Jillian Wright, Contributor for Black Health Matters Black Health Matters, News, Articles, Stats, Events Wed, 22 Oct 2025 17:42:19 +0000 en-US hourly 1 https://wordpress.org/?v=6.9.1 https://blackhealthmatters.com/wp-content/uploads/2022/03/favicon.png Jillian Wright, Contributor for Black Health Matters 32 32 The Red Dye No 3 Ban: Here’s What You Need to Know https://blackhealthmatters.com/the-red-dye-no-3-ban-heres-what-you-need-to-know/ Mon, 24 Mar 2025 18:29:00 +0000 https://blackhealthmatters.com/?p=46903 The FDA banned Red Dye No. 3 in January. However, according to the agency, companies have until January 2027 or January 2028 (if it is a drug) to replace the […]

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The FDA banned Red Dye No. 3 in January. However, according to the agency, companies have until January 2027 or January 2028 (if it is a drug) to replace the ingredient. The FDA granted the petition “because the additive induced cancer in male rats.” In the meantime, some states, like California, West Virginia, and Oklahoma, have passed bills (or are working on legislation) that will ban all seven artificial food dyes from school meals.

We’ve been consuming Blue No. 1, Blue No. 2, Green No. 3, Orange B, Red 40, Yellow 5, Yellow 6, and Citrus Red for years. These dyes are used in foods, drinks, and drugs to artificially brighten their color.

This week, Cnet.com listed nine categories of foods that still use it:

  • candy
  • cake
  • cupcakes
  • frozen desserts
  • frostings
  • icings
  • certain Marascino cherries
  • certain processed meats and meat substitutes

Many seasonal and nonseasonal candy products contain Red No. 3, like cherry cordials, Brach’s Classic Jelly Beans and Spiced Jelly Beans, Conversation Hearts, Candy Corn, PEZ candy, Dubble Bubble gum, and some flavors of Ring Pops. Here’s what you might want to consider before making those Easter baskets.

Pillsbury Funfetti Strawberry Cake & Cupcake mix uses red Dye No. 3 along with its yellow and chocolate cakes. Strawberry Milk Brands like Nesquik and True Moo use Red 3 to make their strawberry milk pink. Good Humor has it in their Strawberry Shortcake Ice Cream Bars. Vigo Yellow Rice enhances its products with it, while most yellow and saffron rice brands don’t use dye.

Yoo-hoo promises a reformulated Strawberry drink without the ingredient on shelves by the end of the year. The makers of the popular Peeps candies, a staple during the Easter season, say they have removed Red Dye No 3 from their products.

If you are unsure, the Environmental Working Group has compiled a searchable database of products that still use the banned ingredient (remember, it isn’t fully revoked until 2027 or 2028, depending on the category).

According to CNet.com, three viable natural alternatives are being discussed. “Givaudan Sense Colour, a manufacturing company that creates natural food and drink colorings, highlighted three possible alternatives to Red No. 3 — carmine, which is actually made from bugs; betacyanins, found in beetroots; and anthocyanins, derived from fruits and vegetables.”

The Associated Press reports that some food dyes are already banned in the European Union and countries like Japan and Australia because of their potential health risks.

 

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The Impact of Atopic Dermatitis and Prurigo Nodularis in African Americans: A Journey to Better Skin Health https://blackhealthmatters.com/the-impact-of-atopic-dermatitis-and-prurigo-nodularis-in-african-americans-a-journey-to-better-skin-health/ Wed, 19 Feb 2025 21:07:27 +0000 https://blackhealthmatters.com/?p=46338 When it comes to skin health, many people overlook the unique challenges faced by Black and Brown communities. Atopic Dermatitis (AD) and Prurigo nodularis (PN) are two chronic skin conditions […]

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When it comes to skin health, many people overlook the unique challenges faced by Black and Brown communities. Atopic Dermatitis (AD) and Prurigo nodularis (PN) are two chronic skin conditions that disproportionately affect African Americans, yet they often go undiagnosed or undertreated.

AD is commonly known as eczema, and PN is a rare chronic skin disorder resulting in itchy raised nodules on the skin. Raising awareness and ensuring access to appropriate care both play a key role in improving outcomes and quality of life.

Understanding Atopic Dermatitis

AD is a chronic inflammatory skin condition that features key symptoms of intense itching, dryness, and irritation. While it affects people of all races, African Americans are more likely to develop more severe and persistent cases. One reason is genetic variations in skin structure and immune response, making the skin more prone to inflammation and moisture loss.

In more melanated skin, atopic dermatitis may appear differently compared to white skin. Instead of the classic red, inflamed patches, impacted areas may look darker, ashy, or develop a rough, thickened texture due to scratching. Because of these differences, atopic dermatitis in people of color is frequently misdiagnosed or mistaken for other skin conditions, leading to delays in proper treatment.

