{"id":30446,"date":"2022-02-22T02:32:00","date_gmt":"2022-02-22T02:32:00","guid":{"rendered":"https:\/\/blackhealthmatters.com\/?p=28582"},"modified":"2025-02-11T15:50:46","modified_gmt":"2025-02-11T20:50:46","slug":"together-we-can-increasing-diversity-in-clinical-trials","status":"publish","type":"post","link":"https:\/\/blackhealthmatters.com\/together-we-can-increasing-diversity-in-clinical-trials\/","title":{"rendered":"Together We Can: Increasing Diversity in Clinical Trials"},"content":{"rendered":"\r\n<p>As Black History Month has drawn to a close, it\u2019s important to remember that disparities in healthcare facing Black Americans have been and remain a 24\/7 reality. The pandemic has brought inequities in care to the forefront of conversation, and as patients increasingly make their voices heard, it\u2019s more important than ever to ensure their needs and concerns are addressed. Solutions must begin where all treatments do\u2014clinical research.<\/p>\r\n\r\n\r\n\r\n<p>Factors such as gender, race, ethnicity, age, or lifestyle can cause disease to affect people in different ways. These factors may also play a role in determining if a medicine is safe and effective for use in different groups. For this reason, a diverse group of people should be represented in clinical research to help evaluate if investigational medications are safe and effective for the people that they are intended to help.<\/p>\r\n\r\n\r\n\r\n<p>However, many clinical trials today are made up of as much as 80% White participants, and do not include enough people of different genders, ages, races, and ethnicities. Black people and other people of color are often not represented. We know that medical care must be tailored to all who need it, or people will be left behind, and creating more inclusive clinical trials is a critical first step.<\/p>\r\n\r\n\r\n\r\n<p>To help address this need, in partnership with the Janssen Pharmaceutical Companies of Johnson &amp; Johnson, Black Health Matters recently held the \u201cTogether We Can: Increasing Diversity in Clinical Trials\u201d event, the first in a series of community conversations with Janssen around the importance of representation in research . The series is one of the latest activations in Janssen\u2019s <a href=\"https:\/\/www.researchincludesme.com\/\" target=\"_blank\" rel=\"noreferrer noopener\">Research Includes Me<\/a> campaign, spearheaded by the Janssen Diversity, Equity and Inclusion in Clinical Trials (DEICT) team.<\/p>\r\n\r\n\r\n\r\n<p>Leading the conversation was Janssen DEICT\u2019s <a href=\"https:\/\/www.linkedin.com\/in\/ramona-burress-75b85692\/\" target=\"_blank\" rel=\"noreferrer noopener\">Ramona Burress<\/a>, Associate Director, Diversity &amp; Inclusion in Clinical Trials. She was joined by a panel of subject matter experts, including: <a href=\"https:\/\/www.linkedin.com\/in\/jaszianne-tolbert-46104970\/\" target=\"_blank\" rel=\"noreferrer noopener\">Jaszianne Tolbert, MD<\/a>, Janssen\u2019s Senior Director, Oncology Clinical Development; <a href=\"https:\/\/www.linkedin.com\/in\/ginaevansmph\/\" target=\"_blank\" rel=\"noreferrer noopener\">Gina Lamar Evans, MPH<\/a>, Founder and CEO of <a href=\"https:\/\/nefuse.com\/\" target=\"_blank\" rel=\"noreferrer noopener\">NEFUSE Case Management and Training Services<\/a>; and <a href=\"https:\/\/www.linkedin.com\/in\/nabilah-talib-m-ed-47231550\/\" target=\"_blank\" rel=\"noreferrer noopener\">Nabilah Talib, M.Ed.<\/a>, Director of Education &amp; Training at <a href=\"https:\/\/www.linkedin.com\/company\/57569\/?lipi=urn%3Ali%3Apage%3Ad_flagship3_profile_view_base%3B31PbpBfnQ3e43pdf%2B8z%2F%2Fg%3D%3D\" target=\"_blank\" rel=\"noreferrer noopener\">YWCA Metropolitan Chicago<\/a>.<\/p>\r\n\r\n\r\n\r\n<p>The live session sought to provide\u2014and spark\u2014dialogue at the community level to show why increased diversity in clinical trials is so vital. The group\u2019s discussion addressed such questions as:<\/p>\r\n\r\n\r\n\r\n<ul class=\"wp-block-list\">\r\n<li>Why is clinical research important?<\/li>\r\n<li>In what way can we use our voice to overcome the real, valid concerns people have about research and past mistreatment of clinical trial participants?<\/li>\r\n<li>How can we be an advocate for clinical research with our families, friends and loved ones? \u00a0<\/li>\r\n<\/ul>\r\n\r\n\r\n\r\n<p>The participants reinforced the importance behind open and honest conversations like these as a first step in improving health equity for underserved communities. That is why Janssen DEICT is steadfastly working to better acknowledge, recognize and address the challenges preventing clinical trial participation for these populations around the world, who face a variety of barriers that impact clinical trial enrollment\u2014such as fear and mistrust, lack of awareness and logistical challenges.<\/p>\r\n\r\n\r\n\r\n<p>To do that, Janssen DEICT has established several practices for engagement, including:<\/p>\r\n\r\n\r\n\r\n<ul class=\"wp-block-list\">\r\n<li>Working with organizations at the community level to educate people on the clinical trial process and build trust in research.<\/li>\r\n<li>Providing educational materials to underrepresented communities, including the <a href=\"https:\/\/www.researchincludesme.com\/\" target=\"_blank\" rel=\"noreferrer noopener\">Research Includes Me campaign and website<\/a>, that are customized to address their specific needs and help them make an informed decision about their participation.<\/li>\r\n<li>Identifying opportunities to reduce barriers to participation that communities may be facing and implementing tactics to overcome them and make clinical trial participation easier.<\/li>\r\n<\/ul>\r\n\r\n\r\n\r\n<p>Janssen is working to shape the future of clinical trials by ensuring trials are more diverse, inclusive, and equitable, including for those in historically marginalized communities. This can only be achieved with transparency, commitment, and accountability. Watch the following video and visit <a href=\"http:\/\/www.researchincludesme.com\" target=\"_blank\" rel=\"noreferrer noopener\">www.researchincludesme.com<\/a> to learn more about the clinical trials process and what you can do to help contribute to increased representation and medical breakthroughs for <em>ALL<\/em>.<\/p>\r\n\r\n\r\n\r\n<p>This article is brought to you by <a href=\"https:\/\/www.janssen.com\/\">Janssen<\/a>.<\/p>\r\n\r\n\r\n\r\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\">\r\n<div class=\"wp-block-embed__wrapper\">https:\/\/www.youtube.com\/watch?v=5FtmumoiM8w&amp;t=19s<\/div>\r\n<\/figure>\r\n","protected":false},"excerpt":{"rendered":"<p>As Black History Month has drawn to a close, it\u2019s important to remember that disparities in healthcare facing Black Americans have been and remain a 24\/7 reality. The pandemic has [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":30802,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5361,1957],"tags":[147],"class_list":["post-30446","post","type-post","status-publish","format-standard","has-post-thumbnail","category-clinical-trials","category-health","tag-clinical-trials"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v26.9 (Yoast SEO v26.9) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Together We Can: Increasing Diversity in Clinical Trials - Black Health Matters<\/title>\n<meta name=\"description\" content=\"Many clinical trials today are made up of as much as 80% White participants, and do not include enough people of different genders, ages, races, and ethnicities.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" 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