symptoms. Others fail to explain options in ways that feel trustworthy or culturally relevant.

As therapies advance, advocacy must ensure that Black women are included in research. They must be informed about emerging treatments and supported through care that respects their experiences and meets their needs.

And CAR-T cell therapy may be just that, a new beginning in a story that needs change.

Resources:

Ovarian Cancer — Cancer Stat Facts

Using CAR-T cells to treat ovarian cancer | Stanford Cancer Institute

Study Results | NCT02655016 | A Study of Niraparib (GSK3985771) Maintenance Treatment in Participants With Advanced Ovarian Cancer Following Response on Front-Line Platinum-Based Chemotherapy | ClinicalTrials.gov

Race, Socioeconomic Status, and Health-Care Access Disparities in Ovarian Cancer Treatment and Mortality: Systematic Review and Meta-Analysis | JNCI Cancer Spectrum | Oxford Academic

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The Silent Killer: Black Women & Ovarian Cancer https://blackhealthmatters.com/silent-killer-black-women-ovarian-cancer/ https://blackhealthmatters.com/silent-killer-black-women-ovarian-cancer/#respond Thu, 11 Sep 2025 12:30:02 +0000 http://www.bhm.mauldinwebhosting.com/?p=30182 Black women are less likely to be diagnosed with ovarian cancer than white women, but are more likely to die from it. A lack of access to quality care and […]

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Black women are less likely to be diagnosed with ovarian cancer than white women, but are more likely to die from it. A lack of access to quality care and genetic testing, as well as late diagnosis, may be contributing factors.

The American Cancer Society estimates there will be 20,890 newly diagnosed cases of ovarian cancer in 2025, and 12,730 women will die from the disease. An estimated one woman in 91 will develop ovarian cancer during her lifetime.

According to the Ovarian Cancer Research Alliance, the condition is most frequently diagnosed in women between the ages of 55 and 64.

Ovarian Cancer By the Numbers

When one is diagnosed and treated in the earliest stages, the five-year survival rate is over 90 percent. Due to ovarian cancer’s non-specific symptoms and lack of early detection tests, only 20 percent of all cases are diagnosed at this early stage. If caught in stage III or higher, the survival rate can be as low as 30.6 percent.

Due to the nature of the disease, each woman diagnosed with ovarian cancer has a different profile, and it is impossible to provide a general prognosis. The five-year ovarian cancer survival rate for white women is 50.6%; in Black patients, it’s 43.2%.

How Ovarian Cancer Impacts Black Women

The journal Obstetrics & Gynecology Health Disparities in Ovarian Care did a deep dive into the differences between Black, white, Asian, and Native American populations, Hispanic populations, when it came to diagnosis, care, and mortality. They looked at several years, going back to 1985.

Black patients overall and any other patient with a low socioeconomic background had worse outcomes.

“Black patients had 17–18% worse survival compared with White patients. Potential explanations include earlier age and later stage at diagnosis and disparities across the entire care continuum of ovarian cancer: diagnosis, treatment, and precision testing.”

Other factors that impacted treatment, according to this literature review, included the type of insurance the patient had. If it is non-private, the patient is less likely to have received the National Comprehensive Cancer Network guideline-concordant ovarian cancer treatment. This resulted in a 10% increase in the patient’s mortality risk. Non-private insurance also impacts access to genetic testing.

If patients lived in rural areas, who didn’t want to travel, or were treated in a lower volume hospital by a surgeon doing fewer surgeries, they received 16-31% NCCN guideline-concordant ovarian cancer treatment.

Bottom line: it is not as simple as a late diagnosis. It is who is treating us, and where we are treated. And if we are getting the correct protocols.

Who is at Risk For Ovarian Cancer?

According to the Ovarian Research Alliance, about 25% of ovarian cancer cases diagnosed are hereditary. And they can be primarily traced to BRCA-1 and BRCA-2 gene mutations (Black women can also have them). The connection is usually a history of breast cancer.

Other risk factors include:

  • Lynch syndrome, also known as hereditary nonpolyposis colorectal cancer
  • Family history of ovarian, breast, uterine, or colorectal cancer.
  • A personal history of cancer or endometriosis
  • Early menstruation, no childbirth, first childbirth after 30, late menopause, no oral contraceptives, or infertility increase the risk.
  • HRT: Long-term use increases risk, especially with combined estrogen and progestin.
  • Obesity is associated with a higher ovarian cancer risk, especially post-menopause.

The American Cancer Society Cancer Facts & Figures Report states, “Some women at high risk because of a strong family history or inherited genetic mutations may consider preventive surgery to remove both ovaries and fallopian tubes (prophylactic bilateral salpingo-oophorectomy), which greatly reduces risk.”

 What is Ovarian Cancer?

Ovarian cancer is a disease in which malignant or cancerous cells are found in the ovaries. An ovary is one of two small, almond-shaped organs located on each side of the uterus that store eggs or germ cells and produce female hormones estrogen and progesterone.

According to The American Cancer Society, however, the disease was previously believed to start only in the cells of the ovaries. But ovarian cancer may also begin in the fallopian tubes.