If left untreated, AD can significantly impact daily life, causing sleep disturbances, emotional distress, and even increasing the risk of infections due to constant scratching. The burden is even greater for African Americans, who may face barriers such as limited access to dermatologists familiar with treating darker skin tones.

What is Prurigo Nodularis?

PN is a lesser-known but equally distressing skin condition that leads to itchy, hard nodules on the skin as well as significant inflammatory and nervous system involvement. Unlike AD, which is primarily driven by immune system dysfunction, PN results from an exaggerated nerve response which leads to the physical symptoms. This neurological component makes PN particularly difficult to manage, as traditional treatments may not fully address the underlying nerve dysfunction.

African Americans are three to four times more likely to develop PN than other racial groups. Like AD, PN in darker skin may be misdiagnosed due to differences in how it presents, and the chronic itch and discomfort can make daily activities unbearable, often leading to severe sleep disturbances, anxiety, and depression.

PN is also similar to AD in that many people suffer for years without understanding the cause of their symptoms, often resorting to home remedies or ineffective treatments.

Embrace Your Skin Health Journey

For many people, living with a chronic skin condition like AD or PN can feel isolating. If you’ve felt alone in your journey with AD or PN, know that support is available. Many others share your experience, and resources exist to help you find answers and relief.

The first step in managing these chronic skin conditions is getting the proper diagnosis. If you or someone you love experiences persistent itching, skin discoloration, or raised nodules, it’s important to see a dermatologist, preferably one with experience treating skin of color. Early intervention can prevent complications and help improve quality of life.

Other key steps you can take to kick off your journey to better skin health include utilizing recommended and available treatment options, keeping skin moisturized, and utilizing techniques that can help minimize itching and discomfort.

Raising Awareness and Expanding Resources

The lack of awareness surrounding AD and PN in the Black community contributes to ongoing disparities in diagnosis and treatment. By increasing visibility, spreading awareness, ensuring better access to care, and advocating for research that includes diverse populations, we can help bridge these gaps and empower others in our communities to take control of their skin health.

Click here to listen to a firsthand account of what it’s like to live with PN.

For more information and support and to learn more about treatment options, clinical trials, and other members of the AD/PN community visit:

National Eczema Association: https://nationaleczema.org

Understand AD: https://www.understandad.com

PN Exposed: https://www.pnexposed.com

References:

https://www.understandad.com

https://www.pnexposed.com

https://nationaleczema.org

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Obesity Uncovered: Exploring the Root Causes https://blackhealthmatters.com/obesity-uncovered-exploring-the-root-causes/ Sun, 15 Dec 2024 20:52:03 +0000 https://blackhealthmatters.com/?p=45579 One common misconception about obesity is that it is a result of poor dietary choices or lack of physical activity. The reality is that obesity is influenced by multiple factors, […]

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One common misconception about obesity is that it is a result of poor dietary choices or lack of physical activity. The reality is that obesity is influenced by multiple factors, many of which lie beyond our control. From genetics to environmental conditions, stress, bias and stigma, sleep deprivation, medications, and even other health conditions, the root causes of obesity extend far beyond personal choices. Understanding these causes is critical for addressing the condition effectively, and clinical trials are increasingly playing a key role in developing new and innovative treatments for those affected by obesity.


Genetics

One of the most significant contributors to obesity is genetics. Your genes can influence your susceptibility to weight gain by affecting factors like metabolism, fat storage, and how the body regulates hunger and feeling full. In fact, there are at least 15 genes that have been linked to obesity.

Your genetics don’t guarantee you will develop obesity but can make it more difficult to lose weight or maintain weight loss, even with lifestyle changes. This genetic component highlights the importance of considering medical intervention and underscores why obesity is not merely a matter of willpower or discipline.

Sleep

In today’s fast-paced society, lack of sleep is common and often overlooked as a contributor to obesity. However, poor sleep is a risk factor in weight gain. Experts recommend you get at least seven hours of sleep at night, which may seem unattainable for some.

However, if you don’t get enough sleep, the body can experience hormonal imbalances. Sleep-deprived individuals tend to have higher levels of the hormone that stimulate hunger and lower levels of the hormone that signals fullness. This can lead to increased appetite and cravings for unhealthy foods.

Stress

Stress is another powerful factor contributing to obesity. When the body is under stress it releases hormones that control energy and hunger. Chronic stress leads to persistently elevated cortisol levels, which can stimulate appetite, particularly for unhealthy foods. Over time, this can result in weight gain, creating a cycle that can be hard to break without targeted intervention.

Medications and Other Health Conditions

Certain medications and health conditions can also contribute to obesity.

The following medications may cause but do not guarantee weight gain:

  • Certain antidepressants
  • Certain antipsychotics
  • Prolonged steroid use
  • Some forms of birth control

Additionally, some diabetes and hypertension treatments such as insulin and beta blockers can cause weight gain as a side effect.

These medications may alter metabolism, increase appetite, or lead to fluid retention, all of which can contribute to weight gain.

Conditions such as hypothyroidism (an underactive thyroid), polycystic ovary syndrome (PCOS), and Cushing’s syndrome are known to interfere with metabolism and can lead to obesity, even in individuals who maintain a healthy diet and active lifestyle.

The Role of Clinical Trials

As our understanding of the root causes of obesity deepens, so does the potential for more effective treatment options. Clinical trials are a critical part of this process, providing the discovery of new medications and therapies. For those struggling with obesity, participating in a clinical trial may offer access to investigational treatments that are not yet available to the general public.

Clinical trials represent hope for new obesity treatments. Consider exploring the investigational treatments available through clinical trial participation and click here to learn more.

References:

NIH. NIDDK. Factors Affecting Weight and Health

NHLBI. Overweight and Obesity – Causes and Risk Factors

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Addressing the Challenges of Maintaining Weight Loss Long-Term https://blackhealthmatters.com/addressing-the-challenges-of-maintaining-weight-loss-long-term/ Sun, 15 Dec 2024 20:47:15 +0000 https://blackhealthmatters.com/?p=45582 Weight loss is often seen as the hardest part of the journey to better health but maintaining that weight loss can be even more challenging. While the initial excitement of […]

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Weight loss is often seen as the hardest part of the journey to better health but maintaining that weight loss can be even more challenging. While the initial excitement of seeing the numbers on the scale drop may be a source of motivation, the transition from actively trying to lose weight to maintaining weight loss long-term can present unexpected obstacles.

Unlike the structured diet plans and clear goals associated with losing weight, maintaining weight requires a shift in daily habits, behaviors, and mindset that can be sustained long-term. This shift often conflicts with the body’s natural responses, such as slowed metabolism and increased hunger. This can make maintaining weight loss over time feel like an uphill battle. Understanding how to maintain weight loss is crucial for developing realistic strategies that support success.

Identifying the Challenges

Excess weight can be caused by obesity. Obesity is characterized by the presence of excess body fat, hormonal disruption, and associated with many other health conditions. It can be more challenging to lose weight when you have obesity because your body fights the processes that aid in Keeping your body weight at a healthy level.

Healthy weight loss typically involves losing 1 to 2 pounds per week. Since healthy weight loss is a gradual progress, it can sometimes feel discouraging when the numbers on the scale aren’t changing quickly. Noticeable results early in the process are often a source of motivation to continue lifestyle changes. However, it is important to adopt lifestyle changes that not only lead to weight loss but can also health benefits that be maintained over the long term. Identifying some challenges associated with maintaining weight loss can promote a successful weight loss journey.

Challenge #1: Slowed Metabolism

After losing weight, the body often responds by slowing down its metabolism, which means it burns less energy ( or fewer calories).. This is a natural process but can make it more difficult to maintain weight loss because the body requires fewer calories to maintain its new weight.

Challenge #2: Increased Hunger Hormones

Weight loss can trigger changes in hunger hormones like leptin and ghrelin, which may increase appetite and cravings. This biological response can make it harder to stick to healthy eating patterns and can lead to overeating or weight regain.

Challenge #3: Mental Burnout

Sustaining the mental effort required for long-term weight management can lead to burnout. The ongoing work and effort needed to track food intake, exercise, and manage emotions around eating can be exhausting, leading some people to give up or revert to old habits.

Challenge #4: Environmental Pressures

Maintaining weight loss often requires resisting social pressures, such as eating out, overindulging in celebratory foods, high stress levels, and time constraints that make it harder to exercise or get enough sleep. Over time, it can become challenging to balance a healthy lifestyle with the demands and temptations of everyday life.

Each of these challenges requires ongoing effort, but with the right mindset and strategies, they can be managed effectively.

Four focus areas for obesity treatment that can sustain weight loss long-term include physical activity, behavior including mental health and lifestyle modification, diet, and medical

interventions such as prescription medication or bariatric surgery. or other treatments (if appropriate). Your healthcare provider or an obesity specialist can help come up with a comprehensive plan personalized for your needs.

Overcoming Challenges

Ready to take control of your weight long-term? You can overcome challenges to maintaining weight loss by taking actionable steps such as increasing physical activity, eating nutritionally balanced meals, monitoring your dietary intake by keeping a food diary, and seeking support from those around you.

Maintaining weight loss is a complex journey that often requires more than willpower alone. As highlighted in this article, the challenges of sustaining long-term weight loss can make it difficult to achieve lasting success without support. Treatment for biological causes of excess weight such as obesity may be needed.