Types of Ovarian Cancer

Epithelial Ovarian Cancer

The majority of ovarian cancers are categorized here (85-90%) and can start in the cells of the fallopian tube or the ovaries. The cells are further classified based on genetic analysis into the following categories:

  • High-grade serous carcinoma (This is the most common type.)
  • Low-grade serous carcinoma
  • Endometrioid carcinoma
  • Clear cell carcinoma
  • Mucinous carcinoma

Primary Peritoneal Carcinoma

This is a rare cancer that is related to epithelial ovarian cancer. However, it may have spread to the abdomen.

Fallopian Tube Cancer

Fallopian tube cancer is similar to epithelial ovarian cancer and often spreads to the ovary and peritoneum.

Ovarian Sex Cord-Stromal Tumors

Ovarian sex cord-stromal tumors (SCSTs) are a group of tumors that originate either from the sex cord or stromal cells:

  • Sex cord cells are a type of epithelial cell that eventually develop into ovaries (in females) and testes (in males).
  • Stromal cells form the connective tissue that gives the ovaries structure.

Ovarian Germ Cell Tumors

Most ovarian germ cell tumors are benign, but some are cancerous and may be life-threatening. Less than 2% of ovarian cancers are germ cell tumors.

  • Dysgerminoma is rare; it is the most common ovarian germ cell cancer.

What Are the Symptoms of Ovarian Cancer?

Ovarian cancer is difficult to detect, especially in the early stages. This is partly because these two small, almond-shaped organs are deep within the abdominal cavity, one on each side of the uterus.

According to the Mayo Clinic, these are some of the potential signs and symptoms of ovarian cancer:

  • Quickly feeling full when eating
  • Abdominal bloating or swelling
  • Weight loss
  • Feeling the need to urinate urgently or often
  • Fatigue
  • Discomfort in the pelvic area
  • Back pain
  • Changes in bowel habits, such as constipation

Make an appointment with your HCP if your symptoms are persistent.

Getting Evaluated By Your HCP

Your HCP may need to perform several tests before there is a conclusive diagnosis. They may include:

  • A pelvic exam
  • Blood tests. The most common tumor marker is a blood test called the CA-125.
  • Genetic tests
  • Surgery

If Your Results Come Back Positive

Consult a gynecologic oncologist immediately. They may want to review your current test and order additional ones, along with the results. However, the only way to more accurately confirm ovarian cancer is with a biopsy, a procedure in which the doctor takes a sample of the tumor and examines it under a microscope.

Getting Diagnosed

Make the most of your appointment. Come with some questions ready after the initial shock has worn off. Or bring a supportive wingperson with you. A significant other, sister, BFF, or work friend, let them ask the questions you have scribbled in your notebook. But we’ve got a cheat sheet down below to get you started, and you can add more from here.

  • What type of ovarian cancer do I have?
  • Has my cancer spread beyond the ovaries?
  • What is the cancer’s stage (extent), and what does that mean?
  • Will I need other tests before we can decide on treatment?
  • Will I be able to have children after my treatment?
  • Should I think about genetic testing?
  • What are my clinical trial options?
  • This is overwhelming. Where can I find support?

Partner With Your HCP

After your diagnosis, you’ll partner with your oncologist to choose a customized treatment plan that works for you. The treatment will vary based on the stage of the disease, your age, and your health condition. The ACS points out that most ovarian cancer patients may require surgery. But depending on the type of ovarian cancer and how advanced it is, you might need other types of treatment as well, either before or after surgery, or sometimes both.

Treatment Options May Include:

  • Chemotherapy
  • Radiation
  • Targeted Drug Therapy
  • Hormone Therapy
  • Immonotherapy

Consider Genetic Testing

In an article in Nature, Sophia George explores solutions for why Black women have lower survival rates and higher rates of recurrence. In examining data from the NCI, she noticed that we have higher rates of rarer cancers.

“Black women are more likely to have germ-cell and stromal-cell tumours, and less likely to have epithelial ovarian cancers,” she wrote. Despite these differences, new approaches to clinical care — including genomic medicine — are underutilized in this population. ”

Then there are new treatments like PARP inhibitors, but when only 1.6% participants in the trial are, George says, “the efficacy of PARP inhibitors in Black women remains poorly characterized.”

Finally, she notes that Black patients are less likely to have their tumors analyzed. “This exacerbates disparities in the treatment that they receive and limits cancer-prevention opportunities in family members.”

Using Black women’s poorer response to platinum-based chemotherapy as an example, George believes that genetics may play a role. She argues that there is a similar type of inherited breast and ovarian gene variant in West African, Black American, and white women.

“But certain subpopulations of Black women3 experience hereditary breast and ovarian cancer syndromes at rates comparable to or greater than those seen in the Ashkenazi Jewish population, which has considerably higher rates of these cancers than the global average.”

We do know some families within our communities that have been hit hard by breast and ovarian cancers. They could benefit from genetic testing.