For some, participating in clinical trials may offer an opportunity to access investigational treatments and interventions designed to support weight management. Whether you’re a patient or caregiver, consider talking to your provider about whether joining a clinical trial might be the next step in your weight management journey. Click here to learn more about joining a clinical trial.

References:

Hall KD, Kahan S. Maintenance of Lost Weight and Long-Term Management of Obesity.

CDC. Tips for Keeping Weight Off.

Obesity Medicine Association. (2023). Four pillars of obesity management. Obesity Medicine Association. https://obesitymedicine.org/about/four-pillars/

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Looking Beyond the Scale: Identifying Obesity https://blackhealthmatters.com/looking-beyond-the-scale-identifying-obesity/ Sat, 14 Dec 2024 21:47:00 +0000 https://blackhealthmatters.com/?p=45559 Obesity is a chronic disease often thought of simply as having excess body weight, but the reality is more complex than the number that appears on a scale. While weight […]

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Obesity is a chronic disease often thought of simply as having excess body weight, but the reality is more complex than the number that appears on a scale. While weight can be an indicator, diagnosing obesity requires a more comprehensive assessment that looks at various factors beyond just body mass. Understanding how obesity is diagnosed is essential for anyone concerned about their health, and clinical trials are opening doors to new ways of understanding and addressing this chronic condition.

The Role of BMI in Diagnosing Obesity

The most common method used to diagnose obesity is the Body Mass Index (BMI). BMI is a calculation based on a person’s height and weight, and it is used to categorize individuals into different weight ranges: underweight, normal weight, overweight, and obesity. According to BMI standards, a BMI of 30 or higher is classified as obesity.

While BMI is a simple and widely-used tool, it has its limitations. For instance, it doesn’t account for differences in muscle mass, fat distribution, or overall body composition. An athlete with high muscle mass might have a high BMI but very little body fat, while someone with a lower BMI could still carry excess fat around vital organs, which can be just as harmful.

When it comes to race specifically, there are differences among racial and ethnic groups. BMI may not equally reflect body composition or health risks across all groups. This is why diagnosing obesity involves more than just stepping on a scale.

Waist Circumference and Body Fat Distribution

Another important factor in diagnosing obesity is waist circumference, which provides insight into where fat is distributed in the body. Abdominal fat, or visceral fat, is particularly dangerous because it surrounds internal organs and increases the risk of conditions such as heart disease, type 2 diabetes, and stroke. Measuring waist circumference helps identify individuals at higher risk, even if their BMI falls within a normal or overweight range.

A waist circumference of more than 40 inches for men and more than 35 inches for women, is considered indicative of higher health risks. This measurement, combined with BMI, can give healthcare providers a clearer picture of a person’s metabolic health and health risks, beyond what body weight alone can reveal.

Other Diagnostic Tools: Body Composition Analysis

In some cases, healthcare professionals may use more advanced diagnostic tools to assess obesity. Body composition analysis, for example, is a method that can measure the percentage of fat, muscle, and bone in a person’s body.

These tests provide a more detailed understanding of body fat distribution and overall health risks associated with obesity. For instance, they can help distinguish between subcutaneous fat

(the fat under the skin) and visceral fat (the fat around internal organs), offering a better assessment of an individual’s metabolic health.

Beyond Diagnosis: The Importance of Clinical Trials

While the clinical tools used to diagnose obesity are helpful, the treatment of obesity remains a challenge for many people. Diet and exercise alone may not be enough to achieve and maintain significant weight loss and the health benefits after weight loss, especially for individuals with underlying health conditions or genetic predispositions.

This is where clinical trials come into play. Clinical trials are research studies that test new investigational treatments and therapies to determine their safety and effectiveness. For those diagnosed with obesity.

If you’ve been diagnosed with obesity, a clinical trial may be a viable option, consider exploring the clinical trials available to you and click here to learn more.

References:

NIH. NIDDK. Symptoms and Diagnosis

NIDDK. Definition & Facts for Adult Overweight and Obesity

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Understanding Obesity as a Chronic Condition https://blackhealthmatters.com/understanding-obesity-as-a-chronic-condition/ Sat, 14 Dec 2024 17:12:59 +0000 https://blackhealthmatters.com/?p=45553 Obesity has become one of the most prevalent health challenges worldwide, affecting more than 40% of adults in the United States. African American women particularly, have the highest rates of […]

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Obesity has become one of the most prevalent health challenges worldwide, affecting more than 40% of adults in the United States. African American women particularly, have the highest rates of obesity compared to other groups in the United States at 57%.


It’s often misunderstood as simply an issue of overeating or lack of physical activity. However, obesity is a complex and chronic condition influenced by a combination of genetics, metabolism, behavior, and environmental factors. Like other chronic diseases, such as diabetes or heart disease, obesity requires long-term, comprehensive management to improve health outcomes.

Because obesity is a chronic condition, it often persists despite lifestyle changes. While diet and exercise are essential components in managing weight, many people find these efforts are not enough on their own. This is because obesity involves multiple biological systems that regulate appetite, energy use, and fat storage, making it difficult for some to lose weight or maintain weight loss over time.

Among African Americans face even more difficulties such as chronic stress levels, impact of systemic racism on social determinants of health, and more, but the good news is that medical interventions and ongoing research are investigating new treatments.

Why Obesity Is Considered Chronic

Obesity is categorized as a chronic condition because it typically develops and persists over time, often requiring ongoing treatment. A person’s body weight is regulated by a complex system involving many different parts of the body such as the brain, hormones, and the digestive system. Disruptions to this system can lead to the development of obesity. For example, when the brain’s ability to regulate hunger and fullness is impaired, it can lead to overeating.

Many people who struggle with obesity have an underlying genetic predisposition, meaning their genes and family history play a role in their likelihood of struggling with obesity. Research has shown that certain genes can affect metabolism, fat storage, and how the body responds to hunger and satiety signals. This means that for some individuals, even small amounts of excess calories can lead to significant weight gain, making obesity harder to control without medical intervention.

In addition to genetic factors, there are environmental and psychological contributors to obesity. Living in environments where unhealthy foods are more accessible and affordable than healthy options, or where physical activity is limited, can contribute to the development of obesity. African Americans specifically face unique challenges such as restricted access to healthy food options, lack of access to medication and insurance, and cultural body image preferences.

The Health Risks of Obesity

Obesity increases the risk of several serious health conditions, including heart disease, type 2 diabetes, stroke, and certain cancers. Additionally, it can lead to joint problems, sleep apnea, and fatty liver disease. These conditions often require long-term medical management and can reduce both life expectancy and quality of life.

Given the multiple health risks associated with obesity, it’s critical to approach it with the same seriousness as other chronic diseases. This means going beyond blaming a person’s behavior and instead recognizing the need for comprehensive treatment strategies, including medications, surgery, and psychological support.

The Role of Clinical Trials in Obesity Treatment

As our understanding of obesity as a chronic condition continues to expand, so does the potential for new treatments. Clinical trials play a pivotal role in advancing obesity care.

Mistrust in clinical trials in our communities stems from a history of unethical medical practices. This mistrust has led to skepticism about participating in clinical trials. However, trials are now highly monitored. Diversity in clinical trials is essential for developing treatments that work for everyone, especially the African American community which is often underrepresented in trials.

By participating in clinical trials, you may receive investigational treatments. While obesity is a complex disease with no simple solutions, clinical trials may offer hope. If you are living with obesity, consider learning more about clinical trials. Click here to learn more.

References:

OMH. Obesity and African Americans.

CDC. Adult Obesity Facts.

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Understanding Eczema: Breaking Down Barriers and Raising Awareness https://blackhealthmatters.com/understanding-eczema-breaking-down-barriers-and-raising-awareness/ Sat, 26 Oct 2024 17:19:37 +0000 https://blackhealthmatters.com/?p=44985 Eczema, or atopic dermatitis, is a chronic skin condition that causes dry, itchy, inflamed patches on the skin. Type 2 inflammation is a specific immune system response that plays a […]

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Eczema, or atopic dermatitis, is a chronic skin condition that causes dry, itchy, inflamed patches on the skin. Type 2 inflammation is a specific immune system response that plays a significant role in various chronic inflammatory diseases, including eczema. It is characterized by the overactivation of certain immune pathways that produce cytokines that lead to inflammation and disrupt skin and immune stability.

It affects millions of people globally, and African Americans are disproportionately affected by this condition. However, its impact on the Black community is often under-recognized due to unique challenges when it comes to diagnosis, treatment, and awareness. Understanding these barriers and raising awareness about eczema is crucial for better care and management of this condition.

Eczema in the Black Community: Why the Disparities?

Delayed Diagnosis

Eczema can look different on darker skin tones compared to lighter skin, which can delay diagnosis and treatment. For example, eczema often appears red and inflamed on light skin, but may look darker, ashy, or even purplish on darker skin. This difference in appearance can lead to misdiagnosis, underdiagnosis, or a lack of recognition of the condition’s severity. Showing images of how eczema looks on darker skin can make a significant difference in early diagnosis and treatment.

Click here to access examples of how eczema appears on various skin tones.

Access to Specialized Care

Studies suggest that Black individuals are less likely to receive adequate dermatological care. This disparity is partly due to systemic issues such as a lack of access to specialists, financial barriers, and racial bias in the healthcare system. Some healthcare providers may be less familiar with how eczema presents on darker skin, making it more difficult to properly diagnose and treat the condition.