Five Preventive Strategies to Fight Ovarian Cancer

Genetic testing also provides insights that enable individuals to identify preventive measures they can take to reduce their risk of ovarian cancer. Here are five that the ORA suggests:

  • Using oral contraception for five or more years can reduce ovarian cancer risk by 50%.
  • Multiple pregnancies or your first full-term birth by age 26 reduces your risk, and breastfeeding does, too.
  • Removal of your Fallopian tubes (Bilateral Salpingectomy). It reduces the risk of cancer forming in the fallopian tubes while preserving fertility with the help of IVF.
  • Removal of Fallopian Tubes and Ovaries Bilateral salpingo-oophorectomy significantly reduces risk. There is a slight chance you can still get a rare kind of ovarian cancer.  Especially beneficial when performed by age 35-40 for women with BRCA1 mutations or by age 40-45 for those with BRCA2 mutations.
  • Hysterectomy and Tubal Ligation: Hysterectomy may reduce the risk of ovarian cancer by 33%, and tubal ligation by up to 67%.

 

Resources:

American Cancer Society: Types of Ovarian Cancer

Ovarian Research Alliance: Prevention and Risks 

Mayo Clinic: Symptoms of Ovarian Cancer

Health Disparities in Ovarian Care

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Ayo Edebiri Will Not Be Ignored https://blackhealthmatters.com/ayo-edeibiri-will-not-be-ignored/ Mon, 08 Sep 2025 21:16:17 +0000 https://blackhealthmatters.com/?p=56696 Contrary to popular opinion, Black women are not invisible. Actress Ayo Edebiri reminded a reporter of that in an interview that went viral from the Venice Film Festival. Following the […]

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Contrary to popular opinion, Black women are not invisible. Actress Ayo Edebiri reminded a reporter of that in an interview that went viral from the Venice Film Festival. Following the screening of their film After the Hunt, she joined Julia Roberts, Andrew Garfield, and her costars for a press conference, and she had to teach a reporter a few things.

The Question That Started It All

According to Deadline, an Italian journalist named Federica Polidoro asked this question: “What was lost during the politically correct era? And what can we expect in Hollywood? Now that the Me Too and the Black Lives Matter Movement are done [according to her].

Garfield was stunned into silence. Edebiri started absorbing the unexpected macroaggressions. Roberts, the Oscar-winning actress, stepped in and said, “I’m sorry, with your dark glasses on, I’m not sure who you are talking to.”

That’s when Polidoro said “Andrew and Julia,” specifically leaving Ayo out. Then she repeated the entire question…again. The duo looked at one another. Garfield was clearly not touching that question.

I Am Going to Answer Anyway

Before Edebiri replied, she mentioned that she was curious as to why she wasn’t included in the discussion. Was it purposeful? Crickets. She received no response at all from Polidoro, as if she were not sitting there.

But the award-winning actress, primarily known for the Hulu series The Bear, said, “I don’t think it’s done. It’s not done at all. I think maybe hashtags might not be used as much, but I do think that there’s work being done by activists, by people, every day, that’s beautiful, important work that’s not finished, that’s really, really active for a reason, for a reason, because this world is really charged,” she continued.

“Maybe there’s not mainstream coverage in the way that there might have been daily headlines in the way that it might have been eight or so years ago, but I don’t think that means that the work is done. That’s what I would say.”

Garfield and Roberts agreed that although coverage is not as constant on both fronts as it once was, #MeToo, started by Tarana Burke, and #BlackLivesMatter are not over.

Some Journalists (Still) Just Don’t Understand

Reactions on social media to this interview have been swift. Some have gone to Polidoro’s social accounts to leave a few comments of their own. It prompted a statement that doesn’t make things any better for her. She mentions her long journalistic record, but never explains her erasure of Edebiri.

Reminds us of a specific person talking to a qualified reporter recently, as if she didn’t belong.

But Edebiri Will Be Moving On to Her Next Big Thing

Next spring,  the 29-year-old Edebiri is coming to Broadway. She will be starring opposite Don Cheadle in a revival of Proof. This is a Pulitzer Prize and Tony Award-winning play by David Auburn about struggling with mathematical genius and mental illness. Edebiri will be doing the teeth gnashing after caring with her seriously ill father (Cheadle), who battled an illness related to his psychological well-being.

The title of the play comes from someone discovering some mathematical formula that is “proof” of some theory, and I suspect Edebiri will have her own tour de force every night.

So she can’t get too distracted by this dustup.

 

View this post on Instagram

 

A post shared by Proof Broadway (@proofbroadway)

 

And every time someone says a Black woman handles some slight with “grace,” I think about the connection between suppressed rage and autoimmune diseases. It can’t cost us our health. But that’s a story for another day,

 

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Ayo Edebiri Will Not Be Ignored - Black Health Matters Black women are not invisible. Actress Ayo Edebiri reminded a reporter of an interview that went viral from the Venice Film Festival. #BLM,#MeToo,Andrew Garfield,Ayo Edebiri,black lives matter,Julia Roberts,The Bear,TIFF,Tornto Film Festival,Ayo Edebiri