Cultural Perceptions

In some Black communities, skin conditions like eczema may be misunderstood or stigmatized. Cultural myths, such as associating dry skin with poor hygiene or not moisturizing enough, can discourage people from seeking medical advice. As a result, many people may attempt to manage eczema at home using over-the-counter products or home remedies that don’t fully address the underlying causes and may make the condition worse.

The Importance of Representation in Dermatology

Eczema awareness campaigns and medical education often focus on how the condition presents in lighter skin tones. This lack of representation in educational materials and media leaves many people of color feeling excluded or unaware that they may have eczema.

Dermatology training must emphasize how skin conditions like eczema manifest in diverse populations. This helps ensure that healthcare providers receive adequate training on diagnosing and treating skin conditions in people of color.

Managing Eczema: What You Need to Know

Living with eczema can be challenging, especially for those who are unaware of the full range of treatment options available. Managing eczema requires a combination of medical care, self-care strategies, and ongoing awareness of potential triggers.

  • Treatments: Eczema treatments for some patients include topical corticosteroids, emollients, and antihistamines to manage symptoms. And in some cases, immunosuppressive drugs or biologics may also be recommended. It’s important to consult a dermatologist who is familiar with skin of color to receive tailored treatment options.
  • Moisturizing and Hydration: Maintaining skin hydration is essential for preventing flare-ups. Use thick moisturizers or ointments, particularly those formulated for sensitive skin. It’s important to moisturize regularly, especially after bathing, to lock in moisture and protect the skin barrier.
  • Avoiding Triggers: Eczema flare-ups can be triggered by various factors such as harsh soaps, fragrances, allergens, stress, and certain fabrics. Identifying and avoiding these triggers can help reduce flare-ups. It’s also helpful to keep a journal to track potential irritants and environmental factors.

Raising Awareness

By fostering better understanding, improving representation in healthcare, and creating resources specifically for Black individuals with eczema, we can promote better outcomes and improve the quality of life for those living with this condition.

Eczema is not just a cosmetic issue. It can significantly impact physical and emotional well-being. With increased awareness and better education, we can break down barriers and raise eczema awareness. Click here to learn more about eczema and get involved.

References:

NIH. Racial Disparities in Dermatology.

Asthma and Allergy Foundation of America. What is Type 2 Inflammation?

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Caring for a Child With Eczema: Practical Tips for Parents https://blackhealthmatters.com/caring-for-a-child-with-eczema-practical-tips-for-parents/ Tue, 22 Oct 2024 16:41:23 +0000 https://blackhealthmatters.com/?p=44964 Atopic dermatitis, the most common form of eczema, affects millions of children worldwide. As a parent, managing your child’s eczema can be an emotional and physical challenge, filled with countless […]

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Atopic dermatitis, the most common form of eczema, affects millions of children worldwide. As a parent, managing your child’s eczema can be an emotional and physical challenge, filled with countless questions. Eczema parent and National Eczema Association (NEA) ambassador Aisha Bryant shared, “As her mother who carried her for nine months, I blamed myself for not being able to protect her from it, and my husband blamed himself for her inheriting the condition that plagued his youth.” This sentiment captures the complex emotions many parents face.

While these feelings are natural, it’s important to remember that eczema is not your fault. Focusing on practical strategies can help you care for your child’s skin, manage their symptoms, and support their overall well-being.

Understanding Eczema in Children

Eczema causes dry, itchy, and inflamed patches of skin that can flare up due to various triggers, such as allergens, irritants, weather changes, and stress. In children, eczema often appears on the cheeks, scalp, arms, and legs but can occur anywhere on the body.

Because eczema is chronic, it requires consistent management rather than a one-time fix. For many parents, this journey can feel overwhelming. As Ms. Bryant puts it, “Being the parents of a child with eczema is an endless battle.” Yet, with the right approach, you can help your child live a comfortable, happy life.

Practical Tips for Parents: Managing Eczema

  1. Establish a Skincare Routine
    A daily skincare routine is the cornerstone of eczema management. Use gentle, fragrance-free cleansers and lukewarm water for baths, limiting them to 10–15 minutes. After bathing, pat your child’s skin dry and immediately apply a thick moisturizer or ointment to lock in hydration.
    Look for products labeled “hypoallergenic” or “for sensitive skin.” For severe dryness, consult your child’s doctor about using medicated creams or ointments.
  2. Avoid Triggers
    Identify and minimize your child’s exposure to eczema triggers. Common triggers include:

    • Harsh Soaps and Detergents: Use mild, fragrance-free laundry detergents and avoid fabric softeners.
    • Environmental Allergens: Keep your home clean and dust-free. Use air purifiers if needed.
    • Clothing: Choose soft, breathable fabrics like cotton, and avoid wool or synthetic materials that can irritate the skin.
  3. Control Itching
    Itching is one of eczema’s most challenging symptoms. To help your child avoid scratching:

    • Keep their nails trimmed short to prevent skin damage.
    • Apply cold compresses to itchy areas for immediate relief.
  4. Work Closely With Your Doctor
    Regular visits to a pediatrician or dermatologist are essential. They can help adjust treatments based on your child’s needs and recommend medications like topical steroids or newer options, such as biologics, for more severe cases.
    Don’t hesitate to seek a second opinion if you feel your child’s condition isn’t being adequately addressed.
  5. Support Your Child Emotionally
    Eczema can affect more than just your child’s skin; it can impact their self-esteem and social interactions. Reassure them that eczema is a common condition and not something to be ashamed of.

Caring for Yourself as a Caregiver

Caring for a child with eczema is a battle that you don’t have to fight alone. By establishing a consistent skincare routine, managing triggers, and staying informed, you can help your child lead a more comfortable life. Support groups and organizations like the National Eczema Association (NEA) can provide resources and connect you with other parents facing similar challenges. Click here to learn more.

References:

National Eczema Association

Global Parents for Eczema Research

Pediatric Dermatology Research Alliance

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Understanding APOL1-mediated Kidney Disease (AMKD): What You Need to Know https://blackhealthmatters.com/understanding-apol1-chronic-kidney-disease-what-you-need-to-know/ Sun, 20 Oct 2024 15:21:19 +0000 https://blackhealthmatters.com/?p=44927 Chronic kidney disease (CKD) is a long-term condition where the kidneys gradually lose their ability to filter waste and extra fluids from the blood. For some, this decline in kidney […]

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Chronic kidney disease (CKD) is a long-term condition where the kidneys gradually lose their ability to filter waste and extra fluids from the blood. For some, this decline in kidney function is associated with genetic factors. One genetic link that has been identified in recent years is a variation of the APOL1 gene, commonly found in people of African descent. It can increase the risk of developing a form of CKD known as APOL1-associated nephropathy, or APOL1-mediated kidney disease (AMKD).

If you have been diagnosed with AMKD or suspect that it might be a factor in your kidney disease, understanding the condition, its risks, and the potential benefits of clinical research can empower you to make informed decisions about your health.

What is APOL1-mediated Kidney Disease (AMKD)?

The APOL1 gene is involved in the body’s immune system. Some people in certain populations, such as those of African, Caribbean, or Latin American descent may carry specific variants (G1 and G2) of the APOL1 gene that can increase their risk of kidney disease. Carrying two copies of variants has been associated with potential for significantly increased risk of developing CKD.

Not everyone with APOL1 gene variants will develop kidney disease.  For those who do develop the disease, it can progress more rapidly and have a higher risk of kidney failure. This makes early intervention and management important.

Symptoms of AMKD

Like other forms of CKD, AMKD may not cause symptoms in its early stages. As kidney function worsens, symptoms may include:

  • Fatigue or weakness
  • Swelling (especially in the legs and feet) caused by fluid buildup
  • Loss of appetite, nausea, or vomiting
  • Difficulty concentrating
  • High blood pressure that may be hard to control

Since many of these symptoms can overlap with other health conditions, it’s important to work with a healthcare provider to confirm an AMKD diagnosis, particularly if you are of African descent and have a family history of kidney disease.

Diagnosing AMKD

Diagnosing AMKD typically involves blood and urine tests to assess kidney function, as well as genetic testing to determine whether you carry high-risk APOL1 gene variants. If you are diagnosed with AMKD, your doctor may recommend lifestyle changes, medications, or other treatments to help manage the condition and delay kidney damage.

Why Participate in a Clinical Trial?

Clinical trials play a crucial role in discovering new treatments and improving our understanding of diseases. They allow researchers to test investigational therapies and study their effects on different populations. They offer access to investigational treatments before they become widely available.

Participating in a clinical trial gives you a chance to contribute to medical research that could benefit others living with AMKD in the future.

The AMPLITUDE Clinical Research Study

The AMPLITUDE study is a clinical research study specifically designed to study investigational treatment for AMKD. By participating, you could help researchers gain valuable insights into how to manage and potentially treat AMKD more effectively.

The study is currently enrolling adults ages 18-65 who meet certain criteria and are interested in taking part in AMKD research. Those who qualify will receive study-related care from a dedicated research team and have access to study-related medical assessments and investigational treatment.

How to Get Involved

If you or someone you know is living with AMKD, consider learning more about the AMPLITUDE study. Participating in a clinical trial provides a chance to make a difference in the future of kidney disease treatment.

Visit here to determine if the study may be a good fit for you. Taking this step contributes to a better understanding of AMKD for others.

Join the AMPLITUDE study today and take a proactive step in managing your AMKD.

References

American Kidney Fund. APOL-1 Mediated Kidney Disease
American Association of Kidney Patients. APOL 1 Gene
National Kidney Foundation. APOL1-Mediated Kidney Disease (AMKD)
Neph Cure for Rare Kidney Disease. APOL1 Kidney Disease

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Understanding APOL1-mediated Kidney Disease (AMKD) in Children: A Guide for Caregivers https://blackhealthmatters.com/understanding-apol1-ckd-in-children-a-guide-for-caregivers/ Sun, 20 Oct 2024 15:07:57 +0000 https://blackhealthmatters.com/?p=44924 Caring for a child with chronic kidney disease (CKD) can be challenging. When genetics are involved, it can bring unique concerns. One form of CKD is linked to a specific […]

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Caring for a child with chronic kidney disease (CKD) can be challenging. When genetics are involved, it can bring unique concerns. One form of CKD is linked to a specific genetic variation known as APOL1-mediated kidney disease (AMKD). This condition mostly affects people of African, Caribbean, and Latin American descent. Understanding (AMKD), especially in children, can empower caregivers to make informed decisions and explore opportunities, such as clinical trials, for their child’s treatment and future health.

What is APOL1-mediated Kidney Disease (AMKD)?

The APOL1 gene helps the body fight certain infections, but some variants (G1 and G2) of this gene are associated with a higher risk of kidney disease. These variants are more common in people of African descent. Carrying one or both of these variants can increase a person’s risk of developing kidney disease, especially if they carry two variants.

While many people with APOL1 variants will never experience kidney disease, those who do may face a more aggressive form that can progress faster than other types of CKD. This is especially concerning in children, as AMKD can have a lasting impact on their growth, development, and quality of life.

Recognizing AMKD Symptoms in Children

CKD in children may not show symptoms in the early stages, making it challenging to recognize. Symptoms of more advanced CKD in children may include:

  • Fatigue and weakness: Reduced kidney function can cause anemia, making children feel more tired than usual.
  • Swelling: Fluid buildup may lead to swelling, especially in the legs, feet, or face.
  • Loss of appetite: Kidney issues can impact digestion, causing a child to eat less or complain of nausea.
  • Slowed growth: CKD can interfere with growth and bone development in children.
  • High blood pressure: This can develop early in AMKD, sometimes before any other symptoms appear.

It’s important for caregivers to monitor their child’s health and consult their doctor if these symptoms arise, especially if there is a family history of kidney disease.

How is AMKD Diagnosed in Children?

If a child is suspected of having CKD, doctors typically start with blood and urine tests to assess kidney function. To determine if APOL1 gene variants are present, a genetic test may be performed. Knowing whether a child has AMKD can help caregivers and healthcare providers make informed decisions about treatment and lifestyle adjustments to slow disease progression.

Managing AMKD in Children

Once a child is diagnosed with AMKD, a healthcare provider may recommend various strategies, including:

  • Dietary adjustments: Reducing sodium, protein, and potassium in the diet can help ease the kidneys’ workload.
  • Medications: Blood pressure medications and other supportive treatments can slow CKD progression and relieve symptoms.
  • Regular monitoring: Frequent check-ups allow doctors to keep an eye on kidney function and address changes early.

Management is tailored to each child’s specific needs, with an emphasis on promoting growth and overall well-being.

Exploring Clinical Trials as an Option

When it comes to rare and genetically linked conditions like AMKD, clinical trials can be a valuable option. Clinical trials allow researchers to test investigational treatments.

Participating in a clinical trial may benefit children and their families in multiple ways:

  • Access to specialized study-related care: Clinical trials often offer support and resources.
  • Contribution to future treatments: Families who take part in research play a crucial role in advancing science for future generations affected by AMKD.

The AMPLITUDE Clinical Research Study: A Unique Option for Children with AMKD

The AMPLITUDE clinical research study is designed to explore an investigational treatment specifically for APOL1-mediated chronic kidney disease. This study aims to provide insights into better ways of managing and potentially treating this genetic form of CKD. Caregivers who choose to enroll their child in the AMPLITUDE study will receive study-related medical assessments, monitoring, and treatments.

How Caregivers Can Get Involved

If you are caring for a child with AMKD, consider the AMPLITUDE clinical research study. Talk to your child’s healthcare provider about the study or click here to learn more.

Help contribute to the advancement of AMKD care by considering participation in the AMPLITUDE study today.

References

American Kidney Fund. APOL-1 Mediated Kidney Disease
American Association of Kidney Patients. APOL 1 Gene
National Kidney Foundation. APOL1-Mediated Kidney Disease (AMKD)
Neph Cure for Rare Kidney Disease. APOL1 Kidney Disease

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